The Thinking of Craig post!

jen2012
jen2012 Member Posts: 1,607 Member
in Colorectal Cancer #1

Didn't want you to think we forgot about you Craig!  I think of you all the time but don't want to bother you looking for updates, so I just wanted to say hi,  let you know that you are always in my thoughts and prayers and I look forward to seeing you post more when you feel up to it.

Hugs to you and your wife.

jen 

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Comments

  • wolfen
    wolfen Member Posts: 1,324 Member
    #2
    Jen

    I got a short PM from our "bud" yesterday in response to one I sent him a couple of weeks ago. Not specific about his issues, just that he is doing one day at a time. I could just tell he's not up to par.

    Craig, we love you and are patiently waiting for the lion to roar once again.

    Luv,

    Wolfen

  • Phil64
    Phil64 Member Posts: 838 Member
    #3
    Hello

    Craig, you are also in my thoughts and prayers. Love and Light to you my friend.

    Phil

  • LindaK.
    LindaK. Member Posts: 506 Member
    #4
    Me too!

    I was thinking of posting something about Craig too!  I know some people here are friends with his wife on FB so maybe they know more.  I miss Craig's insight and status updates.

    Hoping day to day you are managing and getting a little better each day.

    Linda

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #5
     
    Yes, we miss you buddy!!  I

     

    Yes, we miss you buddy!!  I hope that you're managing the pain as best as possible. You and Kim are often in my thoughts.

    Big Texas Hugs ((()))

    Luv,

    Cyn

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #6
    Craig, we're thinking of you

    I'm sure life isn't pleasant, and my heart hurts for you.  Keep on keeping on, mate. 

    SUE

  • ron50
    ron50 Member Posts: 1,723 Member
    #7
    Hugs mate

    Ron.

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #8
    Perfect timing Jen. I am

    Perfect timing Jen. I am always thinking of Craig but more so than usual today.

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #9
    Craig <3</b>
    Thinking of you Craig.  You are special to so many of us. 
     
    Aloha,
    Kathleen
  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #10
    Kathleen808 said:

    Craig <3</b>
    Thinking of you Craig.  You are special to so many of us. 

     

    Aloha,

    Kathleen

    You are missed, Craig!

    You are missed, Craig!  Please know that you have forum friends that think and pray for you every day. Hope that the good days outnumber the bad. Hang in, our dear friend!

    Hugs,

    CM

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #11
    Thinking of you, Craig,

    and hoping that you are getting some moments of brightness.

    Lots o' love from me

  • marbleotis
    marbleotis Member Posts: 720 Member
    #12
    Always thinking of you Craig

    Craig - sending hugs and good thoughts your way.  I look forward to a post when you are up to it.

     

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #13
    JEN:)

    And I was just thinking that I was just "Yesterday's News..."

    Smile

    Thanks for the reminder that I'm not......not here anyway.....that's good news. 

    I've written a post in my head....perhaps I'll try and transcribe over the next week or two to go over everything.  I've been fighting quietly and mothodically, but it's really a pretty good story these past 9-months. 

    I"m recovering from my 2nd nerve block procedure.....takes a month before it even takes any kind of effect.  And even then.....

    Still maybe I can put something together......some of it is quite interesting and might be good for the group. 

    And greetings new folks....my tumor pain is keeping me pretty handicapped most days, but wanted to wish you all the best of luck. 

    -Craig

    -Craig

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #14
    Thinking of you

    Thinking of you as well.  Wishing the best for you.

    Kim

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #15
    Sundanceh said:

    JEN:)

    And I was just thinking that I was just "Yesterday's News..."

    Smile

    Thanks for the reminder that I'm not......not here anyway.....that's good news. 

    I've written a post in my head....perhaps I'll try and transcribe over the next week or two to go over everything.  I've been fighting quietly and mothodically, but it's really a pretty good story these past 9-months. 

    I"m recovering from my 2nd nerve block procedure.....takes a month before it even takes any kind of effect.  And even then.....

    Still maybe I can put something together......some of it is quite interesting and might be good for the group. 

    And greetings new folks....my tumor pain is keeping me pretty handicapped most days, but wanted to wish you all the best of luck. 

    -Craig

    -Craig

    Sitting here in Hospital

    Guess I'm following your and JBG's footsteps, had  my spleen removed two days ago, so I think about you everyday and hope you are doing well.  I'm looking forward to your next post there buddy.

    Winter Marie

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #16
    Sundanceh said:

    JEN:)

    And I was just thinking that I was just "Yesterday's News..."

    Smile

    Thanks for the reminder that I'm not......not here anyway.....that's good news. 

    I've written a post in my head....perhaps I'll try and transcribe over the next week or two to go over everything.  I've been fighting quietly and mothodically, but it's really a pretty good story these past 9-months. 

