full plate over the next few weeks. UPDATE!!!!!!!!!!!

janderson1964
janderson1964 Member Posts: 2,215 Member
edited October 2014 in Colorectal Cancer #1

I have a scan on 10/7.

I fly to Houston on 10/9.

See Dr. Suddiah about clinical trials at MD Anderson on 10/10.

See dr. Valez -Sanchez a gi specialist at MD Anderson on 10/13.

Get results back from genomic testing done in Mass. On 10/14.

See Dr. Conrad a radical liver surgeon at MD Anderson on 10/15.

I appealed to the state for SBRT.

I will set an appointment with Dr. Fred Moeslein in Baltimore about Nanoknife towards the end of the month.

Lots to think about after all of that. Gotta keep fighting. Best scenario is that the scan shows significant shrinkage on the liver tumor from y90.

«13

Comments

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #2
    Wow, Jeff...

    you really are amazing!  If sheer grit can win the battle, I would say you've already won.

    btw, I was reading something about the HAI pump recently...is that one you've looked in to?

  • YoVita
    YoVita Member Posts: 590 Member
    #3
    Hope for good results for you from scan

    Good luck with your plan.

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #4
    Dear Jeff,

    Yes, that is a lot, but this is the only life we got. I wish you the strength to go on and certainly the best of luck to succeed.

    Laz

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #5
    lp1964 said:

    Dear Jeff,

    Yes, that is a lot, but this is the only life we got. I wish you the strength to go on and certainly the best of luck to succeed.

    Laz

    Keeping busy!!!

    That's probably a good thing. I will keep you in my prayers and wish for the best. 

     

    Yolanda

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    #6
    WOW What A Schedule

    Jeff,

    What a warrior you are to take on this grueiing schedule....

    If anyone can do it and make good of it you can for sure.

    Let us know how this all works out for you.

    Best wishes,

    Art

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #7
    fatbob2010 said:

    WOW What A Schedule

    Jeff,

    What a warrior you are to take on this grueiing schedule....

    If anyone can do it and make good of it you can for sure.

    Let us know how this all works out for you.

    Best wishes,

    Art

    Jeff,  I have nothing but

    Jeff,  I have nothing but admiration for you!  You have taught me a lot about perseverance. I will be praying for a good outcome and plenty of options.  We're scan buddies...mine is the 6th. 

    Go Jeff!!!

    CM

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #8
    annalexandria said:

    Wow, Jeff...

    you really are amazing!  If sheer grit can win the battle, I would say you've already won.

    btw, I was reading something about the HAI pump recently...is that one you've looked in to?

    I have looked into it and

    I have looked into it and will keep it in my back pocket for now. Thanks for asking.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #9
    Busy

    Sounds like you are going to be very busy.  You are fortunate though that you can get all this accomplished within a short amount of time.  It's too hard on someone when they are waiting weeks in between appointments.  Good luck with your scan.  Praying that it shows improvement.  Keep taking deep breaths to get you through all this.  Looks very overwhelming schedule so I'm wishing all of it goes well for you.

    Kim

  • Easyflip
    Easyflip Member Posts: 588 Member
    #10
    Impressive!
    My chemo brain has a hard time remembering all the abbreviations! Good luck with your scan and your fight with the insurance company, it's a shame we have to do this while we're fighting for our lives and feeling sick. Oh well, the new normal.
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #11
    Annabelle41415 said:

    Busy

    Sounds like you are going to be very busy.  You are fortunate though that you can get all this accomplished within a short amount of time.  It's too hard on someone when they are waiting weeks in between appointments.  Good luck with your scan.  Praying that it shows improvement.  Keep taking deep breaths to get you through all this.  Looks very overwhelming schedule so I'm wishing all of it goes well for you.

    Kim

    I have 3 days in between

    I have 3 days in between appointments to vacation a little. I am thinking about renting a mountain bike one day and a Harley on another day.

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #12
    Keep fighting!

    You're going to win this battle! I'm glad you were able to schedule all of this so quickly. Best wishes.

    Lin

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #13
    UncleBuddy said:

    Keep fighting!

    You're going to win this battle! I'm glad you were able to schedule all of this so quickly. Best wishes.

    Lin

    Thanks for the kind and

    Thanks for the kind and encouraging words Lin.

  • Nana b
    Nana b Member Posts: 3,030 Member
    #14
    janderson1964 said:

    I have 3 days in between

    I have 3 days in between appointments to vacation a little. I am thinking about renting a mountain bike one day and a Harley on another day.

    Hang in there and I haven't

    Hang in there and I haven't forgotten you, well I did forget....but suddenly remembered. :). 

     

    Take care. 

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #15
    I just found out that Dr.

    I just found out that Dr. Choti a reknowned liver surgeon that I met at a conference from Johns Hopkins is now at UT Southwestern in Dallas. I am taking a long shot here but I have requested an appointment for him while I am in Houston. We'll see what happens.

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #16
    janderson1964 said:

    I just found out that Dr.

    I just found out that Dr. Choti a reknowned liver surgeon that I met at a conference from Johns Hopkins is now at UT Southwestern in Dallas. I am taking a long shot here but I have requested an appointment for him while I am in Houston. We'll see what happens.

    You

    Don't stop amazing me. You're so proactive I love it! Good luck, cyber hugs. 

     

    Yolanda

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #17
    janderson1964 said:

    I just found out that Dr.

    I just found out that Dr. Choti a reknowned liver surgeon that I met at a conference from Johns Hopkins is now at UT Southwestern in Dallas. I am taking a long shot here but I have requested an appointment for him while I am in Houston. We'll see what happens.

    Choti

    Hi. I saw Dr. Choti at JHU last year.  He looked at my scans and met with me but did not want to operate on my liver. He was really nice,though, and was highly recommended.  Hope you have success.

    atb

    Karin

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #18
    My oncologist told me he got

    My oncologist told me he got the results from the Genomic test that Foundation One did today, about two week early. He said it is over 30 pages long and there are some interesting findings. The test analyizes a sample from a tumor and tests for ALL known genetic mutations in ALL solid tumors.

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #19
    janderson1964 said:

    My oncologist told me he got

    My oncologist told me he got the results from the Genomic test that Foundation One did today, about two week early. He said it is over 30 pages long and there are some interesting findings. The test analyizes a sample from a tumor and tests for ALL known genetic mutations in ALL solid tumors.

    Love your approach by pulling

    Love your approach by pulling out the Tommy Guns! Very impressive! Using the resources wisely and getting to the best people you can! 

    Very curious to hear about your recent genetic test results! 

    Sending you tons of positive energy and cyber strength!

    Hope you get that bike ride! 

    Best of luck to you on your upcoming endeavors for positive news and flawless travels! 

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #20
    hippiechicks said:

    Love your approach by pulling

    Love your approach by pulling out the Tommy Guns! Very impressive! Using the resources wisely and getting to the best people you can! 

    Very curious to hear about your recent genetic test results! 

    Sending you tons of positive energy and cyber strength!

    Hope you get that bike ride! 

    Best of luck to you on your upcoming endeavors for positive news and flawless travels! 

    Thanks. I am mountain biking

    Thanks. I am mountain biking today

  • danker
    danker Member Posts: 1,276 Member
    #21
    janderson1964 said:

    My oncologist told me he got

    My oncologist told me he got the results from the Genomic test that Foundation One did today, about two week early. He said it is over 30 pages long and there are some interesting findings. The test analyizes a sample from a tumor and tests for ALL known genetic mutations in ALL solid tumors.

    tests

    Hope all the tests show how to become NED!!! Good Luck!

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