ROLL CALL - DECEMBER 2012

2

Comments

  • debbie steadham
    debbie steadham Member Posts: 30
    debrajo said:

    @Debbie Steadham I'm from
    @Debbie Steadham I'm from Vidor Tx. not overian, but UPSC uterine

    Hello debrajo
    Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.
  • vanessamood
    vanessamood Member Posts: 54

    Hello debrajo
    Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.

    Roll Call
    Name: Vanessa Graves

    Age: 73

    location: Rockport, Maine

    Diagnosed: January 31, 2012

    Stage: 1A

    Six rounds of Chemo

    As of now I am NED. I thank God for this discussion board. It has answered so many of my questions that would not have been answered otherwise. Merry Christmas to all.
  • kathryn1
    kathryn1 Member Posts: 88 Member
    Alexandra said:

    Here!
    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1 positive
    Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
    Recurrences, if any: not yet
    Current status: NED for 3 weeks
    Current CA125: 7

    Roll Call
    Hi,
    Name:Kathryn
    Age: 52
    Location: Tennessee
    Diagnosed: May 2009
    Stage:2C

    I'm doing great, no recurrences. I check here every so often and keep everyone in my prayers.
  • ktamp
    ktamp Member Posts: 81
    Hello!
    Name : Kim

    Age : 34

    Diagnosed with stage 2 colon cancer March 2010. No chemo. Found out I have lynch syndrome in July 2010. Diagnosed with stage 1C clear cell ovarian cancer. Two rounds of dense dose carbo/taxol then switched to carbo/taxotere for 4 rounds. Currently NED.
  • kikz
    kikz Member Posts: 1,345 Member

    Greetings, Teal Sisters!
    Name: Kelly
    Age: 52
    Location: Elk Grove, California
    Diagnosed: September 2010
    Stage 2b

    Surgery: October 11, 2010 - removed baseball-size tumor, total hysterectomy, omentum removal, and had one foot of lower bowel removed because tumor had attached itself there.

    Treatment: six sessions of carbo/taxol every three weeks between December 3, 2010 and March 24, 2011.

    CA 125 at diagnosis: 2,800+
    CA 125 after surgery but before chemo: 7
    CA 125 now: 7

    I've been NED (no evidence of disease) for two years and two months.
    No recurrences so far.

    Praying for all of us and wishing everyone a happy, blessed, and healthy new year!

    Kelly

    Kelly
    You live about a couple of hours away from me. Ever come to the Gilroy Outlets or Garlic Festival?


    Karen
  • debrajo
    debrajo Member Posts: 1,095 Member

    Hello debrajo
    Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.

    My FB is Debra Powell
    My FB is Debra Powell Phillips,come on by and leave me a request! You do the same, call anytime, I'm a night owl! 409-786-2819 Best, Debra Jo
  • JoanC
    JoanC Member Posts: 231 Member
    Alexandra said:

    Here!
    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1 positive
    Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
    Recurrences, if any: not yet
    Current status: NED for 3 weeks
    Current CA125: 7

    ROLL CALL
    Name: Joan
    Age: 69
    Location: Salem, Oregon
    Diagnosed: April 2008
    Stage: 3C
    Genetics: Not been tested
    Treatment:Debulking surgery, IP port with Taxol/Cisplatin/Carboplatin/Gemzar ended10/6/2008
    Recurrences: None
    Current status: NED 4yrs plus
    Current CA125: 7

    Great idea, Merry Christmas to all my teal sisters
  • mopar
    mopar Member Posts: 1,972 Member
    Alexandra said:

    Here!
    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1 positive
    Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
    Recurrences, if any: not yet
    Current status: NED for 3 weeks
    Current CA125: 7

    GREAT IDEA, ALEXANDRA!
    Name: Monika
    Age: 58 on 12/26!
    Location: Clinton Township, MI
    DX: February 28, 2000
    Stage: Clear Cell 1C
    Genetics: No positives
    Treatment: Debulking surgery (complete hysterctomy, 45 lymph nodes removed), 6 rounds of Carbo/Taxol
    Recurrance: 2006
    Treatment: Debulking surgery, appendectomy, 6 rounds of Carbo/Taxol/Taxotere
    Current status: NED as of 2011. Need to get another CT and appointment for yearly follow-up
    Current CA125: 15, up from 13 6 months ago. My lowest CA125 was 8
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    kikz said:

    Kelly
    You live about a couple of hours away from me. Ever come to the Gilroy Outlets or Garlic Festival?


    Karen

    Hi Karen
    I've actually never been to the Gilroy Outlets or Garlic Festival but have traveled through/near your town on the way to Monterey to visit relatives. You and I are not that far from each other.

