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  • LumpinmyThroat
    LumpinmyThroat Member Posts: 98
    #22
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    Holes

    Thinking of you.  Hugs!

  • Hondo
    Hondo Member Posts: 6,636 Member
    #23
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    Thanks

     

    Once again I just want to thank you all for your thoughts and prayers as I move forward with this. My 40 anniversary is next week and I don’t want anything to spoil it, my children and I are planning to all meet at a Camp up on Toledo Bend and surprised my Wife with a little party. Anyway check the hole this morning and it is now the size of a quarter. I was told that Honey might work, raw honey, we never think about it but God did put the simple things of nature here to help us. Oh well I am giving it a try and will let you all know how the honey does, it is better than doing nothing and with a little prayer all things are possible.

     

    Tim Hondo

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #24
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    Hondo said:

    Thanks

     

    Once again I just want to thank you all for your thoughts and prayers as I move forward with this. My 40 anniversary is next week and I don’t want anything to spoil it, my children and I are planning to all meet at a Camp up on Toledo Bend and surprised my Wife with a little party. Anyway check the hole this morning and it is now the size of a quarter. I was told that Honey might work, raw honey, we never think about it but God did put the simple things of nature here to help us. Oh well I am giving it a try and will let you all know how the honey does, it is better than doing nothing and with a little prayer all things are possible.

     

    Tim Hondo

    tim, 40 yrs is remarkable! 

    tim, 40 yrs is remarkable!  congrats to your and your wife.  i hope the party is great and you and your family make some wonderful memories.  still praying for the hole to get better or at least no bigger.  happy anniversary, friend.

    God bless you,

    dj

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #25
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    I get allot of my inspiration from you

    I admire the way you just keep on fighting the good fight. Ive learned allot about coping, fighting on, perserverence, ETC. Everytime I recant how long you have been in the battle, it gives me confidence and hope to not quit.

    All the best, and prayers on the way from my family to yours.

    Mike

  • wmc
    wmc Member Posts: 1,804
    #26
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    Hondo said:

    ENT Called

    Got a call from my ENT she is sending me to see a Doc at LSU in Baton Rouge on the 27th. If she can’t help I am not sure what I can do, I check this morning and the hole is now the size of a quarter. There is very little of the skin left holding up the Uvula and the pain from it is worse.

    I always knew I was a holy man but just did not know it was this holy. Sometimes all we can do it to laugh and try to make the best out of it. This I do know, that what every comes out of this my Father God will give me the strength and grace to go through it.

     

    For mow I thank you all for your prayers

    Tim

    Hondo you strength is amazing.

    Tim your outlook and strenght is just an insperation. Sometimes you need to laugh so you can deal with it, but you seem to always have such a great attitude and always help everyone. You know you are in my prayers that it gets stoped VERY SOON.

    Bill

  • Jan Trinks
    Jan Trinks Member Posts: 477
    #27
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    Here's Hoping

    Hondo:

     

    Do pray that the iodine does the trick.  My mother was a big believer in merchucrome - not sure I spelled it right.  Don't even know if they make it anymore!  But it sure did the trick on scrapes and cuts we got growing up! You are such an inspiration to us all and such a blessing to us, too!  God Bless!

     

    Jan (Basketcase)

  • jackflash22
    jackflash22 Member Posts: 524 Member
    #28
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    Hondo said:

    Thanks

     

    Once again I just want to thank you all for your thoughts and prayers as I move forward with this. My 40 anniversary is next week and I don’t want anything to spoil it, my children and I are planning to all meet at a Camp up on Toledo Bend and surprised my Wife with a little party. Anyway check the hole this morning and it is now the size of a quarter. I was told that Honey might work, raw honey, we never think about it but God did put the simple things of nature here to help us. Oh well I am giving it a try and will let you all know how the honey does, it is better than doing nothing and with a little prayer all things are possible.

     

    Tim Hondo

    Honey

    manuka high grade honey is suppose to be a good alternative. I used it to rinse my mouth at the beginning of rads and never got sores. I got +24 grade. 

  • Hondo
    Hondo Member Posts: 6,636 Member
    #29
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    Jan Trinks said:

    Here's Hoping

    Hondo:

     

    Do pray that the iodine does the trick.  My mother was a big believer in merchucrome - not sure I spelled it right.  Don't even know if they make it anymore!  But it sure did the trick on scrapes and cuts we got growing up! You are such an inspiration to us all and such a blessing to us, too!  God Bless!

