MRI Results in

Hondo
Hondo Member Posts: 6,636 Member
in Head and Neck Cancer #1

Will my doctor filially got back from Vacation and called with the results of the MRI. And it is showing nothing that we did not know already, she is even more confused now then she was before. She is trying to get me to see another H&N doctor in New Orleans who deals with the wearied oh like me. In the mean time the necrosis is growing and the doctor can’t think of what needs to be done to help stop it. While praying the other day for some reason I was impressed to use Iodine on it, so that is what I started to do. Yes it burns like hell but no worse than the pain I get from it, so far the leading edge of necrosis seems to be stable but will need to give it more time to see if it has stopped growing. The hole is now the side of a nickel and doc is afraid if it gets too much larger the Uvuia is going to fall into the throat. Just keep me in pray that the Iodine will help to stop it for now.

Still in God’s Workshop   

Tim Hondo

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Comments

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #2
    You are such

    a warrior and such an inspiration!  You always have my prayers, dear friend.  God is certainly not done with you yet! 

  • phrannie51
    phrannie51 Member Posts: 4,716
    #3
    Sending prayers your way

    Hondo.  Are you going to go to NO and have this new ENT look at it? 

    p

  • polystone2014
    polystone2014 Member Posts: 59
    #4
    New Orleans

    are you at new orleans? if you need help, please feel free to contact me by personal message. I will pray for you.

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #5
    when

    when i get in times for need of strength and survivorship you are always one of those inspirations i think of to help pick me up. 

    prayers going out for anything that will help stop the growth and pain. 

    God Bless you!

    john 

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #6
    tim, saying prayers you find

    tim, saying prayers you find a doc who can figure out how to help you.  stay strong, friend.

    God bless you,

    dj

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #7
    Vitamin E

    I was told to take Vitamin E and they were going to give me a prescription but it had something that I am allergic to in it.  Tedral is what I am allergic to.  I will look into the name of the prescription.  I am also looking into HBOT but I know that you have already taken the 'dive.'

    When I put liquid in my mouth and lean over the sink the liquid comes out my nose. yuck.  I know someone on this site used the Alkalol with water for a mouth rinse.

  • hwt
    hwt Member Posts: 2,328 Member
    #8
    KTeacher said:

    Vitamin E

    I was told to take Vitamin E and they were going to give me a prescription but it had something that I am allergic to in it.  Tedral is what I am allergic to.  I will look into the name of the prescription.  I am also looking into HBOT but I know that you have already taken the 'dive.'

    When I put liquid in my mouth and lean over the sink the liquid comes out my nose. yuck.  I know someone on this site used the Alkalol with water for a mouth rinse.

    Tim

    Was hoping you would get a solution. Keep hope and if that hope is in New Orleans then go for it.........

    God bless,

    Candi

  • traceyd1
    traceyd1 Member Posts: 79 Member
    #9
    Where are you located?  We

    Where are you located?  We see a head and neck specialist in Baton Rouge that my husband and I absolutely love.

  • wmc
    wmc Member Posts: 1,804
    #10
    Sorry to hear this.

    Sorry to hear about the necrosis. I might have thought about hydrogen peroxide, but it will burn as well, but you could tell something if it foamed or didn't.   The size of a nickel is getting pretty darn big so I see the concern. Sending more prayers and positive thoughts your way.  Hope they get control of this my friend soon.

    Bill                           

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #11
    Trental

    Trental helps improve blood flow.  That is what the doctor was going to prescribe before a red flag came up.  I am allergic to one of the ingredients.  Looking into HBOT.  Deb Lewis, do you know anything about the Sonora HBOT.  Seems I will have to go to Modesto or Fresno.  Nothing closer, that will tie up my husband also, I don't drive the freeway yet.

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #12
    oh my, good luck!

    Hondo heal thy self and a good ENT opinion would not hurt.

    T&P

    Matt

  • Goyca
    Goyca Member Posts: 220
    #13
    Good luck Tim. Praying it

    Good luck Tim. Praying it will stop growing.

  • Hondo
    Hondo Member Posts: 6,636 Member
    #14
    ENT Called

    Got a call from my ENT she is sending me to see a Doc at LSU in Baton Rouge on the 27th. If she can’t help I am not sure what I can do, I check this morning and the hole is now the size of a quarter. There is very little of the skin left holding up the Uvula and the pain from it is worse.

