How long have you survived

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  • Greend
    Greend Member Posts: 678
    #122
    15 1/2 years
    Or 5655 days but who's counting :>)
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #123
    Greend said:

    15 1/2 years
    Or 5655 days but who's counting :>)

    right there with you Greend
    5658 days, i do not count as long as that sun rises every morning
  • vsudd
    vsudd Member Posts: 52
    #124
    How long have you survived
    My husband was diagnosed 5 years next month ! I love reading about all the survivors :)
  • Pam M
    Pam M Member Posts: 2,196
    #125
    When to Start Counting?
    Well, last Sept, I said "six months" - guess I have to change that to "seven months".

    September 2010, I said "Sure is good to see those bigger numbers. Me, I was stage IV scc Base of Tongue (T2N2). Six months since treatment ended March 16; treatment was nine weeks of induction chemo (Cisplatin, Taxotere and 5-FU) followed by seven weeks of radiation with weekly chemo (Carboplatin). Scans are good (watching one node)."

    So, turns out the one node resisted treatment - neck dissection December 2010. So now I'm seven months cancer free; almost two years since diagnosis. Do well.
  • dogsrule
    dogsrule Member Posts: 96
    #126
    Pam M said:

    When to Start Counting?
    Well, last Sept, I said "six months" - guess I have to change that to "seven months".

    September 2010, I said "Sure is good to see those bigger numbers. Me, I was stage IV scc Base of Tongue (T2N2). Six months since treatment ended March 16; treatment was nine weeks of induction chemo (Cisplatin, Taxotere and 5-FU) followed by seven weeks of radiation with weekly chemo (Carboplatin). Scans are good (watching one node)."

    So, turns out the one node resisted treatment - neck dissection December 2010. So now I'm seven months cancer free; almost two years since diagnosis. Do well.

    2 years
    It's been 2 years since I found the lump in my neck. Unknown primary. Modified neck dissection. 5 weeks IMRT and 2 rounds of erbutx. So far, so good. I see my onco and surgeon every 3 months. Last ct scan looked good. God Bless.
  • BenScott
    BenScott Member Posts: 2
    #127
    15 1/2 Months and counting...
    I was diagnosed with SCC left tonsil and 2 lymph nodes January 29, 2010. I finished treatment April 13, 2010. The road is tough, but it is beatable! Hang in there, keep fighting one day at a time and don't give up.
  • kingcole42005
    kingcole42005 Member Posts: 178
    #128
    Wellll I guess I can start counting!
    Wellll I guess I can start counting! I never have thought of myself without cancer, but with a clean PET/MRI I can start!! I had mucoepidermoid carcinoma of my submandibular, diagnosed last August 2010. So I guess it's been a whole year!! OMG! I didn't even realize it. One year ago this month I found out I had cancer, how life changing.
  • Friend of Bill 2
    Friend of Bill 2 Member Posts: 1
    #129
    friend of Bill said:

    grateful to be alive
    Right tonsil,one lymph node, surgery, chemo and rads - it's now been now 23 wonderful (but admittedly very trying at times) months since treatment ended.Thanks for the topic.

    Vince

    Grateful you posted
    Thanks to everyone for posting. The stories of hope and recovery are amazing and really helps a lot.

    Similar story here - I got the left side covered. Cancer found in Left tonsil, one lymph node tumor on left neck, Tonsils out 2 weeks ago, start chemo tomorrow: Cisplatin & Docetaxel treatment every 3 weeks, then radiation & Carboplatin. I understand that the treatment is brutal, (stuff we're used to).
    Another friend of ours had the same thing and is cancer free for over 5 years! The miracles continue - trust there's a message in all this somewhere.

    Hoping and praying for the best for everyone.
    Keep in touch if you can/want.

    http://philhascancer.org/
    Thanks, Phil
  • Hondo
    Hondo Member Posts: 6,636 Member
    #130
    Friend of Bill 2 said:

    Grateful you posted
    Thanks to everyone for posting. The stories of hope and recovery are amazing and really helps a lot.

    Similar story here - I got the left side covered. Cancer found in Left tonsil, one lymph node tumor on left neck, Tonsils out 2 weeks ago, start chemo tomorrow: Cisplatin & Docetaxel treatment every 3 weeks, then radiation & Carboplatin. I understand that the treatment is brutal, (stuff we're used to).
    Another friend of ours had the same thing and is cancer free for over 5 years! The miracles continue - trust there's a message in all this somewhere.

    Hoping and praying for the best for everyone.
    Keep in touch if you can/want.

    http://philhascancer.org/
    Thanks, Phil

    Hi Phil

    Not sure if you and the other friend of Bill are relater but if not Welcome to CSN. Here you will find a lot of support and information.

    Wishing you all the best
    Hondo
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #131
    kingcole42005 said:

    Wellll I guess I can start counting!
    Wellll I guess I can start counting! I never have thought of myself without cancer, but with a clean PET/MRI I can start!! I had mucoepidermoid carcinoma of my submandibular, diagnosed last August 2010. So I guess it's been a whole year!! OMG! I didn't even realize it. One year ago this month I found out I had cancer, how life changing.

