ROLL CALL - DECEMBER 2012
Please post a short status report of where you are in your journey.
Dear long-term survivors! If you are just lurking please post too to give us newbies some hope and motivation.
Thank you ladies,
Comments
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I think this is a good idea too.
Name: Pamala
Age:54
Location: Bethel, Maine
Diagnosed: October 2, 2012 found out the mass was cancer (date of hysterectomy).
October 18, 2012 found out I am Stage 3C
Genetics: Have been refered for Genetic Testing BRCA1 and BRCA2 Appointment date March 22, 2013
Treatment: 1 optimal debulking surgery and 6 rounds of Taxol/Carboplatin. I am starting my third cycle this week. (cycle 3 weeks - Week one Carboplatin and Taxol, Week two just Taxol and week three just Taxol
Recurrences, if any: N/A
Current status: See above
Current CA125: 50 -
Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 70 -
Roll callAlexandra said:Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7
Shawnna
Age:45
Dx3c nov18,2011
6 rounds IV/IP cisplat & taxol completed 5-22-2012
NED for 6 months -ca 125(20)
Ca125 49 currently
CT showed slightly swollen lymph nodes
Taking metformin and iscador shots
Prolly more chemo in Jan:(0 -
I'm Amanda. I live inptharp said:I think this is a good idea
I think this is a good idea too.
Name: Pamala
Age:54
Location: Bethel, Maine
Diagnosed: October 2, 2012 found out the mass was cancer (date of hysterectomy).
October 18, 2012 found out I am Stage 3C
Genetics: Have been refered for Genetic Testing BRCA1 and BRCA2 Appointment date March 22, 2013
Treatment: 1 optimal debulking surgery and 6 rounds of Taxol/Carboplatin. I am starting my third cycle this week. (cycle 3 weeks - Week one Carboplatin and Taxol, Week two just Taxol and week three just Taxol
Recurrences, if any: N/A
Current status: See above
Current CA125: 5
I'm Amanda.
I live in Alabama .
I was diagnosed as Stage 2C
I had a total hysterectomy and debulking surgery in March.
My genetic testing was negative.
I did three 21 day cycles of Taxol/Carbo followed by three 21 day cycles of IP Taxol/Cistoplatin.
I finished chemo in Sept.
PET scan in Oct showed NED.
I will have PET or CAT scans every six months for 5 years.0 -
Roll callAmanda767 said:I'm Amanda. I live in
I'm Amanda.
I live in Alabama .
I was diagnosed as Stage 2C
I had a total hysterectomy and debulking surgery in March.
My genetic testing was negative.
I did three 21 day cycles of Taxol/Carbo followed by three 21 day cycles of IP Taxol/Cistoplatin.
I finished chemo in Sept.
PET scan in Oct showed NED.
I will have PET or CAT scans every six months for 5 years.
Name: Michele
Age: 59
Location: Santa Barbara, California
Diagnosed: Aug, 2010. Stage 4 OVC -CA125 was over 4000- Biopsy/surgery, chemotherapy,debulking surgery Oct 2010, chemotherapy.
Treatment: 6 rounds Carbo/Taxol - NED DEC 2010. Recurrence Feb 2011- since then I have been on Gemzar/Cisplatin, Avastin /chemo pill, Doxil and currently on Topotecan...may need to go back on Taxol. Recently had a bowel obstruction and 2 back surgeries due to fractures in my vertebrates. Brittle bones from chemo and osteoporosis. May need another back surgery.
Status: Need to determine if Topotecan is working or not. Currently only able to work p/t. 24 - 30 hrs a week.
CA125: 17000 -
Present
Name: Michelle
Age: 48
Location: England
Dx: Ovca 2C July 2010 (Dx Breast ca March 2000)
Surgery: De-bulking etc Aug 2010
treatment: Dense Dose Taxol/Carbo for 18 weeks
Now: Very well - CA125 4
BRCA 1+
Wishing everyone a very Merry Christmas and a very Happy, Healthy 2013
xxxx0 -
Name-Shannon
age-
Name-Shannon
age- 34
Location- Bensalem, PA
Dx-Stage 4 ovc february 29 2012
2/29/12- complete hysterectomy and debulking, right underarm lymphnode removed (+)
8/2012- finished 6 rounds of taxol and carbo, ca125 was at 6 and ct scan was clear
9/2012- started clinical trial which included a low dose of taxol once a month to possible help prevent a re-occurance.
