I wasn't going to post, then changed my mind.

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I am a second time survivor. For the first cancer, I was so positive prior to hearing the results, that when I was told I had cancer, and then with each surgical biopsy to again be told that my margins were not clear...all because of one speck of cancer, a calcification...I felt like my face had been slapped. I had 0 Stage, DCIS and ended up with a contralateral mastectomy. For the second cancer, after touching and watching what I thought was a reaction to one of my stitches on my scar (I was so positive that it was nothing), and then finding out that it was invasive cancer, again another slap to my face. I was told that I am extremely rare, less than 1%, for a recurrence.

In October it will be 2 years from the recurrence. Today, I had a CT scan because the CA 27.29 test showed a high of 52 (normal high is <38). Doctor said that it is a mild elevation and uninterpretable. All other tests for the blood were normal. The tests were taken during my 3 month check up.

For the first two cancers, I was alone with all decisions. I did not find this board until after my radiation due to the recurrence. I was not going to post but then decided that I don't want to be alone. So, let's hope that this time I do not get that slap in the face because this time I have found you, my sisters. I should hear from the doctor tomorrow. Wish me luck. I still believe that I will live to 90's.

Lots of Hugs
Janelle
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Comments

  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    Glad you posted.
    Hi Janelle -- My wish is that you make it to 100. I want all of us to live really long lives.

    Thank you for letting us know what's going on. And I pray that your Dr. doesn't even have to call because there is nothing of a concern to share. I pray that your results are good.

    Please keep us posted. I hope you have a good rest sleep tonight. I know how waiting can mess up our beautiful sleep. Stay and think positive.
  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
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    Janelle, I also had DCIS. I
    Janelle, I also had DCIS. I had a bilateral mastectomy last January. I am so thankful for your posts about your story because I have horrible luck and many other things wrong with my health. I think of your story to be very proactive about my follow up treatment and knowing that when medical professionals poo-poo that I will more than likely never have cancer again, I know that there is always a chance. I guess you could say it keeps me on guard and should I so signs, I know to be aggressive in making the docs believe.
    I wish you the best of luck right now. I am going out of town tomorrow thru sat. and will be looking to see how things turned out for you tomorrow.
  • natly15
    natly15 Member Posts: 1,941
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    Janelle I am so happy you
    Janelle I am so happy you posted. How dare you not post something like this. Girl we are all here for you in the good times and the not so good. I'm praying for a gentle hug tomorrow and absolutely no slaps. Please keep us posted. You are gonna live to 100. You have way too much spunk and a passion for life, forget about the 90's you are going to make it into the 100's. Gentle hugs.
  • debi.18
    debi.18 Member Posts: 850 Member
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    Glad you changed
    Glad you changed your mind and posted. Nope, you'll never be alone with this wonderful group of Pink Sisters. The support is truly amazing! Praying that slap in the face never comes and you live way past that 90 year mark. Sending lots of prayers, postivie thoughts and big hugs.

    Be sure to let us know what the doc says tomorrow.

    Hugs,
    Debi
  • Chickadee1955
    Chickadee1955 Member Posts: 356 Member
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    debi.18 said:

    Glad you changed
    Glad you changed your mind and posted. Nope, you'll never be alone with this wonderful group of Pink Sisters. The support is truly amazing! Praying that slap in the face never comes and you live way past that 90 year mark. Sending lots of prayers, postivie thoughts and big hugs.

    Be sure to let us know what the doc says tomorrow.

    Hugs,
    Debi

    Good luck Janelle
    We always hear those low recurrence percentages (I know that's what I've been told) but I always have that little niggling fear that I could be that 1%. I'm so sorry you turned out to be the 1%. This isn't the time any of us wants to be 'very rare'--that's just a little too special!

    We're pulling for you for great news tomorrow. Be sure to post!

    Chickadee
  • missrenee
    missrenee Member Posts: 2,136 Member
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    Good luck Janelle
    We always hear those low recurrence percentages (I know that's what I've been told) but I always have that little niggling fear that I could be that 1%. I'm so sorry you turned out to be the 1%. This isn't the time any of us wants to be 'very rare'--that's just a little too special!

    We're pulling for you for great news tomorrow. Be sure to post!

    Chickadee

    Janelle, you're right--we are all here for you!
    Sorry you have to be concerned about this right now, but I love your attitude. I'm going to believe in the best result because the odds are still very much in your favor. Thank you for letting us know and please keep us informed. We care.

