ROLL CALL 2012 - Updated as of January 16, 2012 (CLOSED 10/12/2013)

135

Comments

  • Dazey
    Dazey Member Posts: 91
    #42
    hwt said:

    Enrolling 10/23/2012
    St Louis, MO DX Jan 2012 Cancer in mandible (lower jawbone) 19 hour surgery 01/31/12 4 days planned coma 2 weeks hospital. Jaw reconstructed from fibula in leg and titanium. Finished rads and Cisplatin Mid-May2012. CT w/contrast and most recently PET scan both NED. Waiting to do HBOT in Nov. and start implants to replace majority of lower teeth removed during surgery. Doing most everything I was doing before DX and TX. Energy level is good.

    update
    posted on an "old" roll call - Dazey checking in. Three years (October 26, 2009) ago treatment was completed - latest cat scan (August 2012) and latest ENT scoping (yesterday) All remains clear! NED. This is definitely a long, never ending journey!
  • cureitall66
    cureitall66 Member Posts: 913
    #43
    Enroll loved one please......
    Cureitall66, Michigan, Loved one is Male age 51. Dx August 21, 2012 Stage IV, SCC, BOT, HPV+, 1 Lymph node left side of neck. Currently in treatment. Tx October 8, 2012 with Chemo: Carboplatin plus Paclitaxel once weekly for 7 wks, Rads 5 days week for 7 wks. No surgery.
  • ratface
    ratface Member Posts: 1,337 Member
    #44
    cureitall66 said:

    Enroll loved one please......
    Cureitall66, Michigan, Loved one is Male age 51. Dx August 21, 2012 Stage IV, SCC, BOT, HPV+, 1 Lymph node left side of neck. Currently in treatment. Tx October 8, 2012 with Chemo: Carboplatin plus Paclitaxel once weekly for 7 wks, Rads 5 days week for 7 wks. No surgery.

    checking in for 2012
    Living in Chicago Illinois geting ready for another horrible winter and damn estatic about it!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #45
    ratface said:

    checking in for 2012
    Living in Chicago Illinois geting ready for another horrible winter and damn estatic about it!

    Hot Dog Place...
    Are you still near the Hot Dog Place..., I'm getting hungry?

    Nice seeing so many newbies on the list and the road to recovery.

    JG
  • meaganb
    meaganb Member Posts: 244 Member
    #46
    Skiffin16 said:

    Hot Dog Place...
    Are you still near the Hot Dog Place..., I'm getting hungry?

    Nice seeing so many newbies on the list and the road to recovery.

    JG

    Enrolling
    Meaganb: Columbia, South Carolina. Dx: March 2012 Adenoid Cystic Carcinoma. Tumor removed along with 47 lymph nodes. Clean margins but decided to follow with radiation because of perineural invasion. Clean MRI and chest x-ray as of August 2012 & praying for many many more!
  • Billie67
    Billie67 Member Posts: 898
    #47
    meaganb said:

    Enrolling
    Meaganb: Columbia, South Carolina. Dx: March 2012 Adenoid Cystic Carcinoma. Tumor removed along with 47 lymph nodes. Clean margins but decided to follow with radiation because of perineural invasion. Clean MRI and chest x-ray as of August 2012 & praying for many many more!

    Enrolled July 2, 2012
    Diagnosed March 28, 2012 stage IV laryngeal SCC with a few nodes involved on R side. Finished erbitux(chemo) and rads on June 28th 2012.
    PET/CT NED 9/28/12
    Hoping for many many more!
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #48
    Billie67 said:

    Enrolled July 2, 2012
    Diagnosed March 28, 2012 stage IV laryngeal SCC with a few nodes involved on R side. Finished erbitux(chemo) and rads on June 28th 2012.
    PET/CT NED 9/28/12
    Hoping for many many more!