     

    Jan (Basketcase)

    Necrosis

    Necrosis of the soft palate it keeps growing just pray that is stops and stops soon. If you want to take a look go to my Expressions page and take a look. Between Radiation and Necrosis I am not sure which one I hate the most

     

    http://csn.cancer.org/user/100386/expressions

     

    Tim Hondo


     

     

     

     

     

  • jim and i
    jim and i Member Posts: 1,788 Member
    #30
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    Definately praying for you as

    Definately praying for you as always. I pray that the answers are forthcoming soon and that the iodine helps halt the growth. Sounds to me like they need to get you to a specialist ASAP and her vacation was ill timed. She could of had someone step in to recommend the NO doctor before she left.

    Praying that God heals you and gives the doctors the wisdom to help you recover.

    Debbie

  • joannaw81
    joannaw81 Member Posts: 185 Member
    #31
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    jim and i said:

    Definately praying for you as

    Definately praying for you as always. I pray that the answers are forthcoming soon and that the iodine helps halt the growth. Sounds to me like they need to get you to a specialist ASAP and her vacation was ill timed. She could of had someone step in to recommend the NO doctor before she left.

    Praying that God heals you and gives the doctors the wisdom to help you recover.

    Debbie

    you can handle

    Hi Hondo,

    I am rutting for you, I know that you are a very strong person and you can handle whatever comes your way. Always have you in my prayers.

  • Debi16043
    Debi16043 Member Posts: 53
    #32
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    Hondo said:

    ENT Called

    Got a call from my ENT she is sending me to see a Doc at LSU in Baton Rouge on the 27th. If she can’t help I am not sure what I can do, I check this morning and the hole is now the size of a quarter. There is very little of the skin left holding up the Uvula and the pain from it is worse.

    I always knew I was a holy man but just did not know it was this holy. Sometimes all we can do it to laugh and try to make the best out of it. This I do know, that what every comes out of this my Father God will give me the strength and grace to go through it.

     

    For mow I thank you all for your prayers

    Tim

    Hondo well spoken.  I often

    Hondo well spoken.  I often wonder how others in our condition go thru all this without belief and reliance on God.  I hear many of my non-believers friends say well where is your god and if he loves you so much why does he let you suffer.  I always gently remind them that god makes it rain on the christian as well as non-christian.  This earth is not our reward and I'm just thankful that as I go thru each step of life with cancer I put all my trust in him.  Not trust he will heal me but trust he will walk the walk with me.  

     

    i had scc 3 years ago, segmented mandilbectomy, fibula free flap, neck dissection, removal of all my teeth and 6 weeks radiation and while my cancer has not returned I have ORN from the radiation which has killed my new jaw bone (fibula) as well as necrosis of more of mandible.  Just found out last week I'll be going thru exact same surgery again.  They will take my other fibula and make new jaw bone again.  Trach, feeding tube, drains etc and I'm so thankful to have god by my side.

     

    Hondo, keep the faith and see it thru as best you can.  Much prayer coming your way

     

  • Debi16043
    Debi16043 Member Posts: 53
    #33
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    Hondo said:

    Thanks

     

    Once again I just want to thank you all for your thoughts and prayers as I move forward with this. My 40 anniversary is next week and I don’t want anything to spoil it, my children and I are planning to all meet at a Camp up on Toledo Bend and surprised my Wife with a little party. Anyway check the hole this morning and it is now the size of a quarter. I was told that Honey might work, raw honey, we never think about it but God did put the simple things of nature here to help us. Oh well I am giving it a try and will let you all know how the honey does, it is better than doing nothing and with a little prayer all things are possible.

     

    Tim Hondo

    Hondo you mentioned Toledo

    Hondo you mentioned Toledo bend, you from texas? Must curious my husband and I live in houston.  Did you get treated at MD Anderson?

  • Duggie88
    Duggie88 Member Posts: 760 Member
    #34
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    Tim

    One day at a time. When you visit the Doc and you have them scratching their head, shows your unique. Battle on, thoughts and prayers your way.

