Tough times

epicc
epicc Member Posts: 137
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hello everyone

 

Going through some tough times.  My mom was scheduled for chemo and developed an infection and a blood clot. Things are not going well.  She did have chemo today but there is a good chance she won't pull through. This disease is very difficult to fight if you are elderly. Too many complications.  Thank you to everyone for the last few months of encouragement. It made a difference. 

Much love

Emily

«1

Comments

  • jimwins
    jimwins Member Posts: 2,107
    #2
    Hi Emily

    I'm sorry your mom and you are having a tough time.  I know it's hard right now but this site is full of hope and proof miraculous things happen.  Sending warm hugs and positive energy to you and your mom.  I'm sure many others will join in on those thoughts.

    The site has been really slow since the upgrade and many of us are having problems just getting on.  Please know our thoughts are with you and we are here for you.

    Jim

  • po18guy
    po18guy Member Posts: 1,508 Member
    #3
    There is always hope, and sometimes in unexpected ways

    I began with a poor prognosis and dropped to very poor after an immediatel relapse. But, that was four years ago and providence has a way of stepping in. Prayers ascending on her behalf. 

  • vinny59
    vinny59 Member Posts: 1,036 Member
    #4
    so sorry

    So sorry about your Mom, this is never a easy thing to go through. Praying for the best...... Vinny

  • cnewtrn
    cnewtrn Member Posts: 28
    #5
    vinny59 said:

    so sorry

    So sorry about your Mom, this is never a easy thing to go through. Praying for the best...... Vinny

    Keeping my fingers crossed

    Keeping my fingers crossed for you and your mom

  • miss maggie
    miss maggie Member Posts: 929
    #6
    Positive Energy

    Dear Emily, I am so sorry for all you are going through. I probably missed one of your posts. How old is your mom?

    There are always ups and downs. Right now you and your mom is having a rough patch. Some patients do very well with chemo, others do not. Please don't assume it's the end. Perhaps the doctor's will give your mom a new cocktail. I understand the chemo given the elderly is less toxic.

    Positive energy and prayers.  Maggie

  • epicc
    epicc Member Posts: 137
    #7
    miss maggie said:

    Positive Energy

    Dear Emily, I am so sorry for all you are going through. I probably missed one of your posts. How old is your mom?

    There are always ups and downs. Right now you and your mom is having a rough patch. Some patients do very well with chemo, others do not. Please don't assume it's the end. Perhaps the doctor's will give your mom a new cocktail. I understand the chemo given the elderly is less toxic.

    Positive energy and prayers.  Maggie

    She is 82

    Maggie, My mom is 82. They have decided to change her coctail. Something less toxic and given ever 28 days. However, it is most likely too late.  On December 26, her oncologist decided she was strong enough to receive chemo (r-CVP)  They set her date up for January 3.  I was not happy that they were waiting a whole week, but I'm not a doctor.  As the days went on, I noticed she was getting a little tired.  Then, 2 days before her scheduled chemo, we were told she had to have it as an inpatient due to insurance (she was currently in a rehab center).  Now we had to wait for a bed.  She was finally admitted on Friday, Jan. 4.  When she got admitted, they started to find some problems.  After a cat scan, they found a blood clot on the right pulmonary artery.  From there she aslo had an infection.  By monday things got worse.  She is now in ICU.  They gave her a new chemo, but she is not awake.  The ICU doctor spoke to us and told us there is a very good chance she will not survive this.  Her lymphoma is very rare and aggressive.   With her age, even though she had a perfect health record prior, make it very difficult for her to fight.

    Watching my mom suffer is the most difficult thing I have ever gone through.  Also, watching my father is just so sad.  Thank you for the positive energy.  We will need to stay strong. 

     

     

  • epicc
    epicc Member Posts: 137
    #8
    jimwins said:

    Hi Emily

    I'm sorry your mom and you are having a tough time.  I know it's hard right now but this site is full of hope and proof miraculous things happen.  Sending warm hugs and positive energy to you and your mom.  I'm sure many others will join in on those thoughts.

    The site has been really slow since the upgrade and many of us are having problems just getting on.  Please know our thoughts are with you and we are here for you.

    Jim

    Thank you

    Jim, Thank you for your postive energy and thoughts.  I truly appreciate it.  This site has helped very much.  It is great to read about all of the success so many of you have had with your treatment. Also, all of the positive thoughs and prayers have been wonderful.  I am so happy so many of you are in remssion. 

