ROLL CALL 2011 CLOSED. REPORT BACK IN 2012 LISTING
HAWVET
Member Posts: 318
AM UPDATING ROLL CALL. If you had not checked in for year 2011, please post. Thank you. Please note that there are two rosters. The first lists those who have reported back in year 2011. The second are those who have not checked in. Some may already have posted in this thread and will update the roster in January.
CHECKED IN 2011
Adamson 091654, state unk, HPV-16 neck cancer in January 2011. Tumor removed 01/03/2011. Enrolled January 24, 2011.
Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011.
Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010. Checked in January 20, 2011.
Aeromech, state unk, DX stage 1 SCC right tonsil on September 24, 2011, enrolled July 21, 2011
Akotke, Alabama, DX tonsil stage 4b scc tonsil in November 2010, enrolled August 12, 2011.
Army_Guy, Maryland, diagnosed SCC right base of tongue-April 30, 2010, left salivary gland-May 2010. Enrolled January 15, 2010. Enrolled January 16, 2011
Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011. Checked in July 21, 2011.
Arjenkins, state unk, enrolled dad diagnosed stage IV cancer base of tongue w/lymph node on both sides. Enrolled January 20, 1011.
Arndog64, DX left tongue base tumor w/lymph node invasion on January 28, 2011. Enrolled April 18, 2011.
Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010. Checked in August 13, 2011.
Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010. Checked in August 4, 2011.
CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010. Checked in August 4, 2011.
Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.
Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010. Checked in January 23, 2011.
CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010, Checked in August 7, 2011.
Connieprice1, Texas, DX SCC stage IV, base of tongue in October 2010. Enrolled July 17, 2011.
D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in July 23, 2010. Checked back on January 16, 2011.
Davidgskinner, California, DX stage 4, SCC right tonsil, enrolled July 13, 2010. Checked in August 5, 2011.
Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010. Checked in July 15, 2011.
Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010. Checked in on January 17, 2011.
Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011.
Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010, Checked in January 16, 2011
Ed_PortOrange, state unk, diagnosed SCC of Valledupar-December 2009. Enrolled on January 17, 2011. Checked in July 29, 2011.
Ekdeennie, Oklahoma, diagnosed Mucoepidermoid carcinoma of hard palate w/growth into maxillary sinus-June 30, 2010. Enrolled on January 17, 2011.
Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010. Checked in August 12, 2011.
Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung in May 2009, enrolled on 1-31-2010. Checked back in on January 1, 2011. Checked in March 6, 2011. Checked in July 29, 2011.
GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010. Checked in January 16, 2011.
Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010. Checked in July 19, 2011.
Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 6, 2011.
HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008. Checked in August 4, 2011
Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010. Second time in 2005 and last in March 2006. Checked back in July 25, 2010. Reported back in on January 20, 2011. Will be five years from treatment in March 2011. Checked in Aug 5, 2011.
Jan Trinks, Atlanta, Georgia, posted as being in forum on August 12, 2011.
Janymac, UK, DX in 2002, enrolled on April 18, 2011.
Jim & I, registered on August 7, 2011. No information provided.
Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010. Checked back in July 16, 2011.
Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010. Checked in August 7, 2011.
Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010. Checked in January 20, 2011.
Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011
Kteacher, California, DX SCC HPV - Spindel cell varient, perineural involvement, enrolled July 20, 2011.
Ktjt, state unk, diagnosed SCC NPC in May 2010, SCC on check, Mohs Sx, BCC Jan 2011 Mohs Sx, enrolled January 24, 2011.
Kokom, state unknown, enrolled August 12, 2011, spouse treated for NPC in year 2006.
Landranger25, state unk 2009, enrolled on 01-31-2010. Checked in January 24, 2011
Lena Rose, New Jersey, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010. Checked back in January 16, 2011.
Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011. Checked in July 17, 2011.
Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010. Checked in July 15, 2011 & August 5, 2011.
MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.
Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010. Checked in January 21, 2011.
Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010. Checked in August 4, 2011.
Olybee, Washington, DX March 2011 on tonsil/lymph node. Enrolled July 21, 2011.
Pattyanny, New York, Undiagnosed primary head and neck in June 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back. Checked in August 1, 2011.
Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011. Checked in August 12, 2011.
Rarph123 responded to an entry on January 17, 2011 but did not enroll.
Ratface, Illinois, DX July 2009 BOT, T1N2BMX, Stage IV-BOT-2 nodes right side, selective disection 11-30-09 9 nodes removed. Checked in August 4, 2011.
Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011. Checked back January 16, 2011.
Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010. Checked back January 16, 2011.
RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010. Checked back in January 17, 2011.
Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009.
Checked in okay, 11-30-2009, Okay in July 23, 2010. Checked in August 10, 2011.
Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011.
SeenanN, Maryland, DX 2004 NPC state 4 metastasis to lung, enrolled July 21, 2011.
Skilffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011. Checked in July 15, 2011 & Aug 5, 2011.
Soccerfreaks, not enrolled, but posted on welcoming Sash back.
Staceya, state unk, DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010. Checked back January 16, 2011. Checked in August 5, 2011.
Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked back in January 7, 2011.
Susan0803, New Jersey, enrolling husband Joe, SCC of left tonsil (primary tumor)-August 3, 2010, enrolled January 20, 2011.
Swartpb, state unk, DX SCC right side tongue on July 21, 2010. Enrolled March 6, 2011.
Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2008. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011. Checked in July 19, 2011.
Tanager75, Washington, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010. Checked in August 4, 2011.
Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.
Timreichhart, Ohio, DX NPC March 2010. Enrolled January 16, 2011.
Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.
Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.
Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010. Checked in January 20, 2011. Checked in August 16, 2011.
MAY THEY REST IN PEACE
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby
Mswijik, New York, husband Patrick diagnosed laryngeal stage 4 - September 2010, enrolled January 16, 2010.
Condolences extended. Reported on March 6, 2011 that Patrick passed away on February 17, 2011.
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.
ENROLLED, BUT HAVE NOT CHECKED BACK IN
Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010
Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August 5, 2008.
Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III
Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.
Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009
Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.
Cwctcher, Virginia. Tonsillar in 1997, enrolled November 6, 2008
Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010.
Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.
Devildawg, Michigan, 2004, Nasopharyngeal. Enrolled August 29, 2008
DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010.
Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010.
Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.
Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010
Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.
Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010,
Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)
Fisrpotpe, state unknown, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Glad you are with us John.
Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010.
Garyr, New Mexico. 1999, Throat & Lymph glands Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV.
Geezer, Florida, Tonsilar in 2006, enrolled August 5, 2008
Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010.
J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010.
Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.
JGE, state unk, checked in 03-17-2010. 2008, BOT w/2 nodes. Had chemo and rads. All scans cleared, return to work 01 2009.
Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010.
Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005. Enrolled August 30, 2008
Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.
Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.
Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs
Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)
Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)
Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie
Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, enrolled August 28, 2008
Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma
Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010
Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,
Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010
MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.
Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone
Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.
Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.
Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube.
Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”
Paula002, Montreal, 2007, Nasopharyngeal , enrolled November 7, 2008
PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010.
PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good
Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil, enrolled August 25, 2008
Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete
Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.
Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010
Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan
SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,,
Name Sienna Finch. Checked in 03-25-2009, doing okay completed June 2009. Followup. PET and CT were clean. (John)
Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010. Reported on Aug 5, 2011 by Skiffin 15 and Hondo that he left the forum.
Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.
Slickwilly, Michigan, Large B-cell lymphoma, cancer from sinus to jaw bone in 2003, enrolled, August 7, 2008
Checked in 01-20-2009
Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)
Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009
TereB, Houston, Texas, Milignant Paraganglioma (started as glomus jugulare tumor) in 1987, enrolled August 6, 2008.
TIM_WWJD, Oregon, 2009, Checked in 01-31-2010. SCC Stage 4, left tonsil, last ENT clear, chest X-Ray clear. Was removing port in early February.
