Serous Carcinoma

24

Comments

  • Dmont0703
    Dmont0703 Member Posts: 12
    #22
    Happy belated mother's day to

    Happy belated mother's day to all!  An update from my journey.  Great news about lymph nodes being clear!  I had one set (aortic) that had 90% evidence of UPSC.  My oncologist says that UPSC is aggressive BUT is also very susceptible to chemo.  I had a medi-port placed this morning to aide with chemo.  My first of 6 chemo treatments is tomorrow.  I have a kitchen table full of medication to assist with possible side effects.  I'm going this afternoon with my husband and daughter to a chemo class.

    I'm super nervous but hopeful that my experience with chemo will be bearable.

    I have become very verbal with female friends and co-workers about uterine symptoms. My uterine mass was embedded in the myometrium.  This was a very important piece of information that could not be known without a CT scan.  Since I was only given a sonogram, it delayed knowing the size and location of the mass.  I recommend to all that they insist on a CT as it is much more diagnostic.

    Thank you all for continuing to post your stories!  I find strength in the strength of all of you!

  • Harmony09
    Harmony09 Member Posts: 79
    #23
    Dmont0703 said:

    Happy belated mother's day to

    Happy belated mother's day to all!  An update from my journey.  Great news about lymph nodes being clear!  I had one set (aortic) that had 90% evidence of UPSC.  My oncologist says that UPSC is aggressive BUT is also very susceptible to chemo.  I had a medi-port placed this morning to aide with chemo.  My first of 6 chemo treatments is tomorrow.  I have a kitchen table full of medication to assist with possible side effects.  I'm going this afternoon with my husband and daughter to a chemo class.

    I'm super nervous but hopeful that my experience with chemo will be bearable.

    I have become very verbal with female friends and co-workers about uterine symptoms. My uterine mass was embedded in the myometrium.  This was a very important piece of information that could not be known without a CT scan.  Since I was only given a sonogram, it delayed knowing the size and location of the mass.  I recommend to all that they insist on a CT as it is much more diagnostic.

    Thank you all for continuing to post your stories!  I find strength in the strength of all of you!

    Thinking about you and hoping

    Thinking about you and hoping your chemo went well. I hope you have a restful night:)

  • Dmont0703
    Dmont0703 Member Posts: 12
    #24
    I'm on my second day after

    I'm on my second day after first chemo treatment.  So far so good.  I'm tired but the anti nausea meds are working well. I'm so glad I got a medi-port. It can be used for the chemo infusions and to draw blood to check my blood count.  I'm mostly struggling with how to feel as "normal as possible".  I'm usually pretty physically active.  Any suggestions?

  • SF73
    SF73 Member Posts: 317 Member
    #25
    Continue being physically

    Continue being physically active. Funny enough it is the best thing you can do for fatigue. I walked a ton in the parks away from crowds and I think it helped me tolerate the chemotherapy.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    #26
    sissa, I might have missed it

    sissa, I might have missed it, but can you tell us how you are doing and what they diagnosed for you?

  • sissa60
    sissa60 Member Posts: 27
    #27
    NoTimeForCancer said:

    sissa, I might have missed it

    sissa, I might have missed it, but can you tell us how you are doing and what they diagnosed for you?

    I am doing well except

    I am doing well except bloating and constipation problems. You haven't missed anything, my appointment with my surgeon will be tomorrow. Hope to hear good news and as soon as i hear something I will post it.

     

    Thanks,

     

     

     

     

     

  • sissa60
    sissa60 Member Posts: 27
    #28
    NoTimeForCancer said:

    sissa, I might have missed it

    sissa, I might have missed it, but can you tell us how you are doing and what they diagnosed for you?

    Update and Good News

    I had a visit with my oncologist today to get the the pathology results. He gave me the first good news in so many days: it is in the earliest stage it could be; he said it is even earlier than stage 1A. He said it was confined to only one polyp spot in my uterus. He recommended three sessions of chemo due to the type of cancer (Serous Carcinoma), which he said is aggressive, and then just close monitoring after that. He said the chemo will be Taxol and what sounded like Carboplatin. I am a little terrified of the chemo side effects, but it shall pass. I am counting my blessings. My husband and I celebrated the good news and went out to dinner tonight. Thank you all for your support and prayers.   

