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Absolutely cannot get positive about my St. 4 dx
I just can't see past this. So bloody depressed, Don't know how to wrap my head around it.... it is driving me nuts. My onco was lovely but said "You know about the 2 year average? I can;t make any guarantees'. I know the traditional responses... It just sucks. sorry to vent but it sucks. T xx
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ALT levels? Help!
Hi all! I hope everyone is feeling and doing really well. I have a quick question for those of you who know way more about these things than I do.. For the past 2 weeks my ALT levels have been elevated when my blood is drawn before chemo. The first week my oncologists mentioned it offhand during my appointment and didn't…
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Susan Love Research Foundation needs info on SE of BC TX
I received this email from the Foundation today. They are trying to show that the cost of cancer tx is not just $$, but it comes at a cost to our bodies. They are requesting info on the SE you have experienced. If you would like to participate, the info is on the email below. Sandy Breast Cancer Survivors: Help Us Develop…
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Happy Birthday wishes to Kathi M ... 7/29
Happy Birthday dear one -- Enjoy your very special day. xoxoxo Vicki Sam
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Update on me
Hi all. I wanted to thank you all once again for the encouraging things you said in response to my first post "So angry..." from a few weeks ago. Much has happened since then! I've now had 3 chemo treatments (weekly Taxol for 3 months). Before the first one I had a fairly severe breakdown (just to recap, I have social…
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JUNE 28-FIVE yrs since radiation was completed!!!!!!!!!!!!!!!!
Thinking a few days ahead-the 28th marks the 5th yr since I completed my radaition. THE ONLY date I remember out of all the dates (diagnosis, surgery, etc etc.) I"LL be doing a HAPPY dance in my head. UNLESS you have been through it YOU dont' really get IT! Denise
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Texasgirl10 update
Hello all, I hope you are all doing well. We enjoyed a break from the heat last week. There were a couple of days with highs in the lower 70's!! That never happens in the heart of Texas in July and we had rain!! Dawne and I both really enjoyed that :o ) Dawne is hanging in there. She is very tired and does not feel well a…
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Daft Sods!
Does anyone remember the 'Daft sods club'? Or the PODS (pets of daft sods? ) Just thinking back.
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Candles for Chen
Below is a link where you can go to light a virtual candle for Chen if you would like to do so. http://www.gratefulness.org/candles/candles.cfm?l=eng&gi=Chen
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First Pamidronate infusion..... on dear!
Had my first infusion today, they send you home with a funny looking bottle in a bag hooked up to an IV. I decided that I could take it out myself (used to injecting the horses) Wow, did we ever make a right bloody horlicks of that between us! As I was removing the adhesive patch the tube flew out spraying blood all over…
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Red and pain skin after radiation
Hi my mom had suguery for breast cancer and did chemo and radiation. Her skin is all red, itchy and feel burn sometimes. The part being exposed to radiation turns black. She feels pain and I'm worried about her. I'm wondering can any body recommend a cream or something that can heal her problem. Thank you very much! Wish…
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FREE subscription to CURE magazine - A publication for those on the cancer journey
This magazine is great and I think you will really like it if you don't have a subscription already. It is free. Just go to their site and you can sign up for it. I got my new one yesterday and it is full of lots of good stories and information. The ACS does approve it and even sends along extra publications with the…
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Cinnamonesmile What did the Doctor Have to Say?
Just checking to see what you learned today at your appointment? Doris
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All Aboard The Pink Bus For Cinnamonsmile On July 25th!
