Auto Stem Cell Transplant Tomorrow Morning
Comments
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coachmike said:
I am 34 and was very active
I am 34 and was very active and in shape when I was admitted. My doctors told me that would be beneficial with the recovery period.
(( my Dad is 65 but I hope(( my Dad is 65 but I hope with prayers God willing he will get through it okay and hopefully be cured... He is my Dad and even if he is 100 we still want them around... we know we are in for rough times as he is not in the best shape and his age also adds to it as well.. but I hope everything will be great. He never went into remission so we've been dealing with this since beginning... I really hope this will put him in remission and cure...
wishing the same for you and everyone else as well...0 -
just to let you know theDadysGirl said:(( my Dad is 65 but I hope(( my Dad is 65 but I hope with prayers God willing he will get through it okay and hopefully be cured... He is my Dad and even if he is 100 we still want them around... we know we are in for rough times as he is not in the best shape and his age also adds to it as well.. but I hope everything will be great. He never went into remission so we've been dealing with this since beginning... I really hope this will put him in remission and cure...
wishing the same for you and everyone else as well...
just to let you know the doctors said that right before i was admitted that a 75 yr old man breezed right through the treatment and was discharged on day +15.0 -
Thank you so much Mike forcoachmike said:just to let you know the
just to let you know the doctors said that right before i was admitted that a 75 yr old man breezed right through the treatment and was discharged on day +15.
Thank you so much Mike for the comforting information and words... I appreciate it very much. I shared the information with my Dad and family right away... they are all wishing you the BEST... Regards...0 -
Hi Mikecoachmike said:DAY 5....FEELING FINE!!!!
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.
Hi Mike,
I'm really happy for you, It's great that you haven't had any complications and that you're feeling fine. I really do hope you can go home this weekend! Take care wishing you only the best! (((Hugs)))
Sincerely,
Liz0 -
DAY 6anliperez915 said:Hi Mike
Hi Mike,
I'm really happy for you, It's great that you haven't had any complications and that you're feeling fine. I really do hope you can go home this weekend! Take care wishing you only the best! (((Hugs)))
Sincerely,
Liz
Hello Everyone
Well I woke up today and I feel great!!! Its so weird how everyone is different. I know that many people struggle with this treatment and then there are others who kinda sail through it. So strange to me. Im not out of the woodworks by anymeans but for the here and now I feel good. I am so blessed. Last night I did have to have blood transfusion, my hemaglobin had dropped slightly below the level that they want me to be at so therefore I got a dose of blood. Im joking with the doctors telling them that im ready to go home now but they dont seem to agree lol. White cells are staying at the same level but i heard thats normal. From what ive been told once the levels start to go up they go up at good and somewhat rapid rate. SOOOOOOO im constantly giving my stem cells a pep talk and reminding them of their job and that they need to get to work!
I have such an amazing support group that has surrounded me with love and support that it sometimes seems unreal and almost selfish like to me. But I know that they love me and are fighting this battle everyday by my side.
I also want to thank all of you here that have given encouragement and well wishes at all. We are all in this together. We are all human and with that comes many emotions, some being vulnerability and fear. Having a place to come and share fellowships with others that can relate to you and your situation is a great method to ease some of those fears that we live with everyday.
My prayers are with you all0 -
Thank you so much Mike forcoachmike said:DAY 6
Hello Everyone
Well I woke up today and I feel great!!! Its so weird how everyone is different. I know that many people struggle with this treatment and then there are others who kinda sail through it. So strange to me. Im not out of the woodworks by anymeans but for the here and now I feel good. I am so blessed. Last night I did have to have blood transfusion, my hemaglobin had dropped slightly below the level that they want me to be at so therefore I got a dose of blood. Im joking with the doctors telling them that im ready to go home now but they dont seem to agree lol. White cells are staying at the same level but i heard thats normal. From what ive been told once the levels start to go up they go up at good and somewhat rapid rate. SOOOOOOO im constantly giving my stem cells a pep talk and reminding them of their job and that they need to get to work!
I have such an amazing support group that has surrounded me with love and support that it sometimes seems unreal and almost selfish like to me. But I know that they love me and are fighting this battle everyday by my side.