12/2012- 3rd treatment tomorrow for trial, and ca125 is up to 27
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Still standingSHANNON1231 said:Name-Shannon
age-
Name-Shannon
age- 34
Location- Bensalem, PA
Dx-Stage 4 ovc february 29 2012
2/29/12- complete hysterectomy and debulking, right underarm lymphnode removed (+)
8/2012- finished 6 rounds of taxol and carbo, ca125 was at 6 and ct scan was clear
9/2012- started clinical trial which included a low dose of taxol once a month to possible help prevent a re-occurance.
12/2012- 3rd treatment tomorrow for trial, and ca125 is up to 27
..with help of a walker..on chemo for another six months..Carbo/Taxatore tumor shrinking but still there ....sons a ****. Hands are also numb...this chemo is VERY hard to handle and I've been sicker longer. Balance is inner ear problem and I will start physical therapy this week. Spend most of day in bed...lost some weight but I am still here and still fighting. Merry Christmas to all of my teal sista's ....val0 -
Still standingSHANNON1231 said:Name-Shannon
age-
Name-Shannon
age- 34
Location- Bensalem, PA
Dx-Stage 4 ovc february 29 2012
2/29/12- complete hysterectomy and debulking, right underarm lymphnode removed (+)
8/2012- finished 6 rounds of taxol and carbo, ca125 was at 6 and ct scan was clear
9/2012- started clinical trial which included a low dose of taxol once a month to possible help prevent a re-occurance.
12/2012- 3rd treatment tomorrow for trial, and ca125 is up to 27
..with help of a walker..on chemo for another six months..Carbo/Taxatore tumor shrinking but still there ....sons a ****. Hands are also numb...this chemo is VERY hard to handle and I've been sicker longer. Balance is inner ear problem and I will start physical therapy this week. Spend most of day in bed...lost some weight but I am still here and still fighting. Merry Christmas to all of my teal sista's ....val0 -
Great IdeaSHANNON1231 said:Name-Shannon
age-
Name-Shannon
age- 34
Location- Bensalem, PA
Dx-Stage 4 ovc february 29 2012
2/29/12- complete hysterectomy and debulking, right underarm lymphnode removed (+)
8/2012- finished 6 rounds of taxol and carbo, ca125 was at 6 and ct scan was clear
9/2012- started clinical trial which included a low dose of taxol once a month to possible help prevent a re-occurance.
12/2012- 3rd treatment tomorrow for trial, and ca125 is up to 27
Name: Karen
Age: 64
Location: Gilroy, CA
Diagnosed: 03/16/2010
Stage: IIIC
Genetics: Has never been discussed with me, guess I should ask.
Treatment: Three rounds Carbo/Taxol prior to surgery, hysterectomy/ oophorectomy/debulking surgery, then three more rounds chemo; three infusions per round. IP Taxol (day 1), IP Cisplatin (day 2) and IV Taxol (day 8). CA 125 9000+ at diagnosis, 1600 after chemo, prior to surgery, 13 post surgery and 7 after final chemo.
Recurrences: CA 125 begin to rise in April (23), doubled by June, had petscan in July verifying walnut-sized tumor to the left of my liver.
Current status: I am taking 20 mg Tamoxifen daily. My oncologist and surgeon do not believe in using chemo if a patient is not symptomatic. I have no symptoms and in fact am in terrific health. No other health problems. I tell my doctors, “I am in perfect health, except…..”
Current CA 125: Prior to beginning Tamoxifen it had reached 114. Next three were 67, 29, 24 which we were all thrilled with. The last one was 31 which I was upset about. I had a blood draw last Tuesday and will get the results in the mail by Friday or Saturday. As I have said many times, I prefer to wait for the letter; calling the office freaks me out.0 -
CHEERSkikz said:Great Idea
Name: Karen
Age: 64
Location: Gilroy, CA
Diagnosed: 03/16/2010
Stage: IIIC
Genetics: Has never been discussed with me, guess I should ask.
