ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

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  • olybee
    olybee Member Posts: 85
    #62
    checking in

    Olybee - Olympia, WA  diagnosed with Stage 4 HPV+ tonsil cancer 4/2010.  Surgery to remove both tonsils and 35 lymph nodes.  Underwent 35 radiation sessions.  Still hanging in there, still has some difficulty swallowing, dry mouth, but slowly getting stronger.  Still has issues with tastebuds.  Can taste the first couple of bites of most things now, so it does get better.

     

  • Duggie88
    Duggie88 Member Posts: 760 Member
    #63
    My enrollment

     Jeff from Bernville, PA.  Diagnosed with stage 4 throat cancer November 22, 2009 after a biopsy locally I was sent to Philadelphia to the Hospital at the University of Pennsylvania for surgery on December 18,2009 where they took out part of the base of my tongue, epiglottis, uvula, and some lymph nodes on the left side of my neck. Radiation from February 16, 2010 through March 30, 2010 at the HUP.  Although when I played basketball in high school we weren’t allowed to slam dunk, I finally got to do so to cancer allowing me to be late for my funeral. Now I enjoy today and look forward to tomorrow.

     

  • dlygoblue
    dlygoblue Member Posts: 28
    #64
    2013 Roll Call

    Present!! Thank God! 

    Here in DFW area of Texas. Diagnosed Olfactory Neuroblastoma May 2011.  Surgery, Radiation and Chemo at UT Southwestern.  So far, living cancer-free. Available to share my experience for those needing insight.

  • wrhbounds
    wrhbounds Member Posts: 39
    #65
    dlygoblue said:

    2013 Roll Call

    Present!! Thank God! 

    Here in DFW area of Texas. Diagnosed Olfactory Neuroblastoma May 2011.  Surgery, Radiation and Chemo at UT Southwestern.  So far, living cancer-free. Available to share my experience for those needing insight.

    here for 14

    Bill here started this ride 4/99 still living a full and happy life

  • wrhbounds
    wrhbounds Member Posts: 39
    #66
    dlygoblue said:

    2013 Roll Call

    Present!! Thank God! 

    Here in DFW area of Texas. Diagnosed Olfactory Neuroblastoma May 2011.  Surgery, Radiation and Chemo at UT Southwestern.  So far, living cancer-free. Available to share my experience for those needing insight.

    here for 14

    Bill here started this ride 4/99 still living a full and happy life

  • wolfen
    wolfen Member Posts: 1,324 Member
    #67
    wrhbounds said:

    here for 14

    Bill here started this ride 4/99 still living a full and happy life

    Enrolling Today

    Wolfen here in Scottsdale, Az. New to board, but not new to CSN. Husband diagnosed late Oct. 2012 Stage IV BOT, Nasopharyngeal, with lymph node involvement on right side. Also, diagnosed with second primary, not met, Lung Cancer left lung. Due to other medical complications, just getting started with cancer treatments. He has just finished first five days of ten day rad session on lung. Had thirteen teeth extracted, power port and G-tube put in all at once. Chemo is to start a week after lung rads completed. Has lost 60 lbs. so far. Very weak and tired. Just taking it one day at a time as fine team at MD Anderson does their very best.

    Luv,

    Wolfen

  • shoeloy
    shoeloy Member Posts: 70
    #68
    Checking IN

    It will be 2 years next month since I finished treatment. Dong well, with the usual side effects that we all share in some fashion.

  • tuffenuff
    tuffenuff Member Posts: 277
    #69
    Add me to the list!

    TUFFENUFF. Jacksonville, FL. Diagnosed 4/2012, Stage IV SCC of right tonsil with mets to 2 lymph nodes. 70gy rads, 7 weekly doses of Cisplatin. Treatment ended on 08/03/2012. All scans have been clear so far!

  • lola5071
    lola5071 Member Posts: 18
    #70
    Roll Call 2013

    Add my husband to the list. Age 61 - DX October 2011, SCC primary tonsil HPV+. 35 Rads and 3 rounds of chemo. Completed treatment December 2011. Additional surgery in May 2012 due to necrosis. Excessive bleeding and throat not healing. 35 sessions in the hyperbaric(sp) chamber. Pet scan in Dec 2012 still had a couple of spots that lit up. Oncologist thinks it is due to lack of healing and scar tissue. March 2012 ENT visit - throat has healed. Area where tissue is tough and wants to keep an eye on it. Follow scan and ENT appt in June. Thankful for everyday we have! Cant wait until we get a clean scan!

     

  • NeoTheron91
    NeoTheron91 Member Posts: 75
    #71
    2013 Still Here

    Stage 4 NPC T3N2M0 , diagnosed and treated in 2011, Joining CSN in 2011, Still Survive ...

     

    Have a great day everyone!

  • Joel4
    Joel4 Member Posts: 263 Member
    #72
    NeoTheron91 said:

    2013 Still Here

    Stage 4 NPC T3N2M0 , diagnosed and treated in 2011, Joining CSN in 2011, Still Survive ...

     

    Have a great day everyone!

    Checking In

    Joel, 42 years old in Rochester NY.  Diagnosed in April 2010 with SCC unknown primary.  Left neck dissection, tonsillectomy.  One tumor positive out of 40 taken, no extracapsular spread.  No further treatment.  Coming up on three years with nothing more found.  Very thankful for my miracle and for the group here and for my doctor and team at the Wilmot Center.

