Off for a scan in Baltimore

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  • I am alive
    I am alive Member Posts: 315
    #22
    Bummer, Stomp. But only a bit

    Bummer, Stomp. But only a bit bigger, right? That's good - we always grab onto the good and focus on that! How do you feel, day to day? Can you get around and do what you want to do? In any pain? Here's hoping Inlyta does the trick. Do you have any activity or trips planned? Looking ahead to doing something pleasant & fun keeps me from dwelling too much on my RCC situation. It's a good strategy. That and going outdoors in the sun - in your case, sipping an ice-cold beer in the sunshine!

  • foxhd
    foxhd Member Posts: 3,181 Member
    #23
    I am alive said:

    Bummer, Stomp. But only a bit

    Bummer, Stomp. But only a bit bigger, right? That's good - we always grab onto the good and focus on that! How do you feel, day to day? Can you get around and do what you want to do? In any pain? Here's hoping Inlyta does the trick. Do you have any activity or trips planned? Looking ahead to doing something pleasant & fun keeps me from dwelling too much on my RCC situation. It's a good strategy. That and going outdoors in the sun - in your case, sipping an ice-cold beer in the sunshine!

    Footstomper

    Sometimes it takes a few tries to find what works. Keep the faith. They will take care of you.

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #24
    foxhd said:

    Footstomper

    Sometimes it takes a few tries to find what works. Keep the faith. They will take care of you.

    A tip of the hat

    And I'm following your trail. What could go wrong? Sometimes it just makes me angry. And then I get up the next day and get on with it. I will however own my anger.

  • Timbomba
    Timbomba Member Posts: 48
    #25
    How did you go Hammer !!

    Did you kick it guv....hope you are well

    Tim

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #26
    Timbomba said:

    How did you go Hammer !!

    Did you kick it guv....hope you are well

    Tim

    Tim

    New drug, no massive side effects. So no probs! I see the doc again on 26th May.

  • Timbomba
    Timbomba Member Posts: 48
    #27
    Footstomper said:

    Tim

    New drug, no massive side effects. So no probs! I see the doc again on 26th May.

    Hey Stomper

    Sorry mate for some reason didnt see the posts re your scan results....and have just read through. A bit bigger eh....bugger....you deserve good news, hang in there mate keep up that positive attitude that gives everyone on here a boost. Enjoy those beers today and look forward to the one you will enjoy tomorrow. I picked that up from someone who inspired me on here :) Take care Hammer.

    Tim

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #28
    Timbomba said:

    Hey Stomper

    Sorry mate for some reason didnt see the posts re your scan results....and have just read through. A bit bigger eh....bugger....you deserve good news, hang in there mate keep up that positive attitude that gives everyone on here a boost. Enjoy those beers today and look forward to the one you will enjoy tomorrow. I picked that up from someone who inspired me on here :) Take care Hammer.

    Tim

    Cheers mate

    I aint died today. Dont intend to die tomorrow. Actually no intention of dying at all

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #29
    Footstomper said:

    Cheers mate

    I aint died today. Dont intend to die tomorrow. Actually no intention of dying at all

    Back to Baltimore tomorrow

    I do not know what Inlyta is doing to the cancer but its kicking my butt. Diarrhea (but not as violent as Sutent) and constant nausea are doing my brian in. I'm hoping the oncologist has got some solutions.

    If anyone has any ideas, let me know

  • NanoSecond
    NanoSecond Member Posts: 653
    #30
    Footstomper said:

    Back to Baltimore tomorrow

    I do not know what Inlyta is doing to the cancer but its kicking my butt. Diarrhea (but not as violent as Sutent) and constant nausea are doing my brian in. I'm hoping the oncologist has got some solutions.

    If anyone has any ideas, let me know

    Nausea

    There are several prescription drugs for nausea.  Are you taking any?

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #31
    NanoSecond said:

    Nausea

    There are several prescription drugs for nausea.  Are you taking any?

    Great to hear from you

    This started last wednesday,  just after I smugly boasted my lack of side effects. Ive also developed a pain in my side and lower back.I will be seeing my onc tomorrow so I'm hoping he can fix it. Hope youre doing OK

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #32
    Good luck tomorrow, Stomps! I

    Good luck tomorrow, Stomps! I was hoping these ones wouldn't have that effect on you.

    Neil, I hope you are doing okay. Thinking about you a lot.

