ROLL CALL - borrowing from our Ovarian sisters!

Hello to everyone:

  I have been a member on this Board since April of 2011. I was diagnosed with UPSC Stage 1 (large polyp 5 centimenters) on February 23, 2011. Had hysterectomy on February 1, 2011.

  Started chemo in mid April of 2011 - and finished August 31, 2011 - so it was just 2 years as of today!  Started radiation had 3 rounds on Sept. 29, 2011 and finished radiation - October 14, 2011.

  Was very tired from chemo for a long time and took awhile to get my strength back. 

  Now doing much, much better - so far with NO evidence of disease as of June 26, 2013 from my latest Cat Scan so it is over 2 years from diagnosis.  I go back and see my oncologist in early October for a 6 month check-up.

Hi everyone!

I was diagnosed November 2012 with grade 1 endometrial cancer. Had the DaVinci hysterectomy in January 2013. Staged 1a - grade 1 confirmed.

Only treatment indicated is 3 month check-ups for 3 years. Wil then 'graduate' to 6 month check-ups every 2 years until my 5 year mark.

I don't know if it is my age, weight or combination of things such as a few other minor medical issues, but I am still tired off and on like I began to notice a few years before the surgery. I was really blessed to have such an early diagnosis and recovery!

I have tried to improve my sugar-laden junk food diet which has proven to be a challenge. I do well, and then 'relapse!' It is an ongoing cycle which probably contributes to feeling tired.

This board and ladies have been a true inspiration as one never forgets getting this diagnosis!

Kathy 

Hello all,

I have endometrial adenocarcinoma first diagnosed in 2010 with surgery, chemotherapy, radiation and brachytherapy.

My cancer is Grade 3. I had an abdominal recurrance in 2012, which has continued to advance. I've done some courses of hormonal treatment, angiogenesis inhibitors, and rounds of chemo with doxil. Recently I started doing a platinum based chemo again, and am about halfway through the six cycles. 

In addition to treatment I have been trying things like acupuncture, naturopathy, vitamin c infusions. Also have a wonderful local support group and palliative care team. 

I am still working but now only two to three days a week. Working on a disability retirement. I have kept a list of things I want to do when on my treatment breaks. I don't really know if I'll ever be cancer free in the future but hope to make the best of all my "well feeling" days. 

I wish the best to all of you here! Checking in and reading your words helps me! Best, Teresa

Shell bug said:

roll call

DX Oct. 2011

Grade 3 , sugical stage 2 but two lymph nodes glowed on follow up scan, so could be 3c

Chemo, external and internal radiation completed July 2012

Lynch Syndrome positive

So far, so good

Best to all,

Rachelle

 

Name:  Roberta

Age: 64 for one more month 

Location:  Illinois in summer,  Florida in winter 

Diagnosis:  Abnormal PAp in Oct 2008, Total Abdominal Hysterectomy by DaVinci Robotic Surgery Jan 2009.  Diagnosed with UPSC Stage 3-C.  My doctor told me this cancer could not be cured.bit treated as a chronic disease.  I have never been NED.  As soon as I go off treatment, my CA 125 begins To Rise.  I have never had any symptoms.

Treatment: Sandwich treatment of 3 Taxol/Carbo, 28 external IMRT radiation treatments followed by 28 hour internal treatment, followed by 3 more Taxol/carbo

recurrence 18 months after completion of treatment.  Enlarged lymph nodes found on CAT scan. And CA 125 went to 1700.  Had 3 taxol/carbo.  Had severe reaction to Carbo.  Had 4 treatments of taxol/cisplatin.

Recurrence 7 months after completion of treatment.  enlarged lymph nodes and CA 125 went to 3200.    Had 6 treatments of taxol/cisplatin.

Developed bilateral multiple pulmonary emboli in Jan 2012.  Have been on daily blood thinner shots since then.  Had no symptoms, was found on CAT scan.  

Currently on Aromasin. CA 125 currently 700 but it is rising slowly.  It has been 15 months since my last chemo.  Will have next lab work and see the doctor the end of September.  I continue to try to enjoy each day.

I try to have good nutrition, walk daily and keep a  positive attitude.   Being around positive people helps, too.

may we all continue our journey for many more years.  In peace and caring.

Hi ladies,

I was diagnosed November 2012 with grade 1 endometrial cancer. Had the DaVinci hysterectomy on New Year's Eve, December 31st 2012. Only treatment needed. 

I was blessed to have this caught in the very earliest stage.  It was only 10% invasive.  I have 3 month check-ups for 3 years and then graduate' to 6 month check-ups every 2 years until my 5 year mark. 

I am doing good and feel great.  I just went Friday for a check-up and will get results in a few days. Even tho I was blessed to have caught this early, every time I have a checkup my nerves get the best of me, and I'm on pins and needles until I get the results. 

God Bless Each and Everyone of You,

Debbie

Stabler said:

Hi ladies,
I was diagnosed

Hi ladies,

I was diagnosed November 2012 with grade 1 endometrial cancer. Had the DaVinci hysterectomy on New Year's Eve, December 31st 2012. Only treatment needed. 

I was blessed to have this caught in the very earliest stage.  It was only 10% invasive.  I have 3 month check-ups for 3 years and then graduate' to 6 month check-ups every 2 years until my 5 year mark. 

I am doing good and feel great.  I just went Friday for a check-up and will get results in a few days. Even tho I was blessed to have caught this early, every time I have a checkup my nerves get the best of me, and I'm on pins and needles until I get the results. 

