Moli at another cross roads and mentally crying out loud.
Comments
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Thank you allmolimoli said:AWK Thanks for insight and encouragement.
I have read some of your posts and I cringe at the thought of possible continuous treatment , I can't fathom how your body can stand up to the assault over and over again. You are mighty strong in body and spirit. I admire your will to keep on fighting. May the creator continue to strengthen and guide your path and decisions.
It's been an amazing educational ride with all of you indeed, thanks for the informative posts and the shoulder ,like Cathy my wings are worn,
This cancer diagnosis caused me to see beauty in things I hadn't noticed before. Hope to see much more before iI get really sick.
I am opening my life to all the enriching experiences out there for as long as I can with as many countries and peoples as I can, that is my resolve.
Will update on the 30th when I get my scan result, did it on monday.will see oncologist on 30th. nuff nuff love.
Thank you all for your comments and insight as you respond to each other. I guess I qualify as a lurker, but I so much appreciate what each of you has to offer on this journey and check in to read most every day. Life does take on a new meaning this side of cancer diagnosis, and none of us can truly know what lies ahead. We only have the day and time at hand.
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A warm welcome to our Lurker sister Hopeful.Hopeful162 said:Thank you all
Thank you all for your comments and insight as you respond to each other. I guess I qualify as a lurker, but I so much appreciate what each of you has to offer on this journey and check in to read most every day. Life does take on a new meaning this side of cancer diagnosis, and none of us can truly know what lies ahead. We only have the day and time at hand.
Well said Hopeful , I hope you gain as much as I continue to from this Board, The idea of it was brilliant ,The shared journey
lightens our loads.We must make a resolution to live every day doing things,making plans,laughing ,singing, dancing seeing new things, making new friends,crying out loud when needs be.embracing and feeling the love.
I was a tumble weed when i found this board ,My free fall was stopped by the wonderful ladies here. Thanks to them I am now fully engaged in life,comes what may.
I do have my hiccups as you will, but I have gotten into the habit of walking into the children's hospital which is across the
street from my cancer centre, and always my cup gets suddenly half full., They are infants and young children, I am 62, Thank you my creator, thank you, I like that you gave me notice its all up to me now to savor what's left of me,(Till I tumble again briefly and run to you guys.) as I continue to hope for NED for all cancer suffers and all life threatening disease sufferers. Re-newed courage and a surge of strength I humbly ask for us all,We are a family without bloodline,but still a wonderful family,Keeping hope alive , nuff nuff love.
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THANKFULmolimoli said:A warm welcome to our Lurker sister Hopeful.
Well said Hopeful , I hope you gain as much as I continue to from this Board, The idea of it was brilliant ,The shared journey
lightens our loads.We must make a resolution to live every day doing things,making plans,laughing ,singing, dancing seeing new things, making new friends,crying out loud when needs be.embracing and feeling the love.
I was a tumble weed when i found this board ,My free fall was stopped by the wonderful ladies here. Thanks to them I am now fully engaged in life,comes what may.
I do have my hiccups as you will, but I have gotten into the habit of walking into the children's hospital which is across the
street from my cancer centre, and always my cup gets suddenly half full., They are infants and young children, I am 62, Thank you my creator, thank you, I like that you gave me notice its all up to me now to savor what's left of me,(Till I tumble again briefly and run to you guys.) as I continue to hope for NED for all cancer suffers and all life threatening disease sufferers. Re-newed courage and a surge of strength I humbly ask for us all,We are a family without bloodline,but still a wonderful family,Keeping hope alive , nuff nuff love.
After reading many of the posts over, I feel I'm starting to get to know you wonderful ladies. Life is really tough sometimes and dealing with the recurring cancers and problems that come with them can really get us down. Just when I thought I had this cancer beat, it shows up in my lungs. Having to go back into chemo was probably one of the hardest things I've done. I survived it...again. I almost felt like I was a pro ... losing the hair, sewing more chemo caps .... sharing with "newbies" in the chemo room. The chemo was worse on my body, but I had the wonderful gift of being able to rest whenever I needed too. A blessing that I know many don't have...those with jobs and/or children to take care of. That part is over, now I'm on letrozole/Femara and that med presents a whole other set of issues to deal with. Overall, I'm thankful to still be around, treatments have gone well. I have some great docs and support. One of my pastors once told me "what ever God doesn't deliver you from, He will go through with you". I'm so thankful this morning. Have a great weekend.
