ROLL CALL - DECEMBER 2012

debbie steadham

debrajo said:

@Debbie Steadham I'm from
@Debbie Steadham I'm from Vidor Tx. not overian, but UPSC uterine

Hello debrajo
Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.

vanessamood

debbie steadham said:

Hello debrajo
Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.

Roll Call
Name: Vanessa Graves

Age: 73

location: Rockport, Maine

Diagnosed: January 31, 2012

Stage: 1A

Six rounds of Chemo

As of now I am NED. I thank God for this discussion board. It has answered so many of my questions that would not have been answered otherwise. Merry Christmas to all.

kathryn1

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

Roll Call
Hi,
Name:Kathryn
Age: 52
Location: Tennessee
Diagnosed: May 2009
Stage:2C

I'm doing great, no recurrences. I check here every so often and keep everyone in my prayers.

ktamp

Hello!
Name : Kim

Age : 34

Diagnosed with stage 2 colon cancer March 2010. No chemo. Found out I have lynch syndrome in July 2010. Diagnosed with stage 1C clear cell ovarian cancer. Two rounds of dense dose carbo/taxol then switched to carbo/taxotere for 4 rounds. Currently NED.

kikz

lovesanimals said:

Greetings, Teal Sisters!
Name: Kelly
Age: 52
Location: Elk Grove, California
Diagnosed: September 2010
Stage 2b

Surgery: October 11, 2010 - removed baseball-size tumor, total hysterectomy, omentum removal, and had one foot of lower bowel removed because tumor had attached itself there.

Treatment: six sessions of carbo/taxol every three weeks between December 3, 2010 and March 24, 2011.

CA 125 at diagnosis: 2,800+
CA 125 after surgery but before chemo: 7
CA 125 now: 7

I've been NED (no evidence of disease) for two years and two months.
No recurrences so far.

Praying for all of us and wishing everyone a happy, blessed, and healthy new year!

Kelly

Kelly
You live about a couple of hours away from me. Ever come to the Gilroy Outlets or Garlic Festival?


Karen

debrajo

debbie steadham said:

Hello debrajo
Yes i sure know where vidor is go through there every now and again,went to church at one of the pentacostal churches there meet some nice people.Funny my name is Debbie Jo ,do you have a facebook if so we can be friends on there.So good to see someone close just bad reasons.Hugs Debbie p.s. if you ever need to talk just let me know.

My FB is Debra Powell
My FB is Debra Powell Phillips,come on by and leave me a request! You do the same, call anytime, I'm a night owl! 409-786-2819 Best, Debra Jo

JoanC

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

ROLL CALL
Name: Joan
Age: 69
Location: Salem, Oregon
Diagnosed: April 2008
Stage: 3C
Genetics: Not been tested
Treatment:Debulking surgery, IP port with Taxol/Cisplatin/Carboplatin/Gemzar ended10/6/2008
Recurrences: None
Current status: NED 4yrs plus
Current CA125: 7

Great idea, Merry Christmas to all my teal sisters

mopar

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

GREAT IDEA, ALEXANDRA!
Name: Monika
Age: 58 on 12/26!
Location: Clinton Township, MI
DX: February 28, 2000
Stage: Clear Cell 1C
Genetics: No positives
Treatment: Debulking surgery (complete hysterctomy, 45 lymph nodes removed), 6 rounds of Carbo/Taxol
Recurrance: 2006
Treatment: Debulking surgery, appendectomy, 6 rounds of Carbo/Taxol/Taxotere
Current status: NED as of 2011. Need to get another CT and appointment for yearly follow-up
Current CA125: 15, up from 13 6 months ago. My lowest CA125 was 8

lovesanimals

kikz said:

Kelly
You live about a couple of hours away from me. Ever come to the Gilroy Outlets or Garlic Festival?


Karen

Hi Karen
I've actually never been to the Gilroy Outlets or Garlic Festival but have traveled through/near your town on the way to Monterey to visit relatives. You and I are not that far from each other.

