Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

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  • uterine endrometrial cancer
    I am new to this. I just found this website. 5:30 am here in va. Tried to log on to chat rooms. Can't view them. I just get a blank page that tells me to click a button if not directed in 10 secs. I cant even view a button. Dont know why.
    Just another thing to make my day.
    Can't sleep, I go the the gyn oncology today.Not looking forward to it. Don't know what stage of whats going on. Have to have a hysterectomy, dont know when.
    Pretty much freaking out at this point. Cant seem to get any answers.
    jami
  • mitchelford111
    mitchelford111 Member Posts: 1
    content removed by CSN staff
  • Reddie
    Reddie Member Posts: 72

    uterine endrometrial cancer
    I am new to this. I just found this website. 5:30 am here in va. Tried to log on to chat rooms. Can't view them. I just get a blank page that tells me to click a button if not directed in 10 secs. I cant even view a button. Dont know why.
    Just another thing to make my day.
    Can't sleep, I go the the gyn oncology today.Not looking forward to it. Don't know what stage of whats going on. Have to have a hysterectomy, dont know when.
    Pretty much freaking out at this point. Cant seem to get any answers.
    jami

    Roll Call for April 2010!
    Hello everyone!! I'm back! I just got message from CSN inviting me about getting together in Philadelphia which is why I'm back. I've been gone for a while to a busy world.

    It's good to see your faces again ---old ones and new ones.

    Brenda Boaz as Reddie:
    Stage III-c Uterus cancer, total hysterectomy 5/24/09; had 1 round of chemo; within 1 week of chemo I had colon infection and started antibiotics then few weeks later had abscess drainage within 1 month of IV antibiotics. After that I had CT scan and no sign of cancer cells. I had doctor's follow up with pap smear and blood works for CA 125 on January, 2010. They said, my CA-125 is 15 which is good news. Now I'm waiting for the second follow up to see if it's the same results.

    Have a nice spring! Reddie
  • aprillorey
    aprillorey Member Posts: 104
    my name is April i'm 29 and
    my name is April i'm 29 and live in Iowa.

    on March 22nd 2010 i was told i had the 1st stages of Uterine cancer

    April 16th 2010 i had a full Hysterectomy in may of 2010 my tumor was very very big

    so in may of 2010 i will undergo 5 rounds of Radiation treatment so thats my next step. im married and our dream of having a birth child is now over we do have baby angels who all died due to misscarriage sadly.
  • Reddie
    Reddie Member Posts: 72

    my name is April i'm 29 and
    my name is April i'm 29 and live in Iowa.

    on March 22nd 2010 i was told i had the 1st stages of Uterine cancer

    April 16th 2010 i had a full Hysterectomy in may of 2010 my tumor was very very big

    so in may of 2010 i will undergo 5 rounds of Radiation treatment so thats my next step. im married and our dream of having a birth child is now over we do have baby angels who all died due to misscarriage sadly.

    Hi April
    You're not the only one who did't have children. I myself never had children. Andy and I met each other before I had Uterus cancer and now it's over but we never give up cuz we are planning to adopt children. I am very blessed that Andy stayed with me through recovery and looks forward to a new beginning.

    Have you thought about having adoptions?

    cheers,
    Reddie
  • aprillorey
    aprillorey Member Posts: 104
    Reddie said:

    Hi April
    You're not the only one who did't have children. I myself never had children. Andy and I met each other before I had Uterus cancer and now it's over but we never give up cuz we are planning to adopt children. I am very blessed that Andy stayed with me through recovery and looks forward to a new beginning.

    Have you thought about having adoptions?

    cheers,
    Reddie

    Yes we have we looked in to it as we always wanted birth but we also wanted to adopt, how ever due to being on SSI ( goverment funds ) and my husband working a very low incom job my being over weight and the cancer and other things like being far in debt they told us that the chanchs of us adopting is slim to none we been praying for the adoption laws to change . money is tight we could raise a child but cant aford the fees and other stuff and alot of the laws are crazy

    we did try to foster care a few years back but it didnt go so well the home study worker clamed because we had not been married but a few years and due to husbands loaw income job that they turn us down.



    well i pray for you and andy to be blessed

    im blessed with my husband we married in 2004 but got together at the end of 2002 hes a wonderful man whos been by my side every step of the way

    thanks for the message hun
  • sue K
    sue K Member Posts: 18

    Yes we have we looked in to it as we always wanted birth but we also wanted to adopt, how ever due to being on SSI ( goverment funds ) and my husband working a very low incom job my being over weight and the cancer and other things like being far in debt they told us that the chanchs of us adopting is slim to none we been praying for the adoption laws to change . money is tight we could raise a child but cant aford the fees and other stuff and alot of the laws are crazy

    we did try to foster care a few years back but it didnt go so well the home study worker clamed because we had not been married but a few years and due to husbands loaw income job that they turn us down.



