just received diagnosis

sbmly53 said:

Similar to me
I had microcalcifications. My dx was invasive ductal carcinoma. I had a lumpectomy and one lymph node removed. I had a very low Onco Dx test score and opted out of chemo, I had radiation and am on Arimidex.


Sue

carkris said:

I think initially one is in
I think initially one is in shock. do not be suprised if you encounter a bad day or so. come here for support and questions. someone always has an answer!

calderonjensen said:

New diagnosis
Thank you Ladies!
I appreciTe you taking the time to respond and share you experiences.
I haven't yet been able to say , "I have breast cancer"...I'm not in denial, I know it's there, I just can't say it.

I have an MRI scheduled for Monday morning. I think this will tell my doctors if I need any lymph nodes removed
and what type of procedure/protocol they will recommend.
Not yet familiar with the lingo... What is a Onco Dx test score.
Haw long do you need to stay on the Arimidex?

Are any of you familiar with Integrative medicine's take on care for breast cancer?
My husband has been reading Suzanne Summers book ( his mom is stage 4, metastasized breast cancer)
And he wants me to read the book. You're thoughts?

Best of luck to you all
ConnieCal

calderonjensen said:

New diagnosis
Thank you Ladies!
I appreciTe you taking the time to respond and share you experiences.
I haven't yet been able to say , "I have breast cancer"...I'm not in denial, I know it's there, I just can't say it.

I have an MRI scheduled for Monday morning. I think this will tell my doctors if I need any lymph nodes removed
and what type of procedure/protocol they will recommend.
Not yet familiar with the lingo... What is a Onco Dx test score.
Haw long do you need to stay on the Arimidex?

Are any of you familiar with Integrative medicine's take on care for breast cancer?
My husband has been reading Suzanne Summers book ( his mom is stage 4, metastasized breast cancer)
And he wants me to read the book. You're thoughts?

Best of luck to you all
ConnieCal

CypressCynthia said:

My opinion
I believe that my dog may be more knowledgeable about breast cancer than Suzanne Somers. She has absolutely no qualifications and spouts such nonsense. I have heard her speak on television numerous times and I always think, "Why the heck doesn't she stick with selling thigh masters?"--something with much less potential for harm.

VickiSam said:

Definitions of terms ....
AC - one of the five most common types of chemo given to women with BC. Iit's probably the MOST common drug combination given to women with node-negative (hasn't spread to your lymph nodes) cancer. AC includes two drugs: doxorubicin (Adriamycin), and cyclophosphamide (Cytoxan).

AI - aromatase inhibitors

ADH - Atypical Ductal Hyperplasia-no apparant involvement of surgical margins.

AKA - also known as

ALH - Atypical Lobular Hyperlasia - cells in the lobules that look different from normal cells, but aren't cancer and more cells than there should be.

AND - axillary node dissection

AWS - Axillary Web Syndrome; associated with Cording as a result of surgery/rads. Requires management by specialists in PT/ LE and myofascial release.

B9 (Not Cancer)
BC- Breast Cancer
Bi-Lat (bilateral, Mastectomy of both breast)

BIRADS - Breast Imaging Reporting and Data System score. This indicates the radiologist's opinion of the absence or likelihood of breast cancer.
BM(x) - Bilateral Mastectomy
BS - breast specialist/surgeon

BTW - by the way...

Bump - written to edit a thread up in the listings so someone can find it.

BWT - But what the.......!

CHF (Congestive Heart Failure) = a side effect of Adriamycin, Herceptin, Avastin and some other chemo drugs but it is not a common side effect. CHF occurs in <1% and 3-4% and 5-10% from Adriamycin, Avastin and Herceptin respectively. (Heart failure doesn't mean that your heart has stopped working, or has "failed." Heart failure means that the heart is not pumping blood through your body as well as it should.)

CMF (Cyclophosphamide Methotrexate Fluorouraci) - a commonly used regimen of breast cancer chemotherapy that combines three anti-cancer agents

CT scan - computerized tornography, used to image the structures of the budy, especially head, neck or trunk.