  • adventurebob
    adventurebob Member Posts: 691
    #73
    Alive and Well

    Marin County California. Diagnosed May 2010 with NPC and mets to lots of bone. Lots of chemo and radiation in 2010. More radiation in August 2011 for pesky bone mets in right hip. More chemo and radiation September 2012-January 2013 for more pesky bone mets in sacrum. Hiking and backpacking through it all. Loving life. Married in the botttom of Grand Canyon October 9 2012. All done with recent chemo and rads. Doing well, loving life.

     

    AB 

  • backachedp
    backachedp Member Posts: 132
    #74
    adventurebob said:

    Alive and Well

    Marin County California. Diagnosed May 2010 with NPC and mets to lots of bone. Lots of chemo and radiation in 2010. More radiation in August 2011 for pesky bone mets in right hip. More chemo and radiation September 2012-January 2013 for more pesky bone mets in sacrum. Hiking and backpacking through it all. Loving life. Married in the botttom of Grand Canyon October 9 2012. All done with recent chemo and rads. Doing well, loving life.

     

    AB 

    Roll Call 2013

    Bob from Minneapolis diagnosed 9-29-2009.  33 Rads 3 Rounds Cisplatin 1 5-FU.  Finished 1-28-2010.  NED May 23 2010.  Was doing somewhat ok but never got his swallow back...is having Lung issues due to Aspirating seeing a Swallow Dr and is recommending Feeding Tube.  Treatment is University of MN Fairview Hospital.

  • ooo
    ooo Member Posts: 105
    #75
    Checking in for 2013!
    With

    Checking in for 2013!

    With some little correction, my record should be:

    Ooo, Boston, Massachusetts, enrolled on April 2, 2012. DX’d SCC oral tongue in February 2012. Tumor removed March 2012; IMRT + brachytherapy ended June 2012.

    Thanks for doing this!

    Dre.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #76
    robinleigh said:

    Andy diagnosed scc tonsil
    Andy diagnosed scc tonsil Jan. 2011. metastasis to liver and pelvis. fought heroic battle until sept. 2012.. Died surrounded by his loving family. Reported by robinleigh, wife...caregiver...soulmate forever

    i'm so sorry to hear of your

    i'm so sorry to hear of your loss.  I pray God will bless you wiht the strength to make it thru each day.  My thots and prayers are with you.

    God bless,

    debbiejeanne

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #77
    Jennfer39 said:

    ROLL CALL 2013

    Jennfer39, Ohio, DX 10/7/11,  Left tonsil HPV SCC, met to three lymph nodes in neck (same side),   Tonsillectomy, feeding tube, port "installed", and then 40 high dose radiation treatments and three high dose Cisplatin chemo treatments concurrent every three weeks of rads...  Last rad treatment 12/30/11... Two PETS since then, and NED at this time (last PET 10/25/12). 

     

     

    jen, what part of ohio,

    jen, what part of ohio, cincinnati here.

  • lorig01
    lorig01 Member Posts: 83
    #78
    Enrolling in Houston Texas

    Hi.   Diagnosed July 2012 with Stage III tonsil cancer with 1 left lymph node. TORS surgery: tonsilectomy, neck dissection, all teeth removed, G-Tube inserted. Completed treatment September 2012.   G-Tube removed after 5 months. Recovering well except typical eating issues, (dry mouth).  Energy very good and hoping to get better everyday. All in all life is good!

  • mechanicman2
    mechanicman2 Member Posts: 16
    #79
    Still here, and hoping we stay!

    Hi, this is mechanicman2 which is my hubby. We live in the Washington DC area. We are also creepers. But it does help a great deal seeing what others like us are going thru. We love this forum. It has really helped us thru this trying time.  He was dianosed in May of 2012 with a mass at the base of his tongue. This was removed in April and a couple of weeks later he had a neck disection with the removel of tonsils, salivary glands, some nerve, lymph nodes, ect., followed by Rad. and Chemo. Had a CT done last month Feb. 2013 and they saw something on his cheek. His ENT felt it and said he didn't feel a mass, fingers crossed. We went last week and had a PET scan. Now just playing the waiting game with his ENT. He went to his Medical Oncologist last week and he said they saw nothing but we have a biopsy scheduled for this week. Also told him he has a broken glass nodule in his lung. Has anyone ever heard of this. He was just told he will have to have another CT done in 3 mo. Also in Physical Therapy for fluid build up in his face and not much motion in his neck. Getting better though. Anyway, hoping for good news from his ENT next month about the PET and the broken glass nodule. By the way I googled the broken glass nodule and didn't like what I saw, but I'm trying not to worry till we see his Dr. April 5th. I will post as soon as we here something  

  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #80
    Checking In
    Jimbo55 checking in fresh off a clean PET/CT scan over the weekend. That makes 2 years and 7 months since the end of tx. Life is good. Cheers.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #81
    Jimbo55 said:

    Checking In
    Jimbo55 checking in fresh off a clean PET/CT scan over the weekend. That makes 2 years and 7 months since the end of tx. Life is good. Cheers.

    Hi Jimbo

    Glad to hear you are doing well my friend. Great looking picture keep up the good work and may God bring you a blesssing everyday.

     

    Tim Hondo

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