    Congrats
    Looking forward to your two year anniversary....

    Best,
    John
  • Rubytoos
    Rubytoos Member Posts: 45
    #132
    Skiffin16 said:

    Congrats
    Looking forward to your two year anniversary....

    Best,
    John

    Hi Everyone! It's been a
    Hi Everyone! It's been a while...I had a PET on August 10 and received the ALL CLEAR! Also had my PEG removed yesterday and am thrilled beyond words about life!!!!! (Last of 35 rad treatments May 11)

    My thoughts and prayers continue to be with you all.
  • buzz99
    buzz99 Member Posts: 404
    #133
    Rubytoos said:

    Hi Everyone! It's been a
    Hi Everyone! It's been a while...I had a PET on August 10 and received the ALL CLEAR! Also had my PEG removed yesterday and am thrilled beyond words about life!!!!! (Last of 35 rad treatments May 11)

    My thoughts and prayers continue to be with you all.

    1 year
    A year ago Buzz was diagnosed with Stage IV SCC of the base of tongue. Two PET scans have been suspicious so the PEG stays until he can get a clean scan. Next scan is Sept 8. Hoping that it at least looks the same. Karen
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #134
    buzz99 said:

    1 year
    A year ago Buzz was diagnosed with Stage IV SCC of the base of tongue. Two PET scans have been suspicious so the PEG stays until he can get a clean scan. Next scan is Sept 8. Hoping that it at least looks the same. Karen

    Better & Clean
    That's what I'm shooting for....

    Best,
    John
  • Hondo
    Hondo Member Posts: 6,636 Member
    #135
    buzz99 said:

    1 year
    A year ago Buzz was diagnosed with Stage IV SCC of the base of tongue. Two PET scans have been suspicious so the PEG stays until he can get a clean scan. Next scan is Sept 8. Hoping that it at least looks the same. Karen

    Hi Karen
    Looks like Buzz and I will be doing our PET together just not at the same place. I will be in Houston at MD Anderson getting my 6 month PET on 9-8-11, and you know what, in the past 6 years I only had one of them come back NED all the rest were dirty little boys…

    Wishing you both well on the 8th.
    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
    #136
    Rubytoos said:

    Hi Everyone! It's been a
    Hi Everyone! It's been a while...I had a PET on August 10 and received the ALL CLEAR! Also had my PEG removed yesterday and am thrilled beyond words about life!!!!! (Last of 35 rad treatments May 11)

    My thoughts and prayers continue to be with you all.

    Hi Ruby
    That’s great news keep strong and keep clean, but most of all just believing.

    Wishing you both the best
    Hondo
  • vsudd
    vsudd Member Posts: 52
    #137
    survived
    My husband has survived 5 years this week !!!! Yeah !!!!!!!!!!!
  • Mashedpotatoe
    Mashedpotatoe Member Posts: 3
    #138
    Left tonsil cancer, T1N2bM0.
    Left tonsil cancer, T1N2bM0. 2.5 years.
  • BrianKrashpad
    BrianKrashpad Member Posts: 188
    #139
    Mashedpotatoe said:

    Left tonsil cancer, T1N2bM0.
    Left tonsil cancer, T1N2bM0. 2.5 years.

    noob
    About 9 1/2 months since discovered in midst of surgery (surprise!)
    to remove what was thought to be a cyst.

    Be well!
  • dotty4577
    dotty4577 Member Posts: 7
    #140
    hawk711 said:

    6 months
    I love hearing from Sash, Abbimom, etc on the 5-10 years of cancer survivorship!!!!!
    I had a very clean PET scan and my Oncologist says I am in remission and to enjoy life. Still can't eat everything but it is getting better every week-month. I can't wait to put up my 10 year post treatment note on this website in 2020!!!!!!Squamour cell of the tongue and it metastisized to lymphnodes in my neck too.......God bless all you long termers!!!See ya down the road.....
    Steve

    My first post, just wanted
    My first post, just wanted to say how good it feels to have found this blog. I was diagnosed with AdCC 9/2010. Had removal or resection of the Hard pallet 1/11 and in 3/11 I had a 2nd surgery of removal of positive edges from my septum. Other lumps were found in my neck and on my thyroid, but, they were negative for malignancy. It has been almost five months since the surgeries and I have not recieved any rads. I am on my feet and even though i am being told to have rads. I don/t want to. I would like to hear some of your thoughts on taking this position. I am having a serious problem managing this orator/prostetic hard pallet,
  • Hondo
    Hondo Member Posts: 6,636 Member
    #141
    Mashedpotatoe said:

    Left tonsil cancer, T1N2bM0.
    Left tonsil cancer, T1N2bM0. 2.5 years.

    Hi potatoe
    Just like to welcome you here to CSN and hope you stay and give us your story abotu C.

    Thanks
    Hondo

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