Tom55, Michigan. 2006, Medullary thyroidTootsie47, Oregon, 2009, enrolled November 7, 2008. Checked in 01-31-2010, husband Dx June 2009, occult primary, clean scan 12-2009Train-nut, Oklahoma. 2007? Checked in on 01-31-2010, SCC of the hypopharnx. Thanks for keeping tab. It's great to see such a long list. Still doing well. Keeping on eye on my teeth. Otherwise, I'm putting on too much weight. I may have to increase dosage of thyroid medication.
Trainnut, Tulsa, Oklahoma, hypo pharyngeal cancer in 2007, enrolled August 5, 2008
Wboaz, Oregon, 2006 Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne
Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.
Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough.
CHECKED IN 2011
Adamson 091654, state unk, HPV-16 neck cancer in January 2011. Tumor removed 01/03/2011. Enrolled January 24, 2011.
Agatha, Toronto, Canada, DX stage IV left side of tongue in 2010. Enrolled on January 4, 2011.
Adventurebob, California, diagnosed Nasopharyngeal stage IV in May 2010, enrolled August 21, 2010. Checked in January 20, 2011.
Aeromech, state unk, DX stage 1 SCC right tonsil on September 24, 2011, enrolled July 21, 2011
Akotke, Alabama, DX tonsil stage 4b scc tonsil in November 2010, enrolled August 12, 2011.
Army_Guy, Maryland, diagnosed SCC right base of tongue-April 30, 2010, left salivary gland-May 2010. Enrolled January 15, 2010. Enrolled January 16, 2011
Areomech, Cincinnati, Ohio, DX I1N0M0 on September 24, 2010, enrolled January 5, 2011. Checked in July 21, 2011.
Arjenkins, state unk, enrolled dad diagnosed stage IV cancer base of tongue w/lymph node on both sides. Enrolled January 20, 1011.
Arndog64, DX left tongue base tumor w/lymph node invasion on January 28, 2011. Enrolled April 18, 2011.
Backachedp, Minnesota, DX ? on September 29, 2009, enrolled on July 24, 2010. Checked in August 13, 2011.
Ballonk, Lousiana, DX SCC left tongue in 2001, enrolled on 02-04-2010. Checked in August 4, 2011.
CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010. Checked in August 4, 2011.
Caspercamp, McKinney, Texas, Diagnosed SCC right tonsil, stage IV on May 26, 2010. Enrolled January 3, 2011.
Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010. Checked in January 23, 2011.
CLRRN, Maryland, reporting for partner Mike, DX SCC left tonsillar basloid, enrolled on 07-13-2010, Checked in August 7, 2011.
Connieprice1, Texas, DX SCC stage IV, base of tongue in October 2010. Enrolled July 17, 2011.
D Lewis, Sierra foothills, California, DX SCC base on tongue, January, 2010, enrolled February 5, 2010, checked in July 23, 2010. Checked back on January 16, 2011.
Davidgskinner, California, DX stage 4, SCC right tonsil, enrolled July 13, 2010. Checked in August 5, 2011.
Dazey, New York, diagnosed SCC unknown primary in 2009, DX SCC, enrolled on 01-31-2010, checked back in December 29, 2010. Checked in July 15, 2011.
Debbiejeanne, Cincinnati, Ohio, DX larynx cancer in August 2009, enrolled on 07-11-2010. Checked in on January 17, 2011.
Dennis318, Spring Hill, Tennessee, DX stage IV, throat cancer in November 2009. Enrolled on March 17, 2010, Checked in 07-12-2010 with update. Botched surgery when reported back on January 3, 2011 and will try hard to make positive strides in 2011.
Dragons7-7-2010, Texas, diagnosed SCC right tonsil in July 2010, enrolled August 21, 2010, Checked in January 16, 2011
Ed_PortOrange, state unk, diagnosed SCC of Valledupar-December 2009. Enrolled on January 17, 2011. Checked in July 29, 2011.
