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Chenheart
Hello CSN and Kindred Spirits.... I am Chen's daughter/neice Siobhan and I am writing to keep all of the people she loves informed on her current condition. She has been fighting the Beast with chemo for 2 solid years now and though we've seen some improvements here and there, alas we are out of options. Her cancer spread…
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My week in hospital
So, 3 weeks ago, I bent down to pick up something like a feather. Felt lower back go "sprong." I tried to let it work itself out for a couple days, taking motrin and finally went to my primary. She gave me a shot of muscle relaxant and Flexeril. Tried this for a couple days and lower back got worse. Then I saw my…
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The nightmare has ended I hope
We found a apt very nice Had to had the phone company out three times to fix the line no fun . New boss is nice giving me time to fix uo and settle in after that comes work Yea lol. Back to be being almost normal .Next is new PCP and getting to see the onco face to face
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All Aboard ... New Flower/Olga having a CT Scan -- Our Pink Bus is leaving the parking lot !!!
Positive thoughts and prayers for your dear Olga ... Fingers, and toes crossed as well. Vicki Sam
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chemo effects question
Hi everyone, So this is probably an over share but..... I'm on TAC to shrink my tumor. Good thing it is working but I'm having a strange effect from it. My eurethra is sore. Meaning hurts to touch or wipe. The doc said it is from the chemo. I'm wondering if anyone else has had this and what they have done to help the…
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Practical advice welcomed
Hi, Would like to know if there is any chance of getting a life ins. policy with no medical and no 'previous condition'clause... probably wishing on a star here. Also, any thoughts on how to INEXPENSIVELY make a will? have to start thinking about wrapping stuff up here. Thanks for any help/advice. J (Tash) xxxxxxx
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How do you carry on with life. Stage IV Need advice and encouragement
Hello my dear friends, If you have missed my unfortunate news, 10 days ago my diagnosis was updated and I am back to the professional ring. My pet/ct showed multiple areas in my spine on both sides, I have dusted off my boxing gloves and I am ready fighting back Today got Xgeva shot and will start Chemo next week Please…
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Suprise!!!! Update!!! It's ME!!!
Hey Everybody! Just want to let you know I'm still hanging around. Gonna bug you as long as I can! Yes, as is the common rumor, I am on oxygen and tired. I've received the beautiful quilt and just love it! Thank you for all the thoughts and prayers and work that went into it! A very beautiful, personal, loving gift and it…
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New poster here...
Hello all. I'm new to this board. I was also a poster in the non Hodgkin's lymphoma link 12 years ago. I was recently diagnosed with BC, stg I IDC, during a preventative bilateral mastectomy for being BRCA 2 positive. Nothing was ever seems on mammo or during SBE and the doc BE. So, now, honestly, I don't know if I can…
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Please read VickiSam's post on jamiegww, her daughter left a message
It has been a time of sadness on the discussion board. JamieGW daughter wrote of her mother's passing on July 18th. You might want to read the post which was put in under VickiSam's post for Jamie W. Doris
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New Flower / Olga -- How are you?
We are thinking and praying for you .. Please update us when possible. Love and gentle hugs, Vicki Sam
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What do I do???????
Hi Everyone, It has been a while since I have been on but I need some advice from my pink sisters. I have a friend who has ovarian cancer that went to her lung and is now in her brain. I call her home and just get the machine. I call her phone and the voice mail box is full. I text and no one answers. I know she is in the…
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OT - Update on Jenny
She was released from the hospital today. The doctors said that she had something called an eye stroke caused by her blood not circulating correctly due to a drop in blood pressure. All of this is treatable with meds. Thank you all for your prayers and good thoughts. Ellen
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Poem about death
I heard this on the radio this morning and I know it is kind of dark and I apologize for that, but the anger in it resonated with me and helped me somehow. I thought it might resonate with some other kindreds. I am po'd at this disease!!! Dirge without Music Edna St. Vincent Millay I am not resigned to the shutting away of…
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Weird how you view yourself now stage 4
I just can't look at myself the same anymore. So bloody scared. Tash xxxxx
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How are you doing Boppy_of_5/Janice?
Janice, you are always so sweet to post news, good or bad, about Dawne, and, we all appreciate it so much. You are such a dear friend to her. You haven't said how you are doing lately. I hope that you are feeling well and doing well. Drop in and post some news about yourself for us! Hugs, Lex
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I did this for us, Pink Sisters..
I walked the survivor lap at the mini relay for life at my grandson's school today. He was able to walk it with me and he was so proud.
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I've Been Quiet About My Lung Problems
I had a terrible cough from January to late April. In Feb. I had that awful appenidix surgery disaster. NO ONE HAD TOLD ME THAT MY LEFT LUNG SHOWED ATELECTISIS (general term for multiple problems) I imagine it as a shadow spot that doesn't belong there. My doctor put me on antibiotics for 14 days. No relief, so she put me…
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whether to have reconstruction or live with the prosthesis
I was diagnosed with breast cancer and had a double mastectomy in Jan. 2013. I just finished chemo (yea!!) and will be starting radiation in a couple of weeks. I need some input about my future decisions. I can't decide if I should have reconstruction or live with the prosthesis. I am 62 yrs old. Don't know about the…
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announcing a new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Dropping In to say HI
Hello you beautiful people. It's been quite some time since I've posted. For those of you who remember me, I am usually trying to run as fast as I can from this beast. That's why I keep my posts few and fewer. I have checked in periodically to see how everyone is doing, though. Glad to see that you are all (most) doing…
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SIROD - Doris .. Please check in with us, when time permitting :)
Please share with us how you are doing ... Vicki Sam
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Officially Diagnosed...bummer
So, here I am. Officially diagnosed with ductal carcinoma. We don't know if it is "in situ" yet, so prayers, good vibes, whatever you've got- send our way. Thank you to the ladies who pushed me to insist on a biopsy! Cancer, indeed, knows no age. -Molly (Age 30)
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Mammogram clear!
Hi Everyone, I was diagnosed in 2009 and everytime I have a mammo, I worry. So, I am passing on my good news....NED. I also had a bone density test. Not sure what they will do if there's a problem because I have TMJ. They say that the medication for oesteoperosis can cause neucrosis of the jaw and the chances of that…
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I have some happy news
Sometimes when there is such sad news on the board it is hard to share happy news, but, in my heart, I know it is important to share good news too. I saw my oncologist of 26 years today and he was THRILLED with my PET scan. He even wrote across the top of the report "great response." He told me 2 more rounds of taxotere…
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Miss Renee
How are you doing? It is hard to know when the site has been messed up, if people are not posting because they get frustrated, busy, on Vacation or whatever, or if they are struggling and could use support. VickiSam and Sirod, have been wonderful in keeping up and asking after others. With me lately, by the time something…
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Check in -- Carol/Camul
How are you doing dear Sister ? Please check in with us when you can. We are worried and thinking about you. Vicki Sam
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Beautiful card and words from Sbmly53
Yesterday I received a beautiful card from Sue. Thank you. Your are so thoughtful and it means so much:)) Hugs and Love, Carol
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Videos from cancer professionals
Hello, There's a few videos on breast cancer specifically to make it understandable for patients here: www.ecancerpatient.org. There's quite an interesting one on BRCA1/2 and the importance of getting yourself screened http://ecancerpatient.org/video/68/how-genes-influence-your-risk-of-developing-breast-cancer.php Another…
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Chenheart -- Any word, or updates?
We can use an update on Claudia ... ? Anyone ? Vicki Sam