ROLL CALL 2012 - Updated as of January 16, 2012 (CLOSED 10/12/2013)

124

Comments

  • sumarah8
    sumarah8 Member Posts: 32
    #62
    i got diagnosed sept. 2011

    i got diagnosed sept. 2011 for npc stage 2b, still here, struggling to gain weight but im okay...

  • HAWVET
    HAWVET Member Posts: 318
    #63
    sumarah8 said:

    i got diagnosed sept. 2011

    i got diagnosed sept. 2011 for npc stage 2b, still here, struggling to gain weight but im okay...

    My apologies

    Have been gone a while.  Will be updating roll call in the next couple weeks and decided only to do it annually in January.  If checking back in, please post after the last entry.  Aloha and thank you all for posting.  Johnny "HAWVET"

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #64
    I needed this post!

    Awesome! So many survivors doing well! Being one that's about to battle this beast, this post was much needed and appreciated. Hooah!

    "T"

  • phrannie51
    phrannie51 Member Posts: 4,716
    #65
    fishmanpa said:

    I needed this post!

    Awesome! So many survivors doing well! Being one that's about to battle this beast, this post was much needed and appreciated. Hooah!

    "T"

    I'm still here, too!

    NPC, diagnosed in March, 2012.....Finished rads in June.....finished chemo in August.....I don't go a day without checking into this forum.  You guys saved my bacon!!

    p

  • Nous Defions
    Nous Defions Member Posts: 33 Member
    #66
    New Enrollment

    I was diagnosed June 27, 2012 with T2N2CM0 Stage IV SCC (HPV+) primary right tonsil with left and right lymph node involvement.

    First surgery conducted on July 3, 2012.  They conducted a right radical tonsillectomy, left tonsillectomy, partial BOT glossectomy and some other stuff that I dont remember.

    Wisdom teeth removed July 25, 2012.

    Started treatment on August 6, 2012 which consisted of 6 weeks of chemo (Cisplatin) and Rads concurrently.

    Radical Neck Dissection performed on November 8, 2012.

    First NED given on November 16, 2012.Cool

    I recently returned to work and started my physical rehab, which is kicking my butt.  I went into my first surgery weighing 225 lbs and came out of treatment at 165 lbs.  So, i have a lot of work to do in order to return to my fighting weight.

    As of today I feel great and look forward to deploying with my guys in the very near future.

    Will

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #67
    It is I

    Howdy,

    CivilMatt , Oregon, dx December 23, 2011, Stage IVa, SCC, BOT, HPV+, & 1 Lymph node left side of neck, surgery neck & tongue, 35 rads / 8 Erbitux cocktails.

    Checking-in 9:40pm (PST) January 18, 2013.

    (692 smoothies later, still a rookie)

    Matt

  • Grandmax4
    Grandmax4 Member Posts: 723
    #68
    Please Enroll

    Carolyn, Green Camp Township, Ohio...dx September 2011..De Vinci Robot surgery November 2, 2011. Removed epiglottis...by the Grace of God all is well, can eat anything..loveing my family including CNS loved ones.....

  • jim and i
    jim and i Member Posts: 1,788 Member
    #69
    checking in

    Checking in for 2013. Caretaker of husband Jim who was diagnosed with base of tongue stage 4 and two lyph nodes in  April 2011, 35 rads, 2 cisplatin, 3 erbitux. Finished August 2011. Three months later spread to both lungs. September 2012 told less than a year to live. Started gaining weight Jan. 2013. Still believe in miracles. Praising God for time we have together and catching fish, what else could you ask for.

    Debbie

  • HAWVET
    HAWVET Member Posts: 318
    #70
    jim and i said:

    checking in

    Checking in for 2013. Caretaker of husband Jim who was diagnosed with base of tongue stage 4 and two lyph nodes in  April 2011, 35 rads, 2 cisplatin, 3 erbitux. Finished August 2011. Three months later spread to both lungs. September 2012 told less than a year to live. Started gaining weight Jan. 2013. Still believe in miracles. Praising God for time we have together and catching fish, what else could you ask for.

    Debbie

    FINAL CALL. Will soon be closing this thread

    Aloha Skiffin.  Thanks to all for enrolling or updating your status.  Will release the 2013 roll call list shortly.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #71
    Aloha Brah...

    Skiffin16 in the house...

    Lakeland, Florida 

    STGIII SCC Tonsils and a lymphnode HPV+ Dx January 2009...

     All clear as of January 2013...

  • luv2cut1
    luv2cut1 Member Posts: 288
    #72
    HAWVET said:

    FINAL CALL. Will soon be closing this thread

    Aloha Skiffin.  Thanks to all for enrolling or updating your status.  Will release the 2013 roll call list shortly.

    Checking in for 2013

    Hope it is not too late!  Husband Pat diagnosed stage II cancer of epiglottis May 2008, treated with chemo & rads.  Recurrence in lymph nodes (4) with extracapuslar spread in April 2009, radical neck dissection, chemo and reirradiation.  For today NED on head and neck cancer.  Chronic lymphocytic leukemia (CLL) diagnosed 2000, finally needed treatment Jan - June 2012.  Complete remission (yes!), but fighting lung infections due to compromised immune system.  Overall, quality of life is good.  Working full time, playing full time and eating just about anything.  I worry always about recurrence, second primary and side effects, but husband does not.  He just lives life to the fullest each day.

