My Anal Cancer Experience

drpearl

https://csn.cancer.org/discussion/comment/1703198#Comment_1703198

My treatments ended on Sept 15 of 2022, I had intense butt bone and hip pain until May of 23 about 9 months before I could sit on a firm surface. My dexa scan came back ok, but my hip pain stayed.

I did PT to strengthen my left side and loosen my hips up in April and May, then I went for pelvic floor therapy in june,july,Aug. That helped my urgency issues, but reagravated my hips. I was also back to running so when the pain came back I went to chiro that helped a lot, then I went back for more PT in Aug/Sept/oct. I finally feel closer to able again, I just completed a marathon ( which I'll never do again!) But I still have those deep aches in my butt bone/hip area.

Now I'm working with supplements to address joint and bone health.

This is not fun, but it's kept me alive and I'm cancer free right now.

Mharrington

I would like to let everyone know there is an Anal Cancer Awareness Summit on Facebook or October 21. Found this group by accident and they have been a wealth of information and the Summit seems it will be as well. Check it out if you are on FB

drpearl

https://csn.cancer.org/discussion/comment/1709695#Comment_1709695

Thanks for the info, curious is it through the Anal cancer foundation? Is it on Facebook or is it a zoom? I know I registered for one on Sat but I thought it was a zoom.

Mharrington

That’s it. The started a private FB group.as well.

Mharrington

https://csn.cancer.org/discussion/comment/1709697#Comment_1709697

Now I’m confused. I know I registered to attend but not sure if it’s on zoom or FB live. Do you know?

drpearl

https://csn.cancer.org/discussion/comment/1709699#Comment_1709699

I just looked it up again and re-registered to make sure I was in the right place.

It sent an email with the link and said it will send a reminder email with link the day of. So it doesn't look like you can access through FB.

Mharrington

https://csn.cancer.org/discussion/comment/1709703#Comment_1709703

I’m glad I heard from you. I registered and just assumed it was FB live because I know you need to get an invite to Zoom meeting. I’m going to reregister. Thanks.

drpearl

https://csn.cancer.org/discussion/comment/1709704#Comment_1709704

It is not Zoom but similar to zoom I think it said hopit? Or something like that, but I did get a link in my email for it.

Mharrington

https://csn.cancer.org/discussion/comment/1709705#Comment_1709705

I re-registered and got the email with link! Thanks.

dssdesi

Hi, i had to push to get dates started. once i got through to them that i need to get rolling on this now. they started to line up. the onc. office can get alot of the apts set soon as you can see or talk to them. then it was full steam ahead on their part.

English_Larry

https://csn.cancer.org/discussion/317546/my-anal-cancer-experience

Hi Grant — how are things today, after more years of post-treatment? Do you have side-effects of the RT?

McG

https://csn.cancer.org/discussion/comment/1725786#Comment_1725786

Hi Larry,

I've had no long term side effects from the RT or CT. As I mentioned in my original post, it took about a year until the fatigue was completely gone, although by six months I was feeling strong enough to get back to gigging with my band.

Grant

English_Larry

https://csn.cancer.org/discussion/comment/1725795#Comment_1725795

That's really great to hear, Grant!

janf

https://csn.cancer.org/discussion/comment/1685765#Comment_1685765

I just found out today that I likely have anal cancer and will start tests next week. And like you reading these posts give me hope. I live alone and am mostly worried where to find help, I don’t want to rely on my friends. Thanks to everyone here.

McG

https://csn.cancer.org/discussion/comment/1726161#Comment_1726161

Hi Janf,

As you experienced, posts from other cancer patients are a great help. Hopefully your tests will come back negative but if not you have a lot of support here.

Living alone while going through treatment certainly isn't ideal but besides this forum there are other forms of support available.

Check out the programs available on the American Cancer Society website. There are transportation and lodging services as well as access to volunteers to provide direct information and support. Hospitals and health departments may have programs local to you too.

Take care and remember time will pass and all this will be behind you.

Grant

janf

https://csn.cancer.org/discussion/comment/1726169#Comment_1726169

Thank you so much Grant! Just in the one day ive been reading other people’s posts it has helped me . Every person it seems is different. Some of the posts are a few years old and i know strides have been made in many treatments. Im 74 and always thought ive be around another 10 years…. Im still planning on it.