ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

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  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #102
    debbiejeanne:  cincinnati,

    debbiejeanne:  cincinnati, ohio  dx 8/2009 with cancer of the voice box.  35 rad trmnts.  recurrence feb. 2012.  neck disection and complete larngectomy.  still have a hard time swallowing food, thx to rads.  get my throat dialated regularly.  had ned scan oct. 2012.

  • MICH4EL
    MICH4EL Member Posts: 73
    #103

    MICH4EL.  DX SCC STAGE IV.  BOT. lymph nodes affected both sides of neck.   Cancer discovered 3/7/13. transoral robotic surgery 4/29/13, including Rt tonsilectomy, BOT disection, selective neck dissection both sides.  Radiation completed 6/9/13.  No chemo.  Took Amifostene to protect saliva glands.

    m 

  • RushFan
    RushFan Member Posts: 224
    #104
    Checking in

    Chuck 'Rushfan' Byee checking in. Sorry, very rarely drop by anymore...I'm very blessed to be doing so well. 

    Weight holding steady at 200lbs., saliva at about 80-90% though still get pretty darn dry at night. Have some stiffness in my jaw and have started to have more frequent neck cramping. Synthroid has been bumped from 75 to 100 mcg. Teeth are okay. Taste back to 99%...even sweets are good...which is not so good. Gotta watch it. 

    Best to all, 

    Chuck.

  • w6nnh
    w6nnh Member Posts: 14
    #105
    RushFan said:

    Checking in

    Chuck 'Rushfan' Byee checking in. Sorry, very rarely drop by anymore...I'm very blessed to be doing so well. 

    Weight holding steady at 200lbs., saliva at about 80-90% though still get pretty darn dry at night. Have some stiffness in my jaw and have started to have more frequent neck cramping. Synthroid has been bumped from 75 to 100 mcg. Teeth are okay. Taste back to 99%...even sweets are good...which is not so good. Gotta watch it. 

    Best to all, 

    Chuck.

    Checking In

    Joined July 2012

    Oklahoma City, Ok

    Still Kicking.

  • Sam999
    Sam999 Member Posts: 319 Member
    #106
    w6nnh said:

    Checking In

    Joined July 2012

    Oklahoma City, Ok

    Still Kicking.

    Enrolling

     

    Sam999, nj,  stage 1 squamous cell carcinoma of tongue, HPV-. toungue surgery to remove tumor followed by 30 rads finished june 27th 2012. 

  • Christmas
    Christmas Member Posts: 100
    #107
    Checking In

    Sorry to have missed the roll call, but life has been good.  Very busy at work.  Dealing with problems, but all are manageable.

    Wow - I was diagnosed ten year ago.

    Christmas -

  • shoeloy
    shoeloy Member Posts: 70
    #108
    Still Here

    Two years and counting with NED. God is Good.

  • MICH4EL
    MICH4EL Member Posts: 73
    #109
    Enrolling

    MICH4EL, Minneapolis, MN, joined March 15,2013.   SCC BOT metastatic to lymph nodes both sides..  Surgery 3-29-13:  biopsy tongue, tonsillectomy, and bilateral selective neck dissection .  Radiation x 30 completed 6-10-13.

  • catfish_58
    catfish_58 Member Posts: 138 Member
    #110
    new comer

    Enrolled 1-17-2013,age 55,Waco,Texas,SCC left tonsil,HPV+,stage III,33rads and 7 weekly chemo's of Cisplatin,Started treatment in 2-25-2013,finished treatment 4-29-2013,go in tommorow for results of pet scan,Newbie but now hopefully enrolled

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #111
    catfish_58 said:

    new comer

    Enrolled 1-17-2013,age 55,Waco,Texas,SCC left tonsil,HPV+,stage III,33rads and 7 weekly chemo's of Cisplatin,Started treatment in 2-25-2013,finished treatment 4-29-2013,go in tommorow for results of pet scan,Newbie but now hopefully enrolled

    welcome, catfish!  good luck

    welcome, catfish!  good luck w/the scan results.  b sure 2 let us know.

    dj

  • wild willy
    wild willy Member Posts: 63 Member
    #112
    enroll

    location is harmony, nc   3.5 yrs out, cancer free. right tonsil stage 4.  no taste , 70 to 80% saliva . pain in neck and ear other than that doing well.

