Mets to spine and rib

245

Comments

  • Kylez
    Kylez Member Posts: 3,761 Member
    #22
    Lynne Logan said:

    Scan
    Hi Renee,
    I can imagine you're nervous about the PET scan but let's pray it shows some improvement. Please let us know the results. We can only succeed with faith and positive thoughts. So I work on that all the time.
    I was angry that I had to be strong and protect my family while undergoing treatment the first time. I told them that this time around would be different and they all agreed that I shouldn't shoulder that burden and they'd take care of me. However, here I am again, hiding the seriousness of this DX.
    Cancer is so difficult on so many levels, isn't it?

    Yes, cancer is difficult
    Yes, cancer is difficult unfortunately. Let others share this fight with you Lynne. You deserve their help and I bet you welcome their support and strength too, just like we all offer to you.

    Lots of hugs and prayers,

    Kylez
  • Angie2U
    Angie2U Member Posts: 2,991
    #23
    Gabe N Abby Mom said:

    Hi Lynne,
    As you probably
    Hi Lynne,

    As you probably know, I've been dealing with this stage IV/mets status for about 9 months now. (Although my mets are not causing any pain as yet.) It is a hard pill to swallow, and coming to acceptance is different than the initial dx.

    Sometimes I think the second time around is easier because I know much more now that I did before dx....sometimes I think it is harder for the same reasons.

    I wish I had more for you than hugs.

    Linda

    I don't have nor know a lot
    I don't have nor know a lot about mets to the spine and rib Lynne, but, I wanted to tell you how sorry I am about your results and to let you know that I am praying for you.

    Huge hugs,

    Angie
  • Noel
    Noel Member Posts: 3,095 Member
    #24
    SIROD said:

    Sorry to Read Your News
    Hi Lynne,

    I am sorry for your new problem. Many people with bone mets can live for many years. Who knows by the time it becomes very serious, there might be a cure.

    Bone mets is very painful. Keep your chin up and in due time, it will become a way of life. I am going into my 18th year and 12 with mets.

    Hoping you will have that port installed soon so you can start on your chemo treatments.

    Best,

    Doris

    We are here to give you
    We are here to give you hope, strength, prayers, hugs and maybe even a few laughs when you need them Lynne.

    This isn't the news we had all prayed for, but, we are here for you..always.




    Hugs, Noel
  • Noel
    Noel Member Posts: 3,095 Member
    #25
    SIROD said:

    Sorry to Read Your News
    Hi Lynne,

    I am sorry for your new problem. Many people with bone mets can live for many years. Who knows by the time it becomes very serious, there might be a cure.

    Bone mets is very painful. Keep your chin up and in due time, it will become a way of life. I am going into my 18th year and 12 with mets.

    Hoping you will have that port installed soon so you can start on your chemo treatments.

    Best,

    Doris

    Sorry
    double post
  • debi.18
    debi.18 Member Posts: 850 Member
    #26
    mom62 said:

    Bone Mets
    Hi lynne,

    Sorry to hear about your results. Sometimes it never seems to end does it! I have mets and am still around 3 years later. I'm on hormone therapy. They did take out most of my sternum and sawed off half of five of my ribs on the right side. I have no chest wall, quite pretty! But I am here and living. I'll say prayers for you as well.

    Terry

    So sorry
    So sorry to hear this. Sending hugs and prayers. We're all here for ya!

    Hugs, Debi
  • Lynne Logan
    Lynne Logan Member Posts: 105 Member
    #27
    mom62 said:

    Bone Mets
    Hi lynne,

    Sorry to hear about your results. Sometimes it never seems to end does it! I have mets and am still around 3 years later. I'm on hormone therapy. They did take out most of my sternum and sawed off half of five of my ribs on the right side. I have no chest wall, quite pretty! But I am here and living. I'll say prayers for you as well.

