How long have you survived
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3 years
3 years in march. right tonsil. i cant seem to enter anything just one time. you can tell im not computor literate
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diagnosed in February 2007 still here six years later!wild willy said:3 years
3 years in march. right tonsil. i cant seem to enter anything just one time. you can tell im not computor literate
IT seemed like the thing to do. Welcome to the old posters that I remember. I happy for those that are still Kicking! I morn the loss of those that fought the good fight! I will see them soon enough. Keep on keeping on cancer survivors!
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Me Too...pascotty said:Still here
Can't believe I started this soooo long ago. Scans last week showed ned again. 3 years have now past and I'm still here happier than ever xxxx Jen
Glad we are both here along with so many others that have posted on this thread since you originally postedd...
Congrats ~ John
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Gravy....cwcad said:diagnosed in February 2007 still here six years later!
IT seemed like the thing to do. Welcome to the old posters that I remember. I happy for those that are still Kicking! I morn the loss of those that fought the good fight! I will see them soon enough. Keep on keeping on cancer survivors!
Good to see and hear you are kickin..... Hoping your luck holds out for many years....
Best ~ John
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TimingPam M said:Ditto - Timed Meds
My nurse told me to never wait for nausea, and to keep on a schedule for nausea meds, starting with as soon as I got home from chemo. I kept to my schedule, and only had a couple bouts of breakthrough nausea (I also got Emend with chemo).ALWAYS try and stay ahead on your meds be they for nausea or pain. Coming from behind makes fixing the situation much harder.
J.
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That's Amazing!SASH said:Suvival
So far 10 years 4 months 11 days and counting of Stage 4 SCC of the tongue.That's Amazing!
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Survival(Living)
12 yrs 5
Survival(Living)
12 yrs 5 months 11 days! NPC stage 3 7.5 weeks of rads, 3 3hr chemo sessions during that, partial radical neck dissection then 3 weeks, 1 week a month for 3 month, 24hr a day chemo.
Side effect, or set backs I like to call them but still here and still LIVING!
Rachel0 -
i'm 13 months ned. i had
i'm 13 months ned. i had cancer of the voice box and have had a total laryengectomee. i also went thru 35 rad trmnts when it was first discovered iin 8/09. it returned in 2/12. that's when i had the laryengectomee and i've been ned since. getting ready for another pet in about 3 months. days are hard but i'm sure they'll continue to get better with each new day i'm blessed with. it's just very hard dealing with a trake.
you are all in my prayers. God bless,
debbiejeanne
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anniversary of my diagnosis
I was diagnosed one year ago today. I am feeling great, back at work,
after (of course, as many of you know) a long haul.
Cancer free since PET all clear sign since 9/12. Oncologist
doesn't want to see me until Sept 2013.
Spent last night celebrating 30 years since my first date
with my husband. Life doesn't get much better than this.
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My husband is two years post
My husband is two years post treatment now. Two and a half years post diagnosis. He was stage 4 throat and base of tongue cancer. He's still skinny as heck, low immune system, fatigues easily, has thick foamy saliva, has to take a water bottle everywhere, struggles a bit when eating, but he does eat. He eats steak, hamburgers, fish, pasta, pretty much whatever he wants. But that didn't come until at least a year post treatment. It might take him two hours to eat a meal, but he eats it and enjoys it. We take trips now and go to a lot of concerts and theater. It's best to sit on the end of row seats, in case he has a coughing episode and needs to step outside without disturbing the rest of the audience. And we have found it best to stay in hotels that have room service, because then he can order in and eat in the room if he's not feeling up to going out. But we just went to New Orleans recently and he did eat in several restaurants. It was great to see him chowing down on some beignets at breakfast and crawfish gumbo at lunch. He even indulges in a glass of wine a few nights a week, which with him being somewhat of a connoisseur prior to diagnosis, he was miserable thinking he'd never be able to do that again. But we're living. Living well, even. Life is going on!
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GlennaGlenna M said:One year
I am one year post treatment for SCC Supraglottic laryngeal T3NOMO and will be one year post for NSCLC in left lung on the 28th of this month.
Still in remission from both cancers and doing great!!!
Cheers to you Jen,
GlennaOne of my bestest buds on here...
Unfortunately lost her battle..
Rest in Peace my friend
~Gone not forgotten...
John
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Delnative..delnative said:Almost two years
I had Stage III SCC of the right tonsil, one lymph node involved. Had tonsillectomy, 30 rads and two rounds of Cisplatin, followed by a modified radical neck dissection three months after treatment ended. On Oct. 5 I celebrate the second anniversary of the last day of radiation.
--Jim in DelawareHeck of a guy, and another of the originals here....
Another that lost the battle...
Awesome guy, great reporter and writer.
~Gone not forgotten...
John
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Survival
So glad to read all the posts and what is really important in life.
I had SCC left tonsil and one left lymph node T2N2 M0 I have been Clear for 18 months...have a 3 months scan on July 25, next week. I am so gratefull I have this sight and all you wonderful people. I forget sometimes what is important.
My 13 year old son is off at Jamboree 2013 with the Boy Scouts and calling home complaining and wanting to come home. I was all stressed about it until I came to this sight and you guys helped me realize what is important. I just sent him a text and said if you cannot have fun at a camp I paid $2,000 for, you can work at McDonalds next summer. He texted me back and said he is having fun, will stay the entire camp and does not want to work at McDonalds next summer!