    I always knew I was a holy man but just did not know it was this holy. Sometimes all we can do it to laugh and try to make the best out of it. This I do know, that what every comes out of this my Father God will give me the strength and grace to go through it.

     

    For mow I thank you all for your prayers

    Tim

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #15
    Hondo said:

    ENT Called

    Got a call from my ENT she is sending me to see a Doc at LSU in Baton Rouge on the 27th. If she can’t help I am not sure what I can do, I check this morning and the hole is now the size of a quarter. There is very little of the skin left holding up the Uvula and the pain from it is worse.

    I always knew I was a holy man but just did not know it was this holy. Sometimes all we can do it to laugh and try to make the best out of it. This I do know, that what every comes out of this my Father God will give me the strength and grace to go through it.

     

    For mow I thank you all for your prayers

    Tim

    Tim, praying very hard that

    Tim, praying very hard that God will bless the new doc with the knowledge of how to fix the problem.  I hope it doesn't get any bigger before the appt.  take care and let us know what you find out.  glad to see you still have humor thru this.

    God bless you,

    dj

  • CherieLW
    CherieLW Member Posts: 472
    #16
    Hey Tim! 
     
    Good to still see

    Hey Tim! 

     

    Good to still see your face on here :)  Sorry to hear that you are having a rough time... I just wanted to let you know that I've always kept you in prayer and will continue to do so! I hope that there is something that they can do to help you! 

    Cherie

  • traceyd1
    traceyd1 Member Posts: 79 Member
    #17
    Doctor in Baton Rouge

    Hi Tim,

    My husband sees Dr. Anna Pou in Baton Rouge.  She is an LSU Head and Neck specialist that sees patients at Mary Bird Perkins.  She is an angel from heaven.  Very kind and compassionate and a bulldog when it comes to her patients.  If that's who you're seeing, she is the best.  My husband would walk through fire for her. 

    God Bless,

    Tracey

  • Hondo
    Hondo Member Posts: 6,636 Member
    #18
    traceyd1 said:

    Doctor in Baton Rouge

    Hi Tim,

    My husband sees Dr. Anna Pou in Baton Rouge.  She is an LSU Head and Neck specialist that sees patients at Mary Bird Perkins.  She is an angel from heaven.  Very kind and compassionate and a bulldog when it comes to her patients.  If that's who you're seeing, she is the best.  My husband would walk through fire for her. 

    God Bless,

    Tracey

    Hi Trace

     

    Yes same doctor, keep both of us in pray that she will know what to do

     

    Thanks

    Hondo

  • Hondo
    Hondo Member Posts: 6,636 Member
    #19
    debbiejeanne said:

    Tim, praying very hard that

    Tim, praying very hard that God will bless the new doc with the knowledge of how to fix the problem.  I hope it doesn't get any bigger before the appt.  take care and let us know what you find out.  glad to see you still have humor thru this.

    God bless you,

    dj

    Hi Debbie / Cherie

    Thank you both for the prayers as this is starting to get a little scary          

     

    Tim

     

  • Grandmax4
    Grandmax4 Member Posts: 723
    #20
    Praying for you~~

    although I don't post much on here anymore, I want my fellow fighters, and the new warriors too, to know that I think of you & pray for you often.

    Tim, I pray the  Dr in New Orleans will have all the answers and skills you need to get better...your quiet, calm messages have been an inspiration to me,your faith is not in vain, God has a plan for you..take care my friend

  • donfoo
    donfoo Member Posts: 1,773 Member
    #21
    Hondo said:

    ENT Called

    Got a call from my ENT she is sending me to see a Doc at LSU in Baton Rouge on the 27th. If she can’t help I am not sure what I can do, I check this morning and the hole is now the size of a quarter. There is very little of the skin left holding up the Uvula and the pain from it is worse.

    I always knew I was a holy man but just did not know it was this holy. Sometimes all we can do it to laugh and try to make the best out of it. This I do know, that what every comes out of this my Father God will give me the strength and grace to go through it.

     

    For mow I thank you all for your prayers

    Tim

    Hoping for the best

    Tim,

    I'm sorry to hear about you being so holey. I sure hope you find some options to fix this problem. Necrosis of the upper palette right? Is grafting bone not an option? The Lord has watched over you so far and I am certain he will keep doing so.

    Best to you,

    Don

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