ROLL CALL 2015 (ENROLLMENT, CHECKING-IN, STATUS UPDATE) CLOSED 8-15-15
In Memory of HAWVET (Johnny) who began the ROLL CALL thread with this post:
8-5-2008 12:32AM
I sometimes wonder who visits this Head and Neck Cancer area. I thought I would get a count. Probably, not everyone will sign up. If you do, please complete the following:
Forum Name, Type of Cancer, Year, and Home State
I will start.
HAWVET,Nasopharyngeal, 1998, Hawaii
Mahalo (Thank you)
HAWVET
With the help of Skiffin I hope to continue the ROLL CALL for 2015. This initial posting will be for enrollment, checking in and status. Additionally, any brief comment is welcome and will be included in your profile. Maybe it could be a word of wisdom or a tip or trick you learned from treatment.
Sometime around mid-August this thread will be closed and a updated ROLL CALL 2015 will take its place.
As before, only those who are enrolled will be included in the roll call. Inclusion in this list is completely voluntary and for the enjoyment and information it provides to all Head & Neck members. Any revisions or correction you see needed please bring to my attention, preferably through Private Messaging.
Without further ado let’s get started!
Comments
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Me
Tracy Lynn, near Charlotte, NC Joined 2013
Mucoepidermoid Carcinoma T2N0M0 removed large tumor that had broken through my lower, left jaw. Lost 1/4 of jaw and teeth, radical neck dissection, 30 rads, PEG
2 years cancer free as of 6.21.15
The people on this wonderful site were my life line, and have now become my family. Love you all.
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WMC Bill
I joined Jan 11th 2014
Larnyx cancer just above vocal cords T3,N0,Mo Had my larynx remover and 86 lymph glands modified radial neck dissection on both sides. Never had chemo or Radiation just the surgery from ear to ear. I have been NED the day they did the surgery.
This site and all the ones on here helped me get through some dark times as I accepted breathing through my neck. We're like an extended family. What have I learned the most; Keep hydrated, Never give up, Live your "new Life", and help all the new ones going through this, and honor all the ones we lost. I'm now 21 months and still NED
Bill
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HWT Candiwmc said:WMC Bill
I joined Jan 11th 2014
Larnyx cancer just above vocal cords T3,N0,Mo Had my larynx remover and 86 lymph glands modified radial neck dissection on both sides. Never had chemo or Radiation just the surgery from ear to ear. I have been NED the day they did the surgery.
This site and all the ones on here helped me get through some dark times as I accepted breathing through my neck. We're like an extended family. What have I learned the most; Keep hydrated, Never give up, Live your "new Life", and help all the new ones going through this, and honor all the ones we lost. I'm now 21 months and still NED
Bill
Dx 01/2011 cancer of lower left mandible with positive lymph nodes. Surgery, rads, Cisplatin. Recurrances 02/2013 around left carotid and 04/2014 around right carotid. Treated for both with SBRT at Mayo Clinic and additional chemo Taxol/Erbitux in St Louis. )9/2014 the titanium placed in 2011 had to come out and 02/2015 the fibula put in in 2011 had to come out. Resulting fistula has not healed yet. Surgery to rough up and hopefully will close yet to be scheduled. My husband, my love and caregiver, had a stroke 10/2014 and passed away May 2015 so it has been difficult to regain strength. My last scan was clean and I am due for another. Still fighting the fight with love and support of family. Have received great support here at CSN.
Candi
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Wolfenlornal said:Lornal
Lornal/tonsil - 2007, hypopharnx - 2014/St. Louis MO
Wolfen(Karen) - Joined 2009 - Scottsdale, Az.
Caregiver to spouse Ron diagnosed with BOT, Nasopharyngeal, Left Lung - 2012
Caregiver and Mother to Johnnybegood(Debbie) diagnosed with Colon - 2008
Both fought a brave batlle. Ron lost his battle May 2013 . Debbie lost her battle July 2014.
Time marches on with the love of my CSN family.