     

  • SF73
    SF73 Member Posts: 317 Member
    #29
    sissa60 said:

    Update and Good News

    I had a visit with my oncologist today to get the the pathology results. He gave me the first good news in so many days: it is in the earliest stage it could be; he said it is even earlier than stage 1A. He said it was confined to only one polyp spot in my uterus. He recommended three sessions of chemo due to the type of cancer (Serous Carcinoma), which he said is aggressive, and then just close monitoring after that. He said the chemo will be Taxol and what sounded like Carboplatin. I am a little terrified of the chemo side effects, but it shall pass. I am counting my blessings. My husband and I celebrated the good news and went out to dinner tonight. Thank you all for your support and prayers.   

     

    Sissa, that is such great

    Sissa, that is such great news! Don't worry about the rest. Chemo is definitely doable. You got this! 

  • Dmont0703
    Dmont0703 Member Posts: 12
    #30
    SF73 said:

    Continue being physically

    Continue being physically active. Funny enough it is the best thing you can do for fatigue. I walked a ton in the parks away from crowds and I think it helped me tolerate the chemotherapy.

    Thanks for that suggestion. 

    Thanks for that suggestion.  I've been trying to move as much as possible.  The pain in my bones from the neulasta felt better while walking.  I'm 6 days out now and I feel pretty good.

  • Dmont0703
    Dmont0703 Member Posts: 12
    #31
    sissa60 said:

    Update and Good News

    I had a visit with my oncologist today to get the the pathology results. He gave me the first good news in so many days: it is in the earliest stage it could be; he said it is even earlier than stage 1A. He said it was confined to only one polyp spot in my uterus. He recommended three sessions of chemo due to the type of cancer (Serous Carcinoma), which he said is aggressive, and then just close monitoring after that. He said the chemo will be Taxol and what sounded like Carboplatin. I am a little terrified of the chemo side effects, but it shall pass. I am counting my blessings. My husband and I celebrated the good news and went out to dinner tonight. Thank you all for your support and prayers.   

     

    That is great news Sissa!

    That is great news Sissa! This type of cancer can spread very quickly. It sounds like you were able to catch it pretty fast.  I just had that same cocktail of chemo for my first round. You will get medication to help with symptoms.  They are totally managable.

    I have the same diagnosis but stage IIIc2 so will need 6 treatments plus radiation.  Keep us posted on when you will start treatment.

  • MugsBugs
    MugsBugs Member Posts: 111 Member
    #32
    sissa60 said:

    Update and Good News

    I had a visit with my oncologist today to get the the pathology results. He gave me the first good news in so many days: it is in the earliest stage it could be; he said it is even earlier than stage 1A. He said it was confined to only one polyp spot in my uterus. He recommended three sessions of chemo due to the type of cancer (Serous Carcinoma), which he said is aggressive, and then just close monitoring after that. He said the chemo will be Taxol and what sounded like Carboplatin. I am a little terrified of the chemo side effects, but it shall pass. I am counting my blessings. My husband and I celebrated the good news and went out to dinner tonight. Thank you all for your support and prayers.   

     

    Great News!

    This is the best news you could have hoped for!!!  Good luck with the Chemo -- hopefully you should whizz right through it!

  • sissa60
    sissa60 Member Posts: 27
    #33
    Update

    Hi All. Had my first chemo yesterday morning. 24 hours later, no side effects yet. I will have the second on July 2, and the third and last one  three weeks later. Will keep you posted. 

    Thanks to all.

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    edited June 2018 #34
    Stage 1

    Glad to hear the good news!!! Sounds like your first chemo went well. Each day you are closer to being NED. No evidence of disease. Take good care of yourself and listen to your body. Peace and grace to you. 

    Lori

  • hopeful56
    hopeful56 Member Posts: 73
    #35
    Hi Sissa,

    Hi Sissa,

    That is great news.  I also am stage 1A UPSC.  Mine was microscopic,  dr told me I was in my "own class."   I too had 3 rounds of carbo/taxol and so far 2 checkups with my 3rd coming up the end of this month.  It is good you came back to get that 2nd opinion.  

    My best to you,

    Sandra

  • sissa60
    sissa60 Member Posts: 27
    edited June 2018 #36
    Update

    Hi Hopeful56.

    7 days after first chemo, I am having weird pounding pain, on and off, in my chest bone (sternum) and lower back bone. It flares up depending on body position. I am able to control the pain with Tylenol. Have you had such bone pain at different spots of the body like that? Do the side effects go away after a certain period following a chemo sesstion?

     

      

  • Violet123
    Violet123 Member Posts: 28 Member
    edited June 2018 #37
    sissa60 said:

    Update

    Hi Hopeful56.