          Jeff

  • Guzzle
    Guzzle Member Posts: 710
    #35
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    Good luck

    wishing you well Tim

  • Hondo
    Hondo Member Posts: 6,636 Member
    #36
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    Duggie88 said:

    Tim

    One day at a time. When you visit the Doc and you have them scratching their head, shows your unique. Battle on, thoughts and prayers your way.

          Jeff

    Some Good News

    It looks like the necrosis has stopped growing or has slowed down a lot. My daughter has me using Coconut Oil and Raw Honey on it and man it has made a difference, hard to believe something so simple is working better than all the meds. She does a lot of researching for me always looking to see what can or can’t help; God has blessed me with her always helping me. I am still waiting to see the Doc in Baton Rouge and hope that she can sow my back together, at this point all I can do is wait and see.   

    God Bless you all and continue to just Believe and have Faith.

    Tim Hondo

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #37
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    Hondo said:

    Some Good News

    It looks like the necrosis has stopped growing or has slowed down a lot. My daughter has me using Coconut Oil and Raw Honey on it and man it has made a difference, hard to believe something so simple is working better than all the meds. She does a lot of researching for me always looking to see what can or can’t help; God has blessed me with her always helping me. I am still waiting to see the Doc in Baton Rouge and hope that she can sow my back together, at this point all I can do is wait and see.   

    God Bless you all and continue to just Believe and have Faith.

    Tim Hondo

    Excellent!

    I've been using coconut oil to rinse at least 3 times a week and the dentist is AMAZED at how good my teeth are looking!  God sure does put such great things on His earth for us to use. 

     

    I've also added raw honey to my toast each morning.  Not going to hurt ;)

    Keep us posted.  Prayers continue for you!

  • Hondo
    Hondo Member Posts: 6,636 Member
    #38
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    TracyLynn72 said:

    Excellent!

    I've been using coconut oil to rinse at least 3 times a week and the dentist is AMAZED at how good my teeth are looking!  God sure does put such great things on His earth for us to use. 

     

    I've also added raw honey to my toast each morning.  Not going to hurt ;)

    Keep us posted.  Prayers continue for you!

    Hi Tracy

     

    There is only one little piece of flesh holding the Uvula in place. The necrosis has stopped growing just in time as I was so afraid that the Uvula was going to fall into my throat and start choking me or giving me feeling of gagging all the time. All I can say is thank you Lord for a daughter who does not stop looking for stuff that can help. I feel sorry for my doctors because I know they are trying there best but they have never had someone like me before. All my problems in dealing with so much radiation side effects to them is something new. I am glad for this that they support me in all that I do, so that is very good for all of us.

     

    God Bless

    Tim Hondo

  • wmc
    wmc Member Posts: 1,804
    #39
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    Hondo said:

    Hi Tracy

     

    There is only one little piece of flesh holding the Uvula in place. The necrosis has stopped growing just in time as I was so afraid that the Uvula was going to fall into my throat and start choking me or giving me feeling of gagging all the time. All I can say is thank you Lord for a daughter who does not stop looking for stuff that can help. I feel sorry for my doctors because I know they are trying there best but they have never had someone like me before. All my problems in dealing with so much radiation side effects to them is something new. I am glad for this that they support me in all that I do, so that is very good for all of us.

     

    God Bless

    Tim Hondo

    Thats great news Tim

    Got to hand it to your Daughter, she did a great job. You are a lucky father to have such a wonderful daughter. Bless you both.

    Bill

  • Carolinagal
    Carolinagal Member Posts: 91
    #40
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     I don't come here as often

     I don't come here as often as I used to, but I think of you often. When my dad was diagnosed back in 2009 you, Skiffin, and Sweetblood (and others) were such  sources of encouragement. I appreciate that more than you could possibly know. This may sound strange but when my dad passed, the hope that I had for him to survive transfered to you and all the others fighting this horrible disease and all it's effects - and the caregivers who love you all so much.  God used you to keep me afloat in that awful time and I'd like to say "thank you". You are in my thoughts and prayers. Happy Anniversary to you and and the Mrs.!

  • Goyca
    Goyca Member Posts: 220
    #41
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    Happy anniversary Tim :)
    I

    Happy anniversary Tim :)

    I pray all those bad things will end soon.

    you taught me this "still in God's workshop" , I love it , I try to remember it always. So hang in there.

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