We do what we have to do, so we can do what we want to do....again! :-)

chenheart
chenheart Member Posts: 5,159
in Breast Cancer #1
My news was not so good today...but also not a complete surprise. OF COURSE the chronic cough is cancer related! I have actually known that for too many months now. I have pleural effusion and BC cells on the lining of my lung, and over a year ago I had my right lung aspirated due to fluid build up and discomfort. I am so angered ( doesn't happen to me often) at my NON-cologist who not only originally diagnosed me back in 2003, but has all of my medical records, ordered the original aspiration, and has known for MONTHS that I cough, can't breathe,
throw my food up, etc etc. And all he ever did was cluck-cluck and hope that pesky cough cleared itself up. OMG So tomorrow my new-improved ONcologist has ordered a coagulation test for me in the morning, and Wednesday I will have my lung aspirated again, which should make me feel instantly better!!!!! The damned beast has also decided to show up again on my liver, a few underarm nodes, and under my clavicle. Rather than jumping right to chemo, aside from Zometa, I wiil be starting Faslodex injections. I honestly feel I have been pro-active ~ but I also feel my Non-cologist threw me under a bus~ and it isn't the Pink Party Bus, unfortunately. I have my GRRRRRR on and am ready to do batttle~I know I have to stop thinking about what the other Dr didn't do, and be hopeful, brave, and thankful that I have a new doctor!
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Comments

  • jamiegww
    jamiegww Member Posts: 384
    #2
    We are all lining up to kick that doctor's a$$.
    I'm so sorry you were under the "care" of a doctor who obviously doesn't care. I'm not a doctor, but even I was concerned about that cough. You keep your GRRRRRRR on and win this battle. We are with you every step of the way!

    HUGS!!!
    Jamie
  • chenheart
    chenheart Member Posts: 5,159
    #3
    jamiegww said:

    We are all lining up to kick that doctor's a$$.
    I'm so sorry you were under the "care" of a doctor who obviously doesn't care. I'm not a doctor, but even I was concerned about that cough. You keep your GRRRRRRR on and win this battle. We are with you every step of the way!

    HUGS!!!
    Jamie

    Thanks, Jamie~ it is very
    Thanks, Jamie~ it is very empowering knowing you are all with me! That noncologist is not going to be able to sit down after the Kindreds get through kicking him! LOL
  • Sunrae
    Sunrae Member Posts: 808
    #4
    chenheart said:

    Thanks, Jamie~ it is very
    Thanks, Jamie~ it is very empowering knowing you are all with me! That noncologist is not going to be able to sit down after the Kindreds get through kicking him! LOL

    Sorry, Chen, to hear your
    Sorry, Chen, to hear your news. Seems like some days aren't worth getting up for but tomorrow is another day, and with your new doc taking charge, you should feel better soon. I found out the hard way too that at least 2 of my dr's dropped the ball and prescribed medication that was harmful to my asthma situation. This went on for a whole year and I was so fatigued and having breathing problems. I caught the problem myself or I'd still be struggling. I know you're a pro-active woman and that will always be in your favor. Take care and know that so many are with you now during this difficult time. Love and hugs to you.
  • butterflylvr
    butterflylvr Member Posts: 944
    #5
    Sunrae said:

    Sorry, Chen, to hear your
    Sorry, Chen, to hear your news. Seems like some days aren't worth getting up for but tomorrow is another day, and with your new doc taking charge, you should feel better soon. I found out the hard way too that at least 2 of my dr's dropped the ball and prescribed medication that was harmful to my asthma situation. This went on for a whole year and I was so fatigued and having breathing problems. I caught the problem myself or I'd still be struggling. I know you're a pro-active woman and that will always be in your favor. Take care and know that so many are with you now during this difficult time. Love and hugs to you.