    Hugs,

    Jojo

  • NanoSecond
    NanoSecond Member Posts: 653
    #33
    Footstomper said:

    Great to hear from you

    This started last wednesday,  just after I smugly boasted my lack of side effects. Ive also developed a pain in my side and lower back.I will be seeing my onc tomorrow so I'm hoping he can fix it. Hope youre doing OK

    Pain management

    Thank you Footstomper (and JoJo).

    I have no doubt your onc can suggest some drugs that should help.

    JoJo - my next CT-scan is this Thursday.  For the pain and discomfort I have been experiencing I switched to Fentanyl 3-day patch.  It works great the first day (today) but, for me at least, it wears off before the 72 hours is up.  Very frustrating.  When it wears off I become extremely fatigued.

    Best wishes,

     

    -Neil

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #34
    Jojo61 said:

    Good luck tomorrow, Stomps! I

    Good luck tomorrow, Stomps! I was hoping these ones wouldn't have that effect on you.

    Neil, I hope you are doing okay. Thinking about you a lot.

    Hugs,

    Jojo

    Yippee

    Docs prescribed me Zofran which seems to stop the nausea.

    Neil, I appreciate you posting. I know its an effort for you right now but its good to hear from you

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #35
    Footstomper said:

    Yippee

    Docs prescribed me Zofran which seems to stop the nausea.

    Neil, I appreciate you posting. I know its an effort for you right now but its good to hear from you

    Hey buddy, I thought I

    Hey buddy, I thought I answered this post..know I was reading responses too..duh! Dbl Duh!!

    Sorry for the side effects. Have you received help for those effects?

    You are in my thoughts and prayers for better days.

    Great attitude..but still ENUFF!!

    Hugs, Jan

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #36
    NanoSecond said:

    Pain management

    Thank you Footstomper (and JoJo).

    I have no doubt your onc can suggest some drugs that should help.

    JoJo - my next CT-scan is this Thursday.  For the pain and discomfort I have been experiencing I switched to Fentanyl 3-day patch.  It works great the first day (today) but, for me at least, it wears off before the 72 hours is up.  Very frustrating.  When it wears off I become extremely fatigued.

    Best wishes,

     

    -Neil

    CT scan

    Good luck. And Good luck with the pain management. I confess that when I was in hospital with the IL2 treatment I really came to appreciate morphine. Ill never forget the nurse who had just got back from Afghanistan (and needed some civilian experience or qualification - I dont know what). He introduced himself by asking my pain leveland saying "Oh, if you say five or more you can have morphine" Definately 6 then.

    And all the pain goes away

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #37
    Jan4you said:

    Hey buddy, I thought I

    Hey buddy, I thought I answered this post..know I was reading responses too..duh! Dbl Duh!!

    Sorry for the side effects. Have you received help for those effects?

    You are in my thoughts and prayers for better days.

    Great attitude..but still ENUFF!!

    Hugs, Jan

    Side effects

    The nausea makes me a somewhat less than happy bunny. Hopefully the zoloft will deal with that! A nauseus, short tempered teacher and a room full of self righteous 10th grade homone monsters does not a happy combination make.

  • marosa
    marosa Member Posts: 334 Member
    #38
    Footstomper said:

    Side effects

    The nausea makes me a somewhat less than happy bunny. Hopefully the zoloft will deal with that! A nauseus, short tempered teacher and a room full of self righteous 10th grade homone monsters does not a happy combination make.

    Came by to see how it went for you today

    So glad the Dr. could provide you with a medicine that will help take that nausea away.  Hope you feel much better Footstomper, you are one of the braves ones and your sense of humor is a blessing that helps so very much to chase away the fears and the sad long faces!

    Do I remember correctly you mentioned being a scotsman?  My mom's dad was from Scotland so I too must have a little of that scottish blood running in my veins.  Cheers!  

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #39
    marosa said:

    Came by to see how it went for you today

    So glad the Dr. could provide you with a medicine that will help take that nausea away.  Hope you feel much better Footstomper, you are one of the braves ones and your sense of humor is a blessing that helps so very much to chase away the fears and the sad long faces!

    Do I remember correctly you mentioned being a scotsman?  My mom's dad was from Scotland so I too must have a little of that scottish blood running in my veins.  Cheers!  

    Scotsman???

    English through and through.

    Just think of me as **** van Dike from Mary Poppins ( with a slightly better accent).

     

    Actually probably best not to, but you get the idea

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