DCIS (Ductal Carcinoma In Situ)
DD ~ Dose dense , Dear Daughter
DH ~ Dear Husband

DIEP - deep inferior epigastric perforator: autologous (own tissue) transfer. a refined version of the TRAM flap

DIL - Daughter-in-law
DP ~ Dear partner
DS ~ Dear Son
Dx (Diagnosis)
DW~ Dear Wife
ER (Estrogen Receptive) estrogen receptor positive+ or negative-

FEC (flourouracil/epirubicin/cyclophosphamide) - combo that many Canadians, Brits and Aussies receive with one of the taxanes to follow

FIL ~ Father in law

FNA - fine needle aspiration

FWIW - for what it's worth

GCM - Glucosamine Chondroitin w/MSM (for relief of joint pain)

HER2 + or -, whether your tumor overexpresses the HER2 protein or not
HT (Anti-hormone Therapy)
HRT (Hormone Replacement Therapy)
Hx - history
IBC (Inflamatory Breast Cancer)
IDC (Invasive Ductal Carcinoma)

IDK - I don't know (something we all said first time diagnosed)
ILC (Invasive Lobular Carcinoma)

IMF, infra-mammary fold, the crease/fold under the breast

IM(H)O - in my (humble) opinion (with or without the ‘humble')

KWIM......."know what I mean".

LAVH - laparoscropic assisted vaginal hysterectomy - a surgical procedure using a laparoscope to guide the removal of the uterus and/or Fallopian tubes and ovaries through the vagina (birth canal

LCIS (Lobular Carcinoma In Situ)

LD flap - Latissimus Dorsi Flap
LE ~ Lymphedema
Lump (Lumpectomy)

LAVH - laparoscropic assisted vaginal hysterectomy - a surgical procedure using a laparoscope to guide the removal of the uterus and/or Fallopian tubes and ovaries through the vagina (birth canal

LCIS (Lobular Carcinoma In Situ)

LD flap - Latissimus Dorsi Flap
LE ~ Lymphedema
Lump (Lumpectomy)
Lt ~ Left
Mast (Mastectomy)

Med Onc (MO) - medical oncologist
Mets (Metastasis)
Mil ~ Mother in law

MLD - manual lymph drainage

MPBC - Metaplastic Breast Cancer (not to be confused with metastatic breast cancer) - an aggresive rare form of breast cancer. See thread of the same name under "Just Diagnosed"

MRSA - Methcillin-resistant Staphyloccus Aureua, a bacterium that causes an infection that is hard to treat and the bane of women who have had surgery, expecially for breast reconstruction (worth googling for more information)

MX - Mastectomy

NAC - A skin-sparing mastectomy will be performed with preservation of the nipple-areolar complex (NAC).

NB = Navelbine Navelbine is an anti-cancer ("antineoplastic" or "cytotoxic") chemotherapy drug

NED (No evidence of Disease

NP - Nurse practitioner

NSM - nipple sparing masectomy

ODAAT ~ One day at a time
Omph (or Ooph) ~ Ovary removal
ONC ~ Oncologist
path=pathology
PBM - prophylactic bilateral mastectomy

PCP - Primary Care Physician

PE - pleural effusion or pulmonary embolism (an example of when you need to chedk with your medical team)

PET scan - Positron Emission Tornography, used to image metabolically active cells, such as cancer cells.

PET-CT scan - a combination of PET and CT which superimposes the matebolically active cells that ‘light up' on the bodily structures so that the radiologist is reading a single image.

PFC = Perfluorinated compounds - suspected carcinogen. See Pg 5 of this thread for link (note I have not checked the reliability of the source)
PICC - peripherally inserted central catheter. When used (occasionally) for chemo, it is sometimes known as an "arm port". More often used for IV antibiotics such as may be required for MRSA and other serious bacterial infections.

PILC - pleomorphic invasive lobular carcinoma

PM - private message

PPI = proton pump inhibitor (the mechanism of action of drugs like Nexium, Prilosec, Protonix, etc.)
PR (Progesterone Receptive) progesterone receptor positive+ or negative-
PS ~ Plastic Surgeon

QOL - quality of life

RADS - Radiation; Radiotherapy

Rad onc(RO) - Radiation oncologist

RS - Recurrent Score

ROFLOL - rolling on floor laughing out loud
Rt ~ Right
SE ~ Side Effects
SNB - sentinel node biopsy

SOB - short of breath

SOH - sense of humor

SX can be used as an abbreviation for 'surgery', or 'symptoms'. http://www.globalrph.com/abbrev_rst.htm

SP - status post

TAH-BSO - Total Abdominal Hysterectomy - Bilateral Salingo Oopherectomu (uterus, cervix, tubes and ovaries removed)

TCH - taxotere, carboplatin, herceptin

TE - temporary expanders or tissue expanders

TM = tumor markers

TN (Triple Negative) In regards to negative status for ER/PR and Her2neu status
TMI-Too much information

TRAM flap - Transverse Rectus Abdominis Myocutaneous flap

TX - treatment

WNL= Within normal limits</p>