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Work for a cancer non-profit
Does anyone here work for a cancer-related non-profit group or know someone who does? I ask because I'd like to learn more about what it's like to work for such a non-profit. I'm interested in working at least part-time to use my skills to help others with cancer. I don't have any medical training, so there really isn't…
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How to avoid ascites, or avoid it growing
Any medicines to avoid ascites growing? I read take less water, make liver and kidney tests, anything else? many thanks
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Stage4 trouble postoperative resection
I had 18 inches of colon removed where ascending and transverse colon meet on May 13. I went home 2 1/2 days later. doctor said he has done these for 26 years and I recovered better than anyone he has seen.a little sore but I felt great.i could eat anything with out getting sick. I had solid stools in just a few days.but…
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Did you have IBS before diagnosis?
This has probably been addressed before but I'm terrible at searching. How many of you had IBS before you were diagnosed with colon cancer? I'd read years ago that IBS sufferers have a 65% higher chance of getting colon cancer so I'm curious what the percentage is on here. Also, I was told mine was likely a polyp that went…
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Our Craig...
Dear friends, It is with a very sad and heavy heart that I must inform you that our dear Craig has passed. Kim was so very pleased that so many of his friends were able to post such lovely heartfelt messages to honor her husband. She wanted me to tell you that she read all of the notes to Craig before he passed, and he…
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Update - ct scan and cea
Hi all my dad was due for a ct scan after 3 chemo rounds . However he's ended up in hosp with bowel inflammation . He's on antibiotics and biwelnus rejecting food . It's horrible ! anyway ct scan showed no new mets, few nodules stable but growth in liver mets . The weird thing is cea is going down each cycle but yet the…
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SLOWLY RISING CEA
I feel a little guilty writing because I have done so well and so many have not. I was diagnosed with stage II colon cancer 18 months ago...surgery, no chemo; close f/u. At diagnosis, my CEA was 7.5. It returned to normal, 1.5 within 6 weeks.My last 3 levels have been 2.4; 2.8; 3.2. (taken evey 3 months) I agreed to hold…
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Finishing My 6th Session Of Chemo Now And Just Wanted To Thank Everyone Here
Figured since this is the half-way point, good time for the post. I mentioned this before, but everyone here has been great. Reading the stories, the advice and the rest has made things so much easier. It helps me keep the low points to a minimum and has helped me to keep on going out and doing things as much as possible.…
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New to the board please help me
Going to see oncologist tomorrow had colon resection on May the 13 and needl biopsy of lymph node in the neck. Both came back as cancer adeno carcinoma it have multiple nodules on both lungs doctor said it doesn't look typical because it looks like both lungs were shot with bb's plus my liver is completely clear I know I…
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But the oncologist said just eat what you want...
CONCLUSION: Higher sugar-sweetened beverage intake was associated with a significantly increased risk of cancer recurrence and mortality in stage III colon cancer patients. CONCLUSION: Higher dietary glycemic load and total carbohydrate intake were statistically significant associated with an increased risk of recurrence…
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Clinical Trial: immunotherapy using tumor infiltrating lymphocytes (TILs)
hi, all. This will be my second clinical trial, and second attempt at immunotherapy. I've been accepted into this trial and here is a link to the trial. https://clinicaltrials.gov/ct2/show/NCT01174121?term=Immunotherapy+til&recr=Open&rank=7 This is the one where they harvest white cells (tumor infiltrating…
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Exciting Info for those with a certain mutation of colon cancer cell, they've had success
Around thre drugs drug that kicks in the immune system and attacks the cancer calls is called pembrolizumab, Nivolumab and (didn't see what third one is called) Unfortunately you have to have a certain mutation in order for it to work. Of 13 people that had the mutation, 12 had tumors shrink and some go away, many of these…
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Would love updates from several members....
Some that I've been thinking about, add your own: Mike ...thnxmixer (I know the name is wrong) phil64 Art ...fatbob alexinlv bailee2012 alex..maxiecat, so sad we haven't heard from her in so long. I hope she just didn't need to think about cancer anymore and winter Marie...I know you are posting regularly but haven't seen…
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Normal people problems!