    Enrolled April 13, 2012
    DX Stage 1 SCC of vocal cords. Had 38 rads only and finished June 15, 2012. Only lost 4 lbs. of which I've gained back plus some! Already been scoped twice...NED! and CT scan once...NED! Voice not the best but thankful I have one! Thankful for this forum.
  • Mikemetz
    Mikemetz Member Posts: 465 Member
    #49
    Mrs. Sarge said:

    Enrolled April 13, 2012
    DX Stage 1 SCC of vocal cords. Had 38 rads only and finished June 15, 2012. Only lost 4 lbs. of which I've gained back plus some! Already been scoped twice...NED! and CT scan once...NED! Voice not the best but thankful I have one! Thankful for this forum.

    Checking in with an update
    Mikemetz is in Decatur, GA and still dealing with ORN. I had "Debridement, The Sequel" just today (10/25/2012). The first one was in April of 2012, with a tooth extraction, that never got on the right path to healing. Here's hoping the second debridement works and I can be pain-free in that area after more than 4 years. The good news is that I'm NED, with my next scan in December.

    Mike
  • Vikeman10
    Vikeman10 Member Posts: 62
    #50
    Mikemetz said:

    Checking in with an update
    Mikemetz is in Decatur, GA and still dealing with ORN. I had "Debridement, The Sequel" just today (10/25/2012). The first one was in April of 2012, with a tooth extraction, that never got on the right path to healing. Here's hoping the second debridement works and I can be pain-free in that area after more than 4 years. The good news is that I'm NED, with my next scan in December.

    Mike

    Enrolling Oct. 30, 2012
    Vikeman10- Edina, MN diagnosed Dec. 2010 Malignant neoplasm of posterior hypopharyngeal wall stage 4.
    Chemotherapy of carbol and taxol from Dec.2010 thru March 2012.
    Trachectomy April 2012,
    May 2012 Erbitux 9weeks and 35 rads finished July 2012.
    PET scan Oct. 2012 with NED 10/29/2012.
    Happy to still be kicking!!!
    Randy
  • jkinobay
    jkinobay Member Posts: 298 Member
    #51
    Shame on me...........but great news

    For whenever you do the 2013 ROLLCALL:

     

    Sorry for getting a bit complacent but glad to report that I am at the 5&1/2 yr. mark and still NED.

     

    Hoping all are well and continue to improve.

  • lts
    lts Member Posts: 75
    #52
    Enrolling

     

    Luke Sandzik from Michigan. DX Oct 2012 Adenoid Cystic Carcinoma right submandibular gland. Enrolled 11/12/2012. Had neck dissection to remove gland, 30 lymph nodes , fat bed gland was in and some local muscle. Currently in radiation treatment and have completed 10 of 33 as of 1/2/2013. The holiday was great and I hope for many more.

     

  • JGE
    JGE Member Posts: 51
    #53
    Still here!

    Was 4 years in November. I forget sometimes and I love it! D-mn scar on my neck always makes people ask the dreaded question... usually in a whisper... "How are you doing?"

    I usually say "I'm fine, how are you". Then I realize that they meant "how are you doing (with your cancer)" and then I tell them I was doing great until they reminded me about it!  LOL

    I have a sore throat and I am hoarse a lot which is annoying but tolerable. I am a bit more fearful that every single ache and pain is something serious, but, I am sure attempted murder victims are a little gun shy sometimes too. ;)

    I don't have much tolerance for the bulk of the people in this world taking life for granted, but I think I am just jealous. One thing for sure, I am glad to be on the top side of the grass.

    For all of you just starting out, you can definitely do it. Get it done and get back to living.

    John

    Cincinnati Ohio

     

  • Billie67
    Billie67 Member Posts: 898
    #54
    JGE said:

    Still here!

    Was 4 years in November. I forget sometimes and I love it! D-mn scar on my neck always makes people ask the dreaded question... usually in a whisper... "How are you doing?"

    I usually say "I'm fine, how are you". Then I realize that they meant "how are you doing (with your cancer)" and then I tell them I was doing great until they reminded me about it!  LOL

    I have a sore throat and I am hoarse a lot which is annoying but tolerable. I am a bit more fearful that every single ache and pain is something serious, but, I am sure attempted murder victims are a little gun shy sometimes too. ;)

    I don't have much tolerance for the bulk of the people in this world taking life for granted, but I think I am just jealous. One thing for sure, I am glad to be on the top side of the grass.

