Looking for Honest post-surgery ED expectations / feedback

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Comments

  • KittySlayer
    KittySlayer CSN Member Posts: 12
    #22

    My urologist was up front with the potential post op consequences of surgery during my Active Survalence period. When he referred me to his partner/surgeon he was also straight forward about post surgery consequences (incontinence/no erections). While my post-surgery visits with the surgeon were focused on recovery from surgery and successful removal of prostate he did refer me to a physical therapist. She was much more helpful recommending pelvic exercises and assisting with proper performance of them as well as insight on expected lifestyle recovery regarding incontinence and erection expectations.

    As my wife and I discussed surgery and potential post-surgery issues we decided that having my prostrate removed and not having to worry about the risk of cancer spreading was our priority. The relief of not having to wonder about my next PSA or biopsy has been worth it. I’m happy with my continence after three months. I did have the added bonus that my RN wife was a circulating nurse for my surgeon in the past so she had direct knowledge of the DaVinci robots and my surgeon’s skills.

  • nativemi
    nativemi Member Posts: 14
    #23
    https://csn.cancer.org/discussion/comment/1722308#Comment_1722308

    thx kittyslayer….I don't think my urologist/surgeon was as upfront… I think the consequences were downplayed in favor of the cancer would be removed…only later did I realize MANY MANY men live with prostate cancer and die with prostate cancer…but it's not what kills them, it's simply something that exists within millions of men and increases as the male population ages….so millions die WITH prostate cancer, not BECAUSE OF prostate cancer….I didn't really know that until after I had my surgery….

  • nativemi
    nativemi Member Posts: 14
    #24
    https://csn.cancer.org/discussion/comment/1722301#Comment_1722301

    hi jc…you had mentioned you can't get to 100% without injections….I am having some morning erections that seem to get me to 75% but probably not enough for penetrative intercourse…and it seems they are the hardest I have attained even more so than trying by myself and taking pills, etc….so my question to you is if YOU had any erections in the morning that were significant without pills or injections? still not there yet but I am hoping that is a good sign of progression in the healing process….? was it for you or was nothing happening in the morning????

  • jc5549
    jc5549 CSN Member Posts: 79
    #25

    after 15 months I do not have morning erections. I think that is a great sign for you.

  • Clevelandguy
    Clevelandguy CSN Member Posts: 1,312
    #26
    https://csn.cancer.org/discussion/comment/1722303#Comment_1722303

    Hi,

    From what people have talked about here and my own experience a lot of guys plateau out at around 24 months. Viagra, pumps, injections all good ideas.

    Dave 3+4

  • JackWest
    JackWest CSN Member Posts: 54
    #27
    https://csn.cancer.org/discussion/comment/1722652#Comment_1722652

    Yes, morning wood is in the past! Pleased to still have some erections of any size and hardness. Ejaculations also have, as the quantity and quality of the semen (ejaculate) has changed.

  • JackWest
    JackWest CSN Member Posts: 54
    #28
    My post-surgery ED expectations / feedback are…

    clearly not what the doctors told me at all.

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