Hello everyone. I know everyone counts differently, but my anniversary (for me) is from my last treatment. Yes, it is 10 years ago today I was getting my last chemo and I write here for two reasons.
One, to give newbies hope. I know when I was diagnosed I had no idea what was in the future, and to be fair I think many of us, even with all the years, are right back there remembering everything as though it is today. While treatments have changed over the years I hope they are for the better and many of you can look forward and post yourselves on anniversaries.
Two, I do want to remember all our sisters we have lost. I carry them with me everyday. When an old post pops up and one of our dears faces and comments show it brings a smile and a tear. God bless our dear friends.
I had a floating holiday I had to 'use or lose' so I am glad I picked today. Quiet time for me with my stuffed koala bear I nearly squeezed the stuffing out of all those years ago.
I know it has been quiet on the board lately, and I know there are many out there who pop in and see if there are any posts, but feel free to use this one as a time to check in and let us all know how you are doing - like role call.
My heart is with you all and I pray for peace, healing, and cures.
So happy that you shared this wonderful news here so that we can celebrate with you! You’ve been such a faithful and valuable participant on this board for so many years! I’m glad to have the opportunity to thank you here for all the support you’ve provided me personally, as well as on behalf of other members.
Taking the day off to reflect on the past and present was a great use of your floating holiday. May there be many more milestone anniversaries in your future.3
Congratulations on TEN years!
That is truly a gift for you and does offer such encouragement and hope to the new ones who come seeking hope and reassurance when checking out the board.
And as cmb wrote you have made such a commitment here...always showing up to share info or lend an ear!
Merry Christmas and Happy New Year.
God is good!2
thatblondegirl Member Posts: 333 Member
That’s wonderful news, NoTime! I’m so happy for you! That is a BIG milestone!
It’s only been 21 months since my last treatment, but I can vividly remember each of my infusion days!
As our friends have written, I, too, am very grateful for your steady presence on this board!
Merry Christmas to All!
Forherself Member Posts: 838 Member
It's so nice to read this success story. SO nice for newbies to read it. I do remember how comforting it was to read of survivors. For some reason all the articles made me feel scared, expecting the worst. So congratulations and I hope that is the end of it, and thank you for sharing, and being here to help those fellow warriors here.2
Wow, NoTime, ten years is a very long time! So happy for your having reached this major milestone!! Thank you for your thoughtful post and especially for everything you've done for all those seeking support and information on this board over the years.
Wishing you decades of continued good health and much happiness in the future!
Hope you have a wonderful holiday season.
carolrichwrites Member Posts: 25 Member
Congratulations! Ten years is huge! I'm smiling ear-to-ear for you. Truly, you're an inspiration. ❤️
BluebirdOne Member Posts: 616 Member
Woo Hoo! 10 years! What a milestone. Very nice going into the holidays with such a positive reaffirmation!
And we must all thank NoTime, (Ellen) for her 10 years of support, advocacy and love to all of us. The continuity is as important as the body of knowledge. We all remember our first times here and people who reached out to us. Thanks, one and all.
Congratulations, No Time. I’m glad you had a proper day of celebration. It’s been a little over 10 years since I completed treatment and I am still grateful for every new day. I hope some more people use this as a roll call. I often wonder about those we haven’t heard from in a while. Good to hear from you, Kathy G.5
NoTimeForCancer Member Posts: 3,167 Member
Oh Connie!!! Yes, I know you have been around on the pages a long time as well. You are always so generous with your support here.
I would love to hear from all those out there.0
Ok, I’ll chime in. I haven’t posted in a long time, although I do log in every day to keep up. I feel like I’ve reached a turning point in my cancer journey…in a good way. If it helps give readers here confidence that this disease is survivable for years, then I am happy to answer the roll call. I do keep my profile updated for any who happen upon an older post of mine that resonates.
At 17 years and counting, I believe I am the longest-lived recurrent uterine cancer lady on this discussion board. Kaleena/Kathy who continues to post is another long-term survivor with recurrent disease. Takingcontrol58, another recurrent survivor, is another remarkable story. There are others, who I call the “one and done” ladies, who are 5-, 10-, 20-year survivors. There is every reason for a newly diagnosed woman to be hopeful that they too can join the ranks of survivors.
I am in awe of many of the women, past and present, who have made this such a supportive place with the knowledge they bring to us, whether it’s about the science of the disease and treatment that they’ve chosen to learn and share, or a generous woman like cmb who volunteers to provide valuable technical support that makes this particular board so accessible and user friendly, or the many who hang in here and nurture the newly diagnosed with hope and helpful suggestions. My own experience seems to me now rather pedestrian now, although I spent years being terrified. I think that’s the best message I can impart: don’t give up and don’t give in. I’ve survived for 17 years; I’ve had 2 surgeries; 3 courses of radiation, including 1 that was SBRT; 1 course of chemotherapy; and, 1 hormone-based treatment. And, I have learned that you just really never know. The expression “each of us is a statistic of one” does pertain. My survival is remarkable, to me, and I think to my doctor who can offer no explanation for my trajectory. I am certain there are many women like me out there who never had the good fortune to find the safe and supportive space here to share their journeys. So, please try your best to manage your fear so that you can do the hard work that is before you: getting the soundest medical advice, making an informed decision about your treatment, submitting to the treatment with all the good humor you can muster, taking care of you physical and mental health, and nurturing your personal relationships.
I don’t really have any surefire strategies to quash the fear that I see in newly diagnosed ladies’ posts. For better or worse, I am not a person of religious faith, which I see here is a comfort to many. I am finally at peace with my health status mainly because I know from my accumulated experience that various treatments exist, and new ones are in development now. I do believe also that a commitment to do the best you can to keep your body and immune system healthy is key. It may take you out of your comfort zone to be more active, to reduce/eliminate sugar intake, to eat a well-balanced diet, and to seek out joy in daily life, but each of these contributes to your well-being and survival.
So, thanks to all who have helped me on my journey. To those who are in the earlier stages of their journeys, be hopeful and come here often for support.
Happy New Year to all!
Best wishes, Oldbeauty8
carolrichwrites Member Posts: 25 Member
Dearest of all OldBeauties,
Thank you for sharing your incredible story. You are articulate, thoughtful, insightful, inclusive, loving, and inspirational. You say you haven't posted often through the years, but when you do...well...it's significant. Continued good health to you...always.
Well I'm glad I popped in today to read your good news and to read from so many other survivors. I'm an 8 year survivor and although I have recurred several times I keep on plugging along. I have some good news to share; I had a CT scan in November which showed no evidence of a tumor or a lesion. This is makes one year without evidence of active disease, a first for me!
I, too, have benefited greatly from this board and wish to thank everyone for their advice, comments and support. I have found reading other peoples' journeys so encouraging.
Happy New Year!
Forherself Member Posts: 838 Member
You have truly fought and I am SO happy to hear you have clear scans! This is such good news
Jan, family health issues have been difficult for me recently, so reading your great news lightens my heart as well. Such a good way to start off the new year!
And, Oldbeauty, we treasure the members such as you who have continued to offer support to others here for so many years. Thank you!3
Harmanygroves Member Posts: 483 Member
Congrats on getting to your ten-year anniversary, the one you have chosen to honor! I am glad to stop in and say hello. I apologize for being absent. Lately, I've started five online publications, three I'm accepting writers with.
If any of you are Medium members, or interested in joining and publishing stories, I'd be glad to work with you. I'm the publisher, and also the editor-in-chief.
But enough about me! Hello all of you, and I will take a peak around. CMB, sorry to hear things are rough. Let me go have a look, but please know I'm thinking of you <32
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