    For all of you just starting out, you can definitely do it. Get it done and get back to living.

    John

    Cincinnati Ohio

     

    Checking in for 2013
    Enrolled July 2, 2012
    Southern California
    Diagnosed March 28, 2012 stage IV laryngeal SCC with a few nodes involved on R side. Finished erbitux(chemo) and rads on June 28th 2012.
    PET/CT NED 9/28/12
    Hoping for many many more!
  • vermontgirl
    vermontgirl Member Posts: 66
    #55
    New to enroll

    Vermontgirl, Vermont lol, husband dx on 11/19/12 with scc tonsils stage IV one lymph node same side, 7 weekly cisplatin and 35 rads.

  • Vikeman10
    Vikeman10 Member Posts: 62
    #56
    vermontgirl said:

    New to enroll

    Vermontgirl, Vermont lol, husband dx on 11/19/12 with scc tonsils stage IV one lymph node same side, 7 weekly cisplatin and 35 rads.

    Checking in for 2013

     

    Vikeman10  enrolled Oct. 2012, diagnosed Dec. 2010 SCC of posterior Hypopharyngeal wall. Carbol & Taxol Dec. 2010 to Mar. 2012, tracheotomy April 2012, Erbitux & 35 Rads May 2012 to July 2012 . NED  Oct. 2012, recurrent Dec. 2012 SCC wrapping around carotid arteries & exposed C-2 bone in throat, treatment not possible Hospice care terminal diagnoses.

    Randy

  • CynthiaB1
    CynthiaB1 Member Posts: 7 Member
    #57
    enroll

    Cindy, Buffalo, New york diagnosed May 2012 SCC nasopharynx Stage III concurent radiation (33) Cisplatin and Consolidation therapy with Cisplatin and 5 FU. Completed tx Oct.21, 2012 enrolled 1/3/2013

  • victor53
    victor53 Member Posts: 97
    #58
    victor53 said:

    Victor Brown
    Started treatment stage 4 april 2008, 57 years old next month.... have a 5 year old son ... and a 11 month old daughter... all the chemo and radiation didn't sterilize me as i thought it would....so i haven't checked in in a while....

    still hanging

    6 year old son ...1 year 11 month old daughter.....still hanging tough

     

    my facebook is facebook.com/victorb153 for anyone

     

  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #59
    CynthiaB1 said:

    enroll

    Cindy, Buffalo, New york diagnosed May 2012 SCC nasopharynx Stage III concurent radiation (33) Cisplatin and Consolidation therapy with Cisplatin and 5 FU. Completed tx Oct.21, 2012 enrolled 1/3/2013

    Checking in

    Enrolled April 2012.  Stage 1 vocal cord.  Rads only, finished June 15th.  Several scopes/3 CT and all NED!!!  Voice better, appetite too good, feeling better but with the dark cloud of recurrence hovering overhead!  This forum has been a lifesaver to me, tho the side effects and recurrences that sometimes are discussed are heartbreaking.  Hoping and praying for us all!

  • ekdennie
    ekdennie Member Posts: 238 Member
    #60
    check in!

    please change ekdeennie to ekdennie.  otherwise, everything else is correct!  i am doing great, just chasing after my kids and seeing the doctors for each of my scheduled visits. no sign of regrowth!!  next PET sometime in March.

  • NJShore
    NJShore Member Posts: 429 Member
    #61
    Checking in.. (Enrolling)

    NJShore, New Jersey, dx October 11, 2012, stage VI, left tonsil cancer, metastatic to left neck, 3 involved lymph nodes of which 2 are extra capsular, tx 30 rads(66 gys), 6 chemo's of cisplatin & taxol, started on Dec 3, 2012. Currently undergoing treatment ( January 3, 2013.)

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