Can anyone else appreciate having a crazy day...filled with just normal people problems? You know the stuff that might bring others down? But not us!! 8 am and it's been a full day...bring on the coffee. i woke at 5 not planning to give anyone rides. by 630 I find out that both teens need a ride ...same school, but half…
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JocelynR
Welcome to our forum JocelynR, please feel welcome here to ask any questions etc., there are many fine and welcoming people here, who can help you out sharing their own experiences. Again I'm glad you found us and that we can help you in some small ways. Winter Marie
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Scumbag!
This post will hopefully be deleted soon from our memorial thread; but really, I itched to comment even though I know that it is either a robtotic post or some scumbag who will never pull up this site again. How dare they hijack our site. How dare they hijack our memorial thread. And really, he lives in Indian? Can't they…
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Question re survival
Hi I was just wondeeung how much chemo increases survival by ? I see some ppl going for years and some not long . If chemo works can a person survive few years ?
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Just a quick update - NED for SRC, starting to deal with newly dx breast cancer
Hi Everyone, I am back after taking a break from dealing with Signet Ring (SRC) cancer. For those of you that don't know me... I was dx in 2012 with stage 3b SRC cancer with 4 of 18 nodes involved. I had the rt hemi and 6 months of Folfox. At about 1 year out from dx, I was experiencing daily pain and my CEA was going up a…
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How rare is this
How rare is it that I have colon cancer with mets to both lungs & lymph node in neck but liver is clear? Also doesn't this make it stage 4 ?
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Has anyone done a IV vitamin drip the day before chemo
hello all i hope everyone here had a chance to smile or laugh a little today because those two things are VERY IMPORTANT To our recovery just the norm of everyday things takes me to a differnt place before my next round of chemo. Tomorrow I go for round 9 of my 12 (Folfox& OXI cocktail) sessions. I know I read somewhere on…
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stage four colon cancer
* hello my name is kelly yoder and my husband was diasgnised with stage four colon cancer in april 2014. he is 33 years old and we have 2 children 17 and 9. he has raised my 17 year old her entire life and our 9 year old is his. we found out this is genetic and they keep telling us that the research they get from my…
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I miss our Dutch friends!
I miss my Dutch friends! We had the pleasure of their company for a mere 12 days....and in the process put a lot of miles on my car! Itinerary: Day One: pickup at LAX, visit in-process Medical Museum in Pomona, bring to Redlands. Day Two: JetLag day, around Redlands and up the mountains to Lake Arrowhead and around the Rim…
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TAS-102
Has anyone had the drug TAS- 102 or know much about it ?
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I'm having Hipec
Just got home last night from the Cancer Treatment Center of Americ. This was my best trip so far. I had a cea marker done. My original marker was 13.9 before surgery. It then went to 21.1, then to 28.1, then to 19.1 and now it's down to 8.1. This being after only 3 treatments. :) . I had a Ct scan done while I was there…
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Got results today from my oncologist......GOOD news!!!!
Went to my oncologist today for results.... she said we will do an MRI to determine exactly what it IS, but for certain is that it is NOT cancer!!!! DANCING!!! (She thinks it may be an untreated shoulder injury, and this lump is a sort of pillow my body created to shield the injury)..... BIG hugs to all!!!, Kathi
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Sepsis ?
Has anyone here suffered from sepsis during chemo ?
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One hundred and eighty seven MILLION dollars stolen from Cancer charities
Edited to make it readable. One really has to wonder what the world is coming to. Just a few charities involved here, but really, how can you steal money from good people and not just Cancer patients but children suffering as well? Sue - Trubrit Not sure where my head was when I wrote this post. Thank you, Marie who…
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Brand New Caretaker Seeking Advice
Hello All! I'm sorry to have a reason to join this tribe, but I'm glad I'm here. My husband was just diagnosed with Stage IV colon cancer (mets to liver and peritoneum). It's so new and, frankly, screwed up that I don't even know the specific diagnosis yet. Asking his oncologist to write it in the notebook I'm keeping for…
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CEA Levels is up after 8 years
Hello, I was diagnosed with Stage 3 colon cancer 8 years ago at age 26 and went trough chemo and surgery. At the time my CEA levels was in normal range. Unfortunetly i could not complete my Chemo and had to stop half of the way because of the serios reactions to chemo. I went my chekups first 2 years and luckly i was…
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Fever
I have been very worried as my dad has a fever since last night ? We have called the hosp as they said to keep an eye as he already had bloods checked a few days ago to rule out infections . does anyone have any advice as to what can be causing fever on chemo . I recall that he had a similar episode last cycle too but…