Auto Stem Cell Transplant Tomorrow Morning
Comments
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coachmike said:
Day 3
Hey Guys
Today has been uneventful. Starting to feel a little fatiqued but im still staying on the course, walking the halls and finding ways to entertain myself. Not too much of an appetite but the doctors tell me that it is completely normal. One day down and getting closer to being able to go home. Miss my dogs and really wanna sleep in my own bed. Funny how you miss the small things when you dont have them anymore. Thank you all for your prayers and wishes.
))))))))))))))))))))))))))))))))))))))))))))))))))))))))))) 0 -
Day 3...coachmike said:Day 3
Hey Guys
Today has been uneventful. Starting to feel a little fatiqued but im still staying on the course, walking the halls and finding ways to entertain myself. Not too much of an appetite but the doctors tell me that it is completely normal. One day down and getting closer to being able to go home. Miss my dogs and really wanna sleep in my own bed. Funny how you miss the small things when you dont have them anymore. Thank you all for your prayers and wishes.
Hey Mike,
We like "uneventful".... it sure beats the heck out of the alternative!! Hospitals are definetely not the fun place to be for long stays. B-O-R-I-N-G!!! My last hospital stay consisted of 6 days(back in 2006), and I about went stir crazy come the 3rd day in. Couldn't wait to get to crawl into my own bed and soak up the comforts of home. The chairs in hospitals rooms are NOT comfortable for watching T.V or reading..at least they weren't at the hospital I was in. Hang in there friend...it's gonna be time to go home before you know it! By the way...your daily updates are just awesome and very much appreciated. Can't remember anyone being as diligent as you've been, so "THANKS"! Sue
(Follicular NHL-stage3-grade2-typeA-Dx 6/10-age61)stable.0 -
"Uneventful"="Good"coachmike said:Day 3
Hey Guys
Today has been uneventful. Starting to feel a little fatiqued but im still staying on the course, walking the halls and finding ways to entertain myself. Not too much of an appetite but the doctors tell me that it is completely normal. One day down and getting closer to being able to go home. Miss my dogs and really wanna sleep in my own bed. Funny how you miss the small things when you dont have them anymore. Thank you all for your prayers and wishes.
Like Sue said, "uneventful" is good
.
What type of dogs do you have? Just curious.
Keep it up and you'll be out of there in no time!
Jim0 -
I didn't read Jim's commentcoachmike said:two beagles
two beagles
I didn't read Jim's comment and just saw Mike's and thought he meant to write two bagels... Thinking he had two bagels for breakfast... Since he didn't have appetite I thought he was just letting us know his appetite was good this morning then read the comment above
Hoping your 4th day is better than 3rd with some appetite...0 -
Beagles and cream cheese?DadysGirl said:I didn't read Jim's comment
I didn't read Jim's comment and just saw Mike's and thought he meant to write two bagels... Thinking he had two bagels for breakfast... Since he didn't have appetite I thought he was just letting us know his appetite was good this morning then read the comment above
Hoping your 4th day is better than 3rd with some appetite...
LOL - yeah I'll I'll have "two beagles" with cream cheese please.
Actually that just made me hungry - haven't had breakfast yet:).
Hugs,
Jim0 -
Everything comes to an endcoachmike said:Day 3
Hey Guys
Today has been uneventful. Starting to feel a little fatiqued but im still staying on the course, walking the halls and finding ways to entertain myself. Not too much of an appetite but the doctors tell me that it is completely normal. One day down and getting closer to being able to go home. Miss my dogs and really wanna sleep in my own bed. Funny how you miss the small things when you dont have them anymore. Thank you all for your prayers and wishes.
Hello Mike,
As I said above. everything comes to an end. Both good and bad. The good news,
you are doing so well and staying the course. I've been where you are. In the hospital
for 3 weeks when first dx. For me it was so bad, because my small bowel perforated, had
to have resection. I was in ICU for 1 week, then 2 weeks healing further. Sept 2009
Just remember, you are not alone. I know just how you feel. God bless and speedy
treatment, then home sweet home.
Love Maggie0 -
jimwins said:
Beagles and cream cheese?
LOL - yeah I'll I'll have "two beagles" with cream cheese please.
Actually that just made me hungry - haven't had breakfast yet:).
Hugs,
Jim)))))))))
I hope you had a)))))))))
I hope you had a nice breakfast Jim, hoping Mike ate well as well...
I truly wish everyone to have long healthy lives with their loved ones...0 -
Day +4miss maggie said:Everything comes to an end
Hello Mike,
As I said above. everything comes to an end. Both good and bad. The good news,
you are doing so well and staying the course. I've been where you are. In the hospital
for 3 weeks when first dx. For me it was so bad, because my small bowel perforated, had
to have resection. I was in ICU for 1 week, then 2 weeks healing further. Sept 2009
Just remember, you are not alone. I know just how you feel. God bless and speedy
treatment, then home sweet home.
Love Maggie
well another uneventful day. they changed my lines today so i got like a four hour break from my iv pump. was nice to shower and walk the halls without draggin that thing behind me. no complaints really. i feel ok...my counts are low and im sure ill be getting blood or platelets if not both tonight. i start my neuprogen tonight to help kick start these WBCs to get to work. keeping the faith and my eyes on the goal. just a bump in the road. but im definitely ready to get home soon. my doctor is very impressed with the way ive tolerated everything so far, thats encouraging. i want to thank you all for your prayers and well wishes. i will continue to pray for you as well.0 -
We are glad you are doingcoachmike said:Day +4
well another uneventful day. they changed my lines today so i got like a four hour break from my iv pump. was nice to shower and walk the halls without draggin that thing behind me. no complaints really. i feel ok...my counts are low and im sure ill be getting blood or platelets if not both tonight. i start my neuprogen tonight to help kick start these WBCs to get to work. keeping the faith and my eyes on the goal. just a bump in the road. but im definitely ready to get home soon. my doctor is very impressed with the way ive tolerated everything so far, thats encouraging. i want to thank you all for your prayers and well wishes. i will continue to pray for you as well.
