ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

my location is harmony nc. i am 3 years out next mo. right tonsil cancer

Still alive and well. Neck spasms are my only little gripe, and soon to be 4-years out from the end of tx.

kcass

Northern KY - still doing VERY well, even with minor post-treatment issues

Pam M said:

Update - Silver_Foxette

Roxanne (Silver Foxette) is in the fight again - chemo to start again first week in Feb, 2013.

Mike (Landranger25, Michigan) checking in and doing well. 39 months post treatment now with no issues. Diagnosed May 2009 SCC BOT stage III with one lympnode, treatment completed October 2009. 10 weeks chemo and rads, no surgery.

Regards, Mike

Been away for awhile.  I was diagnosed with Nasopharengel cancer in the beginning of 2010 and had the usual run of chemo and radiation.  I was declared NED in June of 2010.

In the beginning of 2012 a scan showed a new growth of Maxillary Sinus cancer.   Went with surgery this time.   Required a reconstruction of the eye orbit and basicly they opened up my cheek and removed everything(inluding my upper gum on the right side and all the upper teeth on the right side) and took tissue and bone from my shoulder blade to rebuild. 

Unfortunatly, they found another growth behind the right eye 3 months later during a scan.  Went through concurrent chemo and radiation or 7 weeks/35 treatments.   I may or may not lose the use of my right eye but for now it is patched and when I take off the patch I have some vision but bluriness.  Will have to see how that goes over time.

Finally, some good news, I had a Pet last Fri 2/1 and saw the doctor today.  The Pet showed No Evidence of Disease.  Hoping this is the last time, but, already have my follow up CT set for 3 months.   Keeping fingers crossed that I get past 2 years this time.

The first time through, y'all were a god-send of information and support.  Thank y'all, and If I can help anyone else or offer comfort/information, I am here again and will be checking in often.

meinken said:

Whoops, duplicate, If you can please delete

Whoops duplicate please delete

SINCE DX, NED FOR NOW HOPEFULLY FOR MANY YEARS TO COME.

SeenanN, Maryland, NPC met to lung with dozen of swollen brain nodules. Back to work fulltime 4 months after Tx ended Dec 2004 with side effects including dry mouth, dry eyes, jaw pain, loss of hearing, nerve damage, foggy brain and then shingles and sinus surgery. On the bright side walking daughter down the aisle, seeing my children complete school, living and looking at the smiling face of the lady that I admire the most, my wife.

Thank Hawlet,

Seenan        

arndog64 said:

Checking in

Arndog64 checking in... My husband is doing well still has the throat pain and his teeth are starting to detoirate. Other than that, he is a trooper..

Diagnosed 3/22/11 and joined forum on 1/28/12. Created an "about me" page when I joined but I didn't make it on to either list. Maybe I didn't post enough although I check the forums every few days. I am NED as far as I know but have my second post treatment PET scan on 2/11/13.

(Actually, checking is not allowed in amateur hockey though banging around is)

Just stopped by and realized that it is two years this month since the last stage which was just a clean-up neck dissection. Already past two years for nine weeks of rads and chemo and two and a half since the opening tonsilectomy. Life is wonderful and recovery nearly complete. Have been playing about four hockey games a week and working all over the world. If it weren't for needing water to eat or talk long, no one would know what we went through. Really, only other aggravation is an increasingly stiff neck.

Yes, it can get a little depressing to have to consider whether one can eat things; it has been two and a half years since I could just get a plate and eat anything I wanted any time any where. I wish I could go back and tell myself that that would be the end of it but, on the whole, this is not a major issue. My angel wife, DrMary - who is out doing Tae Kwon Do right now - still makes practically every meal from scratch to accommodate me and still massages the neck scar nearly every day with Vit E oil to make it disappear.

But it is good to stop by here and see friends who meant so much. You "graduate" from school and move on but you never quite move on from here. Big hugs to all from us. If you are ever in the Wash, DC/Maryland area, please let us know. Doug and Mary

pattyanny said:

I am here!

Here! Please keep me in prayer.  Love & Prayers to you all! 

 

You are always in my prayers..., you are an original sista ~ JG