    Oh man... I am so sorry
    Oh man... I am so sorry Claudia. The angry beast doesn't know how to handle such a kind soul, so you have the upper edge on it. We should all buy a voodoo doll that we can stick pins into every time one of our kindreds has issues with doctors. Your Noncologist leaves me wondering why, why, why? Thank god you are in great hands now and I too will put my pink gloves on for you girl. This is going to be one hell of a battle and there will be pink splattered all over the place. Sending loving thoughts and prayers my friend...

    Hugs,
    Lorrie
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #6
    HISS!!! at the NON-cologist, your FORMER doctor!!!
    Oh, dearest Chen...

    SHEESH!!!

    Not so good news is... really crappy, at best. Good news is you've got a NEW doctor who will steer you in the right direction along this new portion of your path. And, of course, we're all right there beside you. To hold your hand, for you to lean on, to help you continue moving forward. Towards remission, once again.

    Sending buckets of HOPE & BRAVERY your way, via cyberspace.

    Love, 12/25 xo
  • skipper54
    skipper54 Member Posts: 936 Member
    #7
    Christmas Girl said:

    HISS!!! at the NON-cologist, your FORMER doctor!!!
    Oh, dearest Chen...

    SHEESH!!!

    Not so good news is... really crappy, at best. Good news is you've got a NEW doctor who will steer you in the right direction along this new portion of your path. And, of course, we're all right there beside you. To hold your hand, for you to lean on, to help you continue moving forward. Towards remission, once again.

    Sending buckets of HOPE & BRAVERY your way, via cyberspace.

    Love, 12/25 xo

    and throw your noncologist in there with the rest of the junk.

    Glad you're now getting some help! We're all there with you. Keep hanging in!
  • mwallace1325
    mwallace1325 Member Posts: 806
    #8
    skipper54 said:

    and throw your noncologist in there with the rest of the junk.

    Glad you're now getting some help! We're all there with you. Keep hanging in!

    I'm sure
    I'm sure the pink party bus can be turned into a drive over the non-cologist bus for just a little while. Just say the word.

    You've probably got one of the best fighting spirits I've ever seen so I'm confident you'll beat this again.

    We're here to help in any way we can.

    marge
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #9
    Hi Chen -- I am sorry you
    Hi Chen -- I am sorry you are dealing with this again. But let me just say, for some reason, I don't worry about you. You are like ... a Superhero in my eyes. I always sense you will be OK at the end. Although I am sorry you are going through this, I have faith in You and believe You will beat this.

    Your NON-cologist SUCKS. I am just happy you are in good hands now.
  • natly15
    natly15 Member Posts: 1,941
    #10
    LoveBabyJesus said:

    Hi Chen -- I am sorry you
    Hi Chen -- I am sorry you are dealing with this again. But let me just say, for some reason, I don't worry about you. You are like ... a Superhero in my eyes. I always sense you will be OK at the end. Although I am sorry you are going through this, I have faith in You and believe You will beat this.

    Your NON-cologist SUCKS. I am just happy you are in good hands now.

    Chen all can say is
    @$*&^@#>?)###. You know you are loved and cherished and we are all in your corner helping you kick cancer's but.
  • debi.18
    debi.18 Member Posts: 850 Member
    #11
    natly15 said:

    Chen all can say is
    @$*&^@#>?)###. You know you are loved and cherished and we are all in your corner helping you kick cancer's but.

    So Sorry
    So sorry to hear your news. Keep fighting and know that we're here for you! I think we should run over your NON-cologist with the Pink dump truck and the Pink Bus!!

    Big Hugs,
    Debi~
  • MAJW
    MAJW Member Posts: 2,510 Member
    #12
    LoveBabyJesus said:

    Hi Chen -- I am sorry you
    Hi Chen -- I am sorry you are dealing with this again. But let me just say, for some reason, I don't worry about you. You are like ... a Superhero in my eyes. I always sense you will be OK at the end. Although I am sorry you are going through this, I have faith in You and believe You will beat this.

    Your NON-cologist SUCKS. I am just happy you are in good hands now.