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Thank you for all your support!mamamoody said:THANKFUL
After reading many of the posts over, I feel I'm starting to get to know you wonderful ladies. Life is really tough sometimes and dealing with the recurring cancers and problems that come with them can really get us down. Just when I thought I had this cancer beat, it shows up in my lungs. Having to go back into chemo was probably one of the hardest things I've done. I survived it...again. I almost felt like I was a pro ... losing the hair, sewing more chemo caps .... sharing with "newbies" in the chemo room. The chemo was worse on my body, but I had the wonderful gift of being able to rest whenever I needed too. A blessing that I know many don't have...those with jobs and/or children to take care of. That part is over, now I'm on letrozole/Femara and that med presents a whole other set of issues to deal with. Overall, I'm thankful to still be around, treatments have gone well. I have some great docs and support. One of my pastors once told me "what ever God doesn't deliver you from, He will go through with you". I'm so thankful this morning. Have a great weekend.
Connie, Debra, Moli and AWK, I just want to say thank you for all of your support. I am feeling much better now than I was feeling since I saw my Gyne Onc earlier in the month. I am usually an up-beat type of person and so being depressed is not my normal state of mind. However, having said that, I recognize that I probably ought to be on an anti-depressant medication. It is ridiculous to be suffering. I hope all of you on this Board have a great day!
Cathy
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We go through so much mentally and physically.Abbycat2 said:Thank you for all your support!
Connie, Debra, Moli and AWK, I just want to say thank you for all of your support. I am feeling much better now than I was feeling since I saw my Gyne Onc earlier in the month. I am usually an up-beat type of person and so being depressed is not my normal state of mind. However, having said that, I recognize that I probably ought to be on an anti-depressant medication. It is ridiculous to be suffering. I hope all of you on this Board have a great day!
Cathy
Last fall I went on an anti depressent and it was the smartest thing I have done. I was very resistant to it and am not sure why in looking back. Hugs! Anne
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None of us can boast, normal state of mind.its not doable.Abbycat2 said:Thank you for all your support!
Connie, Debra, Moli and AWK, I just want to say thank you for all of your support. I am feeling much better now than I was feeling since I saw my Gyne Onc earlier in the month. I am usually an up-beat type of person and so being depressed is not my normal state of mind. However, having said that, I recognize that I probably ought to be on an anti-depressant medication. It is ridiculous to be suffering. I hope all of you on this Board have a great day!
Cathy
Cathy you are our loved sister, you are not heavy ,we don't mind catching your periodic tumble, no one is counting tumbles , no one will let you fall, Just voice it ( in writing) when you feel it ,how you feel it, You don't have to dress it up ,it doesn't have to be pretty, nothing about cancer is pretty. we will all make acquaintances with depression in one or all of its forms as we wrestle with this s..t Just cry out LOUD whenever. some one here will have been there ,done that, I guarantee understanding from this board.
Re; anti-depressant ,if it lifts your spirit a huge part of your battle will be won, If you find it is only keeping company with misery, you can always let it go , that you can assess and control, only if you try, good luck..
I am hugging, nuff love. Moli.
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Cathy, all the ladies youAbbycat2 said:Oh, dear Lord!
I am more spiritual then some, less than others. I have not posted in a while- oh, no, it is for reasons that perhaps you may not realise. It is because I sometimes am too busy grieving for you among us with the heaviest burdens to cope with! My heart is just breaking and I am at a loss for words. My soul aches for you, Debra and you, Ro, and you Anne (AWK) and Molimoli and Kathy G. And my soul aches for me , as well, as I am well aware of how precarious my life is. I only have a small inkling as to how I personally got here. With sooooo much CA in my ancestry it is not a surprise. But really, how did someone like myself - an athlete in great health - get dealt this card??! I did everything right - great health, normal BMI- and yet here I am. And so I grieve. My onc gyne told me last week that my quality of life will remain "reasonable" for perhaps 2 years or so. OMG-THEN WHAT?? Oh, dear Lord, I am scared to death! Each day feels like I've received both a blessing and also a curse. Each day brings me closer to my demise. Forgive me for my personal anguish . I am just not ready to lose any of you fine women to this horrible disease. And I am not ready to release my life either.
I pray that each of you find joy in each day and quiet moments of peace.
