My hisband was just diagnosed with squamous cell carcinoma of the tongue

Hi Taunya

Sorry to hear that your husband has this but don’t let it scare you. There are a lot of survivors here with the same cancer and doing very well. Will keep you both in prayer today as he does his CAT scan they may want to also do a PET scan later to see if it is just localize on just his tongue.

PS: Welcome to our family here on CSN.
Hondo

Welcome
Welcome to the dreaded double post.

Squamous cell tongue cancer
My husband was diagnosed with squamous cell base of tongue cancer stage 2 at the end of June 2011. He has been going through radiation (35 treatments) and chemo (once a week for 7 weeks) now since july 7th. He lost so much weight that after 3 weeks they put a feeding tube in him. He lost weight though because of the chemo. It made food taste to bad, and he wouldn't or couldn't eat. After the surgery for the feeding tube, I noticed his tempature was going up (this was the same day of surgery), I took him to the er, and they kept him in the hospital for 7 days. Hes been home now for 8 days, and doing much better. It's extremly important to get food down you, for the cancer and the chemo use up so many calories. He needs 2600 calories a day just to maintain his weight. And 100g of protein a day. He seems to be doing much better now, he has 8 more radiation treatments and 1 more chemo! The feeding tube, they tell me will probably be in him at least another month, maybe 2! He was a slim man to begin with, so if anybody is going thru this don't hesitate to get the feeding tube. I hear in some cases they put the tube in before your treatment even starts. I don't know yet if he is going to be cured, but I have faith! This has been the hardest thing I have ever gone through, I cry everyday! But there is alot of people that are cured of this very same cancer, so he will be too! If I can help anybody out there just let me know. I do want to add that my husband had a sore throat for 5 years and went to many differnt doctors! They all said it was alleries and would give him nasal sprays etc. Don't give up if you know the doctor didn't look hard enough or in your gut you know its more then what they are saying. Doctors are only human and they call it a practice because they are all practicing! They make mistakes. We still have to trust them and have faith in them. God bless

sfuzzy said:

Squamous cell tongue cancer
My husband was diagnosed with squamous cell base of tongue cancer stage 2 at the end of June 2011. He has been going through radiation (35 treatments) and chemo (once a week for 7 weeks) now since july 7th. He lost so much weight that after 3 weeks they put a feeding tube in him. He lost weight though because of the chemo. It made food taste to bad, and he wouldn't or couldn't eat. After the surgery for the feeding tube, I noticed his tempature was going up (this was the same day of surgery), I took him to the er, and they kept him in the hospital for 7 days. Hes been home now for 8 days, and doing much better. It's extremly important to get food down you, for the cancer and the chemo use up so many calories. He needs 2600 calories a day just to maintain his weight. And 100g of protein a day. He seems to be doing much better now, he has 8 more radiation treatments and 1 more chemo! The feeding tube, they tell me will probably be in him at least another month, maybe 2! He was a slim man to begin with, so if anybody is going thru this don't hesitate to get the feeding tube. I hear in some cases they put the tube in before your treatment even starts. I don't know yet if he is going to be cured, but I have faith! This has been the hardest thing I have ever gone through, I cry everyday! But there is alot of people that are cured of this very same cancer, so he will be too! If I can help anybody out there just let me know. I do want to add that my husband had a sore throat for 5 years and went to many differnt doctors! They all said it was alleries and would give him nasal sprays etc. Don't give up if you know the doctor didn't look hard enough or in your gut you know its more then what they are saying. Doctors are only human and they call it a practice because they are all practicing! They make mistakes. We still have to trust them and have faith in them. God bless

Hello, sfuzzy
Welcome. Sounds like your husband's doing well (considering) so far. Hope it keeps up. It's great of you to be wanting to help others at a time when you have a lot on your plate.

Tongue cancer
My best advice is get to where they see this type of cancer on a regular basis. I went for treatment 80 miles away. Stage 4 with 3 lymph nodes. Turned down the surgery and had 35 radiation and 7 chemos. Was misdiagnosed for months by my GP. Went to an ENT who found it immediately. Listen to your body as docs do make mistakes. I had even told my doc that I was afraid I had a tumor and she never checked it out.
My last treatment was in Dec and so far so good. I eat pretty much anything I want. No more dry mouth or stringy saliva. I am one of the lucky ones. I had two months of therapy with throat issues and two stretches. I credit them with being able to ditch the PEG tube ( I lost over 30 pounds in 3 weeks.Went from 134 to 102 in that short time). I then went to 96 pounds but happy to say am back up to 101 now and feel STRONG!
We all are here to help and hope all goes well for your husband. It won't be easy but it can be beat.
Good vibes
Peace, Nancy aka toughcookie

My husbands too
Taunya,

My husband also had squamous cell carcinoma of the base of the tongue, diagnosed 04/2010. He went through 7.5 weeks of chemo and radiation. It has been a very long, hard road. The doctors say it is a bad, bad treatment. That is being gentle. But it is worth it, no matter what the fight. My husband has had 4 PET scans and all came back IN REMISSION. We will be getting another PET scan in October. Prayers do work. Something that I want to tell you that one of the nurses at the cancer center told me. Be very careful because every fluid that leaves your husband is very toxic due to the treatments. If he gets sick, use rubber gloves when cleaning it up. Close the lid of the stool when flushing. Flush twice. Later, much later, when I had time to look through the stacks of books they gave us, I read the same information. Who has time to read that stack of books when you need the information!

My prayers are with you!

lauralou55 said:

My Dad was just diagnosed with stage 2 base of the tongue squamous cancer when they found a tumor in his right neck. The original tumour in the very back of his tongue was draining into the lymph nodes in his neck. He has 35 radiation treatments to complete and has completed 9 - 25 to go. So far so good he is just getting sore in his mouth and throat. But he is 77 and I am 55 and I still have trouble keeping up with him!

The cat scan is important. Before my Dad had the cat scan I was afraid his cancer was stage 4 and it turned out to only be stage 2!

Hang in there! Let us know what happens!

Leora

Welcome to the board. Sorry
Welcome to the board. Sorry about the circumstances. You will find soma amazing people on this borad willing to help, pray,laugh or cry with you.

Posting for my wife.
We too could use some advice. My wife Vickie and I learned today that she has stage 3 SCC of the base of tongue. As I'm sure all of you can relate, we are pretty shook up over it. She has her PET scan tomorrow.We meet the oncologist Monday and her biopsy is Tuesday. We're sailing in uncharted waters, so any advice would be greatly appreciated.
Bob

Baygal said:

Posting for my wife.
We too could use some advice. My wife Vickie and I learned today that she has stage 3 SCC of the base of tongue. As I'm sure all of you can relate, we are pretty shook up over it. She has her PET scan tomorrow.We meet the oncologist Monday and her biopsy is Tuesday. We're sailing in uncharted waters, so any advice would be greatly appreciated.
Bob

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