    So pisse$$$$$ off!
    And I hate this for you Claudia!!!!!! This just sucks...pardon my French....I am angry the oncologist dismissed your cough...even a GP would have addressed this sooner! Another reason we all MUST be our own best advocate and not be intimidated by someone just because they have MD after their name....I worked for a doctor for years....they put their pants on the same way we do! I've, at times, have almost been a biotch when dealing with doctors...my standard retort to them is....."this maybe routine to you, but it's not for me....this is MY life, the only one I have!" it does get their attention!

    I have posted that my BC has recurred on my clavicle and other nodes, since your's is there also, I wonder if this is a fairly "common" site of recurrence? A few others have posted about a recurrence there also...plus I had clean nodes 2 years ago....My RO was shocked it came back in my lymph nodes...
    Claudia the clinical trial I am in with the drug TESETAXEL is also in trial for lung and colon cancer....don't know if your oncologist would want to investigate this for you...

    I am so sorry you're going through this.....What can I do for you?
    I care....
    Hugs, Nancy

    Ps.....I have an " uncle Guido".....lol.
  • tommaseena
    tommaseena Member Posts: 1,769
    #13
    MAJW said:

    So pisse$$$$$ off!
    And I hate this for you Claudia!!!!!! This just sucks...pardon my French....I am angry the oncologist dismissed your cough...even a GP would have addressed this sooner! Another reason we all MUST be our own best advocate and not be intimidated by someone just because they have MD after their name....I worked for a doctor for years....they put their pants on the same way we do! I've, at times, have almost been a biotch when dealing with doctors...my standard retort to them is....."this maybe routine to you, but it's not for me....this is MY life, the only one I have!" it does get their attention!

    I have posted that my BC has recurred on my clavicle and other nodes, since your's is there also, I wonder if this is a fairly "common" site of recurrence? A few others have posted about a recurrence there also...plus I had clean nodes 2 years ago....My RO was shocked it came back in my lymph nodes...
    Claudia the clinical trial I am in with the drug TESETAXEL is also in trial for lung and colon cancer....don't know if your oncologist would want to investigate this for you...

    I am so sorry you're going through this.....What can I do for you?
    I care....
    Hugs, Nancy

    Ps.....I have an " uncle Guido".....lol.

    Claudia
    My pink boxing gloves are on and I am in your corner.
    You are in my thoughts and prayers my friend.

    Love and Hugs,
    Margo
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #14
    tommaseena said:

    Claudia
    My pink boxing gloves are on and I am in your corner.
    You are in my thoughts and prayers my friend.

    Love and Hugs,
    Margo

    I think
    it might actually be worthwhile to spend a little bit of time being mad at your former doctor -- those are very real authentic feelings that need to be felt in order to move on. And then, yes, do go with your grrrrrr.

    Easy for me to say, I know. I'm so sorry you're having to deal with this.

    Sending you lots of energy.

    xoxo
    Victoria
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #15
    aisling8 said:

    I think
    it might actually be worthwhile to spend a little bit of time being mad at your former doctor -- those are very real authentic feelings that need to be felt in order to move on. And then, yes, do go with your grrrrrr.

    Easy for me to say, I know. I'm so sorry you're having to deal with this.

    Sending you lots of energy.

    xoxo
    Victoria

    Disagree just a little, Victoria
    Victoria, I'm going to disagree with you only a little....I think it would be more worthwhile to spend time having Nancy's Uncle Guido over for a nice dinner (with a good wine, natch) to discuss his...ahem..."services."

    :-) Traci
  • debi.18
    debi.18 Member Posts: 850 Member
    #16
    TraciInLA said:

    Disagree just a little, Victoria
    Victoria, I'm going to disagree with you only a little....I think it would be more worthwhile to spend time having Nancy's Uncle Guido over for a nice dinner (with a good wine, natch) to discuss his...ahem..."services."