    I agree, the webiste has been so slow, that most days I have not been able to get on.  Again, I can't thank all of you enough for your thoughs and prayers. 

     

    Emily 

     

     

     

  • epicc
    epicc Member Posts: 137
    #9
    vinny59 said:

    so sorry

    So sorry about your Mom, this is never a easy thing to go through. Praying for the best...... Vinny

    Keep Praying

    Vinny,

     

    My family and I are very grateful for the prayers. Thank you so much.

     

    Emly

  • epicc
    epicc Member Posts: 137
    #10
    cnewtrn said:

    Keeping my fingers crossed

    Keeping my fingers crossed for you and your mom

    Hope all is well

    CNEWTRN,

     

    Thank you.  I hope all is well with you. 

     

    Emily

  • epicc
    epicc Member Posts: 137
    #11
    po18guy said:

    There is always hope, and sometimes in unexpected ways

    I began with a poor prognosis and dropped to very poor after an immediatel relapse. But, that was four years ago and providence has a way of stepping in. Prayers ascending on her behalf. 

    Inspiration

    Po18guy,

     

    Your story is an insipriation to all.  I wish my mom was younger.  I am happy she had a good healthy life.  Your prayers a very much appreciated. 

     

    Thank you

    Emily

  • Unknown
    Unknown
    #12
    tough times indeed

    Hi Emily,

     

    You're right-- this is a hard disease to fight. But you just never know what may happen.. I'm sorry that your mom, you and your family have to deal with this. I'll be sending good vibes for your mom :)

     

    -Nathan

  • onlytoday
    onlytoday Member Posts: 609 Member
    #13
    epicc said:

    She is 82

    Maggie, My mom is 82. They have decided to change her coctail. Something less toxic and given ever 28 days. However, it is most likely too late.  On December 26, her oncologist decided she was strong enough to receive chemo (r-CVP)  They set her date up for January 3.  I was not happy that they were waiting a whole week, but I'm not a doctor.  As the days went on, I noticed she was getting a little tired.  Then, 2 days before her scheduled chemo, we were told she had to have it as an inpatient due to insurance (she was currently in a rehab center).  Now we had to wait for a bed.  She was finally admitted on Friday, Jan. 4.  When she got admitted, they started to find some problems.  After a cat scan, they found a blood clot on the right pulmonary artery.  From there she aslo had an infection.  By monday things got worse.  She is now in ICU.  They gave her a new chemo, but she is not awake.  The ICU doctor spoke to us and told us there is a very good chance she will not survive this.  Her lymphoma is very rare and aggressive.   With her age, even though she had a perfect health record prior, make it very difficult for her to fight.

    Watching my mom suffer is the most difficult thing I have ever gone through.  Also, watching my father is just so sad.  Thank you for the positive energy.  We will need to stay strong. 

     

     

    Your Mom

    So sorry you are all going through this right now.  Sending prayers to all, especially your Mom and her doctors.  Thinking of you.

    Hugs,

    Donna

  • epicc
    epicc Member Posts: 137
    #14
    onlytoday said:

    Your Mom

    So sorry you are all going through this right now.  Sending prayers to all, especially your Mom and her doctors.  Thinking of you.

    Hugs,

    Donna

    You are so Kind

    Donna,

    Your thoughts mean a lot during this difficult time.    Thank you for your prayers.

    Love,

    Emily

     

  • epicc
    epicc Member Posts: 137
    #15
    unknown said:

    tough times indeed

    Hi Emily,

     

    You're right-- this is a hard disease to fight. But you just never know what may happen.. I'm sorry that your mom, you and your family have to deal with this. I'll be sending good vibes for your mom :)

     

    -Nathan

    good Vibes

    Hi Nathan,

     

    Thank you so much for the positive vibes.  This website is not working properly.  I thought I replyed to you yesterday, but my message is gone. 

     

    I hope you are doing well. 

     

    Hugs,

    Emily

  • anliperez915
    anliperez915 Member Posts: 770
    #16
    epicc said:

    good Vibes

    Hi Nathan,

     

    Thank you so much for the positive vibes.  This website is not working properly.  I thought I replyed to you yesterday, but my message is gone. 

     

    I hope you are doing well. 

     

    Hugs,

    Emily

    Sorry for the late response!