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rush1958 - Rush
rush1958
Squamous Cell Carcinoma, Base of Tongue - (HPV-: tonsillectomy and biopsy 3/12/10, Neck Dissection, 2/41 lymph nodes removed left side were positive on 4/3/10. T1N3M0. Completed 33 radiation treatments on 6/23/10, 3 rounds of chemo (Cisplatin) completed on 6/14/10.)
2010
Kansas
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Wow what a wonderful way to remember Johnny:
Tim “Hondo”
Lafayette Louisiana
2002: First treatment for NPC Did just radiation 180 rad once a day
2004: Recurring NPC in the same place Did 120 rad twice a day and Chemo
2006: Recurring NPC again same area, was giving 6 to 12 mounts to live
2015: Still alive no sign of recurring NPC, living with some very bad radiation side effects and Norcoses to the soft palate, but still alive and thanking God for everyday one day at a time.
On Vacation in the tropical Island of Utila Honduras
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KTeacher
KTeacher, I have been fighting squamous cell carcinoma since August, 2010. I live in the Central Valley, California. Most recently I was on Taxol for palliative care, it has stopped working. I will see my doctor at Stanford at the end of the month to see what can be done next.
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Still hereHondo said:Wow what a wonderful way to remember Johnny:
Tim “Hondo”
Lafayette Louisiana
2002: First treatment for NPC Did just radiation 180 rad once a day
2004: Recurring NPC in the same place Did 120 rad twice a day and Chemo
2006: Recurring NPC again same area, was giving 6 to 12 mounts to live
2015: Still alive no sign of recurring NPC, living with some very bad radiation side effects and Norcoses to the soft palate, but still alive and thanking God for everyday one day at a time.
On Vacation in the tropical Island of Utila Honduras
Kent Cass
Quad Cities, Illinois
DX: 11/2008 Stage-3 NPC
Treatment 2/09-4/09 Concurrent Cisplatin and 5-FU, carrying 2 bags&pumps twice for 96 hours weeks 1 and 4. 6800 rads in a total of 20 places/session, though missed weeks 5 and 6 (was in the hospital for 4 nights). 31 full rad sessions, and the last 4 in only 5 places.
Over $11K in Dental bills since tx, with 2 root canals and 3 new Crowns, and tops of 10 teeth keep getting rebuilt
Returned to work a month after the last rad, and still working as an Inspector at a progressive metalworking factory.
Believe
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Joined April, 2012.KTeacher said:KTeacher
KTeacher, I have been fighting squamous cell carcinoma since August, 2010. I live in the Central Valley, California. Most recently I was on Taxol for palliative care, it has stopped working. I will see my doctor at Stanford at the end of the month to see what can be done next.
Joined April, 2012. Terrified and not knowing the future. This board has helped tremendously. I don't contribute much since my DX was Stage 1 and the treatment so much less invasive that most but I read almost daily! So far I'm NED and a thankful person!! Rooting for all of us!!!
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bill lusk right tonsel
bill lusk right tonsel 2011 north carolina ( wild Willy )
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Checking in...
Diagnosed August 2012 stage 4A SCC Rt tonsil, lymph nodes and left tonsil. Chemo and Radiation. Actually feeling /doing well although have not been able to see a doctor for quite some time, after losing insurance. I still have difficulties swallowing, and assume I always will, but with the help of milk, I can eat just about anything I put my mind to, and my taste buds are back to near normal, or new normal. Had significant hearing loss and tinnitus, from Cisplaitin, still do. Took on a new career as an over the road long haul truck driver, and have enjoyed seeing family and friends, old and new places. I drive with my dog Charlie, and if you are inclined to follow our adventures, he has his own facebook page...search for Charlie the truck driving dog....I don't come here as often as I used to, and I lurk more than post, but have great appriciation for those who still provide support for the newbies...I treasure all of my CSN friends, and pray for all those afflicted by this beast....May god bless us all.
Jim
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Still Alive and Well!
"T" (Mark) Shenandoah Valley, Virginia.
Diagnosed Nov 2012 - SCC Tx N2b Stage IV HPV+
Selective neck dissection - 23 nodes removed two cancerous - 6 weeks chemo 30 rads. Treated at Johns Hopkins Feb - April 2013
2 years post April 24th - Still NED
Positive thoughts and prayers
"T"
0
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