We are glad you are doing well Mike, I just hope and pray my Dad and everyone else also does well, even if they have a difficult time I just pray and hope the end result will be wonderful clean, remission and eventually cure... Out of curiousity how many rooms in your hospital for sct unit? Our hospital there is only 6 beds ie. 6 rooms only. The hallway they say is a mile if you go back and forth 40 times. We are also impressed with you))
Take care and wishing you nothing but the best of the best with remission and cure Mike... Please continue to keep us in your prayers...0 -
4 hour break..coachmike said:Day +4
well another uneventful day. they changed my lines today so i got like a four hour break from my iv pump. was nice to shower and walk the halls without draggin that thing behind me. no complaints really. i feel ok...my counts are low and im sure ill be getting blood or platelets if not both tonight. i start my neuprogen tonight to help kick start these WBCs to get to work. keeping the faith and my eyes on the goal. just a bump in the road. but im definitely ready to get home soon. my doctor is very impressed with the way ive tolerated everything so far, thats encouraging. i want to thank you all for your prayers and well wishes. i will continue to pray for you as well.
Hi Mike,
Getting the 4 hour break off of the pump must have felt heavenly! I'm so pleased each day to hear how well things are going for you...keep it going buddy! You've eased alot of my worries concerning the SCT procedure, especially when I go to that scary place in my thinking that maybe someday I could be facing the same thing! I'll always remember how it went for you and have hope (if needed), that I could fare as well as you. Your a huge inspiration! Continued prayers and positive thoughts coming to you...Sue
(FNHL-2-3a-6/10)0 -
Great!coachmike said:Day +4
well another uneventful day. they changed my lines today so i got like a four hour break from my iv pump. was nice to shower and walk the halls without draggin that thing behind me. no complaints really. i feel ok...my counts are low and im sure ill be getting blood or platelets if not both tonight. i start my neuprogen tonight to help kick start these WBCs to get to work. keeping the faith and my eyes on the goal. just a bump in the road. but im definitely ready to get home soon. my doctor is very impressed with the way ive tolerated everything so far, thats encouraging. i want to thank you all for your prayers and well wishes. i will continue to pray for you as well.
So good to hear you're doing well.
I agree with Sue - you are an inspiration to us all.
Many of us have the "scary place" in our heads about SCT.
Thanks for the updates and inspiration too!
Jim0 -
DAY 5....FEELING FINE!!!!jimwins said:Great!
So good to hear you're doing well.
I agree with Sue - you are an inspiration to us all.
Many of us have the "scary place" in our heads about SCT.
Thanks for the updates and inspiration too!
Jim
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.0 -
coachmike said:
DAY 5....FEELING FINE!!!!
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.)))))))))))))))))))))))))))))))))))))))))))))))) MIKE!!!
Did you need any transfusion last night as you thought, I'm assuming no from your post))
Great Mike... how is your apetite? could I ask your age, just wondering because of my Dad being a little on the older side...
Take care... don't answer any questions you don't feel like answering))
I bet you being active also helped out, they say if you walk, take shower then you will most likely do much better...0 -
Thumbs up!!!coachmike said:DAY 5....FEELING FINE!!!!
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.
Once again Mike..."YEAH"! I'll keep positive thoughts for a weekend release! So proud of you my friend, and totally happy with your good progress! Love...Sue (FNHL-2-3a-6/10)0 -
way to go!!!coachmike said:DAY 5....FEELING FINE!!!!
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.
i was on here to look for any postings regarding auto stem cell treatments and i came across your postings.. praise be to god you are doing so well and your positive posts are so awesome! my son will start all of this on july 5th..and i'm really scared but trying to be positive for him.. he's so upset and scared! we just got off the phone with the nurse and from what she was telling us... all of the things he's gonna be going through got us to be really concerned with all of this. they are telling him 3 months is what he's looking at for his treatements... is it really as bad has it sounds? please rub some of that positive thoughts and energy into us... i always love hearing the positive during this time....any suggestions of what he needs to do or how i can get his mindset ready for all of this?0 -
Super news!coachmike said:DAY 5....FEELING FINE!!!!
Well is day +5 and I really feel fine. No complications. Actually my labs came back last night and the WBC moved up slightly before starting neuporgen!!! That made me feel more at ease. Last night and the following three nights ill receive an infusion of neuqprogen to get them stem cells a healthy push to get to work. My personal goal is to be able to go home this upcoming weekend. That would make me so happy to be able to start recovering in the comfort of my own home. I really want to thank all of you for your prayers, they have been so helpful as I start this journey.
Keep it up!0 -
coachmike said:
I am 34 and was very active
I am 34 and was very active and in shape when I was admitted. My doctors told me that would be beneficial with the recovery period.
(( my Dad is 65 but I hope(( my Dad is 65 but I hope with prayers God willing he will get through it okay and hopefully be cured... He is my Dad and even if he is 100 we still want them around... we know we are in for rough times as he is not in the best shape and his age also adds to it as well.. but I hope everything will be great. He never went into remission so we've been dealing with this since beginning... I really hope this will put him in remission and cure...
wishing the same for you and everyone else as well...0
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