  • LaughingGirl
    LaughingGirl Member Posts: 6
    #113
    Roll call 2013

    I don't post often, but lurk nearly daily (a bit of survivor guilt here as my treatment was blessedly easy compared to most, I believe)

    Stg IV Right Tonsil with intrusion to soft palate, SCC HPV-.   DX Jan 2013, Treatment (Rads and Cisplatin) started March 2013, ended April 19, 2013.

  • sunshine_65
    sunshine_65 Member Posts: 21 Member
    #114
    roll call 2013 checking in

    T1N3, mets to both sides of lymph glands; enrolled March 2013, treatment 33 rads & erbitux, NED September 2012;

    working full time, Stanford CA. Glad to have you all here on roll call and on this website. You've all helped me

    tremendously.

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #115
    Checking in

    KTeacher, now retired.  I've been fighting since Aug. 2010.  From Central Valley, California.  Receive Surgeries at Stanford.  Looks like I'm getting ready for fight #4.  Trying to build up strength and immune system.

    Bev Olaver

  • scottied
    scottied Member Posts: 36 Member
    #116
    Scottied, Virginia, SCC base

    Scottied, Virginia, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011. All things good, 99% back to normal Life is Good!

  • nick770
    nick770 Member Posts: 195
    #117
    enrollingColumbus, OhioMay

    enrolling

    Columbus, Ohio

    May 2012 DX tonsil cancer satge IIIb 36 rounds of Rads, 2 cycles of cisplatin.  Peg-tube

    Sept 2012 New DX of lung metasis (both lungs)

    Oct 2012  Surgery/lobectomy of R lower lung. 

    June 2013 Statrted taxetol & 5FU (got radiation recall), new peg tube placed. The chemo had zero effect on new tumors.

    Currently  no treatmnets, however there is a possible new clinical trial(s) fall 2013

    (Loving life & fighting daily) Using alternative solutions 

  • donfoo
    donfoo Member Posts: 1,773 Member
    #118
    nick770 said:

    enrollingColumbus, OhioMay

    enrolling

    Columbus, Ohio

    May 2012 DX tonsil cancer satge IIIb 36 rounds of Rads, 2 cycles of cisplatin.  Peg-tube

    Sept 2012 New DX of lung metasis (both lungs)

    Oct 2012  Surgery/lobectomy of R lower lung. 

    June 2013 Statrted taxetol & 5FU (got radiation recall), new peg tube placed. The chemo had zero effect on new tumors.

    Currently  no treatmnets, however there is a possible new clinical trial(s) fall 2013

    (Loving life & fighting daily) Using alternative solutions 

    hoping only the best for you

    I am really sorry to hear the holding pattern you are in. I think mets to the lungs is the greatest fear we all try to keep under control as HNC survivors. Have you researched and tried any alternative therapies such as different diets and such? It seems you can complement  the science based therapies with others with no ill effect. As you have read here, others have had their cancers just stop after being given palliative prognosis. Best to you, don

  • wifeforlife
    wifeforlife Member Posts: 189
    #119
    Here and Strong!

    Kansas City MO, Husband Stage IV SCC with primary at base of tongue with metastasis to lymph nodes and tonsil confined to left side November 6, 2009. Surgery, Chemo, and radiation. Completed treatments. We are still NED...he ran a 5k on his last birthday!

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #120
    wifeforlife said:

    Here and Strong!

    Kansas City MO, Husband Stage IV SCC with primary at base of tongue with metastasis to lymph nodes and tonsil confined to left side November 6, 2009. Surgery, Chemo, and radiation. Completed treatments. We are still NED...he ran a 5k on his last birthday!

    way to go!!!
    dj

    way to go!!!

    dj

  • ratface
    ratface Member Posts: 1,337 Member
    #121
    here here

    Mark me down for 2013, getting ready to totally enjoy another cold cold Chicago winter!

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