Hondo up-date

Hi Family

Just a little up-date on how I have been doing for the passed few Months.

It looks like I finally got rid of that sinus infection that has been hurting me for the passed 8 Months; I am feeling good and having very light headaches now. In March my PET scan came back with a spot lit up as another possible recurring NPC; not a problem as this has been my story for the passed 6 years of having PET scans.

I did have to make a trip to the E/R about 6 days ago due to pains in the chest on the right side over the lung. The Doc in the E/R room did a C/T and X-ray but could not find any problems, so they gave me some pain meds to take. I believe I have more pills then Walgreens has, wish I could sell some of it back to them. Anyway the pain is down to almost nothing, just not too sure what it was.

As most of you know I have been unable to open my Jaw more then ½ inch, I have been living this way for almost 5 years now because my Oncal doc did not think I would live very long so he gave me no therapy to help with the jaw movement. I have used every device and trick in the book to get it open and nothing has worked for me. That is up until now; I am now using the Dynasplint system, yes is cost a lot but I think I am worth spending a little money on myself. Anyway I started with an opening of about 15mm and in just a little more then 4 weeks I am now almost up to almost 20mm, that mean I can now open my mouth 5mm more then I have in the last 5 years. I can eat better and clean my teeth better now that it opens a little more, my goal is to get it open to 40mm and get my teeth fixed.

Also like all of us I still have the Good and Bad days, but my Good days have been very good days. I don’t why but when I am having my good days I feel a joy with in myself that I just can’t explain. It makes me so happy I start singing even though I don’t have a voice to sing with anymore. But every now and then for some unexpected reason I cry, it is when I am at places like MD Anderson and I see all the people there in need of help and I feel so useless to do anything. Or if one of my dear friends here on CSN is hurting I find myself crying. But then I also find I start praying for them even while crying asking my savior to be with them and help them to see through the dark valley that I have lived in for so many years. I need to go as I am starting to cry again and can’t see the key board very well; to you my family God bless and be with each and everyone of you.

Joel4 / Frank10g I am praying for you both everyday and pray that you will not have to live in that dark valley as log as I have, just remember there is always hope.

Take care all
Hondo