Kelly

zinaida

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

Roll Call


Name: Zina

Age: 59

Location: Milwaukee, Wisconsin

Diagnosed: February 14,2007
Stage: 2C
Genetics: BRCA1 positive
Treatment: Omentectomy, bilateral salpingo-oophorectomy, total abdominal hysterectomy;
6 rounds IV (port in chest area) of Carboplatin/Taxoter
+ 12 rounds Herceptin for breast cancer stage 1 (same day surgery
by different doctor). Two separate cancers (not a metastasis)
Ned for almost 3 years
Recurrences: 1st - January,2010 Carboplatin/Gemzar from January to June (not remember
regimen); NED for 6 month

2nd - January,2011 Avastin/Doxil, after 2-3 injection - Avastin was canceled
due to high BP, continue only Doxil to August; due to shortage of Doxil
start Taxol September,2011 and end January,2012.

February,2012 start Carboplatin again. June - July get break from chemo by
my requast. August to current continue Carboplatin every 3 weeks.

Current status; chemo treatments due to 2nd recurrence.CT scan on December,14 - progress
ion of disease. Carboplatin canceled. Topotecan will start December,21.


Current CA125: 272. (due d-s: 197; after surgery-40; after 1st round of chemo-9.
1st recurrence -800ts; 2nd recurrence - 400ts.)

taiga

Roll Call
I'm here and looking forward to a healthy 2013. Dx. with stage3, grade 3 clear cell July 2010. Participated in GOG-252 and finished that December 2011 and was also diagnosed with breast cancer in December last year. I'm done another round of chemo, ending in April, had a double mastectomy and got my implants in September. Will continue on Herceptin until March and Arimidex for 5 years. My scans for the ovarian cancer have been clear, the CA-125 is creeping up a bit. Best news of all - our daughter is pregnant with the first grandchild on both sides! Due in April - finally, some GOOD news.

kikz

taiga said:

Roll Call
I'm here and looking forward to a healthy 2013. Dx. with stage3, grade 3 clear cell July 2010. Participated in GOG-252 and finished that December 2011 and was also diagnosed with breast cancer in December last year. I'm done another round of chemo, ending in April, had a double mastectomy and got my implants in September. Will continue on Herceptin until March and Arimidex for 5 years. My scans for the ovarian cancer have been clear, the CA-125 is creeping up a bit. Best news of all - our daughter is pregnant with the first grandchild on both sides! Due in April - finally, some GOOD news.

Congratulations
that is such good news. Glad to hear you are doing well.


Karen

chris8588

port placement and snacks
alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

Susan53

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

NED
Name: Susan
age 59
Location: Muskegon, Michigan
Diagnosed: 8-9-10
Debulking surgery 9-8-10
Stage 1 grade 3
Genetics: Don't know
Treatment: Surgery and 6 rounds of Carbo/Taxol Last chemo was mid Feb. 2011
Recurrences: none
Current status NED 20 months
CA125 not a marker for me

jbeans888

2timothy1 7 said:

Roll call
Shawnna
Age:45
Dx3c nov18,2011

6 rounds IV/IP cisplat & taxol completed 5-22-2012
NED for 6 months -ca 125(20)

Ca125 49 currently
CT showed slightly swollen lymph nodes

Taking metformin and iscador shots
Prolly more chemo in Jan:(

Name: joyce
Age: 33
Place:
Name: joyce

Age: 33

Place: GAINESVILLE, Fl

Stage: 3lll

6 rounds of carboplatinum & taxol

I have been NED for a year and a half.

Ca-125 is currently:6

My message to all the newbies is your allowed to have a few pity party days, but stay strong, be active and know that you always have your teal sisters talk to if your feeling all alone.

When I was dx I was 31 ready to get married and have kids. I went in for a minor surgery and that's when they found cancer, alot. They called in a gyn/oncologist and it took 7 hours to debulk me. All of this going on and I had no clue. I woke up that with stage 3lll ovarian cancer, a full hysterectomy, removal of appendex and omentum. Cancer was all over intestines and started going to liver. I woke up as a totally different person. I also had many complications due to stomach obstruction, had Sepsis and needed an ostomy bag for 6 months.

My point, cancer changed me forever, but I am still here after all this. I know it is likely to come back and it's scary, but I get up every day and live my life appreciative I am still here. Even during chemo when I ft like hell I got up and walked everyday. Even if all I could do was get to the end of the drive way. Somedays where better than others.

