My Anal Cancer Experience

drpearl

https://csn.cancer.org/discussion/comment/1703198#Comment_1703198

My treatments ended on Sept 15 of 2022, I had intense butt bone and hip pain until May of 23 about 9 months before I could sit on a firm surface. My dexa scan came back ok, but my hip pain stayed.

I did PT to strengthen my left side and loosen my hips up in April and May, then I went for pelvic floor therapy in june,july,Aug. That helped my urgency issues, but reagravated my hips. I was also back to running so when the pain came back I went to chiro that helped a lot, then I went back for more PT in Aug/Sept/oct. I finally feel closer to able again, I just completed a marathon ( which I'll never do again!) But I still have those deep aches in my butt bone/hip area.

Now I'm working with supplements to address joint and bone health.

This is not fun, but it's kept me alive and I'm cancer free right now.

Mharrington

I would like to let everyone know there is an Anal Cancer Awareness Summit on Facebook or October 21. Found this group by accident and they have been a wealth of information and the Summit seems it will be as well. Check it out if you are on FB

drpearl

https://csn.cancer.org/discussion/comment/1709695#Comment_1709695

Thanks for the info, curious is it through the Anal cancer foundation? Is it on Facebook or is it a zoom? I know I registered for one on Sat but I thought it was a zoom.

Mharrington

That’s it. The started a private FB group.as well.

Mharrington

https://csn.cancer.org/discussion/comment/1709697#Comment_1709697

Now I’m confused. I know I registered to attend but not sure if it’s on zoom or FB live. Do you know?

drpearl

https://csn.cancer.org/discussion/comment/1709699#Comment_1709699

I just looked it up again and re-registered to make sure I was in the right place.

It sent an email with the link and said it will send a reminder email with link the day of. So it doesn't look like you can access through FB.

Mharrington

https://csn.cancer.org/discussion/comment/1709703#Comment_1709703

I’m glad I heard from you. I registered and just assumed it was FB live because I know you need to get an invite to Zoom meeting. I’m going to reregister. Thanks.

drpearl

https://csn.cancer.org/discussion/comment/1709704#Comment_1709704

It is not Zoom but similar to zoom I think it said hopit? Or something like that, but I did get a link in my email for it.

Mharrington

https://csn.cancer.org/discussion/comment/1709705#Comment_1709705

I re-registered and got the email with link! Thanks.

dssdesi

Hi, i had to push to get dates started. once i got through to them that i need to get rolling on this now. they started to line up. the onc. office can get alot of the apts set soon as you can see or talk to them. then it was full steam ahead on their part.