((((Hugs)))) to each of you,
Cathy
Cathy, all the ladies you mentioned, including you, are such lights in all this darkness. We all need to take a break and I think everyone understands. I simply could not accept you can die from any of this, so when I first found this site I simply skipped those posts and jumped around. Like many women, I read and rarely posted. I was there, I was praying for everyone, but no one knew I was here. All, of which, is ok.
From what I have seen you are living each and every day. There is no guarantee of tomorrow for healthy people let alone us. We have been shown how precious life is. Some people live their entire lives and never know that gem.
A woman I work with sat in my office after her diagnosis and said, "I don't want to die". Not everyone can say "I understand" and truly mean it and understand where they are at mentally.
Take a breathe and know that you are loved by many. Getting a little help is not a bad idea.
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New scan / update
Hello my sisters, Good morning, This is a new pit stop on my journey,
THORAX
Scan report : There is no nodal enlargement
The pleural surfaces are clear
The central airways are clear
The right lung shows no interval change
The Left lung shows no interval change
No interval change is demonstrated
There is no evidence for intrathoracic metastatic disease.
PELVIS : No liver mass, pancreas,spleen,adrenal glands and kidneys are normal, no hydronephrosis ,no lymphadenopathy.
Impression The two Nodules in the anterior pelvis are larger in keeping with progression. measuring 5.7 x 4.9 (was 3.7 x3.4)
) 3.6 x2.6 (was 3x.2. 2)
That's the report, I did not get to see my usual oncologist she sent her fellow to talk to me as they sometimes do . The fellow doctor started off by telling me that "You have many small tumors and 2 large one and we think you must have chemotherapy ,we have to start asap." I asked her where the many small ones are she couldnt tell me ,I immediately knew that her job is to frighten me into chemo, I felt Dis-appointed that a doctor would bear false news to have their program fed . I immediately asked for the oncologist to see me as I needed to discuss surgery ,I knew she was in the unit ,the fellow offered to relay my message to her . The fellow returned to say the oncologist was busy and that they run a chemo clinic and since it is obvious that I am not signing up today they can't do anything for me until then,I asked her to transfer my file to the surgical oncologist that had offered to review and possibly do surgery if there are no other masses found. I again asked where the other many masses are,again the question was side swiped. not a good sign for me, an obvious sales pitch,I asked the success rate that she has seen from the treatment proposed, she said " 25 % will gain average 6 months of ned,75 % we are failing as they will progress through treatment with this kind of cancer ,all over the world " for that reason I am out so I told her that at this time my answer is still no to chemo and thanks for transferring my file to the surgeon, She was not pleased at all but neither was I.,so we are even, I fully understand that my oncologist is the head of the chemo dept,is very brilliant with good bedside manners and experienced but chemo is the business they run,and chemo is the brute I am running from. until such time that it catches me by default.
Before leaving the Hospital I obtained a copy of the report and nothing in it stated that I had MANY ANYTHING. and I am a lot annoyed at the tatics for its smell of dishonesty.
My appt. with surgeon is on the 14th so i'll see. If she can't or won't take the 2 masses before they start compramising other structures I will go hunting for a good surgeon in another hosp., we have many good cancer surgeon and centers in this country. I am on team Moli, So my sisters ,how do you suppose I can keep the new masses away for now? any suggestions welcome.
I repeat ,We are all different people and my decisions on treatment doesn't mean yours is wrong ,I may be dead wrong (literally ) but I will be doing the rest of my life my way , Informed, stepping out of the box, opening my mind , living and fighting..
Impression : There is no strong evidence for intrathoracic Metastatic disease.
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You go girl!molimoli said:New scan / update
Hello my sisters, Good morning, This is a new pit stop on my journey,
THORAX
Scan report : There is no nodal enlargement
The pleural surfaces are clear
The central airways are clear
The right lung shows no interval change
The Left lung shows no interval change
No interval change is demonstrated
There is no evidence for intrathoracic metastatic disease.
PELVIS : No liver mass, pancreas,spleen,adrenal glands and kidneys are normal, no hydronephrosis ,no lymphadenopathy.