    Kelly
  • zinaida
    zinaida Member Posts: 221
    Alexandra said:

    Here!
    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1 positive
    Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
    Recurrences, if any: not yet
    Current status: NED for 3 weeks
    Current CA125: 7

    Roll Call


    Name: Zina

    Age: 59

    Location: Milwaukee, Wisconsin

    Diagnosed: February 14,2007
    Stage: 2C
    Genetics: BRCA1 positive
    Treatment: Omentectomy, bilateral salpingo-oophorectomy, total abdominal hysterectomy;
    6 rounds IV (port in chest area) of Carboplatin/Taxoter
    + 12 rounds Herceptin for breast cancer stage 1 (same day surgery
    by different doctor). Two separate cancers (not a metastasis)
    Ned for almost 3 years :)
    Recurrences: 1st - January,2010 Carboplatin/Gemzar from January to June (not remember
    regimen); NED for 6 month

    2nd - January,2011 Avastin/Doxil, after 2-3 injection - Avastin was canceled
    due to high BP, continue only Doxil to August; due to shortage of Doxil
    start Taxol September,2011 and end January,2012.

    February,2012 start Carboplatin again. June - July get break from chemo by
    my requast. August to current continue Carboplatin every 3 weeks.

    Current status; chemo treatments due to 2nd recurrence.CT scan on December,14 - progress
    ion of disease. Carboplatin canceled. Topotecan will start December,21.


    Current CA125: 272. (due d-s: 197; after surgery-40; after 1st round of chemo-9.
    1st recurrence -800ts; 2nd recurrence - 400ts.)
  • taiga
    taiga Member Posts: 75 Member
    Roll Call
    I'm here and looking forward to a healthy 2013. Dx. with stage3, grade 3 clear cell July 2010. Participated in GOG-252 and finished that December 2011 and was also diagnosed with breast cancer in December last year. I'm done another round of chemo, ending in April, had a double mastectomy and got my implants in September. Will continue on Herceptin until March and Arimidex for 5 years. My scans for the ovarian cancer have been clear, the CA-125 is creeping up a bit. Best news of all - our daughter is pregnant with the first grandchild on both sides! Due in April - finally, some GOOD news.
  • kikz
    kikz Member Posts: 1,345 Member
    taiga said:

    Roll Call
    I'm here and looking forward to a healthy 2013. Dx. with stage3, grade 3 clear cell July 2010. Participated in GOG-252 and finished that December 2011 and was also diagnosed with breast cancer in December last year. I'm done another round of chemo, ending in April, had a double mastectomy and got my implants in September. Will continue on Herceptin until March and Arimidex for 5 years. My scans for the ovarian cancer have been clear, the CA-125 is creeping up a bit. Best news of all - our daughter is pregnant with the first grandchild on both sides! Due in April - finally, some GOOD news.

    Congratulations
    that is such good news. Glad to hear you are doing well.


    Karen
  • chris8588
    chris8588 Member Posts: 57
    port placement and snacks
    alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks
  • Susan53
    Susan53 Member Posts: 178
    Alexandra said:

    Here!
    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1 positive
    Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
    Recurrences, if any: not yet
    Current status: NED for 3 weeks
    Current CA125: 7

    NED
    Name: Susan
    age 59
    Location: Muskegon, Michigan
    Diagnosed: 8-9-10
    Debulking surgery 9-8-10
    Stage 1 grade 3
    Genetics: Don't know
    Treatment: Surgery and 6 rounds of Carbo/Taxol Last chemo was mid Feb. 2011
    Recurrences: none
    Current status NED 20 months
    CA125 not a marker for me
  • jbeans888
    jbeans888 Member Posts: 313

    Roll call
    Shawnna
    Age:45
    Dx3c nov18,2011

    6 rounds IV/IP cisplat & taxol completed 5-22-2012
    NED for 6 months -ca 125(20)

    Ca125 49 currently
    CT showed slightly swollen lymph nodes

    Taking metformin and iscador shots
    Prolly more chemo in Jan:(

    Name: joyce
    Age: 33
    Place:

    Name: joyce

    Age: 33

    Place: GAINESVILLE, Fl

    Stage: 3lll

    6 rounds of carboplatinum & taxol

    I have been NED for a year and a half.

    Ca-125 is currently:6

    My message to all the newbies is your allowed to have a few pity party days, but stay strong, be active and know that you always have your teal sisters talk to if your feeling all alone.

    When I was dx I was 31 ready to get married and have kids. I went in for a minor surgery and that's when they found cancer, alot. They called in a gyn/oncologist and it took 7 hours to debulk me. All of this going on and I had no clue. I woke up that with stage 3lll ovarian cancer, a full hysterectomy, removal of appendex and omentum. Cancer was all over intestines and started going to liver. I woke up as a totally different person. I also had many complications due to stomach obstruction, had Sepsis and needed an ostomy bag for 6 months.