    :-) Traci

    I'm with you
    I'm with you Nancy and Traci!
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #17
    Claudia, I am so happy that
    Claudia, I am so happy that you fired your NONcologist!! The good news is you have taken charge and will, as you so profoundly stated, do what you have to do, so you can do what you want to do! I'll be right by your side to lean on, if needed. You have many caring sisters here. Sending strength, hope and love to you.
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #18
    MyTurnNow said:

    Claudia, I am so happy that
    Claudia, I am so happy that you fired your NONcologist!! The good news is you have taken charge and will, as you so profoundly stated, do what you have to do, so you can do what you want to do! I'll be right by your side to lean on, if needed. You have many caring sisters here. Sending strength, hope and love to you.

    Chenheart my beloved 'Hummingbird' --
    I am so sorry that you Non-cologist allowed this persistence cough to go on for so long .. Not to worry -- several of us have made arrangement with Bob, aka 'Uncle Guido'... Just know that your Non cologist will be taken care of.. No questions, please.

    I am thrilled that you had the foresight to move forward and move on with a new Specialist, who sounds like he does care .. Our journey's vary, but there is no EXCUSE .. no to be treated for any lingering cough, side effort or fever. If any professional doctor shows a lack of investigative response, and lack of professional commitment, or brushes any of one off ... it time to change doctors .. -- I am delighted and elated that you 'dumped' NON cologist, and his assss.


    You are a pillar of strength, and light to many of us. .. you eat well, exercise -- treat your body as a 'Temple'. You will arm yourself with what is needed for the next battle.

    I so admire you, and your STRENGTH, PERSERVENCE AND ZEST FOR LIFE.

    Vicki Sam
  • cahjah75
    cahjah75 Member Posts: 2,631
    #19
    Chen
    I would be soooooooo angry at your former onc too! Thank goodness your new onc will get things going in the right direction. You are a fighter and we are all behind you 100%. I'm sorry it took so long for a definitive diagnosis and that it has spread to other areas too. Hope the new meds work. I'll keep you in my thoughts and prayers. Get better, my friend. I'm still reeling from the news about Meena.
    {{hugs}} Char
  • fauxma
    fauxma Member Posts: 3,577 Member
    #20
    VickiSam said:

    Chenheart my beloved 'Hummingbird' --
    I am so sorry that you Non-cologist allowed this persistence cough to go on for so long .. Not to worry -- several of us have made arrangement with Bob, aka 'Uncle Guido'... Just know that your Non cologist will be taken care of.. No questions, please.

    I am thrilled that you had the foresight to move forward and move on with a new Specialist, who sounds like he does care .. Our journey's vary, but there is no EXCUSE .. no to be treated for any lingering cough, side effort or fever. If any professional doctor shows a lack of investigative response, and lack of professional commitment, or brushes any of one off ... it time to change doctors .. -- I am delighted and elated that you 'dumped' NON cologist, and his assss.


    You are a pillar of strength, and light to many of us. .. you eat well, exercise -- treat your body as a 'Temple'. You will arm yourself with what is needed for the next battle.

    I so admire you, and your STRENGTH, PERSERVENCE AND ZEST FOR LIFE.

    Vicki Sam

    Chen,
    I can only say that I
    Chen,
    I can only say that I am so sorry for all of this. The noncologist, the lungs, the cough. I would be agnry also. This is all time that you could have addressed treatments etc that this fool made you lose. Uncle Guido would be too fast, too kind. Whatever happens to him must be slow (as show as he was), painful and permanent. My prayers are so there for you.
    Stef
  • pinkpalette
    pinkpalette Member Posts: 112
    #21
    cahjah75 said:

    Chen
    I would be soooooooo angry at your former onc too! Thank goodness your new onc will get things going in the right direction. You are a fighter and we are all behind you 100%. I'm sorry it took so long for a definitive diagnosis and that it has spread to other areas too. Hope the new meds work. I'll keep you in my thoughts and prayers. Get better, my friend. I'm still reeling from the news about Meena.
    {{hugs}} Char

    I am glad to hear you are ready to battle....
    because you are always soooooo positive and strong!!! You have the keys to recovery. You are a hero to me, and I, for one, will keep you in my thoughts and prayers, but I know you have a village of supporters here on this board.

    hugs, Debbie

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