How long have you survived

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  • HydroLar
    HydroLar Member Posts: 14
    #162
    Life
    I am now 10 months after initial diagnosis also of rt. tonsil cancer

    Larry
  • dclear14
    dclear14 Member Posts: 36
    #163
    HydroLar said:

    Life
    I am now 10 months after initial diagnosis also of rt. tonsil cancer

    Larry

    new diagnosis
    Hello,

    I am posting for my husband Robert who was diagnosed on 1/13/12 with Stage IVA BOT SCC (T1N2BM0). He will be starting chemo and radiation on 2/13/12. I am so glad I found this site for support. I look forward to posting as well as reading everyone elses. Our journey is just beginning.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #164
    dclear14 said:

    new diagnosis
    Hello,

    I am posting for my husband Robert who was diagnosed on 1/13/12 with Stage IVA BOT SCC (T1N2BM0). He will be starting chemo and radiation on 2/13/12. I am so glad I found this site for support. I look forward to posting as well as reading everyone elses. Our journey is just beginning.

    Welcome...
    Though you are most certainly welcome to post on this thread, you should start a new one so people get to know you....

    Welcome to the forum, great people here and tons of info. One source is a thread started that has tons of great info for newbies like you, and quick reference for others;

    SUPERTHREAD

    It's the SuperThread, a compilation of many sources..Sweetblood22 (Dawn) maintains it and we contribute.

    As for your journey beginning...it's tough but doable...

    Best,
    John
  • par
    par Member Posts: 23
    #165
    Skiffin16 said:

    Welcome...
    Though you are most certainly welcome to post on this thread, you should start a new one so people get to know you....

    Welcome to the forum, great people here and tons of info. One source is a thread started that has tons of great info for newbies like you, and quick reference for others;

    SUPERTHREAD

    It's the SuperThread, a compilation of many sources..Sweetblood22 (Dawn) maintains it and we contribute.

    As for your journey beginning...it's tough but doable...

    Best,
    John

    28 months
    SCC BOT 9 erbituxin and 37 rads at the same time.Still have two bad lymph nodes in a bad spot but so be it.Like everyone else,lots of ups and downs but it is much better now.
  • Dave B
    Dave B Member Posts: 7
    #166
    fisrpotpe said:

    14 years 9 Months
    5 golf ball sized nodes wrapped around carodid on left side of neck. 38 treatments of radiation, 3 one week long 24 hour per day chemo treatments and radical neck disection.

    Longevity
    Wow, you have come through a lot! My story is similar but with only surgery, no treatments. My right carotid body took off growing about 1988. By 1990, after multiple doctors had guessed cyst, inflamation, etc, I finally had it excised. No word about any treatments, and I was assured that it was benign. In 2003 I was diagnosed with distant mets to lungs, mediastinum and most vertebrae. Same med group still had slides of my CBT, and declared my mets a match. So too widespread for excision or radiation, and my onc doesn't like any of the chemo coctails available. Just taking one day at a time and staying thankful, but now sometimes wonder if treatment after excision.....
  • Larrykins
    Larrykins Member Posts: 38 Member
    #167
    par said:

    28 months
    SCC BOT 9 erbituxin and 37 rads at the same time.Still have two bad lymph nodes in a bad spot but so be it.Like everyone else,lots of ups and downs but it is much better now.

    7 Months
    Post treatment. PET in March. Fingers, legs, eyes, everything crossed. The thought of being happy about surviving 'just' another 5 years makes me queasy so I take it one day at a time.
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #168
    Larrykins said:

    7 Months
    Post treatment. PET in March. Fingers, legs, eyes, everything crossed. The thought of being happy about surviving 'just' another 5 years makes me queasy so I take it one day at a time.

    3 months
    Thought this was a great thread so I'm posting my tiny survival...but expecting many more.
    Stage III base of tongue scc with one lymph node involved HPV positive dx Oct 21 2011...last rad treatment Jan 2012 ...got an all clear on my first post pet /ct scan May 7th 2012.

    Great to see so many survivors!!!

    Tim
  • RayTodd
    RayTodd Member Posts: 187
    #169
    Just about to have 6 Months PET Scan
    And glad to see you are still around. Sorry about that trip we took down south and we were going to have a coffee. Plans went squif. Still hope to meet.Join us on FB
  • pascotty
    pascotty Member Posts: 174 Member
    #170
    RayTodd said:

    Just about to have 6 Months PET Scan
    And glad to see you are still around. Sorry about that trip we took down south and we were going to have a coffee. Plans went squif. Still hope to meet.Join us on FB

    No probs
    No worries ray, I waited at work for a while and thought you must have stood me up hahahaha. Next time matey. Well I am now 2 years and 1 month survivor of tonsil c. Life's great. When I started this thread I was clutching at hope and now I am part of those hopeful stories for all newly diagnosed. That seems like a lifetime ago. Very sad to see all the newbies. But very happy they have found there way here. I found it after treatment and it would have been soooooo helpful. Good luck everyone xxxxx jen
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #171
    pascotty said:

