Released from hospital after 8 days on Wednesday

I am so sorry to hear that you are continuing to suffer.  

What to say? It is so hard to read your list of probelms. You are such a strong person, and such an important member on this forum. 

You are in my thoughts and prayers. 

Bless you, Winter Marie.

SUE/TRU

Sorry you are having this much trouble again.  So glad that you are back home but hoping that they can help you.  Sounds like you have been dealing with many issues and I'm sorry to hear that your tumors are so big.  Just wish they could cut them out.  You are always thought of and just wishing the best for you.  You have struggled so far and want to see you in the fighting mode.  Please know that I'm praying for you.

Kim

Oh Winter.  So sorry to read this. I am happy they got your pain under control. You are in my thoughts. 

Big hugs

Bill

Hi - hope you can manage the pain alright.  Good news - you can eat anything you want!

atb

Karin

Dear Winter Marie,

I didn't realize that you were in you in the hospital, but I'm glad that you're out now and without pain.  I know how tiring it can be to be in constant pain, so I'm thankful that you've had some relief.  Have you tired Boost with protein for the extra calories?  My mom likes the vanilla flavor, so I often add bananas and strawberries to it in the blender for a more tasty drink.

All my best,

Cyn

I am sorry for the difficulties you are facing and the pain you have experienced.   I think of you so very often and remember how kind you were to me and my George during our  time of need.  Now that they have finally gotten your pain under control may that aspect continue and hopefully chemo will keep things calm.   I am so very sorry things have taken a turn for the worse but my hope is that they can turn things around for you. 

Love and Hugs - Tina  

ron50 said:

g'day Marie

    I am sorry this is happening to you mate. I trully wish a few of the calls would go your way. I have been lucky with pain , my doc stumbled onto a med called Targin. It is oxycodone combined with noloxone which is an opiate antagonist. It is supposed to stop constipation . It doesn't but it does stop you getting high on the oxy. Ive built up to 20mg oxy/10mg noloxone twice a day. It is stopping the pain from stage 3 ankolosing spondylitis and psoriatic arthritis and because the noloxone is just like naltrexone I seem to be getting the advandage of ldn which has taken all of the pain from my neuropathy. My pain is minor league compared to yours but I certainly know how desperately we seek relief. Hugs mate lets hope the future holds some medical magic for you.. Ron.

Hi Winter Marie,

Targiniq ER was approved by the FDA on 23 July 2014.  As Ron mentioned, it's a new and powerful painkiller, so maybe your doctor will prescribe it to you. He probably doesn't even know that it exists yet, and it would probably be very beneficial in your particular case.

Wishing you pain-free days ahead.

Hugs (())

Cyn

Winter Marie,

I don't post much but do regularly follow the journies of those who post here - and keep all in my daily prayers - especially those experiencing pain, as I know from experience how debilitating that can be.

My heart breaks for your struggles, but know that you are in my daily thoughts and prayers.

All the best,

J

I have said it many times before and will say it again. You are a real fighter and I admire that. Eat lots of protien in an effort to bulk up. If you remember when I first came here and most of my fight I have eaten a vegetable heavy diet. Well over the past couple of months I have had a lor of stomach issues, and raw vegetables is one of the things that up set it. So now I eat a mostly protien heavy diet since it doest upset me and an effort to keep from loosing wweight.

I'm sorry you've been having such a rough go of it.  You are badass lady, and I am sending lots of love and prayers and good thoughts your way.  I hope they will stay on top of the pain situation, and that appropriate treatment and miracles will come your way.