why can't I move on

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  • MAJW
    MAJW Member Posts: 2,510 Member
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    Moving on.........
    I think this is probably one of the hardest things to do once treatments are over.......I was dx in April, lumpectomy in May, Chemo, June-Aug and rads for 6 1/2 weeks, finished that 3 1/2 weeks ago.I was getting anxious about a week and a half before rads were over....I shared my anxiety and fears with my radiation oncologist....I told him, "For months now I have spent everyday of my life fighting this cancer.......now what?" I was scared because "now what do I do?" He assured me that what I was feeling was perfectly normal considering what I had been through.IT helped to know that I wasn't experiencing some sort of breakdown as I sobbed while telling him this and I am by nature, not a cryer but I was sobbing. He told me that it takes time to "readjust" and only time would help. That I WOULD find what works for me, as everyone must in their own time.

    I have been incredibly busy since the end of rads and I honestly haven't had time to "think" about my new normal....I have just made a conscious decision to NOT let what has happened to me color the rest of my life.....easier said than done, I know...but for me this is working. That's not to say next week I won't have a meltdown of some sort.. I was very worried about what my life would be like once all the treatments were over but I have found a new joy in life, now. That's not to say I am out there tooting my own horn, but I am going about my life as much as possible as I did before. I refuse to live with the "what if's" even though it is never far from my mind.....AND AND AND........I STAY AWAY FROM THE INTERNET.......I had ductual, invasive carcinoma....clean clear margins, no lymph node involvement.....a scary diagnosis for sure.....I prefer to listen to my physicians.......I trust them far more than what I would read on the internet....

    We can only trudge on finding what works for ourselves......I think this site has been as helpful as anything....we can always find someone who can offer advice and support to us, having walked in our shoes..My precious sister in law is a 20 year survivor of one of the worst forms of bc...sarcoma.....she keeps telling me I will find what works for me and she's right!

    I wish you peace in your quest......
  • crselby
    crselby Member Posts: 441 Member
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    MAJW said:

    Moving on.........
    I think this is probably one of the hardest things to do once treatments are over.......I was dx in April, lumpectomy in May, Chemo, June-Aug and rads for 6 1/2 weeks, finished that 3 1/2 weeks ago.I was getting anxious about a week and a half before rads were over....I shared my anxiety and fears with my radiation oncologist....I told him, "For months now I have spent everyday of my life fighting this cancer.......now what?" I was scared because "now what do I do?" He assured me that what I was feeling was perfectly normal considering what I had been through.IT helped to know that I wasn't experiencing some sort of breakdown as I sobbed while telling him this and I am by nature, not a cryer but I was sobbing. He told me that it takes time to "readjust" and only time would help. That I WOULD find what works for me, as everyone must in their own time.

    I have been incredibly busy since the end of rads and I honestly haven't had time to "think" about my new normal....I have just made a conscious decision to NOT let what has happened to me color the rest of my life.....easier said than done, I know...but for me this is working. That's not to say next week I won't have a meltdown of some sort.. I was very worried about what my life would be like once all the treatments were over but I have found a new joy in life, now. That's not to say I am out there tooting my own horn, but I am going about my life as much as possible as I did before. I refuse to live with the "what if's" even though it is never far from my mind.....AND AND AND........I STAY AWAY FROM THE INTERNET.......I had ductual, invasive carcinoma....clean clear margins, no lymph node involvement.....a scary diagnosis for sure.....I prefer to listen to my physicians.......I trust them far more than what I would read on the internet....

    We can only trudge on finding what works for ourselves......I think this site has been as helpful as anything....we can always find someone who can offer advice and support to us, having walked in our shoes..My precious sister in law is a 20 year survivor of one of the worst forms of bc...sarcoma.....she keeps telling me I will find what works for me and she's right!

    I wish you peace in your quest......

    thanks
    Thanks to all of you who shared your stories and advice. I must have been having a bad day when I made that post. I feel not so guilty when I'm online now. And let me just say, I don't go to the 'poor me, here's my horror story' sites. Rather, I'm looking for research study results and the like. At your suggestion, I WILL try harder to get back to my hobbies. My teaching job at the community college will begin again next semester, which will take up a lot of time, in a good way! Looking forward to Christmas and all the happiness that brings. (We decorated our tree last night and it's beautiful!) Peace and joy to you all.
    Connie
  • xskeetshooter
    xskeetshooter Member Posts: 169
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    life is too short to worry
    life is too short to worry about what might happen
  • CR1954
    CR1954 Member Posts: 1,390 Member
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    Moving on...
    Dear heart....time. You need to give it time. A dx in June is such a short time ago. Just because you are now done with active treatment, does not mean that it is over just yet. I'm afraid the fear of recurrance will probably always be there, but you will eventually get to a point where your cancer will not always be hogging center stage.
    It will happen gradually....so gradually that you probably won't even notice. It will just occur to you one day that you had not thought about cancer for several hours...woohoo! Those hours will eventually turn into a day or maybe even two.
    Slowly...ever so slowly, you will find that thoughts of life are replacing thoughts of cancer. You'll smile...and you will live your life to its fullest!