Treatment: Three rounds Carbo/Taxol prior to surgery, hysterectomy/ oophorectomy/debulking surgery, then three more rounds chemo; three infusions per round. IP Taxol (day 1), IP Cisplatin (day 2) and IV Taxol (day 8). CA 125 9000+ at diagnosis, 1600 after chemo, prior to surgery, 13 post surgery and 7 after final chemo.
Recurrences: CA 125 begin to rise in April (23), doubled by June, had petscan in July verifying walnut-sized tumor to the left of my liver.
Current status: I am taking 20 mg Tamoxifen daily. My oncologist and surgeon do not believe in using chemo if a patient is not symptomatic. I have no symptoms and in fact am in terrific health. No other health problems. I tell my doctors, “I am in perfect health, except…..”
Current CA 125: Prior to beginning Tamoxifen it had reached 114. Next three were 67, 29, 24 which we were all thrilled with. The last one was 31 which I was upset about. I had a blood draw last Tuesday and will get the results in the mail by Friday or Saturday. As I have said many times, I prefer to wait for the letter; calling the office freaks me out.
Age : 44 Stage 3c from Illinois. Diagnosed Dec 2011. Treatment Carbo/Taxol CA125 8. Things seem to be okay for now just trying to repair myself from the damage chemo has done to me. Loooking forward to a New Year!!!0 -
Bless your heart! Glad youpoopergirl14052 said:Still standing
..with help of a walker..on chemo for another six months..Carbo/Taxatore tumor shrinking but still there ....sons a ****. Hands are also numb...this chemo is VERY hard to handle and I've been sicker longer. Balance is inner ear problem and I will start physical therapy this week. Spend most of day in bed...lost some weight but I am still here and still fighting. Merry Christmas to all of my teal sista's ....val
Bless your heart! Glad you are able to walk with help of walker!0 -
Name: CarlaLocation:
Name: Carla
Location: Mississippi
Diagnosed: May 18, 2011. Complete hysterectomy/debulking. 6 rounds of carbo/taxol. 7 months complete remission. Recurrence May '12. Currently under second round of Doxil.
Age: 50
I am stage 3c clear cell. I changed doctors after my recurrence. I have said I don't ever want us to discuss prognosis. I just want to attempt to live my life.
Best wishes to all of you.0 -
HereAlexandra said:Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7
Name: Kate
Age: 53
Location: Colorado
Diagnosed: August 7, 2009
Stage: IIIC, High grade
Genetics: BRCA1 positive
Treatment: debulking surgery - suboptimal (tumor left on liver, lymph nodes and cervix left behind due to extent of disease).
8 rounds of Taxol/Carboplatin/Avastin; High dose IV vitamin C
NED March, 2010 - 11 rounds maintenance Avastin
Current status: NED since March, 2010
Current CA125: 1
I have altered my diet and lifestyle, take supplements to address my imbalances and autoimmune conditions, am on maintenance Iscador (mistletoe). No lingering side effects from treatment.0 -
Dear Valpoopergirl14052 said:Still standing
..with help of a walker..on chemo for another six months..Carbo/Taxatore tumor shrinking but still there ....sons a ****. Hands are also numb...this chemo is VERY hard to handle and I've been sicker longer. Balance is inner ear problem and I will start physical therapy this week. Spend most of day in bed...lost some weight but I am still here and still fighting. Merry Christmas to all of my teal sista's ....val
I'm praying for you as you fight this beast!
Love and hugs,
Kelly0 -
Greetings, Teal Sisters!Alnik said:CHEERS
Age : 44 Stage 3c from Illinois. Diagnosed Dec 2011. Treatment Carbo/Taxol CA125 8. Things seem to be okay for now just trying to repair myself from the damage chemo has done to me. Loooking forward to a New Year!!!