    No probs
    No worries ray, I waited at work for a while and thought you must have stood me up hahahaha. Next time matey. Well I am now 2 years and 1 month survivor of tonsil c. Life's great. When I started this thread I was clutching at hope and now I am part of those hopeful stories for all newly diagnosed. That seems like a lifetime ago. Very sad to see all the newbies. But very happy they have found there way here. I found it after treatment and it would have been soooooo helpful. Good luck everyone xxxxx jen

    Hey You...
    Just a quick Hello, and glad to see you stompin around...

    Best,
    John
  • pascotty
    pascotty Member Posts: 174 Member
    #172
    Skiffin16 said:

    Hey You...
    Just a quick Hello, and glad to see you stompin around...

    Best,
    John

    Hey you back
    Hi John. Just can't help myself. Still lurking hahahaha
  • cureitall66
    cureitall66 Member Posts: 913
    #173
    Wow! Glad I found this...
    I actually took the time to go through the Super Thread and found this!! Super encouraging. We are just starting our journey and this is great to have come across! Thank you all for sharing this.

    God is good... :)
  • Billie67
    Billie67 Member Posts: 898
    #174
    cureitall66 said:

    Wow! Glad I found this...
    I actually took the time to go through the Super Thread and found this!! Super encouraging. We are just starting our journey and this is great to have come across! Thank you all for sharing this.

    God is good... :)

    4 hours!
    Yep that's right, just got my NED today! Stage IV laryngeal SCC 35 rads and 8 weeks of erbitux
  • tuffenuff
    tuffenuff Member Posts: 277
    #175
    fisrpotpe said:

    14 years 9 Months
    5 golf ball sized nodes wrapped around carodid on left side of neck. 38 treatments of radiation, 3 one week long 24 hour per day chemo treatments and radical neck disection.

    i swear every time i see
    i swear every time i see your posts i think your name says firstpotpie
  • tuffenuff
    tuffenuff Member Posts: 277
    #176
    8 WKS POST-TX AND CLEAN PET SCAN!
    Right Tonsil, SCC, STG IVa, HPV+ with mets to 2 lymph nodes
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #177
    WOW
    I remember this thread....

    Very good memories, good times, great people...a lot have endured, and many that are new.

    Thoughts and prayers that in a few years, when this post pops up again, that many more will be added as survivors, and doing well.

    Thoughts, Prayers, Hopes and Dreams,
    JG
  • hwt
    hwt Member Posts: 2,328 Member
    #178
    Skiffin16 said:

    WOW
    I remember this thread....

    Very good memories, good times, great people...a lot have endured, and many that are new.

    Thoughts and prayers that in a few years, when this post pops up again, that many more will be added as survivors, and doing well.

    Thoughts, Prayers, Hopes and Dreams,
    JG

    Cancer of mandible
    Cancer of mandible with 2 or 3 positive lymph nodes. Ten months since dx and surgery. Finished rads/chemo 4 1/2 months ago. Waiting til 6 months out of tx to start lower dental implants. Plenty of energy, saliva returning, seeing that there is life after cancer.
  • PatDarago
    PatDarago Member Posts: 14
    #179
    28 months!!!!
    I was told in January of 2010 that i had BOT SSC and went thru 36 rads and 2 weeks chemo. 6 months off work and feed tube . Treatment sucked and was not sure I was going to make it ,BUT I did and still alive!!! I am happy to live each day and enjoy my family and watching my kids grow up. It is wel worht it!!!
    Thanks
  • Pam M
    Pam M Member Posts: 2,196
    #180
    tuffenuff said:

    i swear every time i see
    i swear every time i see your posts i think your name says firstpotpie

    I'm With tuffenuff
    Glad I don't eat pot pie - I'd get cravings every day.
  • pascotty
    pascotty Member Posts: 174 Member
    #181
    PatDarago said:

    28 months!!!!
    I was told in January of 2010 that i had BOT SSC and went thru 36 rads and 2 weeks chemo. 6 months off work and feed tube . Treatment sucked and was not sure I was going to make it ,BUT I did and still alive!!! I am happy to live each day and enjoy my family and watching my kids grow up. It is wel worht it!!!
    Thanks

    Still here
    Hi all. I am 2 weeks off my 3 year survival since dx. Life is awesome. Hubby and I just work to travel now. Spend lots of family time with our boys and their girls and granddaughter. We have another grandbaby on the way. Everything seems to be a milestone and it just keeps ticking along. Great results from docs in April 2012. Now considered 98% cured. Who would of thought the word cancer and cured could be involved in the same sentence. Love, thoughts and best wishes to everyone on here. Jen xxxxx

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