    Terry

    I do feel better
    Hi everyone,
    I do feel better when I hear of the "success" stories. And also knowing how many of you have faced this challenge allowing me to feel less alone.
    My sister and daughter were with me when I got a call from my surgeon's office saying the imaging machine was down again so the Monday port installation has been postponed, again. They both had a fit over this delay but for some reason I stayed calm. I know it is so hard on them, now that they've gotten more involved. Plus I remember all too well going through Stage IV malignant melanoma with my 16 year old daughter.
    I had to delay the PET scan for 2 weeks in order to get my arm to raise high enough, so a week's delay for the port isn't so awful to me. I also know I've had this bone pain since April, two months before the PET scan. While I'm actually anxious to get started on treatment I've gained a lot of patience and acceptance. I think that's something we all share.
    You ladies mean a lot to me and I wish everyone the best. Everything.
    Hugs,
    Lynne
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #28
    Lynne Logan said:

    I do feel better
    Hi everyone,
    I do feel better when I hear of the "success" stories. And also knowing how many of you have faced this challenge allowing me to feel less alone.
    My sister and daughter were with me when I got a call from my surgeon's office saying the imaging machine was down again so the Monday port installation has been postponed, again. They both had a fit over this delay but for some reason I stayed calm. I know it is so hard on them, now that they've gotten more involved. Plus I remember all too well going through Stage IV malignant melanoma with my 16 year old daughter.
    I had to delay the PET scan for 2 weeks in order to get my arm to raise high enough, so a week's delay for the port isn't so awful to me. I also know I've had this bone pain since April, two months before the PET scan. While I'm actually anxious to get started on treatment I've gained a lot of patience and acceptance. I think that's something we all share.
    You ladies mean a lot to me and I wish everyone the best. Everything.
    Hugs,
    Lynne

    Glad you are feeling better
    Glad you are feeling better Lynne. We will help you however we can to get through this battle. You will win the war!

    Hugs, Diane
  • Tux
    Tux Member Posts: 544
    #29
    DianeBC said:

    Glad you are feeling better
    Glad you are feeling better Lynne. We will help you however we can to get through this battle. You will win the war!

    Hugs, Diane

    sorry to hear of this setback
    Lynne, so sorry to hear of this setback for you. You are in my thoughts & prayers. Keep us posted..(((Hugs)))
  • Alexis F
    Alexis F Member Posts: 3,598
    #30
    Tux said:

    sorry to hear of this setback
    Lynne, so sorry to hear of this setback for you. You are in my thoughts & prayers. Keep us posted..(((Hugs)))

    Lynne
    Wishing you all the best too! Lots of prayers and hugs! And, keep updating us Lynne.


    Lex
  • Megan M
    Megan M Member Posts: 3,000
    #31
    Alexis F said:

    Lynne
    Wishing you all the best too! Lots of prayers and hugs! And, keep updating us Lynne.


    Lex

    You are always in my prayers
    You are always in my prayers and thoughts Lynne.


    The biggest of hugs,

    Megan
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #32
    Megan M said:

    You are always in my prayers
    You are always in my prayers and thoughts Lynne.


    The biggest of hugs,

    Megan

    So sorry, sending hugs and
    So sorry, sending hugs and prayers.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #33
    mom62 said:

    Bone Mets
    Hi lynne,

    Sorry to hear about your results. Sometimes it never seems to end does it! I have mets and am still around 3 years later. I'm on hormone therapy. They did take out most of my sternum and sawed off half of five of my ribs on the right side. I have no chest wall, quite pretty! But I am here and living. I'll say prayers for you as well.

    Terry

    Lots of support, courage,
    Lots of support, courage, hugs and prayers are coming your way Lynne from me.


    Hugs, Jan
  • Angie2U
    Angie2U Member Posts: 2,991
    #34
    New Flower said:

    To Doris and my other friends
    I am very sad too. My diagnosis has changed today. We have a plan and I am going to SF on Saturday
    I will pm you next week

    I am so sorry New Flower to
    I am so sorry New Flower to read your post.
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #35
    Lynn
    on the prayer list lady.
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #36
    laughs_a_lot said:

    Lynn
    on the prayer list lady.

    Lynne, I've been thinking of
    Lynne, I've been thinking of you and wondering how you are doing by now. How has the break from rads been? Is your skin healing up at all?

