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update (I'm done with military docs)
OK here's what happened. (long) Last night me and my husband were looking online at the military hospitals that treat cancer and there are 2 in my area. Lombardi & Johns Hopkins are the best though so we thought maybe they would just refer you to them after they diagnose. WRONG! With my health insurance (tricare prime)they…
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attn Musiclover
Hi: I was reading the posts after I sent you an email..was Mark able to go on the trial?? Everyones suggestions on your posts were great: perhaps I can add 1) acupuncture for pain (in addition to as many non drowsy pain meds as he can handle) 2) boost/ensure to gain weight (even just sips as Mark can handle) 3) read the…
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Update
First let me begin by saying that I had a wonderful time Sat . at our mini Palooza . It was great to get a chance to meet everyone .Jerseysue Thanks so much for coming out here and making this all happen . A big thanks to your Sister for picking me up . Sue, Suzanne , Kerry , Kay and Jana I had a wonderful time and made my…
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How long to heal from Liver resection
Hi all, I was wondering how long it took to completely heal from liver resection. Mine was done almost exactly a year ago. My scars are still a little sensitive and I have always felt some weird dull pains in the liver area. Anyone else experience this? I'm actually getting seeing Oncologist today for check-up and I will…
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to do or not to do? colostomy
Hi to everyone on the board. I have responded to several post on the board in the past but now I need some advice. For those of you who don't know me, I'm a stage 4 with liver mets survivor. I was dx in Nov 03, had colon resection in Dec 03 and first liver resection in Jan 04. Here's my problem (I wonder if I should even…
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Radiation
I am Stage IV with mets to the liver hoping for a liver resection (need slight shrinkage). It was decided that I would not have radiation due to the fact that since the disease had spread, and radiation only targets one area, that it would not be adviceable to do radiation on me. Of course, since I am no longer the proud…
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Spongebob, (thank you :)
I posted a long message to you but I replied on my other message 3 pages back! I thought once you posted a message it bumped it to the top, oops! Please read (and anyone else) thanks Lucky
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Dilaudid vs morphine 4 bad pain
any one out there use dilaudid? i'm here with mark and he's suffering from back pain. the tylenol is not working. he's very concerned about becoming addicted to drugs. he's compromised - has no appetite. morphine in the past made him nauseus and he quickly became dependant, actually went through withdrawls after just a few…
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Mark can't eat - Doctors putting him on chemo anyway. Need input.
Mark's trial is starting Tuesday. Last Wednesday the doc said he had to gain weight or he'd be off the trial. He's been feeling like crap for days with constant back pain and nausea. Still he's been making an effort to eat. Thursday he had both a CT scan AND a PET scan. That is a lot of radioactive fluid to consume not to…
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I'm new and scared
Hi everyone, I'm 37. Call me Lucky. Wish we could be meeting under better circumstances but oh well. I am on the long road to just getting diagnosed! I am beyond frustrated at this point. It all started in 2001 and I still do not have a reason for the lower left sided pain and weight loss. They did a ct scan and I have a…
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Attitude
I've posted this before, but there are so many newbies on here that I thought I'd run it by again. It was one of the things that really helped me and continues to. jams ATTITUDE There once was a woman who woke up one morning, looked in the mirror, and noticed she had only three hairs on her head. "Well," she said, "I think…
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Frantic - need support/advice
My dad was diagnosed in 5/02 with stage IV colon cancer. We have had severl surgeries and ablations. Until Sept. 06, his cea level never went above 17. Out of no where, it went from 3.9 to 55.1 in one month. Pet scan showed multiple spots (not very sure about this - conflicting opinion between onc and radilogist if all…
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Help for blockages
Hi everyone! It has been a couple of years since I've visited this site, and I've missed it! I first posted when my mom was diagnosed with Stage IV colon cancer in 2003. You were all so helpful and encouraging, and I can't thank you enough. I'm here again for more advice from the experts. My mother is doing well except for…
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Genetic testing anyone????
My oncologist is suggesting genetic testing due to my age (32). I met with a genetic counselor and he also agrees. Colon and reproductive cancers seem to be hitting the females on my father's side. Those of you who had the testing, was it worth it???? Do you feel better knowing the results??? I am unable to have children…
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hello semi's
well finally i am starting to feel myself. surgery was 9 1/2 hrs, rough recovery. pain was bad couldn't use morphine drip. came home xmas day a blessing. still can't lay on sides so i lay on my back. i am sorry i have not been posting but i did read some. happy new year to all. let's keep slaying the dragon. this is our…
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Waiting for surgery making me crazy!!!