I also want to thank all of you here that have given encouragement and well wishes at all. We are all in this together. We are all human and with that comes many emotions, some being vulnerability and fear. Having a place to come and share fellowships with others that can relate to you and your situation is a great method to ease some of those fears that we live with everyday.
My prayers are with you all
Thank you so much Mike for letting us all know of how well you are doing... We are all extremely happy seeing you get through this journey with such ease (of course there are I'm sure still many minor difficulties but at least you did not have to deal with any complications so far)... we hope and pray it continues the same way and you'll get cured.
Again we went to first get blood work today before heading up to stem cell transplant unit, but again the blood work was not there yet... platelets went from 25 or 26 last Tuesday to 65 last Friday and today was 85, they called the doctor and again no, it needs to be at 100 at least... so we came back with the luggage and all and will be heading back up there again tomorrow early morning...do you recall your platelet levels? How many days did you go in for the harvesting and how long after did you get admitted? I don't know how normal this is... and it makes me worry... but again the end result I hope will be a cure for my Dad and everyone else fighting with cancer... Mike if you don't mind answering were you ever in remission before the transplant?
Take care...0 -
Yay!coachmike said:DAY 6
Hello Everyone
Well I woke up today and I feel great!!! Its so weird how everyone is different. I know that many people struggle with this treatment and then there are others who kinda sail through it. So strange to me. Im not out of the woodworks by anymeans but for the here and now I feel good. I am so blessed. Last night I did have to have blood transfusion, my hemaglobin had dropped slightly below the level that they want me to be at so therefore I got a dose of blood. Im joking with the doctors telling them that im ready to go home now but they dont seem to agree lol. White cells are staying at the same level but i heard thats normal. From what ive been told once the levels start to go up they go up at good and somewhat rapid rate. SOOOOOOO im constantly giving my stem cells a pep talk and reminding them of their job and that they need to get to work!
I have such an amazing support group that has surrounded me with love and support that it sometimes seems unreal and almost selfish like to me. But I know that they love me and are fighting this battle everyday by my side.
I also want to thank all of you here that have given encouragement and well wishes at all. We are all in this together. We are all human and with that comes many emotions, some being vulnerability and fear. Having a place to come and share fellowships with others that can relate to you and your situation is a great method to ease some of those fears that we live with everyday.
My prayers are with you all
I'm so happy for you!
Reading your posts, I can strongly recall how I was ready to go home - not
from SCT but my treatments were done as an in-patient.
Just think, you're not too far away from all the beagle kisses and yelping - LOL
.
Good news is always encouraging to all of us.
Jim0 -
I do not remember myDadysGirl said:Thank you so much Mike for
Thank you so much Mike for letting us all know of how well you are doing... We are all extremely happy seeing you get through this journey with such ease (of course there are I'm sure still many minor difficulties but at least you did not have to deal with any complications so far)... we hope and pray it continues the same way and you'll get cured.
Again we went to first get blood work today before heading up to stem cell transplant unit, but again the blood work was not there yet... platelets went from 25 or 26 last Tuesday to 65 last Friday and today was 85, they called the doctor and again no, it needs to be at 100 at least... so we came back with the luggage and all and will be heading back up there again tomorrow early morning...do you recall your platelet levels? How many days did you go in for the harvesting and how long after did you get admitted? I don't know how normal this is... and it makes me worry... but again the end result I hope will be a cure for my Dad and everyone else fighting with cancer... Mike if you don't mind answering were you ever in remission before the transplant?
Take care...
I do not remember my platelet levels. I did four days of harvesting and collected 4.1 million stem cells. I harvested over the memorial day weekend and went in 6/12/12. My cancer was reduced by 98.5 percent will one spot in one of my lymphondes that was termed residual. I was never in full remission but was in partial remission.0 -
I wonder if they werecoachmike said:I do not remember my
I do not remember my platelet levels. I did four days of harvesting and collected 4.1 million stem cells. I harvested over the memorial day weekend and went in 6/12/12. My cancer was reduced by 98.5 percent will one spot in one of my lymphondes that was termed residual. I was never in full remission but was in partial remission.