    well i pray for you and andy to be blessed

    im blessed with my husband we married in 2004 but got together at the end of 2002 hes a wonderful man whos been by my side every step of the way

    thanks for the message hun

    Hi my name is Sue and I live
    Hi my name is Sue and I live in Scotland.
    I was diagnosed with stage 1c grade 3 uterine carsinoma (or MMMT as it is sometimes called). I had radical hysterectomy followed by carbo/taxel chemotherapy, followed by radiotherapy. I finished my treatments last October, and I am now a NED!!
    Unfortunately it's hard to be as happy as I should be at the news that I am clear of cancer, because of the after effects of the treatments - extreme fatigue, and severe joint and muscle pain. I used to be such an active person, doing lots of diy around the house and garden, and long distance hiking with my daughter, but now I find that any sort of exercise makes my pain worse.However I am not giving in to it, and I am walking every day, and doing what I can around the house.
    I was so pleased to discover this forum because I felt that I was alone in suffering these after effects, and my oncologist cannot explain it. Now I realise that there are lots of you out there with the same symptoms, and far worse. It is so very good to 'meet' you all.
    I am 65 years old so have nothing to complain about compared with so many of you young ones - my heart goes out to you all.
    Hugs to you all
    Sue
  • j1o2y3
    j1o2y3 Member Posts: 5
    sue K said:

    Hi my name is Sue and I live
    Hi my name is Sue and I live in Scotland.
    I was diagnosed with stage 1c grade 3 uterine carsinoma (or MMMT as it is sometimes called). I had radical hysterectomy followed by carbo/taxel chemotherapy, followed by radiotherapy. I finished my treatments last October, and I am now a NED!!
    Unfortunately it's hard to be as happy as I should be at the news that I am clear of cancer, because of the after effects of the treatments - extreme fatigue, and severe joint and muscle pain. I used to be such an active person, doing lots of diy around the house and garden, and long distance hiking with my daughter, but now I find that any sort of exercise makes my pain worse.However I am not giving in to it, and I am walking every day, and doing what I can around the house.
    I was so pleased to discover this forum because I felt that I was alone in suffering these after effects, and my oncologist cannot explain it. Now I realise that there are lots of you out there with the same symptoms, and far worse. It is so very good to 'meet' you all.
    I am 65 years old so have nothing to complain about compared with so many of you young ones - my heart goes out to you all.
    Hugs to you all
    Sue

    hi my name is Laura
    My name is Laura i live in NY and Im 47 years old. I have reading this message board for a while and got a lot of great information from you all that I decided to post today and be a part of this message board. I was diagnosed with uterine cancer stage 3 grade 3c Feb 2010. I currently just finished my third treatment of taxol/carbo with 3 more to go.It seems with each treatment its a little harder to bounce back to feeling normal.Not much of a appitite the first week then I cant stop eating the next two weeks. If this chemo treatment works it will be well worth all the side effects.
    thanks for listening!
    Laura
  • Rribbit
    Rribbit Member Posts: 9
    cathyK said:

    Can we do a ROLL CALL with everyone posting their name,
    hello all
    I am new here, got diagnosed with cervical cancer and was due to have a D and C, the week after this I could not get a hold of the doctor, so got worried and had a second opinion, this time it was worse, the specialist said I had uterine cancer and had to have a total hysterectomy june 15. after the operation was told I have endometrial cancer stage 4 b, and he added that this was the worst he had seen in a while, and survival rate is only 1 to 2 years with chemo. I dont like this diagnosis of course and this has shocked me as I have been a very healthy person.
    after my first chemo treatment july 13th 14th I am feeling healthy with very few side effects. the worst was the white blood cell shot, got very tired and very sore.
    I have been looking for anyone with similar diagnosis who has a success story, and have found none. I am worried about what is coming up. I am on a 21 day chemo schedule, was told over and over again to cut my waist length hair and finally did. it is still intact. wondering if I am just lucky with no side effects or it will get worse after each chemo?
    any help out there?

    Checking in
    Hi Cathy - are you still visiting this site? Just curious where you are in treatment these days. I am one of the few other stage 4's here and, like you, I've found it very hard to find survivors to network with. Would love to hear from you. What histologic type is your cancer by the way?