Impression The two Nodules in the anterior pelvis are larger in keeping with progression. measuring 5.7 x 4.9 (was 3.7 x3.4)
) 3.6 x2.6 (was 3x.2. 2)
That's the report, I did not get to see my usual oncologist she sent her fellow to talk to me as they sometimes do . The fellow doctor started off by telling me that "You have many small tumors and 2 large one and we think you must have chemotherapy ,we have to start asap." I asked her where the many small ones are she couldnt tell me ,I immediately knew that her job is to frighten me into chemo, I felt Dis-appointed that a doctor would bear false news to have their program fed . I immediately asked for the oncologist to see me as I needed to discuss surgery ,I knew she was in the unit ,the fellow offered to relay my message to her . The fellow returned to say the oncologist was busy and that they run a chemo clinic and since it is obvious that I am not signing up today they can't do anything for me until then,I asked her to transfer my file to the surgical oncologist that had offered to review and possibly do surgery if there are no other masses found. I again asked where the other many masses are,again the question was side swiped. not a good sign for me, an obvious sales pitch,I asked the success rate that she has seen from the treatment proposed, she said " 25 % will gain average 6 months of ned,75 % we are failing as they will progress through treatment with this kind of cancer ,all over the world " for that reason I am out so I told her that at this time my answer is still no to chemo and thanks for transferring my file to the surgeon, She was not pleased at all but neither was I.,so we are even, I fully understand that my oncologist is the head of the chemo dept,is very brilliant with good bedside manners and experienced but chemo is the business they run,and chemo is the brute I am running from. until such time that it catches me by default.
Before leaving the Hospital I obtained a copy of the report and nothing in it stated that I had MANY ANYTHING. and I am a lot annoyed at the tatics for its smell of dishonesty.
My appt. with surgeon is on the 14th so i'll see. If she can't or won't take the 2 masses before they start compramising other structures I will go hunting for a good surgeon in another hosp., we have many good cancer surgeon and centers in this country. I am on team Moli, So my sisters ,how do you suppose I can keep the new masses away for now? any suggestions welcome.
I repeat ,We are all different people and my decisions on treatment doesn't mean yours is wrong ,I may be dead wrong (literally ) but I will be doing the rest of my life my way , Informed, stepping out of the box, opening my mind , living and fighting..
Impression : There is no strong evidence for intrathoracic Metastatic disease.
I am so proud of you for standing up for yourself and not being steamrollered.
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Moli, your story sounds verymolimoli said:New scan / update
Hello my sisters, Good morning, This is a new pit stop on my journey,
THORAX
Scan report : There is no nodal enlargement
The pleural surfaces are clear
The central airways are clear
The right lung shows no interval change
The Left lung shows no interval change
No interval change is demonstrated
There is no evidence for intrathoracic metastatic disease.
PELVIS : No liver mass, pancreas,spleen,adrenal glands and kidneys are normal, no hydronephrosis ,no lymphadenopathy.
Impression The two Nodules in the anterior pelvis are larger in keeping with progression. measuring 5.7 x 4.9 (was 3.7 x3.4)
) 3.6 x2.6 (was 3x.2. 2)
That's the report, I did not get to see my usual oncologist she sent her fellow to talk to me as they sometimes do . The fellow doctor started off by telling me that "You have many small tumors and 2 large one and we think you must have chemotherapy ,we have to start asap." I asked her where the many small ones are she couldnt tell me ,I immediately knew that her job is to frighten me into chemo, I felt Dis-appointed that a doctor would bear false news to have their program fed . I immediately asked for the oncologist to see me as I needed to discuss surgery ,I knew she was in the unit ,the fellow offered to relay my message to her . The fellow returned to say the oncologist was busy and that they run a chemo clinic and since it is obvious that I am not signing up today they can't do anything for me until then,I asked her to transfer my file to the surgical oncologist that had offered to review and possibly do surgery if there are no other masses found. I again asked where the other many masses are,again the question was side swiped. not a good sign for me, an obvious sales pitch,I asked the success rate that she has seen from the treatment proposed, she said " 25 % will gain average 6 months of ned,75 % we are failing as they will progress through treatment with this kind of cancer ,all over the world " for that reason I am out so I told her that at this time my answer is still no to chemo and thanks for transferring my file to the surgeon, She was not pleased at all but neither was I.,so we are even, I fully understand that my oncologist is the head of the chemo dept,is very brilliant with good bedside manners and experienced but chemo is the business they run,and chemo is the brute I am running from. until such time that it catches me by default.
Before leaving the Hospital I obtained a copy of the report and nothing in it stated that I had MANY ANYTHING. and I am a lot annoyed at the tatics for its smell of dishonesty.