PS..my heath is good and I have no bad side effects....a bit of Chemo brain, forgetfulness, but everything else is good....Ann
Ann
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NeuropahthyDragons7-7-2010 said:Survivorship starts the day you are told "you have cancer."
Someone posted this and I'm quoting:
"So everyone knows Survivorship starts the day you are told "you have cancer."
if this is true then I was disgnosed 7-7-2010 and have been a survivor 6 months.
SCC right tonsil which metastasized to neck right lymph nodes. Stage 3 HPV+
Completed treatment December 3, 2010 - treatment consisted of Chemotherapy 3 rounds: Cisplatin, Doxetaxel & FFU followed by 6 weeks of Radiation (30 rads) 55 grys to left side / 70 grys to right side with concurrent chemotherapy of Cetuximab.
Side effects: mouth sores, mucosititus, stomatitis, thrush, acne like rash caused by Cetuximab on my tongue, head, back and face. Cisplatin caused hearing loss to right ear along with hair loss. Thank you God that hair is growing back, acne like rash is gone. I do still have mouth sores, issues swallowing and cannot eat the spicy food I used to enjoy but it cured me of my addiction to caffeine and sugar. Positive I lost 50_ lbs and I am not at a healthy weight for a 5'6" female. I do have peripherial neuropathy in my left arm which the doctor thinks is temporary. Anyone else experience peripheral neuropathy in your arms? This is the feeling that your arm has falled asleep like when you sleep in a position which cuts off circulation but I have not its a chemo side affect according to my medical oncologist. But I wondered did anyone else have this issue with your arm or hand falling asleep?
here's to all the survivors out there!I have had the neuropathy at times, but it seems to have disappeared lately. Sometimes I wake up and my right hand is frozen. After a while it goes away, but like I said it has probably been months since that has happenned.
Ann
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I'll Have A Double Fish with Cheese...Crazymom said:Survival
So glad to read all the posts and what is really important in life.
I had SCC left tonsil and one left lymph node T2N2 M0 I have been Clear for 18 months...have a 3 months scan on July 25, next week. I am so gratefull I have this sight and all you wonderful people. I forget sometimes what is important.
My 13 year old son is off at Jamboree 2013 with the Boy Scouts and calling home complaining and wanting to come home. I was all stressed about it until I came to this sight and you guys helped me realize what is important. I just sent him a text and said if you cannot have fun at a camp I paid $2,000 for, you can work at McDonalds next summer. He texted me back and said he is having fun, will stay the entire camp and does not want to work at McDonalds next summer!
PS..my heath is good and I have no bad side effects....a bit of Chemo brain, forgetfulness, but everything else is good....Ann
Ann
LOL, tell him not only wil he be working at McD..., all of your CSN friends will come there and ask specifically for him come lunch time, LOL...
Awesome you are doing well Ann....
Thoughts and prayers for your upcoming scans..., and a long long life ahead....
John
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SURVIVOR FOR AWHILE
Hey Jen, I've been around, at this point, 13 years since my initial diagnosis of stage IV BOT. I should say that I did not find out about what stage my cancer was until about 5 years down the recovery road. I didn't want t know about the stage, because for me all that mattered was to hit the ground running and do what needed to be done to beat the beast. There's been some ups and downs, some backwards and forwards, and gettin kicked to the matt a few times, but always gettin back up and keepin it movin forward. Kids, remember, recovery is a marathon, not a sprint, and it takes lots and lots of patience; sometimes you have to take it one nanosecond at a time; but always, always remember I/YOU CAN DO THIS, the mantra that has gotten me through more than a few challenging times. So, hang in there and keep it movin forward, life does get better, much better; I've had some of the best times of my life since recovery. As I am want to say, "I'm just happy to be here!" Cheers...............*
PATRICK
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Great Thread! 15 Months!!!patricke said:SURVIVOR FOR AWHILE
Hey Jen, I've been around, at this point, 13 years since my initial diagnosis of stage IV BOT. I should say that I did not find out about what stage my cancer was until about 5 years down the recovery road. I didn't want t know about the stage, because for me all that mattered was to hit the ground running and do what needed to be done to beat the beast. There's been some ups and downs, some backwards and forwards, and gettin kicked to the matt a few times, but always gettin back up and keepin it movin forward. Kids, remember, recovery is a marathon, not a sprint, and it takes lots and lots of patience; sometimes you have to take it one nanosecond at a time; but always, always remember I/YOU CAN DO THIS, the mantra that has gotten me through more than a few challenging times. So, hang in there and keep it movin forward, life does get better, much better; I've had some of the best times of my life since recovery. As I am want to say, "I'm just happy to be here!" Cheers...............*
PATRICK
It is so nice to read about all the positive survival stories here. Yes, we lost a couple but I won't let that get my spirits down. Why haven't I seen this thread before? I looked for a post by me but only checked 3 out of 5 pages.
Stage 3 Mucoepidermoid Carcinoma BOT with right lymph nodes involved. T3N2M0. Radical neck dissection took care of those nodes. Date of DX:Sept, 2011. Last rad on April 2, 2012 so that makes it 15 months NED.
No matter what, I keep a positive attitude. Last time I saw my Head and Neck surgeon I told him my positive thinking will keep this cancer from returning. So he says "I have seen this cancer return". Thanks a lot doc for raining on my parade. It did not affect my attitude one bit.
So many great survivors. We are winning this!
Tommy
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