bad news

Trying times
Ilona,

this news breaks my heart. I just wanted to say that I
will be thinking of you and sending you my love. Every
little bit helps, right (:

Please don't let fear rule you. As hard as it is, try
to soothe and pamper yourself. And come here anytime
you need a lift.

Hugs,
Ayse

Muschi said:

Thanks Nancy
Did you also have weight gain while you were on? What about when you were finished with steroids,did you feel ok again? This is so new to me and scary!!!!!
Hugs back to you,
Ilona

Ilona U R Awesome!
Just joined this site due to my Aunt's (Oklahoma) struggles that started as an almost undetectabled breast cancer that was caught super early & removed, chemo. Then about 6 months later during a routine chest xray they found a spot on the opposite side lung. Surgery to remove the entire lobe & chemo. 7 months later she started having jaw, tooth type head aches. After getting no where with dentist, she mentioned it to her other docs. MRI got to the bottom of it, surgery went well & she completed whole brain rad every day for 2 weeks. It's been 2 complete weeks since her last treatment & she's still exhausted. I'm reserching & finding that this is normal & hopefully by the 6 week mark she'll be back to active. Her sister (my other auntfrom California) came on a one way plane trip to care for her as long as needed. I'm making a long road trip for the weekend to see them all & enjoy my much loved Aunts. I saw your post about your recent brain finds & read some supports from Nancy & Jennifer, they sure gave me hope for my aunt. She has made me what I am today & I am closer to her than my own mother. I have wonderful expectations for her and YOU now! Thank you so much for your comments on this site so that someone like me could find emotional support, you just never know who you may touch in your life. GOD BLESS YOU & you are in my prayers!
Tammy in Texas.

Ballerina said:

I'm am very sorry you have to go through this
I am very sorry you have to go through this. I pray you have success with your treatments and that you feel less fearful with the prayers of your pink sisters.


Ballerina

How did today go for you
How did today go for you llona? I pray better.


Hugs, Lex

MAJW said:

I totally understand.....
My last scans also showed 3 small spots on my brain....I was totally asymptomatic....no headaches, no dizziness, no vision changes nothing....so it was a total shock! My oncologist sent me immediately to my rads onc....He stressed these were very small and he and my med onc are 99.9% sure that the radiation would take "care" of them...I had 10 rads treatments....(my third go round of radiation since this nightmare started in '09) I'm also back on chemo...ugh... Not as easy as the first go round in '09.....

Here's what I experienced during these treatments....first they do a simulation like with all radiation....it took about 25-30 minutes....they make a plastic mold of your head..Mine was lime green.....because your head can't move during treatments....this mold was used for every treatment....it is actually "bolted" to the table....it's not as bad as it sounds...although I was really anxious about it....after being lined up, the treatment last less than 5 minutes..
I just told myself I could do anything for 5 minutes! Also brain rads causes almost overwhelming fatigue! Starts about treatment # 6-7.. Rest up before you start and as much as possible....I was totally wiped out! It's been 6 weeks since I finished and slowly but surely my energy is returning but now I'm coping with chemo fatigue....also due to the massive doses of steroids we have to take, no driving....because of the chance of seizures...I'm still not allowed until June...another tip....careful that you don't developed thrush in your mouth, again due to the steroids...I'm dealing with the third episode of this and it's miserable...alters the taste buds big time...have your rads onc prescribe Nystatin and start using it now!

I hope this has helped....and I wish you the very best...please keep us posted, we care and understand..
Hugs, Nancy

Be strong and keep fighting.
Be strong and keep fighting. You will be in my prayers!

jnl said:

You are in my prayers llona
You are in my prayers llona every day and night.


Love, Leeza

I am thinking of you and
I am thinking of you and sending as much strength and hope to you as I can!


Praying too,

Noel

Noel said:

I am thinking of you and
I am thinking of you and sending as much strength and hope to you as I can!


Praying too,

Noel

One day at a time
May God give you and extra blessing of strength in this new fight. My heart, thoughts and prayers are with you. Please keep us informed on your treatment. Barbara

Prayers
I am sorry to hear of your news. Please know that we are here for you as always. You are in my prayers.

Dorene

Jobi said:

Prayers
I am sorry to hear of your news. Please know that we are here for you as always. You are in my prayers.

Dorene

How is your treatment going
How is your treatment going llona and how are you feeling? Worrying about you..


Hugs, Leeza