My appt. with surgeon is on the 14th so i'll see. If she can't or won't take the 2 masses before they start compramising other structures I will go hunting for a good surgeon in another hosp., we have many good cancer surgeon and centers in this country. I am on team Moli, So my sisters ,how do you suppose I can keep the new masses away for now? any suggestions welcome.
I repeat ,We are all different people and my decisions on treatment doesn't mean yours is wrong ,I may be dead wrong (literally ) but I will be doing the rest of my life my way , Informed, stepping out of the box, opening my mind , living and fighting..
Impression : There is no strong evidence for intrathoracic Metastatic disease.
Moli, your story sounds very much like chemo thinking they are the only way to help you, which is very offensive.
GOOD FOR YOU to standing up and not taking that. It is your body, your life. I think they are so used to people who will just accept it and not question their prescription.
Doctors need to tell us everything. We are not stupid. We will make decisions for ourselves.
I am reading, The Emporer of All Maladies, and it amazes me how cancer treatment has developed. How the surgeons thought cutting more was the cure, and more, and that they were "superior" to the chemotherapists and the possibilities that could do. They were so closed mind to an overall plan. And for most of us - this is within our lifetimes. 1973!
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Book suggestionmolimoli said:New scan / update
Hello my sisters, Good morning, This is a new pit stop on my journey,
THORAX
Scan report : There is no nodal enlargement
The pleural surfaces are clear
The central airways are clear
The right lung shows no interval change
The Left lung shows no interval change
No interval change is demonstrated
There is no evidence for intrathoracic metastatic disease.
PELVIS : No liver mass, pancreas,spleen,adrenal glands and kidneys are normal, no hydronephrosis ,no lymphadenopathy.
Impression The two Nodules in the anterior pelvis are larger in keeping with progression. measuring 5.7 x 4.9 (was 3.7 x3.4)
) 3.6 x2.6 (was 3x.2. 2)
That's the report, I did not get to see my usual oncologist she sent her fellow to talk to me as they sometimes do . The fellow doctor started off by telling me that "You have many small tumors and 2 large one and we think you must have chemotherapy ,we have to start asap." I asked her where the many small ones are she couldnt tell me ,I immediately knew that her job is to frighten me into chemo, I felt Dis-appointed that a doctor would bear false news to have their program fed . I immediately asked for the oncologist to see me as I needed to discuss surgery ,I knew she was in the unit ,the fellow offered to relay my message to her . The fellow returned to say the oncologist was busy and that they run a chemo clinic and since it is obvious that I am not signing up today they can't do anything for me until then,I asked her to transfer my file to the surgical oncologist that had offered to review and possibly do surgery if there are no other masses found. I again asked where the other many masses are,again the question was side swiped. not a good sign for me, an obvious sales pitch,I asked the success rate that she has seen from the treatment proposed, she said " 25 % will gain average 6 months of ned,75 % we are failing as they will progress through treatment with this kind of cancer ,all over the world " for that reason I am out so I told her that at this time my answer is still no to chemo and thanks for transferring my file to the surgeon, She was not pleased at all but neither was I.,so we are even, I fully understand that my oncologist is the head of the chemo dept,is very brilliant with good bedside manners and experienced but chemo is the business they run,and chemo is the brute I am running from. until such time that it catches me by default.
Before leaving the Hospital I obtained a copy of the report and nothing in it stated that I had MANY ANYTHING. and I am a lot annoyed at the tatics for its smell of dishonesty.
My appt. with surgeon is on the 14th so i'll see. If she can't or won't take the 2 masses before they start compramising other structures I will go hunting for a good surgeon in another hosp., we have many good cancer surgeon and centers in this country. I am on team Moli, So my sisters ,how do you suppose I can keep the new masses away for now? any suggestions welcome.
I repeat ,We are all different people and my decisions on treatment doesn't mean yours is wrong ,I may be dead wrong (literally ) but I will be doing the rest of my life my way , Informed, stepping out of the box, opening my mind , living and fighting..
Impression : There is no strong evidence for intrathoracic Metastatic disease.
Moli, if you haven't read Anti-Cancer, A New Way of Life, by David Servan-Schreiber, you might find it helpful with all kinds of suggestions for inhibiting tumor progression. I found it to be very readable with lots of good information.
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Thanks for suggestion.Hopeful162 said:Book suggestion
Moli, if you haven't read Anti-Cancer, A New Way of Life, by David Servan-Schreiber, you might find it helpful with all kinds of suggestions for inhibiting tumor progression. I found it to be very readable with lots of good information.
