How long have you survived

1…5681011…17

Comments

  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #142
    dotty4577 said:

    My first post, just wanted
    My first post, just wanted to say how good it feels to have found this blog. I was diagnosed with AdCC 9/2010. Had removal or resection of the Hard pallet 1/11 and in 3/11 I had a 2nd surgery of removal of positive edges from my septum. Other lumps were found in my neck and on my thyroid, but, they were negative for malignancy. It has been almost five months since the surgeries and I have not recieved any rads. I am on my feet and even though i am being told to have rads. I don/t want to. I would like to hear some of your thoughts on taking this position. I am having a serious problem managing this orator/prostetic hard pallet,

    Hi Dotty, welcome.
    You may want to post your story and question as a new thread. You may get more responses that way, instead of it being buried in this thread, which is a different topic.

    You also may wish to look at the HNC Superthread. There is a section about whether or not to do radiation.

    HNC  SUPERTHREAD

    Wishing you well.

    Sweet
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #143
    ONE YEAR IN OCTOBER
    Thanks for keeping this post progressing as this is often the only time I get to see a reply from some folks.

    I will be one year post TX on October 20th. Right Tonsil SCC with METS to 23 nodes of which 19 were positive for CA. (Stage 4B)

    Feel great, actually my nutrition has greatly improved as a result of this horrible beast.

    So nice and encouraging to see longer term survivors here.

    God Bless!!

    Mike
  • KristynRuth
    KristynRuth Member Posts: 21
    #144
    luv4lacrosse said:

    ONE YEAR IN OCTOBER
    Thanks for keeping this post progressing as this is often the only time I get to see a reply from some folks.

    I will be one year post TX on October 20th. Right Tonsil SCC with METS to 23 nodes of which 19 were positive for CA. (Stage 4B)

    Feel great, actually my nutrition has greatly improved as a result of this horrible beast.

    So nice and encouraging to see longer term survivors here.

    God Bless!!

    Mike

    10 months!
    I'm 10 months post treatments from SCC unknown primary! Oct 25 will be a whole year since the last day of my treatments! :D
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #145
    KristynRuth said:

    10 months!
    I'm 10 months post treatments from SCC unknown primary! Oct 25 will be a whole year since the last day of my treatments! :D

    Welllll...
    Well look at you...very nice photo, you look great.

    Best,
    John
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #146
    Skiffin16 said:

    Welllll...
    Well look at you...very nice photo, you look great.

    Best,
    John

    Wow!
    OMG, KR! You look gorgeous! I love the hair, it is dark and really makes your eyes pop. You look adorable and fantastic.
  • dotty4577
    dotty4577 Member Posts: 7
    #147
    sweetblood22 said:

    Hi Dotty, welcome.
    You may want to post your story and question as a new thread. You may get more responses that way, instead of it being buried in this thread, which is a different topic.

    You also may wish to look at the HNC Superthread. There is a section about whether or not to do radiation.

    HNC  SUPERTHREAD

    Wishing you well.

    Sweet

    Buried
    Thank you sweetblood,

    I am not very savy yet about how and where to start. Thank you for your help. I will take your advise on posting as a new thread. I kinda thought that's what i was doing when I posted here. HNC Supershread huh? Okay.

    Thanka again sweetblood.

    Dotty
  • Arthur123
    Arthur123 Member Posts: 19
    #148
    sweetblood22 said:

    Wow!
    OMG, KR! You look gorgeous! I love the hair, it is dark and really makes your eyes pop. You look adorable and fantastic.

    Survival
    Stage 4 right tonsil and neck. Protocol program. 9 weeks of 4 chemo drugs followed by 35 radiation treatments and 7 more chemo sessions. Two and a half year survivor. Information only. No complaints. :)
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #149
    dotty4577 said:

    Buried
    Thank you sweetblood,

    I am not very savy yet about how and where to start. Thank you for your help. I will take your advise on posting as a new thread. I kinda thought that's what i was doing when I posted here. HNC Supershread huh? Okay.

    Thanka again sweetblood.

    Dotty

    thats ok
    its always hard to learn how to navigate when you first join these things. lol

    i just thought that your post would get way more replies if it stood on it's own. the superthread is sort of a place i put with links to questions we get every week. the most frequently asked questions. it has a lot of info to wade through, but there are a lot of helpful things in there for all stages of a head and neck cancer journey.

    blessings~
    sweet
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #150
    KristynRuth said:

    10 months!
    I'm 10 months post treatments from SCC unknown primary! Oct 25 will be a whole year since the last day of my treatments! :D

    YOU LOOL GREAT
    Hope you are feeling as well as your updated photo shows. I really need to update mine as I look nothing like this photo.