    7 days after first chemo, I am having weird pounding pain, on and off, in my chest bone (sternum) and lower back bone. It flares up depending on body position. I am able to control the pain with Tylenol. Have you had such bone pain at different spots of the body like that? Do the side effects go away after a certain period following a chemo sesstion?

     

      

    A friend of mine had the back

    A friend of mine had the back pain after chemo like you are describing.

    Days 2-5 after each infusion my knees hurt terribly,  and muscle cramps in my legs.   I had very itte sleep those days.  Then it would go away until the next round of chemo.  My oncologist and the pharmacist said only low dose Tylenol,  it never did touch the pain.  I find Ibuprofen is more effective for me, although this was on the do not take during chemo list as it effects blood counts and could delay the next round of chemo.  Even though it is painful, I found getting up and moving helped relieve some of the pain so I drank lots of water to flush the toxins out of my body and walked 6 days a week while on chemo, and took short walks throughout the day. Hang in there.  

  • sissa60
    sissa60 Member Posts: 27
    edited July 2018 #38
    NoTimeForCancer said:

    Dmont0703 - it is ok to be

    Dmont0703 - it is ok to be scared - because this is scary!  So good to hear you are working with a gyn onc - and your 'plan' sounds similar to a lot of us here, so don't hesitate to ASK.  

    96

     

    Hello all- thank you very much for sharing your experiences with me and giving me some good advices.

    The fear I had on the first day that I was diagnose with Serous Carcinoma (1A) is back.

    I started having spots of blood again after over two month of full hysterectomy (May 3, 2018). I had chemo (carboplatin/ Taxol) twice so far. I vested my oncologist/gynecologist last Monday, July 9. He checked and told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.   

     

    Does anyone in board has any suggestion what this might be?  I am scared I don’t know if the cancer, UPSC is reoccurring or not, because he told me previously that he is doing chemo just for protection.

     

    Any suggestion will be appreciated, any questions that might be appropriate that I can ask my doctor? I am glad I am not alone.

     

    My prayer for all.

  • Little Annie
    Little Annie Member Posts: 28 Member
    edited July 2018 #39
    bone pain

    Little Annie had extremely painful bone pain....knees, ankles, lower back, and leg pain all in the bone....tylenol did nothing.....ibuprofen was better and at time the pain was so great that oxycodone had to be used.   Hate to say it but with each infusion the pain lasted longer.   But with only three cycles, it is definately doable.   Good luck.

  • sissa60
    sissa60 Member Posts: 27
    edited July 2018 #40
    NoTimeForCancer said:

    Dmont0703 - it is ok to be

    Dmont0703 - it is ok to be scared - because this is scary!  So good to hear you are working with a gyn onc - and your 'plan' sounds similar to a lot of us here, so don't hesitate to ASK.  

    Scard

    Hello all- thank you very much for sharing your experiences with me and giving me some good advices.

    The fear I had on the first day that I was diagnose with Serous Carcinoma (1A) is back.

    I started having spots of blood again after over two month of full hysterectomy (May 3, 2018). I had chemo (carboplatin/ Taxol) twice so far. I vested my oncologist/gynecologist last Monday, July 9. He checked and told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.   

     

    Does anyone in board has any suggestion what this might be?  I am scared I don’t know if the cancer, UPSC is reoccurring or not, because he told me previously that he is doing chemo just for protection.

     

    Any suggestion will be appreciated, any questions that might be appropriate that I can ask my doctor? I am glad I am not alone.

     

    My prayer for all.

     

  • sissa60
    sissa60 Member Posts: 27
    #41
    NoTimeForCancer said:

    Dmont0703 - it is ok to be

    Dmont0703 - it is ok to be scared - because this is scary!  So good to hear you are working with a gyn onc - and your 'plan' sounds similar to a lot of us here, so don't hesitate to ASK.  

    Scared

    Hello All, 

    Thank you very much for sharing your experiences with me, gving me some good advices.  The fear i had on the first day i was diagonse with Serous Carcinoma (1A) is back. I started having sopts of blood again after over two month of full hysterectomy (May 3, 2018). i had chemo (carboplatin/Taxol) twice so far.  I vested my oncologist.gynecologist last Monday July 9. He checked, told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.

    Does anyone in the board has any suggestion what this might be? I am scared, I don't know if the cancer (UPSC) is reoccurring or not, beccasue the doc told me previously that he is doing chmo just for protection.  

    Any Suggestion or any questions that might will be appropriate to ask my doctorer will be appreciated.  I am glad i am not alone.

    My prayers for all.

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