Ekdeennie, Oklahoma, diagnosed Mucoepidermoid carcinoma of hard palate w/growth into maxillary sinus-June 30, 2010. Enrolled on January 17, 2011.
Fire34, Illinois, DX unknown primary June 2009, enrolled March 17, 2010, checked back in July 23, 2010. Checked in August 12, 2011.
Glenna M, New Hampshire, diagnosed SCC laryngeal and NSCLC Aden carcinoma in left lung in May 2009, enrolled on 1-31-2010. Checked back in on January 1, 2011. Checked in March 6, 2011. Checked in July 29, 2011.
GraceLibby, Renton, Washington, diagnosed Stage 3 SCC, right tonsil primary, enrolled in 07-14-2010. Checked in January 16, 2011.
Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010. Checked in July 19, 2011.
Hal61, California, diagnosed stage 3 SCC base of tongue in November 2009, enrolled 03-29-2010, checked in August 6, 2011.
HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008. Checked in August 4, 2011
Hondo, Lafayette, Louisiana, diagnosed Nasopharyngeal, enrolled on 01-31-2010. Second time in 2005 and last in March 2006. Checked back in July 25, 2010. Reported back in on January 20, 2011. Will be five years from treatment in March 2011. Checked in Aug 5, 2011.
Jan Trinks, Atlanta, Georgia, posted as being in forum on August 12, 2011.
Janymac, UK, DX in 2002, enrolled on April 18, 2011.
Jim & I, registered on August 7, 2011. No information provided.
Jimbo55, from Chicago working in Bangkok Thailand, SCC BOT in May 2010, enrolled July 22-2010. Checked back in July 16, 2011.
Joe14, Rochester, New ork, SCC unknown primary in April 2010, enrolled July 22, 2010. Checked in August 7, 2011.
Kent Cass, Quad cities, Midwest, NPC unknown primary in 2009, enrolled July 22, 2010. Checked in January 20, 2011.
Kingcole42005, California, DX Mucoepidermoid Carcinoma in 2010. Enrolled January 3, 2011
Kteacher, California, DX SCC HPV - Spindel cell varient, perineural involvement, enrolled July 20, 2011.
Ktjt, state unk, diagnosed SCC NPC in May 2010, SCC on check, Mohs Sx, BCC Jan 2011 Mohs Sx, enrolled January 24, 2011.
Kokom, state unknown, enrolled August 12, 2011, spouse treated for NPC in year 2006.
Landranger25, state unk 2009, enrolled on 01-31-2010. Checked in January 24, 2011
Lena Rose, New Jersey, Husband DX w/ BOT SCC HPV+ in March 2010, Enrolled July 14, 2010. Checked back in January 16, 2011.
Luv2cut1, Myka Landry, Colorado, husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Enrolled January 6, 2011. Checked in July 17, 2011.
Luv4lacrosse, St Louis-Missouri, SCC right tonsil in June 2010, enrolled December 28, 2010. Checked in July 15, 2011 & August 5, 2011.
MarkN_Ct, Connecticut, DX SCC recurrent Tongue. Enrolled January 3, 2011.
Meinken, Georgia, DX nasopharyngeal in January 2007, enrolled July 12, 2010. Checked in January 21, 2011.
Miccmill, state unknown, reporting for spouse Glenn, DX with SCC on April 7, 2010, enrolled July 23, 2010. Checked in August 4, 2011.
Olybee, Washington, DX March 2011 on tonsil/lymph node. Enrolled July 21, 2011.
Pattyanny, New York, Undiagnosed primary head and neck in June 2009. Enrolled November 27, 2010. Checked back in January 1, 2011. Welcome back. Checked in August 1, 2011.
Pascotty, Bunbury, Western Australia, diagnosed SCC right tonsil in November 2009. Enrolled January 7, 2011. Checked in August 12, 2011.