    Hugs, Renee
  • MAJW
    MAJW Member Posts: 2,510 Member
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    Good luck Janelle
    We always hear those low recurrence percentages (I know that's what I've been told) but I always have that little niggling fear that I could be that 1%. I'm so sorry you turned out to be the 1%. This isn't the time any of us wants to be 'very rare'--that's just a little too special!

    We're pulling for you for great news tomorrow. Be sure to post!

    Chickadee

    Wishing...
    You the best possible news tomorrow.....please don't stay away...we all need one another...to share the good and bad news....no one knows better than we do, what it's like to walk in each other's shoes...

    Sending prayers and good wishes..
    Hugs, Nancy
  • mamolady
    mamolady Member Posts: 796 Member
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    90's sounds good!
    The waiting is always the hard part. Glad you remembered you are never alone here. It is good that your doctor is pro-active. Some docs may not be so on top of things.

    Here's to a clean bill of health tomorrow!

    Cindy
  • grams2jc
    grams2jc Member Posts: 756
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    You aren't alone
    We will worry with you. The waiting is so hard.

    Sending you positive thoughts and prayers,

    Jennifer
  • Mitzi333
    Mitzi333 Member Posts: 511 Member
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    grams2jc said:

    You aren't alone
    We will worry with you. The waiting is so hard.

    Sending you positive thoughts and prayers,

    Jennifer

    Janelle... You're in my thoughts and prayers.
    Sending Positive vibes your way for Great test results tomorrow.

    Hugs~
    Mitzi ;0)
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
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    Janelle, I am glad you
    Janelle, I am glad you posted, I wondered how you were. I think you already know what a great support group this is. You are never alone. Sending nothing but positive vibes for the continuation of your enjoyment of your life well into your 90's and beyond! I'll be looking for your results. (((Hugs)))
  • sbmly53
    sbmly53 Member Posts: 1,522
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    Oh, Janelle -
    Posting here should never be second guessed. We are here for each other in good times and bad and especially when those fears, anxieties and scares gnaw at us.

    Wishing and hoping for the very best for you,

    Sue
  • skipper54
    skipper54 Member Posts: 936 Member
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    sbmly53 said:

    Oh, Janelle -
    Posting here should never be second guessed. We are here for each other in good times and bad and especially when those fears, anxieties and scares gnaw at us.

    Wishing and hoping for the very best for you,

    Sue

    Glad you changed your mind
    and we're all here for you. Sending prayers that this is just a bump in the road but whatever it is, we're here.
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
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    I am glad you decided to
    I am glad you decided to post. We are here for one another, as it should be. Will say a prayer that the cat scan results come back with a negative reading. Hang in there.
  • gami43
    gami43 Member Posts: 281
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    sbmly53 said:

    Oh, Janelle -
    Posting here should never be second guessed. We are here for each other in good times and bad and especially when those fears, anxieties and scares gnaw at us.

    Wishing and hoping for the very best for you,

    Sue

    Janelle - Hoping for no slap
    Janelle - Hoping for no slap on the cheek; how about a great big hug &
    prayers for a great test result. You are not alone; your pink sisters
    are here; keep us informed.

    Teresa
  • camul
    camul Member Posts: 2,537
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    Wishing you the best on this one
    and glad that you don't have to do this alone. Hoping for great results on your ct scan.

    ~Carol
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
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    Good luck Janelle. I'm sure
    Good luck Janelle. I'm sure that your Dr is going to give you the "all clear" tomorrow.
    xoxo-
    heather :)
  • sea60
    sea60 Member Posts: 2,613
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    Good luck Janelle. I'm sure
    Good luck Janelle. I'm sure that your Dr is going to give you the "all clear" tomorrow.
    xoxo-
    heather :)

    I'm glad you decided to post
    The bond we all share is strong and we are all connected, sharing, praying, rooting for each other. I pray that all is well.

    Big hugs,

    Sylvia
  • renee616
    renee616 Member Posts: 181
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    sea60 said:

    I'm glad you decided to post
    The bond we all share is strong and we are all connected, sharing, praying, rooting for each other. I pray that all is well.

    Big hugs,

    Sylvia

    good luck Janelle! Hugs &
    good luck Janelle! Hugs & prayers for you!
    Renee
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
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    sea60 said:

    I'm glad you decided to post
    The bond we all share is strong and we are all connected, sharing, praying, rooting for each other. I pray that all is well.

    Big hugs,

    Sylvia

    Yikes!
    I'm so glad you posted, Janelle, and I hope tomorrow goes well for you. As Sylvia said, our bond is strong, and we're here to support you.

    Sending prayers, hugs and positive vibes.

    Suzanne