ROLL CALL 2014

Husband was diagnosed with mandibular sarcoma in Nov. '12.  Had 20 rad. treatments, partial mandibulectomy and neck dissection with fibula free flap.  Had surgery in Dec. 13 to place dental implant posts.  Last scan showed a small nodule in lungs that we will watch and scan further in March.  Even though I rarely post, I watch the boards daily and pray for you all often.

Fisrpotpe, Champaign, Illinois, joined forum August 2010, enrolled December 29, 2010. Dx’ed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident. Checked in January 4, 2012. Had 4 teeth removed, 4 checkups and continued NED. Update as of 1-15-2014, the year 2013 was not all that fun.... teeth are really bad, a couple i had removed 3-4 years ago have now lead to necrosis of the mandible. soon to be 18 years on the 19th. 

Diagnosed July 2012. Tongue cancer stage 3. Radical neck dissection. 1/3 of tongue removed. Skin graft from thigh for side of tongue. Chemo (Cisplatin) and 33 rads started October 1, 2012 finished November 15, 2012.

Doing well. Eating good, have most of taste back. Read forum often. Best wishes to all.

Vicki

I am still doing great!  I had a couple of scary moments and had to undergo extra tests, but everything appears to be fine!  no sign of regrowth and I am working with my new normal.  

Still hanging in there.  It will be four years from end of treatment in May of 2014.  No snot, spit, tears; impaired taste; still got teeth; starting to have some minor issues with radiation-induced cataracts, and radiation-induced fibrosis in neck muscles and lungs. Still living life to the fullest and trying not to sweat the small stuff.  Damned glad to be here. Damned glad you are all still here as well.

Deb

Dazey, checking in.  MSCC unknown primary -  Finished treatment end of October 2009 - 4+ years ago! Very pleased to report I continue with NED.   Have had some interesting late blooming side effects (starting about 9 months ago) no sense of taste or smell; there is occasional swallowing difficulties and have had some dental issues but overall, doing very well and very happy to be able to check in  here each year.   No matter what,it is a blessing to be still here.  Peace to all

Checking in from Michigan. Diangnosed in 2012 right submandibular gland Adenoid Cystic Carcinoma. Neck disection, 33 rad treatments and one year later doing good. Have check up with CT scan of neck and chest in a week and except good news. Hope all have a good year!

Luke

lts said:

Roll Call

Checking in from Michigan. Diangnosed in 2012 right submandibular gland Adenoid Cystic Carcinoma. Neck disection, 33 rad treatments and one year later doing good. Have check up with CT scan of neck and chest in a week and except good news. Hope all have a good year!

 

Luke

Luke, the Force is still strong within you... I'm confident your scans will be clean and clear...

John

All is well in Texas...DX Jan '13 SCC Tonsil T2 2Nb M0...treatment of six weeks radiation at MDA Houston complete April 19 2013...since then all clear scans and side effects improving!

Next scan in March, MD pleased with progress...and we go from there! Blessings to all...

Jon

TracyLynn72 checking in here from NC!  MEC, low grade, stage 2 in lower left mandible.  1/4 of jaw and teeth removed to extract the 4cm tumor (March 2013) Finished 30 rads 06/21/2013 and am deemed "cancer free" as of that date.  Received my partial (fake teeth), PEG removed and learning my new normal each day.  Thankful and blessed!!