Rarph123 responded to an entry on January 17, 2011 but did not enroll.
Ratface, Illinois, DX July 2009 BOT, T1N2BMX, Stage IV-BOT-2 nodes right side, selective disection 11-30-09 9 nodes removed. Checked in August 4, 2011.
Ron49, San Diego, California, DX SCC Mestasized to left lymph node, path reported Epitheleal Neoplasm in December 2009. Enrolled on January 4, 2011. Checked back January 16, 2011.
Rush1958, Kansas City, Kansas, SCC base of tongue January 12, 2010, enrolled July 20,2010. Checked in July 23, 2010. Checked back January 16, 2011.
RushFan, Cypress, Texas, diagnosed HPV=T) N2b MO unk primary in January 2010, Enrolled August 3, 2010. Checked back in January 17, 2011.
Sash, Florida, DX SCC base of tongue September 2009, enrolled August 24, 2008. Checked in okay, Jan 20 2009.
Checked in okay, 11-30-2009, Okay in July 23, 2010. Checked in August 10, 2011.
Scottied, state unknown, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011.
SeenanN, Maryland, DX 2004 NPC state 4 metastasis to lung, enrolled July 21, 2011.
Skilffin16, Lakeland, Florida, DX right tonsil, January 2009, enrolled January 31, 2010, checked in July 23, 2010, rechecked on January 5, 2011. Checked in July 15, 2011 & Aug 5, 2011.
Soccerfreaks, not enrolled, but posted on welcoming Sash back.
Staceya, state unk, DX stage 1 NPC in 2009, Enrolled February 2, 2010. Checked back in July 28, 2010. Checked back January 16, 2011. Checked in August 5, 2011.
Stevenl, Fort Worth, Texas, DX SCC right tonsil, enrolled January 31, 2010, checked in July 23, 2010. Checked back in January 7, 2011.
Susan0803, New Jersey, enrolling husband Joe, SCC of left tonsil (primary tumor)-August 3, 2010, enrolled January 20, 2011.
Swartpb, state unk, DX SCC right side tongue on July 21, 2010. Enrolled March 6, 2011.
Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 DX December 2008. Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011. Checked in July 19, 2011.
Tanager75, Washington, diagnosed SCC left tonsil in July 2009, enrolled July 26, 2010. Checked in August 4, 2011.
Terryscarlet, state unknown, DX SCC left tonsil in July 2010, enrolled January 1, 2011.
Timreichhart, Ohio, DX NPC March 2010. Enrolled January 16, 2011.
Tonyanddenise, Central Ohio, DX primary in left tonsil, enrolled July 12, 2010. Checked back in on January 2, 2011.
Vermont Liz, Vermont, husband DX with SCC, stage IV base of tongue in December 2009, enrolled January 5, 2011.
Wife for Life, Missouri, husband diagnosed with stage IV SCC base of tongue. Enrolled April 15, 2010. Checked in January 20, 2011. Checked in August 16, 2011.
MAY THEY REST IN PEACE
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby
Mswijik, New York, husband Patrick diagnosed laryngeal stage 4 - September 2010, enrolled January 16, 2010.
Condolences extended. Reported on March 6, 2011 that Patrick passed away on February 17, 2011.
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.
ENROLLED, BUT HAVE NOT CHECKED BACK IN
Bigfuzzydoug, Mooresville-North Carolina, DX SCC above vocal cord July 2010, enrolled on July 30, 2010. Checked back in on December 29, 2010
Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August 5, 2008.
Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III
Clearblue, state unk, for wife, DX SCC base of tongue in 2001, Esophagectomy in 2008, partial larpharingal + lobotomy lung on October 2009, enrolled July 13, 2010.
Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009
Cwcad, state unknown, checked in 01-31-2010, DX ge IV tongue cancer, in 2007, Enrolled January 31, 2010.
Cwctcher, Virginia. Tonsillar in 1997, enrolled November 6, 2008
Davidgskinner, state unk, DX stage 4, SCC right tonsil, enrolled July 13, 2010.
Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.
Devildawg, Michigan, 2004, Nasopharyngeal. Enrolled August 29, 2008
DJG1, Louisville, Kentucky, DX lymp node on right neck in April 2010, enrolled July 24, 2010.
Dogsrule, state unknown, DX SCC unknown primary in October 2009, enrolled July 11, 2010.
Doitforj, Georgia, Checked in 02-01-2010, DX SCC base of tongue and neck in 2009, enrolled on February 1, 2010.
Douglas08, state unknown, diagnosed stage 4 SCC sinus, enrolled August 21, 2010
Fbcuthguy, Tennessee, 2009, diagnosed SCC unknown primary Stage IV in 2009. Enrolled on March 16, 2010.
Finz2lift, North Carolina, DX SCC base of tongue, enrolled on 07-11-2010,
Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)
Fisrpotpe, state unknown, diagnosed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident, enrolled on December 29, 2010. Glad you are with us John.
Frank10G, Virginia, Checked in 02-03-2010, Diagnosed Stage 3 NPC 2009, Enrolled February 3, 2010.
Garyr, New Mexico. 1999, Throat & Lymph glands Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV.
Geezer, Florida, Tonsilar in 2006, enrolled August 5, 2008
Irishgypsie, Rochester, New York, DX SCC right tonsil, enrolled on 07-11-2010.
J3rey, Florida, SCC left lymph node April 2010, enrolled July 26, 2010.
Jagged, Washington, Diagnosed Breast 2005-Esophagus 2007 and lungs 2008. Enrolled on October 29, 2010. Checked in on March 29, 2010.
JGE, state unk, checked in 03-17-2010. 2008, BOT w/2 nodes. Had chemo and rads. All scans cleared, return to work 01 2009.
Jkinobay, Arizona & Mexico, HPV16 positive lymph nodes in 2007, Enrolled April 21, 2009, checked in July 27, 2010.
Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005. Enrolled August 30, 2008
Kimba1505, Pennsylvania, partner with SCC left tonsil April 13, 2010, enrolled July 20, 2010, Checked back in July 20, 2010.
Lady4darknight, Mtn Grove, DX mass base of tongue, B lymphoma BOT and both tonsils in August 2008, enrolled July 11, 2010, checked back in July 23, 2010.
Ljoy, Sauk Rapids, MN, right tonsil cancer in 2005, enrolled August 20, 2008, checked in 01-31-2010, doing fine and no signs
Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)
Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)
Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie
Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, enrolled August 28, 2008
Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma
Michelle H, state unknown, diagnosed cancer on base of tongue, enrolled August 21, 2010
Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,
Mikki332, South Dakota, husband Gary w/SCC base of tongue in October 2010, enrolled December 28, 2010
MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.
Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone
Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.
Naturenaw, North Carolina, diagnosed SCC in tonsil in 2005. Enrolled on April 14, 2010.
Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube.
Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”
Paula002, Montreal, 2007, Nasopharyngeal , enrolled November 7, 2008
PAM M, Kentucky, DX SCC BOT pm October 24, 2009, 2009, enrolled on 01-31-2010. Checked in on July 13, 2010. Update on January 4, 2010.
PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good
Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil, enrolled August 25, 2008
Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete
Pumakitty, Virginia, father diagnosed cancer base of tongue in March 2010, enrolled July 22, 2010.
Rmdgy, Georgia, SCC right tonsil in 2009, enrolled December 28, 2010
Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan
SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,,
Name Sienna Finch. Checked in 03-25-2009, doing okay completed June 2009. Followup. PET and CT were clean. (John)
Scambuster, Hong Kong/China, SCC left tongue in August 2009, enrolled July 22, 2010. Reported on Aug 5, 2011 by Skiffin 15 and Hondo that he left the forum.
Silver_Foxette, Indiana, DX vocal cord cancer in January 2009, also 30 year cerval cancer survivor, enrolled July 31, 2010.
