Newest number...it's all good

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Comments

  • Susan777
    Susan777 Member Posts: 97 Member
    #22
    AussieMaddie said:

    Ditto
    Hi Carlene,

    we're both batting gold. 12 today for me too, down from 17. (Unlike you, I've never been lower than this.) Recently find myself feeling unusually depressed though. Don't know why, whether it's getting over a cold or chemo adding to it. Onc. said one more round of chemo (two weeks each with half strength of the carbo/taxol) then looking to have a PET scan. I've not had one of those before, only CT scans. Can't have MRI due to pacemaker inserted last year. May end up having the debulking surgery that you've had. Taking it a day at a time.

    And a point at a time. 12 is good.

    Keep it up :)

    AussieMaddie

    AussieMaddie
    I am new. My pre-op CA 125 was 1150. Post-op 141. Did you all have really high levels to start? My Doctor says our goal is to get under 20. Will chemo make it go down? I am thinking of the CA125 as the scale when you are dieting. So happy to see results. Good news with your 12. Seven happens to be my favorite number....so that is what my goal would be.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #23
    Susan777 said:

    AussieMaddie
    I am new. My pre-op CA 125 was 1150. Post-op 141. Did you all have really high levels to start? My Doctor says our goal is to get under 20. Will chemo make it go down? I am thinking of the CA125 as the scale when you are dieting. So happy to see results. Good news with your 12. Seven happens to be my favorite number....so that is what my goal would be.

    Susan...pre-op, my CA125 was
    Susan...pre-op, my CA125 was 4,000. My goal was single digits, which I achieved during chemo, but since I have been out of treatment my number has inched up to 13 and is now at 12.

    Chemo dropped my number like a rock. After 4 treatments, my CA125 was normal.

    I wish we had as much control over the CA125 as we do the numbers on the scale.

    Carlene
  • Susan777
    Susan777 Member Posts: 97 Member
    #24
    Hissy_Fitz said:

    Susan...pre-op, my CA125 was
    Susan...pre-op, my CA125 was 4,000. My goal was single digits, which I achieved during chemo, but since I have been out of treatment my number has inched up to 13 and is now at 12.

    Chemo dropped my number like a rock. After 4 treatments, my CA125 was normal.

    I wish we had as much control over the CA125 as we do the numbers on the scale.

    Carlene

    Hi Hissy
    WOW....4000 down to 12. Do you happen to know what your post-op - pre-chemo numbers were?
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #25
    Susan777 said:

    Hi Hissy
    WOW....4000 down to 12. Do you happen to know what your post-op - pre-chemo numbers were?

    Susan....
    I know all my
    Susan....

    I know all my numbers. How anal is that?

    Sept, 2009 (pre-op) - 4000
    Post-op - 2200
    After 1st chemo - Oct, 2009 - 2379 (my doctor attributed the rise to my wound issues. My incision had to be re-opened and it took many weeks to heal.)
    Nov, 2009 - 145
    Dec, 2009 - 53
    Jan, 2010 - 19
    Feb, 2010 - 12
    Mar, 2010 - 13
    April, 2010 - 6.5
    May, 2010: 7
    June, 2010: 7.3
    July, 2010: 4.8
    Aug, 2010: 6.9
    Sept, 2010:6.9
    Oct, 2010: 6.4
    Nov, 2010: 7.5
    Dec, 2010: 6.6
    Jan, 2011: 6.3
    Feb, 2011: 7
    Mar, 2011: 9
    Apr, 2011: 11.2
    May, 2011: 13
    June, 2011: 12
  • kayandok
    kayandok Member Posts: 1,202 Member
    #26
    Hissy_Fitz said:

    Susan....
    I know all my
    Susan....

    I know all my numbers. How anal is that?

    Sept, 2009 (pre-op) - 4000
    Post-op - 2200
    After 1st chemo - Oct, 2009 - 2379 (my doctor attributed the rise to my wound issues. My incision had to be re-opened and it took many weeks to heal.)
    Nov, 2009 - 145
    Dec, 2009 - 53
    Jan, 2010 - 19
    Feb, 2010 - 12
    Mar, 2010 - 13
    April, 2010 - 6.5
    May, 2010: 7
    June, 2010: 7.3
    July, 2010: 4.8
    Aug, 2010: 6.9
    Sept, 2010:6.9
    Oct, 2010: 6.4
    Nov, 2010: 7.5
    Dec, 2010: 6.6
    Jan, 2011: 6.3
    Feb, 2011: 7
    Mar, 2011: 9
    Apr, 2011: 11.2
    May, 2011: 13
    June, 2011: 12

    Naaaw,
    just in tune with your body and what is going on. I can just about tell you all of mine too, and it has been 4 years. In any case I have a print out of all of them that I keep in my notebook that goes everywhere with me. Some docors will tell you it isn't the most important thing to worry about, BUT I guarantee it is one of the first questions they will ask you/or check when they look at your file.

    Looks like your body is going to settle in at a 12 for your "norm". Mine is 7 (pre-dx) and during firstline dived to 4 for the whole time. I suspect that the low you get with firstline (providing it works) is lower than your norm. Not based on any report or anything I have read. Just a hunch.

    You keep on rockin' that 12 Carlene! We need you around here.

    Hugs,
    kathleen
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #27
    kayandok said:

    Naaaw,
    just in tune with your body and what is going on. I can just about tell you all of mine too, and it has been 4 years. In any case I have a print out of all of them that I keep in my notebook that goes everywhere with me. Some docors will tell you it isn't the most important thing to worry about, BUT I guarantee it is one of the first questions they will ask you/or check when they look at your file.

    Looks like your body is going to settle in at a 12 for your "norm". Mine is 7 (pre-dx) and during firstline dived to 4 for the whole time. I suspect that the low you get with firstline (providing it works) is lower than your norm. Not based on any report or anything I have read. Just a hunch.

    You keep on rockin' that 12 Carlene! We need you around here.

    Hugs,
    kathleen

    You had a CA125 run before
    You had a CA125 run before you were diagnosed? How cool. I wish I had. Then I would have a much better idea, I think, of what my true norm is.

    You are correct....the chemo, if you're sensitive, slams the CA125 down to an abnormally low level. Virtually everyone's rises a bit, once they are off treatment for a few months.

    Today my local gyn/onc tried to talk me into only having my CA125 run every 3 months, instead of every 30-60 days. I said, "If it's all the same to you, I think I'll just keep to the old schedule. I don't mind the inconvenience. Really, I don't."

    So I'm going back to NYC in July, and then back to my local guy in August. I get another CT scan in July, and another pelvic in August. Yuk. I'd rather have 2 CT scans and NO pelvic exam. Unfortunately, that wasn't one of the options.

    Carlene
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #28
    MK_4Dani said:

    WOOT WOOT
    Such great news Carlene.....YIPEEEE!
    Mary

    LOVE hearing this kind of news!
    especially when it's good news for one of my favorite ladies! ((((Carlene))))
  • kikz
    kikz Member Posts: 1,345 Member
    #29
    lindaprocopio said:

    LOVE hearing this kind of news!
    especially when it's good news for one of my favorite ladies! ((((Carlene))))

    Great
    news, Carlene! Love good news.

    Karen
  • antcat
    antcat Member Posts: 270
    #30
    That's great news
    That's great news Carlene, hope it keeps going down.

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