    My point, cancer changed me forever, but I am still here after all this. I know it is likely to come back and it's scary, but I get up every day and live my life appreciative I am still here. Even during chemo when I ft like hell I got up and walked everyday. Even if all I could do was get to the end of the drive way. Somedays where better than others.

    So even when we feel defeated remember cancer can take a lot, but it can't take your will to fight.
    Stay Strong My Teal Sisters

    Joyce :-)
  • Alexandra
    Alexandra Member Posts: 1,308
    chris8588 said:

    port placement and snacks
    alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

    bump

    bumping it up to the top of the list

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    jbeans888 said:

    Name: joyce
    Age: 33
    Place:

    Name: joyce

    Age: 33

    Place: GAINESVILLE, Fl

    Stage: 3lll

    6 rounds of carboplatinum & taxol

    I have been NED for a year and a half.

    Ca-125 is currently:6

    My message to all the newbies is your allowed to have a few pity party days, but stay strong, be active and know that you always have your teal sisters talk to if your feeling all alone.

    When I was dx I was 31 ready to get married and have kids. I went in for a minor surgery and that's when they found cancer, alot. They called in a gyn/oncologist and it took 7 hours to debulk me. All of this going on and I had no clue. I woke up that with stage 3lll ovarian cancer, a full hysterectomy, removal of appendex and omentum. Cancer was all over intestines and started going to liver. I woke up as a totally different person. I also had many complications due to stomach obstruction, had Sepsis and needed an ostomy bag for 6 months.

    My point, cancer changed me forever, but I am still here after all this. I know it is likely to come back and it's scary, but I get up every day and live my life appreciative I am still here. Even during chemo when I ft like hell I got up and walked everyday. Even if all I could do was get to the end of the drive way. Somedays where better than others.

    So even when we feel defeated remember cancer can take a lot, but it can't take your will to fight.
    Stay Strong My Teal Sisters

    Joyce :-)

    inspiring

    Thanks for sharing your story. You are inspiring. You are right cancer does change us. I am at the moment in time to accept that change....It is not always easy. But you are right we have to keep the fight and enjoy the life. Kim

     

     

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    Roll call

    Kim

    Diagnosed: 3/28/12 which was my surgery date

    Surgery:  hysterectomy, bilateral salpingo-oophorectomy, omentumectomy. Optimal debulking surgery. No lymph node involvement and no other organ resections.

    Stage: 3C serous epithelial ovarian cancer, high grade

    Chemo: Started in the last week of April 2012. carbo/taxol dense treatment. I had weekly treatments as long as my blood counts were ok. It took untill the end of October before I finished chemo. CA125 6. No symptoms since finished chemo. Next check in February. Officially in remission.

    After effects:  I did great through chemo and it wasn't until Aug did I start to feel some neuropathy in my hands and feet. I'm now dealing with these symptoms. Also joint pains.

    I'm thankful I made it through. But struggle with the changes that cancer has brought to my life. I haven't accepted them, but I am working on it.

    It was great to read the roll call seeing all who continue to endure, no matter what the cancer has brought to all of you.

    christmas and the happiest of holidays to you all.

    Kim

  • ptharp
    ptharp Member Posts: 190
    chris8588 said:

    port placement and snacks
    alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

    Chris: You can bring just

    Chris: You can bring just about anything you want. Where I go there is a microwave so you can bring something to warm up. The place I go has cold soda and water and coffee. I usually eat lunch there on my long day. There is a little shop down the hall. On my short days I just dring water or soda. Hope this helps. There is nothing to be nervous about. Make sure your doc gives you numbing cream for your port. I do not feel a thing. I put it on an hour before my appointment. Pease a cake, but  you do get sleepy. It's a good idea to have someo ne drive you. Also, usually the IV room has WIFI so you can bring a kindle or computer what every you have.  Good luck. You will be fine.

  • ptharp
    ptharp Member Posts: 190
    chris8588 said:

    port placement and snacks
    alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

    Chris: You can bring just

    Chris: You can bring just about anything you want. Where I go there is a microwave so you can bring something to warm up. The place I go has cold soda and water and coffee. I usually eat lunch there on my long day. There is a little shop down the hall. On my short days I just dring water or soda. Hope this helps. There is nothing to be nervous about. Make sure your doc gives you numbing cream for your port. I do not feel a thing. I put it on an hour before my appointment. Pease a cake, but  you do get sleepy. It's a good idea to have someo ne drive you. Also, usually the IV room has WIFI so you can bring a kindle or computer what every you have.  Good luck. You will be fine.