Slickwilly, Michigan, Large B-cell lymphoma, cancer from sinus to jaw bone in 2003, enrolled, August 7, 2008
Checked in 01-20-2009
Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)
Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009
TereB, Houston, Texas, Milignant Paraganglioma (started as glomus jugulare tumor) in 1987, enrolled August 6, 2008.
TIM_WWJD, Oregon, 2009, Checked in 01-31-2010. SCC Stage 4, left tonsil, last ENT clear, chest X-Ray clear. Was removing port in early February.
Tom55, Michigan. 2006, Medullary thyroidTootsie47, Oregon, 2009, enrolled November 7, 2008. Checked in 01-31-2010, husband Dx June 2009, occult primary, clean scan 12-2009Train-nut, Oklahoma. 2007? Checked in on 01-31-2010, SCC of the hypopharnx. Thanks for keeping tab. It's great to see such a long list. Still doing well. Keeping on eye on my teeth. Otherwise, I'm putting on too much weight. I may have to increase dosage of thyroid medication.
Trainnut, Tulsa, Oklahoma, hypo pharyngeal cancer in 2007, enrolled August 5, 2008
Wboaz, Oregon, 2006 Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne
Up2myneck, state unknown, DX July 2008, recur March 2010, enrolled July 23, 2010.
Victor53, Rhode Island, Tonsil into base of tongue, Lives in Costa Rica, enrolled August 5, 2008. Had been actively checking in. Last check in on March 3, 2010 and hanging tough.
0
Comments
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I'm Still Here - Alive and Kicking
Hi, I've been lurking around for a while now but have not posted in a while. Shame on me; that's for sure!
I've had two rounds with SCC. The first on my tongue in 2001 (surgery; no radiation and/or chemo) and then in my neck in 2003 (radical left neck dissection with removal of about 80 lymph nodes and a tonsillectomy). Completed radiation treatments on Dec 16, 2003. No chemo.
Overall, am doing well. Met with my radiation oncologist for an annual follow-up on May 10, 2011. Chest xray normal and NED.
Based on the statistics and my situation, I had prepared myself to die in 2003. It's now 8 years later and I'm so grateful to still be here. I sank in to a depression at about the 5 year mark; not knowing how to move out of the "survival" mode back into the "living" mode again. I swallowed my pride and sought help and am so grateful to be living a fuller life than I have in a long time.
I still read a lot of the posts here and keep y'all in my thoughts and prayers.
Kathy0 -
Make it 75 missingballonk said:I'm Still Here - Alive and Kicking
Hi, I've been lurking around for a while now but have not posted in a while. Shame on me; that's for sure!
I've had two rounds with SCC. The first on my tongue in 2001 (surgery; no radiation and/or chemo) and then in my neck in 2003 (radical left neck dissection with removal of about 80 lymph nodes and a tonsillectomy). Completed radiation treatments on Dec 16, 2003. No chemo.
Overall, am doing well. Met with my radiation oncologist for an annual follow-up on May 10, 2011. Chest xray normal and NED.
Based on the statistics and my situation, I had prepared myself to die in 2003. It's now 8 years later and I'm so grateful to still be here. I sank in to a depression at about the 5 year mark; not knowing how to move out of the "survival" mode back into the "living" mode again. I swallowed my pride and sought help and am so grateful to be living a fuller life than I have in a long time.
I still read a lot of the posts here and keep y'all in my thoughts and prayers.
Kathy
as I'm still here also and recognize a lot of those names.0 -
Yea, I'm here.
Present and accounted for.0 -
HereCajunEagle said:Yea, I'm here.
Present and accounted for.
Glenn just passed the 1yr. mark NED.
His ENT and RO are really pleased with the results of his treatment, especially the swallowing and eating part.
He feels great and is eating almost anything he wants. Now he actually has to watch his weight gain instead of the other way around.