I wonder if they were waiting for your platelets to go higher... My Dad went in on 12th for three days and looks like you went in for transplant process ~15 days after the collection, so we are in similar situation then... (of course unless you chose to go in around that time)
My Dad was diagnosed stage 3 with neck, chest abdominal around aorta mesentric area as well as right tonsil... with 3 rchop neck tonsil chest was gone and abdominal was reduced ~80-90%. After 6th rchop nothing changed in abdominal area... they did another 2 rchop total of 8 rchop treatments... about 1/3 reduction seen on the two lymph nodes that had reamined in abdominal area... doctor said to wait 3 months for a repeat of scan to make sure it is not inflammation. Dad started to have abdominal discomfort, doctor did a petscan a month earlier at 2 months and after 8th treatment the two lymph nodes had an suv uptake of 14 and 21 and now two months later the two had grown and now had suv uptake of 21 and 30. They decided on SCT. He went in for two RICE treatment in hospital setting... the new petscan showed a reduction of about 40% and doctor wanted to continue with SCT without doing any further chemo to not cause any more toxicity / damage... he is hoping with high dose chemo hopefully it will disappear... I wish he was in remission before the process but I just hope the end result will be clean and hopefully a cure because its a very aggressive type of lymphoma...
The suv uptake has gone down to less than 8... I don't know what has happened since his last chemo because it's been almost 1.5 months... I hope they haven't grown but just gone smaller... they said they won't be doing another pet before sct as it will not change the course...0 -
Mike, is your apetite betterjimwins said:Yay!
I'm so happy for you!
Reading your posts, I can strongly recall how I was ready to go home - not
from SCT but my treatments were done as an in-patient.
Just think, you're not too far away from all the beagle kisses and yelping - LOL.
Good news is always encouraging to all of us.
Jim
Mike, is your apetite better now? They say everyone will have no apetite... I hope yours is back...0 -
my admittance date was myDadysGirl said:I wonder if they were
I wonder if they were waiting for your platelets to go higher... My Dad went in on 12th for three days and looks like you went in for transplant process ~15 days after the collection, so we are in similar situation then... (of course unless you chose to go in around that time)
My Dad was diagnosed stage 3 with neck, chest abdominal around aorta mesentric area as well as right tonsil... with 3 rchop neck tonsil chest was gone and abdominal was reduced ~80-90%. After 6th rchop nothing changed in abdominal area... they did another 2 rchop total of 8 rchop treatments... about 1/3 reduction seen on the two lymph nodes that had reamined in abdominal area... doctor said to wait 3 months for a repeat of scan to make sure it is not inflammation. Dad started to have abdominal discomfort, doctor did a petscan a month earlier at 2 months and after 8th treatment the two lymph nodes had an suv uptake of 14 and 21 and now two months later the two had grown and now had suv uptake of 21 and 30. They decided on SCT. He went in for two RICE treatment in hospital setting... the new petscan showed a reduction of about 40% and doctor wanted to continue with SCT without doing any further chemo to not cause any more toxicity / damage... he is hoping with high dose chemo hopefully it will disappear... I wish he was in remission before the process but I just hope the end result will be clean and hopefully a cure because its a very aggressive type of lymphoma...
The suv uptake has gone down to less than 8... I don't know what has happened since his last chemo because it's been almost 1.5 months... I hope they haven't grown but just gone smaller... they said they won't be doing another pet before sct as it will not change the course...
my admittance date was my date of choice...they let me choose when to come in based on my schedule0 -
wow so they are right whencoachmike said:it is slowly coming back...i
it is slowly coming back...i eat a couple peices of toast and crackers each day
wow so they are right when they say you won't have apetite...
I'm glad its coming back Mike... I was telling my brother about you going through stem cell transplant and how well you were doing and how you mentioned about the 75 year old man and he asked if you had mouth sores, I told him I don't think so as he hasn't mentioned it and most likely he would have if he did... they had told us the whole digestive track will have problems and mouth sores were also mentioned especially with the last days infusion of M for 15 minutes BEAM..0 -
i did not get mouth soresDadysGirl said:wow so they are right when
wow so they are right when they say you won't have apetite...
