ROLL CALL - DECEMBER 2012

tealnpink

Roll Call

Name: Karen

Age: 58

Location: Mississippi

Diagnoses: 1.February 2010 stage 3C low-grade papillary serous carcinoma and high-grade serous ovarian cancer.

2.May 2010 stage 2B invasive ductal carcinoma breast cancer.

3.September 2012 malignant neoplasm of colon.

Genetics: BRCA2 +, ER+100%, PR+ 25%, HER-2+ 20%, and KRAS mutation.

Treatment: 1.2010: debulking and bladder resection with neobladder placement.

2.2010: 6 round of Taxol/Carboplatin.

3.2010 bilateral mastectomy.

4.2011: breast reconstruction.

5.2012: 6 rounds of Carboplatin/Gemzar.

6.2012: currently in phase 1 clinical trial.

Current status: 3 separate cancers - never NED - chemo resistant – metastatic incurable ovarian, colon, and breast cancer.

pattysoo

Alexandra said:

Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7

Still here

Diagnosed: May:2010 Low grade serous PPC, Stage IIIC

Six rounds of carbo/taxol + 5 rounds of Avastin

NED for 18 mo. Now in recurrence but no treatment yet.

CA125 is currently 60+

See the gyn/onc in 2 weeks. Think it's time for a scan. 

Hoping for a clinical trial.

lulu1010

ktamp said:

Hello!
Name : Kim

Age : 34

Diagnosed with stage 2 colon cancer March 2010. No chemo. Found out I have lynch syndrome in July 2010. Diagnosed with stage 1C clear cell ovarian cancer. Two rounds of dense dose carbo/taxol then switched to carbo/taxotere for 4 rounds. Currently NED.

Great idea!

Name: Linda Age:59 DX PPC in Aug 2010 Stage: 3C Was ill over a year before diagnosis. Had 4 rounds of Carbo before robotic surgery to remove ovaries and check lymphnodes. Lymphnodes were negative Had 6 rounds of Carbo/Taxol and was NED. Was in vaccine trial and recieved 7 of the 10 doses before the cancer reocurred. Started on Doxil and cancer was growing after 5 treatments and I was started back on Carbo. Since I am allergic to it, I recieve it in the hospital every 3 weeks with steroids and Benadryl over 24 hours. I have had 5 treatments and my symptoms are gone and my Ca 125 is 12.  I also was found to be BRCA 2 positive so while I was in remission I had a prophylactic bilateral mastectomy.

leesag

HI,
I'm Leesa and I was

HI,

I'm Leesa and I was diagnosed Stage 3c in Jan. 2010.  Finished Chemo declared NED in July 2010.  Brain Mets May 2011 upgraded to stage 4, Declared Ned August 2011 (after brain surgery, radiation, and gamma knife surgery).  Still NED

 

Hugs to all!

 

Leesa