Cinnamonsmile needs the pinkies on the pink bus on Thursday, July 25th. She is to see a thoracic surgeon and schedule a lung biopsy. I know she would love all of us to come and she says she wants the pink bus to be rowdy and have lots of food. OK, we can do that very easily, can't we? Sue :)
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Texasgirl10's first treatment on new chemo
Dawne had her first treatment of the gemzar yesterday. She was very sick last night and said she felt like she had the flu. That was pretty much what they told her to expect. She is not on steroids with this chemo and is very happy about that.Her lymphadema is giving her trouble, she is hoping not taking the steroids will…
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Chenheart
Hello CSN and Kindred Spirits.... I am Chen's daughter/neice Siobhan and I am writing to keep all of the people she loves informed on her current condition. She has been fighting the Beast with chemo for 2 solid years now and though we've seen some improvements here and there, alas we are out of options. Her cancer spread…
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My week in hospital
So, 3 weeks ago, I bent down to pick up something like a feather. Felt lower back go "sprong." I tried to let it work itself out for a couple days, taking motrin and finally went to my primary. She gave me a shot of muscle relaxant and Flexeril. Tried this for a couple days and lower back got worse. Then I saw my…
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The nightmare has ended I hope
We found a apt very nice Had to had the phone company out three times to fix the line no fun . New boss is nice giving me time to fix uo and settle in after that comes work Yea lol. Back to be being almost normal .Next is new PCP and getting to see the onco face to face
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All Aboard ... New Flower/Olga having a CT Scan -- Our Pink Bus is leaving the parking lot !!!
Positive thoughts and prayers for your dear Olga ... Fingers, and toes crossed as well. Vicki Sam
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chemo effects question
Hi everyone, So this is probably an over share but..... I'm on TAC to shrink my tumor. Good thing it is working but I'm having a strange effect from it. My eurethra is sore. Meaning hurts to touch or wipe. The doc said it is from the chemo. I'm wondering if anyone else has had this and what they have done to help the…
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Practical advice welcomed
Hi, Would like to know if there is any chance of getting a life ins. policy with no medical and no 'previous condition'clause... probably wishing on a star here. Also, any thoughts on how to INEXPENSIVELY make a will? have to start thinking about wrapping stuff up here. Thanks for any help/advice. J (Tash) xxxxxxx
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How do you carry on with life. Stage IV Need advice and encouragement
Hello my dear friends, If you have missed my unfortunate news, 10 days ago my diagnosis was updated and I am back to the professional ring. My pet/ct showed multiple areas in my spine on both sides, I have dusted off my boxing gloves and I am ready fighting back Today got Xgeva shot and will start Chemo next week Please…
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Suprise!!!! Update!!! It's ME!!!
Hey Everybody! Just want to let you know I'm still hanging around. Gonna bug you as long as I can! Yes, as is the common rumor, I am on oxygen and tired. I've received the beautiful quilt and just love it! Thank you for all the thoughts and prayers and work that went into it! A very beautiful, personal, loving gift and it…
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New poster here...
Hello all. I'm new to this board. I was also a poster in the non Hodgkin's lymphoma link 12 years ago. I was recently diagnosed with BC, stg I IDC, during a preventative bilateral mastectomy for being BRCA 2 positive. Nothing was ever seems on mammo or during SBE and the doc BE. So, now, honestly, I don't know if I can…
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Please read VickiSam's post on jamiegww, her daughter left a message
It has been a time of sadness on the discussion board. JamieGW daughter wrote of her mother's passing on July 18th. You might want to read the post which was put in under VickiSam's post for Jamie W. Doris
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New Flower / Olga -- How are you?
We are thinking and praying for you .. Please update us when possible. Love and gentle hugs, Vicki Sam
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What do I do???????
Hi Everyone, It has been a while since I have been on but I need some advice from my pink sisters. I have a friend who has ovarian cancer that went to her lung and is now in her brain. I call her home and just get the machine. I call her phone and the voice mail box is full. I text and no one answers. I know she is in the…
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OT - Update on Jenny
She was released from the hospital today. The doctors said that she had something called an eye stroke caused by her blood not circulating correctly due to a drop in blood pressure. All of this is treatable with meds. Thank you all for your prayers and good thoughts. Ellen
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Poem about death
I heard this on the radio this morning and I know it is kind of dark and I apologize for that, but the anger in it resonated with me and helped me somehow. I thought it might resonate with some other kindreds. I am po'd at this disease!!! Dirge without Music Edna St. Vincent Millay I am not resigned to the shutting away of…
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Weird how you view yourself now stage 4
I just can't look at myself the same anymore. So bloody scared. Tash xxxxx