    Hugs
  • Alexis F
    Alexis F Member Posts: 3,598
    #37
    Lynne Logan said:

    Count on all of you
    I knew I could count on all of you to help me understand and come to grips with this DX. My oncologist didn't discuss anything beyond the 6 sessions of chemo followed by another PET scan. My first time around there was something suspicious on T9 but after 5 infusions of Cytoxen and Taxotere It didn't show on my Dec. scan. Naive me thought chemo could clear up whatever was in me.
    I thought I caught this tumor so early that everything would be fine. However, even though I was taking Arimidex the tumor doubled in size within a month.
    I will be having my port put in on Monday and start chemo shortly thereafter.
    I don't know how to tell my daughter and grandkids, who were so proud of me for going through treatment. I had a little great granddaughter born about half way through my chemo and that gave me the will to get better no matter what. Now I'm faced with this and realize that this is a whole new ball game.
    I have said about the same thing. I know what I know and don't know what I don't know. I do know that this time around it's life threatening way beyond what I could have ever imagined the first time.
    Keep sending me more stories as I feel I need all the information I can get. While my oncologist and I have a long history (he treated my 16 year old daughter for malignant melanoma back in 1986) he's not one to offer up more than he feels I need to know at the time.
    Hugs to all of you,
    Lynne

    Praying and thinking of you!

    Praying and thinking of you!
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #38
    missrenee said:

    Hi Lynne--I know what you're going through
    I was diagnosed initially in Dec. '09 with Stage 3C invasive ductal ca. Had lumpectomy, re-excision for margins, 6 rounds of TAC chemo and 33 rads. I was on Arimidex for about 18 months. Last Dec/Nov. I was experiencing back pain. Had PET, bone scan, MRI, CT and was re-diagnosed with bone mets-T-12 fully involved and then sprinkled throughout my spine/pelvis. Needless to say, I was devastated. I started monthly injections of Faslodex (stronger estrogen blockers) and infusions of Zometa (strengthens bones). I've had 5 monthly treatments and have my PET scan tomorrow to see if the treatment is working. Stable would be good, diminished areas of mets would be even better. This treatment is extremely tolerable and I pray it's working. If not, we start up on a chemo regimen :(.

    I'm quite jittery about the PET tomorrow, but it's in God's hands and I pray that He will take care of me. I pray that for you too, Lynne. Please keep us posted or PM me if you'd like.

    Hugs, Renee

    Still checking for any
    Still checking for any update from you...
  • Noel
    Noel Member Posts: 3,095 Member
    #39
    DianeBC said:

    Lynne, I've been thinking of
    Lynne, I've been thinking of you and wondering how you are doing by now. How has the break from rads been? Is your skin healing up at all?

    Hugs

    You are on our prayer list
    You are on our prayer list at church too Lynne.
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #40
    mom62 said:

    Bone Mets
    Hi lynne,

    Sorry to hear about your results. Sometimes it never seems to end does it! I have mets and am still around 3 years later. I'm on hormone therapy. They did take out most of my sternum and sawed off half of five of my ribs on the right side. I have no chest wall, quite pretty! But I am here and living. I'll say prayers for you as well.

    Terry

    Let us know Lynne when you
    Let us know Lynne when you have your port and test done and we will get the pink bus out for you!
  • Lynne Logan
    Lynne Logan Member Posts: 105 Member
    #41
    Kristin N said:

    Let us know Lynne when you
    Let us know Lynne when you have your port and test done and we will get the pink bus out for you!

    Port
    Hello Fellow Warriors,
    The imaging machine still wasn't working and a demo unit had been ordered. It didn't show up on time either. My oncologist was getting very anxious so my surgeon went ahead and did it anyway. Then just an X-Ray to double check all was well. My surgeon asked me if he should call my oncologist to let them know all systems were go on this end. I agreed he'd get to a phone before me. I was in so much pain that I was given Dilaudid before even starting then twilight sleep which didn't work at all!!
    Now it's Monday and not having heard from my oncologist called them. It appears that chemo hasn't been scheduled yet. I'm beginning to think there's a conspiracy.
    The "muscle" pain that turned out to be spine and rib mets has gotten so bad that even 2 10/325 hydrocodone/actem just dull the pain and the "activity" on my spine has now grown to the point it's easily felt. Also it was just the right 12th rib involved before. Now I have pain on the rib in front too. I've known this is an agressive cancer from the way the tumor doubled in size even while taking Arimidex but I'm beginning to feel discouraged. How can something grow so fast and be treatable?
    I've never been anxious for an infusion but I feel like this cancer is gaining too much ground to be controlled.
    Thank you all for your concern and prayers. I'm feeling a bit hopeless but my spirits get a lift when I join you here.
    Hugs to everyone,
    Lynne

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