I'm glad its coming back Mike... I was telling my brother about you going through stem cell transplant and how well you were doing and how you mentioned about the 75 year old man and he asked if you had mouth sores, I told him I don't think so as he hasn't mentioned it and most likely he would have if he did... they had told us the whole digestive track will have problems and mouth sores were also mentioned especially with the last days infusion of M for 15 minutes BEAM..
i did not get mouth sores but my mouth and tongue did get tender. The day that the melphalan is given your dad really needs to chew ice while its being infused if he can. I chewed and chompped on ice the whole time and thirty minutes after to restrict the blood vessels in my mouth so the chemo wouldnt pass through those veins and create sores. It worked for me.0 -
Thank you so much for thatcoachmike said:i did not get mouth sores
i did not get mouth sores but my mouth and tongue did get tender. The day that the melphalan is given your dad really needs to chew ice while its being infused if he can. I chewed and chompped on ice the whole time and thirty minutes after to restrict the blood vessels in my mouth so the chemo wouldnt pass through those veins and create sores. It worked for me.
Thank you so much for that info, I read about that online and mentioned it to the sct coordinator when she went through the chemo regime my Dad will be receiving and she said that chemo will work several months and your Dad would have to chew on ice that whole time then if that were true... I'm definitely going to have my Dad chew on ice if it helps some it may help my Dad and I heard the sores are so awful even with a single mouth sore people can be put on morphine... I'm glad you didn't have to deal with that... I hope I'am not tiring you out with questions... Take care and have a wonderful restful pleasant evening.0 -
Day 7DadysGirl said:Thank you so much for that
Thank you so much for that info, I read about that online and mentioned it to the sct coordinator when she went through the chemo regime my Dad will be receiving and she said that chemo will work several months and your Dad would have to chew on ice that whole time then if that were true... I'm definitely going to have my Dad chew on ice if it helps some it may help my Dad and I heard the sores are so awful even with a single mouth sore people can be put on morphine... I'm glad you didn't have to deal with that... I hope I'am not tiring you out with questions... Take care and have a wonderful restful pleasant evening.
Hey guys
So yesterday the doctor told me how happy he was that I am progressing through the procedure so far. I have met all the requirements to go home except my white blood cell levels...so as soon as they hit a certain level i get to go home!!!! I feel good and am doing ok. I am slowly getting back to eating small portions couple times a day.
Thank you all for your cares and well wishes0 -
White cells...coachmike said:Day 7
Hey guys
So yesterday the doctor told me how happy he was that I am progressing through the procedure so far. I have met all the requirements to go home except my white blood cell levels...so as soon as they hit a certain level i get to go home!!!! I feel good and am doing ok. I am slowly getting back to eating small portions couple times a day.
Thank you all for your cares and well wishes
Good morning Mike...(7:50 a.m pacific time for me)
Gosh darn those white blood cells...they need to hurry up and level out! You've done so good! Let us know when you get your official marching orders, and in the meantime keep eating to keep your strength up. Hang in there friend... Sue (FNHL-2-3A-6/10)0 -
So glad for you Mike...coachmike said:Day 7
Hey guys
So yesterday the doctor told me how happy he was that I am progressing through the procedure so far. I have met all the requirements to go home except my white blood cell levels...so as soon as they hit a certain level i get to go home!!!! I feel good and am doing ok. I am slowly getting back to eating small portions couple times a day.
Thank you all for your cares and well wishes
So glad for you Mike... Dad's platelets were 90 today but they decided to admit him... We are here day -6...
Feeling very scared but hoping praying for the end result to be clean, remission and cure without major complications... Please keep us in your thoughts and prayers... Thank you everyone....0 -
Great news...doctor justDadysGirl said:So glad for you Mike...
So glad for you Mike... Dad's platelets were 90 today but they decided to admit him... We are here day -6...
Feeling very scared but hoping praying for the end result to be clean, remission and cure without major complications... Please keep us in your thoughts and prayers... Thank you everyone....
Great news...doctor just came in my room and went over my prescriptions that I will be taking home with me bc he expects me to be going home soon!!!! I am so happy. All were waiting on is my White Blood Cell count to reach a certain level then im outta here!!!!
PS daddysgirl, I will continue to pray for your father during this time.
Thank you all for you well wishes0 -
Dad is starting the day 1coachmike said:Great news...doctor just
Great news...doctor just came in my room and went over my prescriptions that I will be taking home with me bc he expects me to be going home soon!!!! I am so happy. All were waiting on is my White Blood Cell count to reach a certain level then im outta here!!!!
PS daddysgirl, I will continue to pray for your father during this time.
Thank you all for you well wishes
Dad is starting the day 1 chemo in a little bit... Never had alcohol b4 so I hope he handles it well Mike...0
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