Name: Kelly
Age: 52
Location: Elk Grove, California
Diagnosed: September 2010
Stage 2b
Surgery: October 11, 2010 - removed baseball-size tumor, total hysterectomy, omentum removal, and had one foot of lower bowel removed because tumor had attached itself there.
Treatment: six sessions of carbo/taxol every three weeks between December 3, 2010 and March 24, 2011.
CA 125 at diagnosis: 2,800+
CA 125 after surgery but before chemo: 7
CA 125 now: 7
I've been NED (no evidence of disease) for two years and two months.
No recurrences so far.
Praying for all of us and wishing everyone a happy, blessed, and healthy new year!
Kelly0 -
Hello ladies,stage 4Alnik said:CHEERS
Age : 44 Stage 3c from Illinois. Diagnosed Dec 2011. Treatment Carbo/Taxol CA125 8. Things seem to be okay for now just trying to repair myself from the damage chemo has done to me. Loooking forward to a New Year!!!
found out December 2010 had surgery January 2011 8 chemo treatments carbo/taxol.was ned for 14 months recurance now back on chemo cisp/taxol/avastin i am in doing my 2nd treatment this week first treatment made me very sick hoping this one will be easier.I thank God he has been with me through this alful time in my life ,I think we all are still here for a reason.I hope all of you teal sisters have a very merry Christmas and Happy New year and many many more..hugs ..Debbie from Orange Texas0 -
@Debbie Steadham I'm fromdebbie steadham said:Hello ladies,stage 4
found out December 2010 had surgery January 2011 8 chemo treatments carbo/taxol.was ned for 14 months recurance now back on chemo cisp/taxol/avastin i am in doing my 2nd treatment this week first treatment made me very sick hoping this one will be easier.I thank God he has been with me through this alful time in my life ,I think we all are still here for a reason.I hope all of you teal sisters have a very merry Christmas and Happy New year and many many more..hugs ..Debbie from Orange Texas
@Debbie Steadham I'm from Vidor Tx. not overian, but UPSC uterine0 -
Roll callAlexandra said:Here!
Name: Alexandra
Age: 45
Location: Toronto, Canada
Diagnosed: May 3rd, 2012
Stage: 3C
Genetics: BRCA1 positive
Treatment: 1 debulking surgery and 7 rounds of Taxol/Carboplatin, last one on Nov.26th
Recurrences, if any: not yet
Current status: NED for 3 weeks
Current CA125: 7
Age: just turned 60
Location: Ohio
Diagnosed: March 2012
Stage 3 c, high grade. Second, unrelated cancer in uterus, stage 1, discovered in pathology from surgery.
Genetics: I haven't had the testing done
Treatment: 3 rounds of taxol/cisplatin to reduce tumors away from bowel before surgery in June, followed by 5 months of IV/IP taxol and carboplatin. Enjoying December before starting a year of monthly taxol for maintenance. I also made some big changes to my diet.
So far, so good.
CA 125 was around 300 at diagnosis, shot up to 2000 with first chemo treatments, but now is down to about 10.0 -
Checking in with everyonedebrajo said:
Name: Lynda
Age: 62
Location: Arizona
Diagnosed: 11-2009
Stage: 3C
Treatment: Debulking surgery, I still have my uterus and cervix due to my organs sticking together, it was to dangerous to remove. I had a ureteral stint for 10 months.
I recieved 4 rounds of carbo taxol, my white count fell too low to recieve my last 2 treatments. I was given numerous rounds of neupagan but my white count did not go up enough to recieve any more chemo. Since my ca 125 was so low, i was given and pet scan in May 2010 and was pronounced NED and I am still NED today.
I had a scare in June of 2012 my white count has continued to stay low and was sent out to see if it was possible that I had lukemia. While they were tested me for that they ran a test called a gene replacement rearangement. This is used to see if you have lymphoma, I came back positive for that test. I was given a Ct scan and it showed no sign of cancer. I got everyone I knew to pray for me and when the test was repeated three months later it showed no sign of lymphoma. I give God all the glory.
Recurrences, if any: None
Current status: NED for almost 3 years
Current CA125: 90
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