    I can be reached at [email protected]
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    j1o2y3 said:

    hi my name is Laura
    My name is Laura i live in NY and Im 47 years old. I have reading this message board for a while and got a lot of great information from you all that I decided to post today and be a part of this message board. I was diagnosed with uterine cancer stage 3 grade 3c Feb 2010. I currently just finished my third treatment of taxol/carbo with 3 more to go.It seems with each treatment its a little harder to bounce back to feeling normal.Not much of a appitite the first week then I cant stop eating the next two weeks. If this chemo treatment works it will be well worth all the side effects.
    thanks for listening!
    Laura

    Welcome, Laura! Half way thru your chemo! GREAT!
    You're getting into the harder half of your chemo rounds, so big hugs. ((((Laura)))) Don't be surprised if you need a blood transfusion, or an extra week between treatments, or a Nuelasta shot now as you get into the final stretch of your chemo protocol. It happens to most of us and so don't let it throw you. You're halfway through and the end is in sight now.

    You may want to start a new post with any real questions for the Board. Although this LOOOOONNNNGGGG thread is the most important thread on this board because it is the most comprehensive, it is so huge that it loads very slowly and so you won't have many replies as people give up waiting for it to load. But sometime when you are sleepless, it's a wonderful 'read' that you can think of as a book written just for you and what you are going through. I think this Discussion Board is the best resource on the web for 'real time' current information on uterine cancer.
  • Michaelynn
    Michaelynn Member Posts: 83 Member
    Roll Call
    My name is Michaelynn and I am 59 years old and live in Indiana. Was diagnosed with UPSC in february of 2010. I am stage 1A grade 3C. I was spotting since 2008 and they kept doing ultrasounds saying it was a fibroid. I have had 3 vaginal cuff radiation treatments and am going for my 3rd chemo treatment on July 14th. Anyone else stage 1A grade 3?
  • kansasgal
    kansasgal Member Posts: 121 Member

    Roll Call
    My name is Michaelynn and I am 59 years old and live in Indiana. Was diagnosed with UPSC in february of 2010. I am stage 1A grade 3C. I was spotting since 2008 and they kept doing ultrasounds saying it was a fibroid. I have had 3 vaginal cuff radiation treatments and am going for my 3rd chemo treatment on July 14th. Anyone else stage 1A grade 3?

    Hi, Michaelynn
    I just turned 65 and live in Kansas. I was Dx in April 2009 (following TAH) with 1B grade 2 endometrial cancer and in May 2009 (quality review of slides) with 1A grade 3 UPSC. I had 6 rounds of carbo/taxol 6/09-10/09 and 3 rounds of vaginal brachytherapy 8/09-9/09. I am currently NED and hope to remain that way! Please let me know if you have any questions. My next check-up is late August, and I use my vaginal dilator almost every day.

    Sally
  • Christine W
    Christine W Member Posts: 3
    Roll call, newcomer, Christine
    I see I am responding a year later than the initial roll call. I am posting my profile information and hope to be a long-time participant.
    About Christine W (California, LA area)

    Gender
    female
    Age 55

    How and when did you learn about your cancer?
    After serous fluid leaking for two months I had D&C surgical procedure/biopsy and received cancer diagnosis Jan 2010. February hysterectomy/lymphadenectomy revealed papillary serous and clear cell adenocarcinoma with metastasis to one lymph node. UPSC.

    What types of treatment(s) have occurred?
    Surgical removal of cancer, total hysterectomy. Currently in chemo with carboplatin and Taxol (treatment 6 and last next week). Will be starting pelvic radiation and vaginal cuff brachytherapy within the next two months.

    Comments:
    I have tolerated chemo well and take off 4 days for treatment and rest and then back to work and my excercise program. The Neulasta keeps my WBC count up after every treatment. I am iron deficient and my hemglobin has been low since my surgery last February. So I am taking Slow Fe and eat prunes or fruit to avoid constipation.

    I will be seeing a Radiation Oncologist for a second opinion in 2 weeks since my first consultation recommended 3D pelvic radiation. I want the IMRT. I hope the second opinion will confirm that I am a good candidate for IMRT. I will be getting vaginal cuff brachytherapy no matter what.
  • Angelasmom2
    Angelasmom2 Member Posts: 146

    Hi I'm Deb
    I was diagnosed with Stage IIIC endometrial cancer. Feb 3rd had a total abd hyst and oophorectomy with 25 lymph nodes removed. All 25 tested negative. This past week was my second round of chemo with taxol and carbo via a PICC line. I receive Neulasta 24 hrs after each treatment even before my numbers are known. Once I finish my 6 treatments it will be on to radiation for 5 wks-5 times a week. Then brachy. Not sure how much of that yet. I live in Colorado by way of Boston. My best therapy will be in April when the 4 grandkids from Boston come out to visit Nana. I can not wait!

    my daughter, Angela
    My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda
  • Angelasmom2
    Angelasmom2 Member Posts: 146
    pjk said:

    Gloria -
    I was just diagnosed this month with Grade III uterine cancer. Surgery just was scheduled for June 29. Lots of worries here too. Lots of faith also! We were pretty shocked all last week, but it has settled in more. Now we are ready for the fight. Give yourself a little time. You will settle into the battle too.

