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Stage III & IV Survivor call !!

2

Comments

  • Moesimo
    Moesimo CSN Member Posts: 1,072 Member
    #22
    diagnosed at 46, no family history, stage 3
    NED since 6/26/03 4 years NED YIPPEEE!!!

    Maureen
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  • foxy
    foxy CSN Member Posts: 188 Member
    #23
    Stage IV Dec 20th 1993, NED 14 1/2 years.

    Virginia.
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  • drmrgirl47
    drmrgirl47 CSN Member Posts: 129
    #24
    stage 3, 3 out of 6 nodes. Operated Jan. 2004. Had chemo, radiation. 3 1/2 years NED thank God.
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  • scouty
    scouty CSN Member Posts: 1,965 Member
    #25
    dxed stage IV (mets to liver and left lung) March 2004 at age 49, no family history. NED since Oct. 2004.....2 years 8 months.

    Lisa P.
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  • jams67
    jams67 CSN Member Posts: 925 Member
    #26
    stage iv. NED since 9/05.
    Jo Ann
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  • sladich
    sladich CSN Member Posts: 429 Member
    #27
    Diagnosed at age 48 in 9/04. Stage 4 due to tumor in lower left lung. Colon resection (9/04), lower left lobe of lung removed (11/04), chemo (Folfox, 6 mos), recurrence in liver (9/05), Liver resection (11/05), chemo, recurrence in liver 9/06, chemoembolization (11/06), RFA (12/06, chemoembolization (1/07). NED since. Watching a growth in my upper left lung. It measures about 7mm. No change since last scan. I get scanned every 2 months.

    Debbie
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  • lfondots63
    lfondots63 CSN Member Posts: 818 Member
    #28
    sladich said:

    Diagnosed at age 48 in 9/04. Stage 4 due to tumor in lower left lung. Colon resection (9/04), lower left lobe of lung removed (11/04), chemo (Folfox, 6 mos), recurrence in liver (9/05), Liver resection (11/05), chemo, recurrence in liver 9/06, chemoembolization (11/06), RFA (12/06, chemoembolization (1/07). NED since. Watching a growth in my upper left lung. It measures about 7mm. No change since last scan. I get scanned every 2 months.

    Debbie

    Love this post!!!

    Stage 3 dx Dec. 19, 2005 (day before my birthday!). Tumor out on my birthday. Finished chemo July '06. As far as I know NED since.

    Lisa F.
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  • apache4
    apache4 CSN Member Posts: 272 Member
    #29
    I am getting confused. I read all the posts and I was told there was no remission for my Stage IV colon cancer with mets to the liver. After a year the tumors have shrunk and are stable. I am now on chemo every three weeks after 15 sessions. I also had the colon surgery ASAP last year. Any comments? Also, I may be ignorant, but what does NED mean?
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  • usakat
    usakat CSN Member Posts: 610 Member
    #30
    apache4 said:

    I am getting confused. I read all the posts and I was told there was no remission for my Stage IV colon cancer with mets to the liver. After a year the tumors have shrunk and are stable. I am now on chemo every three weeks after 15 sessions. I also had the colon surgery ASAP last year. Any comments? Also, I may be ignorant, but what does NED mean?

    NED = No evidence of disease. There is remission for stage IV folks if CT and/or PET scans indicate NED. I hope your tumors will vacate soon so you can be restaged NED.

    By the way - welcome to the SemiColons! Sorry about your tough time with your cancer, but I'm glad you found us. I have a strong feeling that you will give and receive much encouragement and inspiration here.
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  • changing
    changing CSN Member Posts: 134
    #31
    Hi, dx'd 3c july 06. NED so far....colonoscopy due this month!
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  • renee2u
    renee2u CSN Member Posts: 27
    #32
    usakat said:

    NED = No evidence of disease. There is remission for stage IV folks if CT and/or PET scans indicate NED. I hope your tumors will vacate soon so you can be restaged NED.

    By the way - welcome to the SemiColons! Sorry about your tough time with your cancer, but I'm glad you found us. I have a strong feeling that you will give and receive much encouragement and inspiration here.

    Stage IV Anal Squamous Cell Carcinoma cancer survivor... about 1 month since my first PET/CT/Biopsy... I'm a monther...
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  • Fb489
    Fb489 CSN Member Posts: 69
    #33
    HOPEFUL
    Hopeful this will be all of us one day.
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  • Kerry S
    Kerry S CSN Member Posts: 606 Member
    #34
    stage 4
    dx 5/08
    13 months

    stage 4
    dx 5/08
    13 months
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  • TxKayaker
    TxKayaker CSN Member Posts: 176
    #35
    Kerry S said:

    stage 4
    dx 5/08
    13 months

    stage 4
    dx 5/08
    13 months

    Stage 3C DX 4-3-09 - 9
    Stage 3C DX 4-3-09 - 9 months
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  • lisa42
    lisa42 CSN Member Posts: 3,625 Member
    #36
    a survivor
    I consider myself a stage IV survivor even though I'm not NED.

    Diagnosed stage IV w/ liver and lung mets Aug. 2007.
    Treatments: Folfox w/ Avastin, radiation, liver resection, Folfiri w/Avastin two years in a row following recurrences, and currently taking interferon and lovastatin & am awaiting results of this treatment (scan Feb. 12).

    Lisa
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  • dianetavegia
    dianetavegia CSN Member Posts: 1,942 Member
    #37
    Looks like quite a few are no longer with us,,,,,,,
    These old threads make me sad. :-(

    I was dx'd 13 months ago today, Stage III. NED since surgery, 13 months ago.
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  • karguy
    karguy CSN Member Posts: 1,020 Member
    #38
    Surviver
    DX 3/2008 SURGERY 7/2008 NED 10/2008,Stage III after chemo& radiation,Permanant colostomy.
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  • Patteee
    Patteee CSN Member Posts: 945
    #39
    first grandbaby, Andy was
    first grandbaby, Andy was born 5-16-08
    I was dx'd with stage 3B cc on 5-20-08
    Surgery on June 7, 2008
    NED for 20 months
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  • P_I_T_A
    P_I_T_A CSN Member Posts: 133
    #40
    Dx - 8/18/09
    Surgery - 9/12/09 stage IIIa (1 lymph pos)
    NED since (5mo, short timer)

    -DJ
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  • grammadebbie
    grammadebbie CSN Member Posts: 464
    #41
    NED
    Stage IIIc 8of 38 lymph nodes positive

    Surgery Oct 17 2007 Chemo 6 months

    NED 2 years 4 mos. Yeah
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