    It just takes time...

    Hugs,

    CR
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
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    chenheart said:

    Sweetie, it is only your
    Sweetie, it is only your new normal if you make it that! You have indeed been tapped on the shoulder by your mortality, but it can just be an awareness, not a glowing beacon of doom and gloom! I am by no means a Pollyanna, I absolutely do consider recurrence, and all of the "what if's" which can loom large out there. I avoid the Internet like the proverbial plague! It is scary enough to hear the possible side effects including suicidal ideation, hives, or falling over dead from a pill which will hopefully help us not be depressed or help us sleep! Half of the TV ads make me want to live with insomnia and sadness! The unregulated internet feeds into the fear we all have, and exacerbates it! My oncologist wisely said that Satistics don't count when they have our name on them; and that one statement got me through many a tough day during treatment. Our own KathiM was given 6 months to live having rectal cancer, and then she was diagnosed with Breast~ she just celebrated 5 years cancer free of the rectal cancer, and 3 of the breast! I may have those exact dates wrong, but I am close! She is leaving on a cruise with her sweetie this week, and then on to Holland, where they spend nearly half of the year...we really do get to live Life After Cancer! We swim wih dolphins, we zip line, we get married, we see our grandchildren, we karaoke sing, we dye our hair red, we make love, decorate Christmas trees, we write books go 4 wheeling, we travel. Oh yeah, we argue with our signifcant others, we get cranky, we run out of money before we run out of month, we are defiant, or kind, or forgetful, or overly concerned~ we are HUMAN!

    Don't let the "what if's" run your life...even of all of the things you are reading are indeed true ( which I doubt) does reading about them increase you life-span and its joy and opportnities to participate? Or does it just make you want to curl up in a ball and wait for the "inevitable". Go out with gusto~ find a dream and live it! Or, snuggle next to your husband and watch TV together; it is all good. The other shoe which is waiting to drop in time does stop being a steel toed combat boot and it becomes a soft, leather, baby shoe. We are truly always aware of what brought us to these boards, but we can indeed have a signifcant and meaningful life not because of cancer, but in spite of it.

    HUGS! You are a Kindred Spirit to a large sisterhood!

    Chen♥

    Amen to that Chen!!
    My first year,I worried a lot! I just passed my 2 year mark this Sept. and I am happy to say that I'm living life and enjoying it-I am aware that I have to be aware and that I will have to be that way for the rest of my life,but I have learned(I think) to be aware yet still try to enjoy life to the fullest with every waking thought not having to be about cancer.
    Life is still good-to anyone who is struggling,I hope that you will find that to be true!
  • crselby
    crselby Member Posts: 441 Member
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    life is too short to worry
    life is too short to worry about what might happen

    skip your advice
    xskeetshooter, I DO thank God I'm alive, daily. And did so even before cancer was part of my personal life. She/he/it gave me the brains to be doing this research and using those brains is how I prefer to express my joy of life.

    So, your advice is to stop examining the research available about DCIS (is it really a cancer, does it need treatment like invasive cancers, what are its rates of recurrance, which drugs, if any, have been tested as effective on DCIS, etc.) and sit with my unattentive husband as he flips through channel after channel until he finds somethng he likes.

    If he gets sick of being alone, he knows where to find me and he knows what I need. Thanks for your two cents, xskeetshooter, but frankly, this disease has taught me that I'd better forge ahead with what's of interest to me, and stop giving in to what he wants. Maybe it's the reduced estrogen (the 'docile' hormone) effect of Tamoxifen talking.

    I posted that because I just wanted to know if others have found it hard to stop thinking about cancer. The diagnosis was so out of the blue and caught me by surprise so much, that I guess I'm still trying to resolve the disparate realities: the one I thought I was in, and the one I AM in.