Hopeful, yes I have heard of it, my girlfriend read and suggested it , I will pick it up tomorrow ,I am committed to finding a back door to do cancer my way ,comes what may. all suggestions are welcome. Thanks.
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Yamster34, I kinda knew I'd have your support,Thanks.yamster34 said:I agree with doing things on
I agree with doing things on your terms! We should make decisions based on being informed, not based on fear. Stick to your decision and may you be comfortable and at peace with whatever happens.
Amy
I hereby declare that I have taken responsibility for my past,do take responsibility for my now and is solely responsible for my tomorrow, I will be at peace with the outcome.
I got this Terminal Cancer but not because of any of my actions. I will live with cancer,or cancer will leave me ,or, I will leave cancer and it will certainly be completely because of my actions. That's my promise and agreement with self. I am keeping it.
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NoTimeForCancer, Yes they do think so.NoTimeForCancer said:Moli, your story sounds very
Moli, your story sounds very much like chemo thinking they are the only way to help you, which is very offensive.
GOOD FOR YOU to standing up and not taking that. It is your body, your life. I think they are so used to people who will just accept it and not question their prescription.
Doctors need to tell us everything. We are not stupid. We will make decisions for ourselves.
I am reading, The Emporer of All Maladies, and it amazes me how cancer treatment has developed. How the surgeons thought cutting more was the cure, and more, and that they were "superior" to the chemotherapists and the possibilities that could do. They were so closed mind to an overall plan. And for most of us - this is within our lifetimes. 1973!
I have found that Doctors that specializes in Cancer care are blinded to any other possibilities of treating cancer but chemo or radiation,,they have invested so much study time and money in these two agents that they cannot make themselves accept that some kinds of cancers are very resistant to these drugs,they fear the feeling or knowledge of failure so they continue with the samo--samo with no expected outcome, They administer and then see and deal with what happens, sometimes with devastating side effects.
On the other hand the drug companies are so heavily financially invested in these cancer research centres and hospitals that the doubtful doctors would be commiting professional suicide to say "Ok guys for (some) cancers we are beating these two dead horses for far too long,lets research some of the other drug combinations that we have been ignoring from other companies and sources, lets pressure the FDA and the powers that be to approve the hundreds of drugs on hold for approval " They simply can't say that, they don't dare,so they remain powerless and voiceless against these companies and have no choice but to give us all the samo samo ,with its poor or none performance , So sad. I have always believed this fact even before cancer found me.and have always thought it to be an awful travesty at the expense of fear filled cancer sufferers..We must take our chances for or against as individuals but full disclosure re: side effects and honest expected outcome must be discussed ,so we can decide if the reprieve is worth the side effects , I am convinced that most people have no clue of the side effects , mild or harsh before they say yes. Yesterday I read an honest oncologist findings on ovarian/ upsc cancer treatment and I am further resolved to do surgery and or other treatment only.
Ladies please remember ,these opinions are my own and must not be used to make your decision, we will all be sorry or glad that we have made certain decisions. I have made mine partly because of journeys I have been on with cancer sufferers , I read a lot about cancer and treatments over the years, in an attempt to help them understand and navigate their journey. however,I am only 1year and 6 months fameliar with UPSC , read a lot and talked to several doctors about it
Talked to several sufferers of it . Read hundreds of posts on this board about it ,analized it all , thus my decision. I have nothing against chemo for anyone but myself for the added risk I expect more from it. I will form no judgement on anyone who chose this treatment, we are all just trying to do thhe best we can for our own self preservation. Yes thats what warriors do and there are many ways to fight . Keeping hope alive,nuff nuff Love my sisters . May the creator shelter us fom this storm , Have a wonderful 'I Love Me Despite Cancer' weekend Moli.
The Doctors are trapped and we are trapped,God help us all.
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I am hoping for honest open dialogue With our care providersConnieSW said:You go girl!
I am so proud of you for standing up for yourself and not being steamrollered.
,ConnieSW Thanks for the support, I will be very busy finding other weapons to fight cancer with , that won't stab me in the back , I may be wrong,very wrong, but I feel right,very right. I wont be treated like a product on a conveyor belt if I can help it.There may come a time when doctors will have all the say but thanks to the creator the time is not now.until then I will have a lot to say about my care plan.. I am forever grateful for the support that you ladies on this board has given me , even when my decisions are unpopular , Showers of blessings and a stress free weekend.