Hello everyone.... 32 year old/ stage III rectal cancer. Diagnosed September 18. Started 5FU and radiation on October 23/finished December 1st. Surgeon wanted to give me plenty of time to heal. I am seeing him this week to set a surgery date. He is shooting for end of January beginning of February. Does 8 weeks seem like a…
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Riddle....
What is better than "Paris in the Springtime"? What is better than the Rockettes @ Christmas? What was better than finding the prize in the box of cereal before your sibling did when you were younger? (even though you cheated by setting your alarm earlier than he did but nobody ever found out and your therapist is sworn to…
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newbie here
Hi I'm Sally and Im 32 yrs old and live in Fl. I started chemo at the end of Sept. I just wanted to say hello and that i'm very happy to have found this place.. Sally
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DANCING WITH NED!
Saw my oncologists this morning and got the results from my CT scans. "No evidence of metastatic disease" in the lungs, abdomen or pelvis. The two spots in my liver remain unchanged and they still suspect both to be fatty cysts. They'll do another scan in July (along with colonoscopy). My bloodwork was all normal. The CEA…
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Colostomy Fear
Dear Friends: I just got back from a check-up and the PET scan showed that my rectum lit up. (The rectum was the site of my primary tumor, which we thought resolved completely using chemo only.) I go back to MDAnderson in late January for another CAT scan & flex sigmoidoscopy. And my CEA is less than 1. Now I'm frantic…
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hairloss
This may just be me being vain.. But whats the best way to deal wth the hairloss thing. My hair is thining really bad. And is causing me to get depressed. Would it just be better/easier to just crew cut it and have it be done with. Or just keep watching it come out 30 strands everytime I touch or brush it? I would be…
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The Beast Claimed Secret Santa
Kansas City's Secret Santa made the national news in November when he revealed his identity. He was a millionaire who gave $1.3 million over 25 years or so to needy individuals selected at random. Tonight he died of esophageal cancer. He looked so healthy on TV right before Christmas. I had followed his story over the…
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Thank you
Thank you all...See, I'm already feeling better. You are all a balm to my anxious mind. I really appreciate all you've done for me. Ying, I have read Andrew Weil's book, but it was a long time ago. Long before I was diagnosed. I will have to pull it out again. Mary
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unbelievable and so sad
i work for the visiting nurses and our agency does iv cases. whenever i see orders for 5fu i take a closer look at the details. today we got oders for 5fu for a patient referred to us by chop (children's hospital of philadelphia). the patient is a 15 year old CHILD who's being treated for a recurrence of colon cancer. he…
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Something is brewing...
Hmmm.....I can't place my finger on it, but something is brewing.... Something is in the making.... Something bigger than big is getting planned.... Details to follow.... Hmmmmmmmmm.....stay tuned.......(wink!) Stacy P.S. Ever notice how beer makes one write strange postings on Cancer Survivor Web Sites???
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Thank you, my family
Thank you all for your warm thoughts and prayers. I am keeping busy, getting things settled, and replaying the fond memories of my daughter. When she was 'on', she was the kindest, most gentle person. I was not going to have any memorial, but then I realized I am not the only one who should be allowed to let go of their…
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Palooza Newza!
Happy 2007 everyone!!! With the new year slowly beginning to unfold, and an influx of "newbies" on the site, I feel the need to discuss something very important to everyone. It's a little event we call COLON PALOOZAS! Our colon cancer survivors and caregivers have grown into a closely-knit group of folks who decided many…
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e-mail problem?
Has anyone experienced problem with your E-mails today? I have one message waiting and can not go there.
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Bad naseau with any eating - what is this??
Mark over the past three weeks is becoming naseus after eating anything and everything. This, of course, makes him not want to eat. He literally is forcing himself and he's lost more weight, something he can't afford to lose. He though in the beginning he had the stomach flu - several of his friends had it. Now it's been…
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VERY IMPORTANT - Colon Prep
I am scheduled to have my first colonoscopy on Friday, 12 January 07 with the surgeon who performed my surgery to remove the cancer tumor. He is not a GI Doc. I say my GI Doc yesterday and discussed many issues with him regarding my case including my first colonoscopy. One main question was the prep my surgeon recommeded,…