    Connie
  • padee6339
    padee6339 Member Posts: 763
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    chenheart said:

    Sweetie, it is only your
    Sweetie, it is only your new normal if you make it that! You have indeed been tapped on the shoulder by your mortality, but it can just be an awareness, not a glowing beacon of doom and gloom! I am by no means a Pollyanna, I absolutely do consider recurrence, and all of the "what if's" which can loom large out there. I avoid the Internet like the proverbial plague! It is scary enough to hear the possible side effects including suicidal ideation, hives, or falling over dead from a pill which will hopefully help us not be depressed or help us sleep! Half of the TV ads make me want to live with insomnia and sadness! The unregulated internet feeds into the fear we all have, and exacerbates it! My oncologist wisely said that Satistics don't count when they have our name on them; and that one statement got me through many a tough day during treatment. Our own KathiM was given 6 months to live having rectal cancer, and then she was diagnosed with Breast~ she just celebrated 5 years cancer free of the rectal cancer, and 3 of the breast! I may have those exact dates wrong, but I am close! She is leaving on a cruise with her sweetie this week, and then on to Holland, where they spend nearly half of the year...we really do get to live Life After Cancer! We swim wih dolphins, we zip line, we get married, we see our grandchildren, we karaoke sing, we dye our hair red, we make love, decorate Christmas trees, we write books go 4 wheeling, we travel. Oh yeah, we argue with our signifcant others, we get cranky, we run out of money before we run out of month, we are defiant, or kind, or forgetful, or overly concerned~ we are HUMAN!

    Don't let the "what if's" run your life...even of all of the things you are reading are indeed true ( which I doubt) does reading about them increase you life-span and its joy and opportnities to participate? Or does it just make you want to curl up in a ball and wait for the "inevitable". Go out with gusto~ find a dream and live it! Or, snuggle next to your husband and watch TV together; it is all good. The other shoe which is waiting to drop in time does stop being a steel toed combat boot and it becomes a soft, leather, baby shoe. We are truly always aware of what brought us to these boards, but we can indeed have a signifcant and meaningful life not because of cancer, but in spite of it.

    HUGS! You are a Kindred Spirit to a large sisterhood!

    Chen♥

    Great advice
    Amen!
    Hugs - Pat
  • MAJW
    MAJW Member Posts: 2,510 Member
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    crselby said:

    skip your advice
    xskeetshooter, I DO thank God I'm alive, daily. And did so even before cancer was part of my personal life. She/he/it gave me the brains to be doing this research and using those brains is how I prefer to express my joy of life.

    So, your advice is to stop examining the research available about DCIS (is it really a cancer, does it need treatment like invasive cancers, what are its rates of recurrance, which drugs, if any, have been tested as effective on DCIS, etc.) and sit with my unattentive husband as he flips through channel after channel until he finds somethng he likes.

    If he gets sick of being alone, he knows where to find me and he knows what I need. Thanks for your two cents, xskeetshooter, but frankly, this disease has taught me that I'd better forge ahead with what's of interest to me, and stop giving in to what he wants. Maybe it's the reduced estrogen (the 'docile' hormone) effect of Tamoxifen talking.

    I posted that because I just wanted to know if others have found it hard to stop thinking about cancer. The diagnosis was so out of the blue and caught me by surprise so much, that I guess I'm still trying to resolve the disparate realities: the one I thought I was in, and the one I AM in.


    Connie

    Hang in there..........
    You're doing fine and will continue to do so........YOU DO what you need to do...only listen to POSTIVE words of encouragement.....
    Again, peace be with you in your quest.......You'll find your way, I promise....
    Hugs.......
  • jk1952
    jk1952 Member Posts: 613
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    CR1954 said:

    Moving on...
    Dear heart....time. You need to give it time. A dx in June is such a short time ago. Just because you are now done with active treatment, does not mean that it is over just yet. I'm afraid the fear of recurrance will probably always be there, but you will eventually get to a point where your cancer will not always be hogging center stage.
    It will happen gradually....so gradually that you probably won't even notice. It will just occur to you one day that you had not thought about cancer for several hours...woohoo! Those hours will eventually turn into a day or maybe even two.
    Slowly...ever so slowly, you will find that thoughts of life are replacing thoughts of cancer. You'll smile...and you will live your life to its fullest!

    It just takes time...

    Hugs,

    CR

    CR, I couldn't agree more.
    CR, I couldn't agree more. It's almost like life starts to sneak up on you, and the cancer isn't consuming all of your attention. It's a great feeling; it just takes time.

    Joyce