    I"m recovering from my 2nd nerve block procedure.....takes a month before it even takes any kind of effect.  And even then.....

    Still maybe I can put something together......some of it is quite interesting and might be good for the group. 

    And greetings new folks....my tumor pain is keeping me pretty handicapped most days, but wanted to wish you all the best of luck. 

    -Craig

    -Craig

    Yesterday's news?!  Not a

    Yesterday's news?!  Not a chance my friend.  We are all just waiting patiently for you to have the time and energy to visit with us more regularly.  Thanks for stopping by :)

  • danker
    danker Member Posts: 1,276 Member
    #17
    Sundanceh said:

    JEN:)

    And I was just thinking that I was just "Yesterday's News..."

    Smile

    Thanks for the reminder that I'm not......not here anyway.....that's good news. 

    I've written a post in my head....perhaps I'll try and transcribe over the next week or two to go over everything.  I've been fighting quietly and mothodically, but it's really a pretty good story these past 9-months. 

    I"m recovering from my 2nd nerve block procedure.....takes a month before it even takes any kind of effect.  And even then.....

    Still maybe I can put something together......some of it is quite interesting and might be good for the group. 

    And greetings new folks....my tumor pain is keeping me pretty handicapped most days, but wanted to wish you all the best of luck. 

    -Craig

    -Craig

    Lion

    Hopefulle, Florida is still in your future. Let me know when!!!

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #18
    danker said:

    Lion

    Hopefulle, Florida is still in your future. Let me know when!!!

    Dan

    Dear Dan

    You might be right.  I'm investigating another type of brand new nerve block procedure.  It has not been tested on humans and has not passed FDA certification yet.  It has only been tested on animals, dogs I think.  They had great success and were able to go from sitting to walking around in a short time.  So, there may be finally be some hope. 

    This is a clinical trial with 3 current applicants right now.  I'm being checked to see if I would be a successful candidate.  Most procedures are sucessful below the waist.  I showed him where my pain was and said maybe it might work out.  I'm waiting to hear back from them.  It's a little daunting but this pain may push me to this.  Supposedly, it permamently kills the nerves and medication may no longer be required either. 

    What a blessing to possibly be able to walk away from this pain and live pain medication free after almost a year of unrelenting pain that has pushed me to corners I don't want to visit just yet. So, it may be time to take a risk - a risk for me - but it may help someone else.

    Florida would still be great!  Kim and I have been nowhere by ourselves in a long time......we'd still like to go back to Disneyworld - even by ourselves just alone.  Would be good medicine.  I'll let you know.

    Thanks for posting. 

    -Craig

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #19
    herdizziness said:

    Sitting here in Hospital

    Guess I'm following your and JBG's footsteps, had  my spleen removed two days ago, so I think about you everyday and hope you are doing well.  I'm looking forward to your next post there buddy.

    Winter Marie

    Winter

    Your feeling is reciprocated:)

    -ME

  • sky123
    sky123 Member Posts: 15
    #20
    Nerve blocks, I need info!

    Hi Craig,

    I am a lurker here, mostly, and am scheduled for a TAP nerve block this coming week. It doesn't sound durable, though, so I may have to work with my pain mgmt docs to find something else. I, too, have had pain for a year, varying from moderate to severe, and it is getting very old indeed. Can you point me in some directions for info on the types of blocks you have had? Any info is MUCH appreciated. As a fellow pain warrior, I am sorry for your travails!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #21
    Sundanceh said:

    Dan

    Dear Dan

    You might be right.  I'm investigating another type of brand new nerve block procedure.  It has not been tested on humans and has not passed FDA certification yet.  It has only been tested on animals, dogs I think.  They had great success and were able to go from sitting to walking around in a short time.  So, there may be finally be some hope. 

    This is a clinical trial with 3 current applicants right now.  I'm being checked to see if I would be a successful candidate.  Most procedures are sucessful below the waist.  I showed him where my pain was and said maybe it might work out.  I'm waiting to hear back from them.  It's a little daunting but this pain may push me to this.  Supposedly, it permamently kills the nerves and medication may no longer be required either. 

    What a blessing to possibly be able to walk away from this pain and live pain medication free after almost a year of unrelenting pain that has pushed me to corners I don't want to visit just yet. So, it may be time to take a risk - a risk for me - but it may help someone else.

    Florida would still be great!  Kim and I have been nowhere by ourselves in a long time......we'd still like to go back to Disneyworld - even by ourselves just alone.  Would be good medicine.  I'll let you know.

    Thanks for posting. 

    -Craig

    So great to see you!

    I do hope you can give us a longer post.  You have a lot of friends here who would be so happy to hear from you!

    And I really hope too that the new nerve block will be an effective option for you...I know that constant pain just really wears you out.

    Big hugs coming your way!

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