Life is good.0 -
Well, quite a few of those
Well, quite a few of those missing do post regularly, and some email me. Maybe they will check in.
Also, FWIW, I think the following to entries, are the same person:
Morris, Michael "Mick", California, diagnosed Stage IV unknown origin in 2009. Enrolled January 31, 2010.
Micktissue, Sonoma County, California, DX unk suspect Nasopharnyx December 2009, enrolled March 20, 2010, reported in July 23, 2010., 2008,0 -
Several Others
There are several others like Dawn mentioned that either post here or on other places such as FaceBook. I converse with 3 - 4 regularly...
Scambuster (Craig) was booted from the forum, but we email occasionally.
Given a little time, maybe they'll post.
I know a few more that are doing fine, but must of haven't signed on when they were active on the boards.
Best,
John0 -
Thank you allSkiffin16 said:Several Others
There are several others like Dawn mentioned that either post here or on other places such as FaceBook. I converse with 3 - 4 regularly...
Scambuster (Craig) was booted from the forum, but we email occasionally.
Given a little time, maybe they'll post.
I know a few more that are doing fine, but must of haven't signed on when they were active on the boards.
Best,
John
Thank you for the updates. Am glad to see the return of those missing. Thank you Hondo. You are listed on the active duty rolls.
Sweetblood, thanks. It appears they are both the same person.
Skiffin, I have not been as active on the boards these past few months. I probably have to bump the thread up once in a while.
Aloha,
Johnny0 -
Hi JohnnyHAWVET said:Thank you all
Thank you for the updates. Am glad to see the return of those missing. Thank you Hondo. You are listed on the active duty rolls.
Sweetblood, thanks. It appears they are both the same person.
Skiffin, I have not been as active on the boards these past few months. I probably have to bump the thread up once in a while.
Aloha,
Johnny
Ops sorry I looked and did not see myself, will look again. I like being 73 for a while
PS: Also to let you know Scambuster was kicked off of CSN for posting about Alternative medicine, he is going great and enjoying life in Hong Kong.
Thanks for the great job you do in keeping up with everyone
Hondo0 -
Thanks so much! You guys areHondo said:Hi Johnny
Ops sorry I looked and did not see myself, will look again. I like being 73 for a while
PS: Also to let you know Scambuster was kicked off of CSN for posting about Alternative medicine, he is going great and enjoying life in Hong Kong.
Thanks for the great job you do in keeping up with everyone
Hondo
Thanks so much! You guys are a lifeline to me!!
Stacey0 -
STILL HERE STILL POSTING
Doing fine to date. Writing this from my vacation cabin in the Smokies.
Mike0 -
Hereluv4lacrosse said:STILL HERE STILL POSTING
Doing fine to date. Writing this from my vacation cabin in the Smokies.
Mike
About 18 month post treatment...still kicking and dealing with some side effects. All physical ones seem to be improving...but the mental impactlives on with me.
Otherwise, doing lots of fishing from my kayak in the bays of san diego and the kelp beds offshore. That and rock throwing have been the best therapies for me.0 -
yo
Well I'm not on the list so I guess I'm here.
0 -
We are not on the list so IBrianKrashpad said:yo
Well I'm not on the list so I guess I'm here.
We are not on the list so I guess even if we do not check in on your post we are counted.0 -
Still HereCLRRN said:Checking in...
CLRRN: reporting for Mike. All is well. One year (plus a month and 1/2) post treatment.
3 clean PETs post treatment (Sept10, Feb11 and Jul11). Just loving NED!!!
Thanks!!
Chris/Mike
I'm here and doing fantastic. Next weekend I'm participating in a 5k race called the Warrior Dash which is a tough hilly run with several obstacles scattered about. I've never done anything like it but had to join just to remind myself that the cancer is gone.
My last checkup was like 7 weeks ago. I just switched to visits every 3 months instead of every six weeks. I feel like I haven't been scoped, scanned, or probed in forever.
As always my prayers are with you all!
Joel0
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