    We pretty much have the same one year anniversary date in Oct. I will be thinking of your good results also.

    Hope all is well with you and your family.

    "we beat the beast"!!!

    Mike
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #151
    Which episode?
    I'm over 13 years post radical neck dissecttin plur radiation for SCC BOT. Had a second primary floor of mouth a year ago treated with radical surgery. Now am back in process for either a third primary or a recurrance in my soft palate. Wouldn't trade anything for the time provided by my first treatment. Gonna whip this one too.
  • ggpierce
    ggpierce Member Posts: 30
    #152
    I am 2.5 yrs out from right
    I am 2.5 yrs out from right tonsil, with lymph nodes involved, two surgeries, 25 radiation treatments.

    My first and second cancer journey's were Hodgkins disease 22 years ago.
  • Nav_vetbill
    Nav_vetbill Member Posts: 6
    #153
    Two months and counting
    Sorry I haven't been on here since June. SCC of the Nasal Septum T1N0M0, finished 37 rad treatments the end of July and the Navy finally let me retire.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #154
    Nav_vetbill said:

    Two months and counting
    Sorry I haven't been on here since June. SCC of the Nasal Septum T1N0M0, finished 37 rad treatments the end of July and the Navy finally let me retire.

    Hi Nav

    My Boss is Ex-Navy and so is the guy that works under me. My Boss worked in the Naval Shipyard the other guy was an Ex-Navy Diver. Take care and enjoy the rest of your life


    ╠╣ONDO
  • Nav_vetbill
    Nav_vetbill Member Posts: 6
    #155
    Hondo said:

    Hi Nav

    My Boss is Ex-Navy and so is the guy that works under me. My Boss worked in the Naval Shipyard the other guy was an Ex-Navy Diver. Take care and enjoy the rest of your life


    ╠╣ONDO

    Count on it
    Thanks Hondo, I plan on it.
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #156
    longtermsurvivor said:

    Which episode?
    I'm over 13 years post radical neck dissecttin plur radiation for SCC BOT. Had a second primary floor of mouth a year ago treated with radical surgery. Now am back in process for either a third primary or a recurrance in my soft palate. Wouldn't trade anything for the time provided by my first treatment. Gonna whip this one too.

    Yes you Will
    You believe you will kick **** and you will. Go Go go
  • Bigfuzzydoug
    Bigfuzzydoug Member Posts: 154
    #157
    11 months survivor
    T2N0M0 Laryngeal squamous cell carcinoma above the right vocal cord biopsied on July 6, 2010. 35 IMRT radiation treatments later and I'm in remission and doing well.
  • George303
    George303 Member Posts: 11
    #158
    Bigfuzzydoug said:

    11 months survivor
    T2N0M0 Laryngeal squamous cell carcinoma above the right vocal cord biopsied on July 6, 2010. 35 IMRT radiation treatments later and I'm in remission and doing well.

    7 years
    Partial Layngectomy 2005 , no rad or chemo, vocal cords out. feel great. keep the faith!!!
    Good luck all
  • dave123
    dave123 Member Posts: 10
    #159
    Feb.5th 2010 I had parotid
    Feb.5th 2010 I had parotid gland cancer surgery plus 33 radiation treatments in front of my left ear.Those 33 treatments were a living hell I lost 40 lbs because i could not eat solid food just liquids. but i survived all that then in January 2011 they found that the cancer went into my right shoulder blade so I had 14 radiation treatments to my shoulder plus I started chemo treatments. In August they told me my cancer was in remission I still get a small dose of Chemo once a month and on Dec 27th I will have another PET scan I am still here today because of my faith in God,my Wife and my Doctor and all the prayers that have be sent on my behalf . I have limited use of my right arm but I have a wife that has been with me through it all. I will never give in to cancer
  • leonard53
    leonard53 Member Posts: 3
    #160
    throat cancer stage4 survivor
    6 years 7 months
    Glad to be hear to post this
  • robinleigh
    robinleigh Member Posts: 297
    #161
    Andy
    Andy has survived for 11 months even with a recurrence. I choose to count since the day of his diagnosis. I choose to count every important moment in our lives...which is every, single day!

Discussion Boards