So even when we feel defeated remember cancer can take a lot, but it can't take your will to fight.
Stay Strong My Teal Sisters

Joyce :-)

Alexandra

chris8588 said:

port placement and snacks
alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

bump

bumping it up to the top of the list

kimberly sue 63

jbeans888 said:

Name: joyce
Age: 33
Place:
Name: joyce

Age: 33

Place: GAINESVILLE, Fl

Stage: 3lll

6 rounds of carboplatinum & taxol

I have been NED for a year and a half.

Ca-125 is currently:6

My message to all the newbies is your allowed to have a few pity party days, but stay strong, be active and know that you always have your teal sisters talk to if your feeling all alone.

When I was dx I was 31 ready to get married and have kids. I went in for a minor surgery and that's when they found cancer, alot. They called in a gyn/oncologist and it took 7 hours to debulk me. All of this going on and I had no clue. I woke up that with stage 3lll ovarian cancer, a full hysterectomy, removal of appendex and omentum. Cancer was all over intestines and started going to liver. I woke up as a totally different person. I also had many complications due to stomach obstruction, had Sepsis and needed an ostomy bag for 6 months.

My point, cancer changed me forever, but I am still here after all this. I know it is likely to come back and it's scary, but I get up every day and live my life appreciative I am still here. Even during chemo when I ft like hell I got up and walked everyday. Even if all I could do was get to the end of the drive way. Somedays where better than others.

So even when we feel defeated remember cancer can take a lot, but it can't take your will to fight.
Stay Strong My Teal Sisters

Joyce :-)

inspiring

Thanks for sharing your story. You are inspiring. You are right cancer does change us. I am at the moment in time to accept that change....It is not always easy. But you are right we have to keep the fight and enjoy the life. Kim

 

 

kimberly sue 63

Roll call

Kim

Diagnosed: 3/28/12 which was my surgery date

Surgery:  hysterectomy, bilateral salpingo-oophorectomy, omentumectomy. Optimal debulking surgery. No lymph node involvement and no other organ resections.

Stage: 3C serous epithelial ovarian cancer, high grade

Chemo: Started in the last week of April 2012. carbo/taxol dense treatment. I had weekly treatments as long as my blood counts were ok. It took untill the end of October before I finished chemo. CA125 6. No symptoms since finished chemo. Next check in February. Officially in remission.

After effects:  I did great through chemo and it wasn't until Aug did I start to feel some neuropathy in my hands and feet. I'm now dealing with these symptoms. Also joint pains.

I'm thankful I made it through. But struggle with the changes that cancer has brought to my life. I haven't accepted them, but I am working on it.

It was great to read the roll call seeing all who continue to endure, no matter what the cancer has brought to all of you.

christmas and the happiest of holidays to you all.

Kim

ptharp

chris8588 said:

port placement and snacks
alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

Chris: You can bring just

Chris: You can bring just about anything you want. Where I go there is a microwave so you can bring something to warm up. The place I go has cold soda and water and coffee. I usually eat lunch there on my long day. There is a little shop down the hall. On my short days I just dring water or soda. Hope this helps. There is nothing to be nervous about. Make sure your doc gives you numbing cream for your port. I do not feel a thing. I put it on an hour before my appointment. Pease a cake, but  you do get sleepy. It's a good idea to have someo ne drive you. Also, usually the IV room has WIFI so you can bring a kindle or computer what every you have.  Good luck. You will be fine.

ptharp

chris8588 said:

port placement and snacks
alexandra, that is a real good idea. Anyway i had my port placed today and was really nervous about it but so far its not too bad. And I was wondering what kind of snacks people were taking to their chemo treatments. I dont have mine scheduled yet but i wanted to get my cancer bag together and just wanted to get some ideas. Thanks

Chris: You can bring just

Chris: You can bring just about anything you want. Where I go there is a microwave so you can bring something to warm up. The place I go has cold soda and water and coffee. I usually eat lunch there on my long day. There is a little shop down the hall. On my short days I just dring water or soda. Hope this helps. There is nothing to be nervous about. Make sure your doc gives you numbing cream for your port. I do not feel a thing. I put it on an hour before my appointment. Pease a cake, but  you do get sleepy. It's a good idea to have someo ne drive you. Also, usually the IV room has WIFI so you can bring a kindle or computer what every you have.  Good luck. You will be fine.