God Bless Each and Everyone of You,

Debbie

Hello fellow warriors,

I was diagnosed June 17 2011 stage 1a UPSC. Fortunately this was confined to a small polyp......less than 1/2 centimeter.

Chemo was the standard Taxol/Carboplatin, 6 treatments delivered 3 weeks apart.

I'm a teacher and worked through treatment, but took  5 days off for first 3 treatments and a full week for the rest. My sister was my sub!

Feeling very well. My next checkup will be early November which will mark my 2 years post treatment. Still going for checkups every 3 months.No side effects at all from treatment. I exercise and eat healthy, which was the case before cancer.

I had a prior cancer diagnosis in 2007 unrelated to this cancer. My wonderful doctor caught this early as I was still being seen by her every 4 months.

Blessings to all of you here!!

Location:  Upstate (Eastern) New York state

Age:  64 for one more month, like Ro10

Had D&C in March, 2010 to remove a "benign" uterine polyp.  Biopsy showed it was not benign.

Had major surgery 5/11/10 in another hospital.  Diagnosis was UPSC, grade IVb.  Had total hysterectomy and debulking with removal of cancer in uterus, both ovaries, the omentum, and the ilium, and lymph node sampling (all nodes sampled were clear).  Also had cholecystectomy for gallstones and appendectomy during the same surgery (had 2 surgeons working on me).  Veins basically collapsed as I lost a lot of blood, so I had 2 units of blood (with difficulty getting them in) two days after surgery.

Started chemo 6/11/10.  Had 6 rounds of carboplatin and taxol.  Had a brief stint of stomatitis and a minor loss of appetite, but no nausea or vomiting because I started taking Emend a couple of days before chemo. My younger brother, who was expecting me to die, unexpectedly dropped dead himself while I was undergoing chemo (probably a heart attack but no autopsy was required by the state of Maine where he was living when it happened).  Going to his funeral was a problem as I had chemo induced anemia and was still very short of breath.  After I got home from his funeral, I was given another unit of blood.  Months after chemo, when I was still short of breath, I had a ferritin (iron) test at my family physician's office.  It was extremely high. When I next saw my oncologist, he did a genetic test and found that I had a genetic defect which can sometimes cause hemochromatosis.  I underwent several phlebotomies until I got back to normal. 

My most recent CA 125 was 7.9 and has been for the last two visits, and previously was close to that same number.  I had a couple of CT scans in the months after the surgery and an MRI to rule out damage from the high iron levels, but no damage was found.  I do have what is apparently a benign liver cyst.  I follow up every 6 months with my gyn/onc, who did my surgery, and an oncologist at the hospital where I used to work and where I had my chemo, closer to home.  I've had NED ever since chemo ended, thank God.

I retired from my job when my disability ended.  I really think the stress from my job was a big contributing factor in getting cancer.  My mother and grandmother both had breast cancer later in life.  My mother got it the second time around in a different spot in the same breast when she was dealing with a high level of stress in her life.  My father had prostate cancer. All three of these family members were cancer survivors and eventually died from other health problems. I expect that will be the case with me, too.  Hope I'm not jinxing myself by saying that.

I had surgery for an incisional hernia in August, 2012, which has helped with pain I'd had since surgery.  I thought that surgery would be a piece of cake after the other surgery, but it wasn't.  They pumped me full of air for the laparoscopy, which made the opposite side hurt more than the side with the hernia.  I hope I don't ever need abdominal surgery again!

And I hope they discover a cure for these cancers soon so that none of us ever needs to go thru this stuff again!

DX – 1 April 2011 with MMMT cancer cells in a D&C                             Age at DX 55  Age now 57              Still working at least 2 more years maybe 3 years

Surgery – 8 April 2011 – Complete Hysterectomy & Omentum - Stage 3C1 Carcinoma sarcoma (MMMT) Tumor (1A) in uterus 5cm with 0.3 cm invasion of myometrium and 2 microscopic cells in 1 pelvic lymph node

Chemo – Start 6 May 2011 Last 22 August 2011 6 Rounds of Carbo/Taxol – No radiation

CA125 started at 15 went down to 11 stays around 12-13 now.

I talked to both my GynOnc Drs and both told me to stop reading the Internet to get my information including eating tips. I mentioned that on the ACS Uterine Cancer Discussion Board there was discussions concerning diets with sugar, meat, and other foods and drinks. I asked did I need to meet with the Onc nutritionist to discuss all this and change my lifestyle so completely. They said I could go that route but that would not guarantee that the cancer would not come back and that if I wanted to spend the rest of my life eating just vegetables and fruits then go for it. Yes that would be a healthier way to go but would it make me miserable? They both said that I did not go through the surgery and the chemo just to be unhappy but to live my life. There are no guarantees so live your life.  Changed some food intake and exercise more but not consistently. 

Doing ok just past my two year NED mark.  Praying for all the Peach sisters on this site and those that have yet to discover us.  Actually praying for everyone that is touched by any cancer as I have been there and know what they are going through.  Rough Road all the way around.  Keeping a positive attitude is key.  Prayers to all. Trish in Dallas, Texas.

Dx January 2011 at age 45

complete hysterectomy, ovaries, tubes

stage 3c endometrial adenocarcinoma grade 3... pelvic lymph node positive

8 rounds carbo/taxol, finished July 2011

Had a few scares,  In February had lymph node biopsy done results were inconclusive... Had PET scan done in May results were clean,  lymph node went back to normal size. 

Feel great, I exercise 3 to 4 times a week.  Lift weights and run,  I try to eat right.