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Moli,
Your post about themMoli,
Your post about them basically trying to sell you chemo was a real eye opener for me. I have shared I was blessed as I did not need any further treatment after my surgery, and therefore never faced w/this issue.
Maybe I am just stupid...I know doctors are hand in glove w/pharmaceutical reps & push pill prescriptions, but the thought never occurred to me they would do the same w/chemo. To me, that is such a travesty...I cannot even begin to express how it makes me feel! It is like the funeral homes who gouge ppl who did not prepare or pre-plan...taking advantage of those in the deepest depths of despair!
I just can't wrap my head around this, but I am so proud of you for being so assertive about your health & choices. However, it just breaks my heart to hear you or any of our other sisters be put in this position!
You did a major service to all who read your posts...we know there are many lurkers who like me may not have had this valuable information.
Thank you for sharing this & I continue to pray for you.
Kathy
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Moli is braveKathy G. said:Moli,
Your post about themMoli,
Your post about them basically trying to sell you chemo was a real eye opener for me. I have shared I was blessed as I did not need any further treatment after my surgery, and therefore never faced w/this issue.
Maybe I am just stupid...I know doctors are hand in glove w/pharmaceutical reps & push pill prescriptions, but the thought never occurred to me they would do the same w/chemo. To me, that is such a travesty...I cannot even begin to express how it makes me feel! It is like the funeral homes who gouge ppl who did not prepare or pre-plan...taking advantage of those in the deepest depths of despair!
I just can't wrap my head around this, but I am so proud of you for being so assertive about your health & choices. However, it just breaks my heart to hear you or any of our other sisters be put in this position!
You did a major service to all who read your posts...we know there are many lurkers who like me may not have had this valuable information.
Thank you for sharing this & I continue to pray for you.
Kathy
Believe it in or not I started chemo on June 17.
Today I noticed my hair started to fall...
Yeah,such a journey we have.
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Kathy G.Thanks for the well wishes and prayers becauseKathy G. said:Moli,
Your post about themMoli,
Your post about them basically trying to sell you chemo was a real eye opener for me. I have shared I was blessed as I did not need any further treatment after my surgery, and therefore never faced w/this issue.
Maybe I am just stupid...I know doctors are hand in glove w/pharmaceutical reps & push pill prescriptions, but the thought never occurred to me they would do the same w/chemo. To me, that is such a travesty...I cannot even begin to express how it makes me feel! It is like the funeral homes who gouge ppl who did not prepare or pre-plan...taking advantage of those in the deepest depths of despair!
I just can't wrap my head around this, but I am so proud of you for being so assertive about your health & choices. However, it just breaks my heart to hear you or any of our other sisters be put in this position!
You did a major service to all who read your posts...we know there are many lurkers who like me may not have had this valuable information.
Thank you for sharing this & I continue to pray for you.
Kathy
I am going out on a slimber limb without a net , I'll need showers of blessings all day every day.So don't any of you renege on the prayers , I need it in a bad way.
When I was young and was defiant with my mother,she would roll her eyes, look at me with a certain knowing look as if she got the answer to something ,point at me and blurt out loud "YOU NEED JESUS " She was right then but I only know it now,for sure. R.I.P Mama G. I get it.
Kathy, nothing Happens in health care without the say so and the go ahead of the multi billion dollar corperations saying so , They won't ever be willing to let any one else in ,Small Pharmaceutical research companies with brilliant scientists from all over the world is constantly petitioning and submitting new promising drugs for cancer and all kinds of illnesses to the FDA but they are not given the light of day.not even permission to run a trial with willing participants . Why? Because money talks and talks and won't shut up. No one wants to see their kick backs eliminated because they allow a newbie with promising or God forbid positive alternative on the block, no one. Think about it.
UPSC has been around and recognized as different for many years yet we are still piggy backing on ovarian cancer so-so treatment, Why, because we are too small in numbers , too distressed about our plight , too timid to upset the applecart of the very people we rely on for treatment to cry out loud enough to be heard. so they dont have to do thousands of clinical trials for us with new manufacturers when they can just sell us what they already have,Chemo and Radiation combination that is woefully lacking for most.
Oh what a beautiful thought I am thinking,That one day UPSC and all other uterine cancers will be as important as breast and heart or even just as important as damn acne, for crying out loud I am mad as hell. Nuff love ladies ,I am too pumped so I better go to bed, Yes I need Jesus,
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