    Hi Emily,

    Sorry for the late response, I tried to post yesterday but the site was taking forever to load and I just gave up. I'm praying for your mom that she gets better. I know it's hard to stay positive but just keep hanging in there! Sending you lots of positive energy that you and your mom come out of this difficult times! (((Huge Hugs)))

    Sincerely,

    Liz

  • epicc
    epicc Member Posts: 137
    #17
    anliperez915 said:

    Sorry for the late response!

    Hi Emily,

    Sorry for the late response, I tried to post yesterday but the site was taking forever to load and I just gave up. I'm praying for your mom that she gets better. I know it's hard to stay positive but just keep hanging in there! Sending you lots of positive energy that you and your mom come out of this difficult times! (((Huge Hugs)))

    Sincerely,

    Liz

    Don' be sorry

    Hi Liz,

    I know exactly what you mean about his site.  Sometimes I cannot get on for days.  And when I do, it is very slow.  Thank you for the positive energy and hugs.  It is very difficult right now to stay positive.  I try my best for my family.  I hope all is going well wih you. 

     

    Hugs

    Emily

     

     

  • NANCYL1
    NANCYL1 Member Posts: 289
    #18
    epicc said:

    Don' be sorry

    Hi Liz,

    I know exactly what you mean about his site.  Sometimes I cannot get on for days.  And when I do, it is very slow.  Thank you for the positive energy and hugs.  It is very difficult right now to stay positive.  I try my best for my family.  I hope all is going well wih you. 

     

    Hugs

    Emily

     

     

    EMILY

    Emily:

    It is difficult to get on this website.  I have set the Lymphoma list of titles page with an icon.  Works a little better.

    Try to stay positive.  I know it is difficult.  I got a diagnosis of B Cell Lymphoma in early May

    of 2012. 

    Am doing better.   Having Rituxan infusions.  It is scary being older and having to fight this.

    I am sending you positive thoughts.

    Nancy 

  • NANCYL1
    NANCYL1 Member Posts: 289
    #19
    epicc said:

    Don' be sorry

    Hi Liz,

    I know exactly what you mean about his site.  Sometimes I cannot get on for days.  And when I do, it is very slow.  Thank you for the positive energy and hugs.  It is very difficult right now to stay positive.  I try my best for my family.  I hope all is going well wih you. 

     

    Hugs

    Emily

     

     

    EMILY

    Emily:

    It is difficult to get on this website.  I have set the Lymphoma list of titles page with an icon.  Works a little better.

    Try to stay positive.  I know it is difficult.  I got a diagnosis of B Cell Lymphoma in early May

    of 2012. 

    Am doing better.   Having Rituxan infusions.  It is scary being older and having to fight this.

    I am sending you positive thoughts.

    Nancy 

  • 40yearsandcounting
    40yearsandcounting Member Posts: 19 Member
    #20
    tough times

    Emily-

     

    I join the others in sending you prayers. Been thinking about you and your mom all week. I'm a fairly new member of this site but I am already incredibly touched by the strength, courage, and compassion of this group. Just know that (as everyone has said) you are not alone. We are all right in there with you- take care, Erin

  • epicc
    epicc Member Posts: 137
    #21
    NANCYL1 said:

    EMILY

    Emily:

    It is difficult to get on this website.  I have set the Lymphoma list of titles page with an icon.  Works a little better.

    Try to stay positive.  I know it is difficult.  I got a diagnosis of B Cell Lymphoma in early May

    of 2012. 

    Am doing better.   Having Rituxan infusions.  It is scary being older and having to fight this.

    I am sending you positive thoughts.

    Nancy 

    Postive thoughs

    Hi Nancy,

     

    Thank you for the positive thoughts.  My mom was diagnosed October 22 with B cell lymphoma (intravascular) very rare and in the blood.  Also stage 4 because it is in the Bone Marrow.  It is causing alot of problems.  Blood is clotting,  calcium is dangerously high, sodium went very low, etc.  My mom receives her chemo approximately every 4 weeks or so.  Because of her age, they try and push it out a bit.  As soon as they go to the 4th or 5th week, the cancer starts causing all kinds of problems.  The doctors explained that at her age it is common that they do not get through their treatment.  I will try my best for myself and my  family to keep as positive as possible.  She was very healthy before this.  Never had anything,  We shall see. 

    I hope you are feeling well.  Hugs, Emily

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