    Have not posted much lately, but always follow the board.  I am always uplifted by the victories, large or small, and am always broken hearted by the losses.  Each and every one of you are in my prayers always.

     

    Myka

  • Greg53
    Greg53 Member Posts: 849
    #73
    luv2cut1 said:

    Checking in for 2013

    Hope it is not too late!  Husband Pat diagnosed stage II cancer of epiglottis May 2008, treated with chemo & rads.  Recurrence in lymph nodes (4) with extracapuslar spread in April 2009, radical neck dissection, chemo and reirradiation.  For today NED on head and neck cancer.  Chronic lymphocytic leukemia (CLL) diagnosed 2000, finally needed treatment Jan - June 2012.  Complete remission (yes!), but fighting lung infections due to compromised immune system.  Overall, quality of life is good.  Working full time, playing full time and eating just about anything.  I worry always about recurrence, second primary and side effects, but husband does not.  He just lives life to the fullest each day.

    Have not posted much lately, but always follow the board.  I am always uplifted by the victories, large or small, and am always broken hearted by the losses.  Each and every one of you are in my prayers always.

     

    Myka

    Checking In

    Checking in – almost 3 years out and doing well!  Thanks for keeping this going Hawvet.

     

    Greg

  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #74
    Greg53 said:

    Checking In

    Checking in – almost 3 years out and doing well!  Thanks for keeping this going Hawvet.

     

    Greg

    2013 Check In

    Checking in, several CTscans and scopes and all is well!  I read everyone's comments and questions, so sad for our recent losses!  Mostly lurk now but so concerned and interested in everyone's journey!

  • greg from pa
    greg from pa Member Posts: 86
    #75
    greg from pa    5/2010

    greg from pa    5/2010  diagnosed scc base of tounge w/ mets to lymph nodes stage 4      chemo and radiation   nodes removed    NED on          11/10    very happy and gratefull    only 20# shy of my diagnosed weight  going for the last 20 this year ,  going back to work soon

     

  • sassysrice
    sassysrice Member Posts: 117
    #76
    add to roll call

    boyfriend dx SCC base of tongue/1 lymphnode Nov 2012. Almost done with 35 rads and 6 chemo 3 cisplati 3 Erbitux. Will be done Jan 31,2013

  • sassysrice
    sassysrice Member Posts: 117
    #77
    add to roll call

    boyfriend dx SCC base of tongue/1 lymphnode Nov 2012. Almost done with 35 rads and 6 chemo 3 cisplati 3 Erbitux. Will be done Jan 31,2013

    Cape Cod MA

  • rush1958
    rush1958 Member Posts: 223 Member
    #78
    Checking In - 2013

    Howdy everyone. Just checking in for the annual roll call. Please mark me down as "present and accounted for!"

    Rush

     

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #79
    rush1958 said:

    Checking In - 2013

    Howdy everyone. Just checking in for the annual roll call. Please mark me down as "present and accounted for!"

    Rush

     

    Checking in

    July 26, 2012 husband diagnosed stage IV BOT cancer.  Davinci robotic surgery, lymph node extraction, 14 rads.  David was diagnosed with Primary Plasma Cell Leukemia on November 24, 2012.  This cancer is not curable and has been given a 3% chance of living until the next roll call.  I sure hope he is here for it.

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #80
    rush1958 said:

    Checking In - 2013

    Howdy everyone. Just checking in for the annual roll call. Please mark me down as "present and accounted for!"

    Rush

     

    Checking in

    July 26, 2012 husband diagnosed stage IV BOT cancer.  Davinci robotic surgery, lymph node extraction, 14 rads.  David was diagnosed with Primary Plasma Cell Leukemia on November 24, 2012.  This cancer is not curable and has been given a 3% chance of living until the next roll call.  I sure hope he is here for it.

  • TheOtherDitto
    TheOtherDitto Member Posts: 58
    #81
    VivianLee5689 said:

    Checking in

    July 26, 2012 husband diagnosed stage IV BOT cancer.  Davinci robotic surgery, lymph node extraction, 14 rads.  David was diagnosed with Primary Plasma Cell Leukemia on November 24, 2012.  This cancer is not curable and has been given a 3% chance of living until the next roll call.  I sure hope he is here for it.

    Ditto is in the house!

    Ditto1 (patient) and TheOtherDitto (caretaker).  Ditto1 had stage IV BOT, multiple lymph nodes on both sides.  Dx in March 2012 began treatment in June 2012, finished treatment August 2012.  2 cisplatin (3 weeks apart) then 9 Erbitux concurrent with 33 rads.  CT in October was clear, PET in Dec was concerning so additional biopsies were done Jan 16, 2013.  Unofficially all clear - will have follow-up from biopsies on Jan 26th, 2013. 

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