    It is hard when you have people like your parents who depend on you. When you feel ready, start reaching out to everyone in your sphere to help you with them. If you can be specific in their needs to the helpers, it works better. I have two elderly parents and three children in my home. My husband is good but he cannot do it all. We need people from the outside to help us too! My pastor says it actually is good for the helpers too.

    My daughter, Angela
    My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda
  • Double Whammy
    Double Whammy Member Posts: 2,832

    my daughter, Angela
    My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda

    California
    Linda -
    I don't have the same diagnosis as either your daughter or her MIL, but I am being cared for at UCDMC also. My hysterectomy was July 1, 2010 and was Stage 1a, Grade 1 endometroid cancer.

    Both of your loved ones are in excellent hands. I retired from there and appreciate the think tank environment and resources available. I'm closeby in Woodland. If you'd like to contact me privately, my email is [email protected]

    Suzanne
  • Double Whammy
    Double Whammy Member Posts: 2,832

    Roll call, newcomer, Christine
    I see I am responding a year later than the initial roll call. I am posting my profile information and hope to be a long-time participant.
    About Christine W (California, LA area)

    Gender
    female
    Age 55

    How and when did you learn about your cancer?
    After serous fluid leaking for two months I had D&C surgical procedure/biopsy and received cancer diagnosis Jan 2010. February hysterectomy/lymphadenectomy revealed papillary serous and clear cell adenocarcinoma with metastasis to one lymph node. UPSC.

    What types of treatment(s) have occurred?
    Surgical removal of cancer, total hysterectomy. Currently in chemo with carboplatin and Taxol (treatment 6 and last next week). Will be starting pelvic radiation and vaginal cuff brachytherapy within the next two months.

    Comments:
    I have tolerated chemo well and take off 4 days for treatment and rest and then back to work and my excercise program. The Neulasta keeps my WBC count up after every treatment. I am iron deficient and my hemglobin has been low since my surgery last February. So I am taking Slow Fe and eat prunes or fruit to avoid constipation.

    I will be seeing a Radiation Oncologist for a second opinion in 2 weeks since my first consultation recommended 3D pelvic radiation. I want the IMRT. I hope the second opinion will confirm that I am a good candidate for IMRT. I will be getting vaginal cuff brachytherapy no matter what.

    Roll call
    Great idea, Christine using the profile information:

    About Suzanne (Woodland, CA), Age 63


    How and when did you learn about your cancer?
    Routine well woman exams (mammogram and Pap smear) prompted further testing. I was diagnosed with both breast and endometrial cancers in late April 2010.


    What types of treatment(s) have occurred?
    On May 11, 2010, I had a lumpectomy and sentinal node biopsy for the breast cancer. Stage I,Grade 2 estrogen positive, progesterone negative, Her2 negative invasive ductal carcinoma, Oncotype DX = 31.

    On July 1, I had DaVinci robotic assisted hysterectomy. Amazing recovery, that's all I can say. Most of my friends who have previously had hysterectomies aren't speaking to me! Cancer was Stage 1a, Grade 1. No adjuvant treatments recommended. Whew.

    I began chemotherapy (Taxotere and Cytoxin) for the breast cancer July 23, 4 sessions 3 weeks apart. Will then do radiation for 6 weeks, then aromatase therapy.


    What have been the most important things that have helped you through your survivorship?
    Being able to communicate with people who understand. If you haven't been through or going through this process, you just don't understand!


    What have you learned from your experiences that you would like to share?
    To "let go and let God"


    Are there positive experiences you would like to share?
    Positive and surprising support from many many friends.


    What else would you like to tell us?
    I'm bothered by why there appears to be so little awareness of gynecologic cancers amongst the general population. Plenty of awareness of breast cancer for which I am not criticizing since I have it, too, but don't see much hype about what symptoms to look for, getting regular exams and why. I got regular exams and both cancers were detected on them, but I had no symptoms of either (postmenopausal bleeding or paplpable breast lump)

    I'm also bothered by the number of individuals (and their surgeons)who go into surgery expecting early stage, non-aggressive cancer and get at "surprise".
  • RachelKass
    RachelKass Member Posts: 3
    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.
  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!
  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!