phrannie51 said:

I wish I had as much faith

guys.....I'm still hanging, not knowing what the hell is in that report.  I called the ENT's office today to ask them to have him call me tomorrow (thinking of course that he's not there today since they cancelled my appointment)....well, lo if "plans didn't change" and he WAS in today.  It's after 6:00 pm, so I don't think he's going to call today.....I just want to hear the laymans terms for all the gobblygoop terminology from him.  I want to know if this ear thing is from the cysts in the salivary gland, or is the tingling caused from the calcium at the base of my skull (I honestly don't remember if that's what she said about the base of my skull).

Hubby said "lets just go up there, take our books and wait till they take you in".....maybe I'll just do that! 

For all I know nobody has read this report except the girl who called me last Thursday night, so maybe nobody knows if there's anything important in it?  I like my ENT, but have never been overly impressed with the organization in the office.....I had to fight like hell to get an appointment sooner than two months after HE told me I had cancer by phone call.....I know they're busy, and the girls who do the phones are supposed to filter calls, but the ones up there are more like barracades.

Ok, I've vented now.....just frustrated, and tired being on the hook....when a simple phone call from somebody in the know would help so much.

Sorry I sound like such a b*tch.....it isn't my norm.

p

oh, P, i wish this wasn't so hard on you but i definitely understand.  I'm praying they call you back tomorrow.  If docs only understood what we go thru after having cancer :0(  hang in the P!

God bless you,

dj

phrannie51 said:

I wish I had as much faith

guys.....I'm still hanging, not knowing what the hell is in that report.  I called the ENT's office today to ask them to have him call me tomorrow (thinking of course that he's not there today since they cancelled my appointment)....well, lo if "plans didn't change" and he WAS in today.  It's after 6:00 pm, so I don't think he's going to call today.....I just want to hear the laymans terms for all the gobblygoop terminology from him.  I want to know if this ear thing is from the cysts in the salivary gland, or is the tingling caused from the calcium at the base of my skull (I honestly don't remember if that's what she said about the base of my skull).

Hubby said "lets just go up there, take our books and wait till they take you in".....maybe I'll just do that! 

For all I know nobody has read this report except the girl who called me last Thursday night, so maybe nobody knows if there's anything important in it?  I like my ENT, but have never been overly impressed with the organization in the office.....I had to fight like hell to get an appointment sooner than two months after HE told me I had cancer by phone call.....I know they're busy, and the girls who do the phones are supposed to filter calls, but the ones up there are more like barracades.

Ok, I've vented now.....just frustrated, and tired being on the hook....when a simple phone call from somebody in the know would help so much.

Sorry I sound like such a b*tch.....it isn't my norm.

p

I understand where you are and how you feel not knowing. I am a man of Faith and to me I can put it into Gods hand and walk away but not everyone can do that. Do what your Husband said, go there and refused to leave until someone who you know can give you the answer to your question. Remember the Doctor works for you, you are paying him to do what he does for you, it’s time for him to pay-up as the stress you are having is not good for you.

Tim Hondo

phrannie51 said:

Finally!! A call back

My ENT doesn't see anything troubling in the scan....my right mastoid bone is thickened.....probably from rads.  He's going to do a pressure test on my middle ear the next time I'm in (on the 22nd).  Anybody had this done?   

He did say he had been "a little worried" about a recurrance because of my ear, even tho he couldn't see anything visually.  Glad he didn't say anything then....and he could have skipped telling me that now. 

p

Wonderful news :-) No, haven't had a pressure test on my ear. Recently lost some hearing in my left ear but that is the side with cellulitus so am hoping that's all it is. So happy you had some good news come down the pipeline!

God Bless,

Candi

hwt said:

It's a NED then!

Wonderful news :-) No, haven't had a pressure test on my ear. Recently lost some hearing in my left ear but that is the side with cellulitus so am hoping that's all it is. So happy you had some good news come down the pipeline!

God Bless,

Candi

I had a pressure test in my right ear. I had lost most of my hearing. My left ear was OK but didn't register in the right. I was told I probably had fluid in my inner ear causing it. It did crackle sometimes like liquid. They said it was rad damage. It has improved a bit, I hold my nose and blow till my ears click. I was a SCUBA diver and used to get water in my inner ear it feels like that. I sometimes for no reason suddenly get a pain and earache then it goes again. now I put anything strange happening to my body as "those damn rads".

Hi phrannie, I apologize for my ingnorance but what is NED???

ned

Phrannie u r such a lovely lady and I'm sooooo happy to hear u got NED... I think u need a break so enjoy ur time now and hopefully ur appointment on 22nd will go well.

sending u hugssss

goyca.

phrannie51 said:

Finally!! A call back

My ENT doesn't see anything troubling in the scan....my right mastoid bone is thickened.....probably from rads.  He's going to do a pressure test on my middle ear the next time I'm in (on the 22nd).  Anybody had this done?   

He did say he had been "a little worried" about a recurrance because of my ear, even tho he couldn't see anything visually.  Glad he didn't say anything then....and he could have skipped telling me that now. 

p

Hi Phrannie:

Just now getting around to reading all this you've been going thru!  But thrilled about the NED and will be keeping you in prayer as always with pressure test coming up.  I know how you can question every little thing, believe me I know, hence the nickname Basketcase Charlie gave me!  But over all sounds really good especially the NED.  Keep us posted and God Bless!

Jan (Basketcase)