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Brain Cancer

GBM GRADE 4!
My mother-in-law has just been diagnosed with GBM grade 4. They say she has a butterfly glioma and that it is inoperable. They have given her 4 months to a year. She is 59 y/o.I hate timelines and we are not giving up HOPE! I would love to hear what treaments have worked for others with this diagnosis. We are also…
Brain Stem Glioma
I am a 43 year old mother of 3 boys ages 12, 10 and 6. During my first pregnancy in 1999, I experienced pin & needle sensations in my hands and down my legs. The sensation lasted in my legs for approximately 6 months after delivery, and periodically resurfaced in my hands throughout the years. In 1999 I was sent for an…
Stage 4 Metistatic Melanoma
in June 2008 the VA removed stage 3C Melenoma from my back leaving me with a large scar but after that the only follow up was to see dermitology for somthing else to show up. Nothing else was done,not even scans. • On Sunday night, 29 March 11, while at the top of the stairs, my left leg that is in a permanent brace from…
My father nearing death.. please help
I have been looking all over for some sort of comfort and understanding. I am 23 years old and I have a father that is dying of lymphoma in the brain. He has had it since 2007, but has recently had a new tumor that is inoperable and that is doing an extreme amount of damage. It has grown tremendously in the past 3 weeks,…
Anaplastic Astrocytoma, Grade 3
I am wondering if someone besides my sister is living with primary brain cancer and has suffered from other cancers as well. She is surviving anaplastic astrocytoma and has been since 1999. In her twenties, per-cancerous polyps were removed from her colon (mom diagnosed with colon cancer at age 46) and at each regularly…
GBM 2 month update
Hoping to hear from some of my friends....this page is soooo hard to navigate, when I want to see posts of friends I cannot figure how to pull them up.....anyhow It's been 2 months since my dad was hospitalized. He is in the hopspital today with his first bloodclot. It's large and they are starting thinners. He has 2 weeks…
Long term prognosis for malignant convexity meningiomas?
Hi all My lovely 19 year old daughter has recently had a malignant convexity meningioma removed from the back of her head. Docs are confident they got it all but the brain surface was reddish and they said this might mean some malignant cells remained. She has just fininshed 6 weeks of radiation and is diong perfectly but…
Recovering from brain surgery
Well, so much happened in a short amount of time that I don't really know where to start. David has been struggling with excruciating headaches for a while now. Since July, I guess. After several different types of MRIs and several trips to the ER, his NO scheduled another craniotomy for Tues. 9/27. On Monday he was rushed…
Primary (CNS) Lymphoma in immunocompromised organ transplant patient with multiply masses
The diagnosis given for immunocompetent patients is different to ummunocompromised patients for obivous reasons. My significant other was diagnosed with inoperable primary (CNS) Lymphoma. There are several masses throughout her brain, some deep within and others somewhat on the surface. She does not want to lose the…
Dexamethasone and Night sweats
Has anyone experienced having night sweats while on this drug?? I seem to have night sweats whenever I take dex and it's very irritating.
Adult Medullablastoma
Close family member has been diagnosed with tumor on brain stem. He refuses treatment and is reluctant to talk to anyone about it. Not sure what to do now! Please help, need advice.
GBM dead in 23 days
My hubby Neal, developed a hand tremor and nausea in mid-August. He started lying around too much and being more forgetfull in July, but these symptoms were subtle. On August 27, he got confused trying to use a computer program, and the next day I took him to the ER and his entire body was CT scanned. The Head CT showed…
Any young adults with brain tumors in Dayton/Cinncinati area?
Since our son (age 34, diagnosed AA3/GBM 4-13-11)had to move home with us from Virginia, he has lost contact with any friends he had back there. I'm wondering if there are any other young people battling the same thing who would like to get together...maybe for an outing or just lunch? Our son David has some deficits from…
Please help.. Survival date
Hi. My husband Of one year was diagnosed w an anasplastic astrocytoma grade 3 in July. He has had partial resection , gliadel placement , steroids and temadur now. He's 41 and we are optimistic but have read probably too much. Is there ANYONE with info with long standing survival numbers . Please tell me what you have…
Inoperable GBM Brain Tumor that Refuses to Shrink
Hello Beth, and everyone else who might be able to help me out very quickly since time is of the essence, and I am desperately looking for a forever solution. Beth, could you please email me the information for the doctor in Kosovo that you located? I would really appreciate this, and hopefully it may even save my dad's…
Please help.. Survival date
Hi. My husband Of one year was diagnosed w an anasplastic astrocytoma grade 3 in July. He has had partial resection , gliadel placement , steroids and temadur now. He's 41 and we are optimistic but have read probably too much. Is there ANYONE with info with long standing survival numbers . Please tell me what you have…
Need Advice Quickly
Hi all, I can't tell you what a relief it was to find these boards after my husband was diagnosed with AAIII. Unfortunately, I found them too late for some of the information to be useful BUT you always gave me HOPE. My husband is losing this battle quickly and the doctors have told me that there is not much more they can…
Help me ask the right questions
I had started a thread pre surgery asking questions about my boyfriend’s cancer which was diagnosed as Anaplastic Astotyoma. He has now completed surgery, pathology came back grade 2 oligodendroglioma. After a scan and seeing the oncologist, he informed us this cancer has started to expand to the right hand side of his…
Has anyone had experience with this?
The muscle right under my husband's eye has been moving all the time lately and I have also notice his shoulder and arm will sometimes do it as well. His arm movement sort of looks like when you squeeze something real tight and your body "shivers" for lack of a better word. It's hard to explain but I was wondering if…
FDA Approves ISORAY's GliaSite Treatment for Brain Cancer
This may be too late for some of us but has anyone heard of this treatment for brain cancer? The article looks very promising. The treatment occurs AFTER surgery and the radiation "seeds" are implanted directly at the tumor site. The FDA just approved this treatment on 9/12/11 SO for those of you that are beginning the…
Our 19 yr old has GBM IV
We're seeking contact with other parents of young adults dealing with this disease. Our 19 year old son came home from first semester at college with odd symptoms. Biopsy in January: Inoperable GBM in left temporal lobe extending into the insular capsule and downward toward the brain stem that "appears aggressive." He had…
Grade 3 Fibrillary Astrocytoma and deuling doctors
My hubby had only hand tremor, nausea, and a single episode of confusion by August 27, 2011. He had diffuse periventricular masses on CT and MRI and stereotactic biopsy on 08/31 finally came back from Mayo on 09/12 as Grade 3 Fibrillary Astrocytome. His first oncology appointment is August 15. Since August 28, he has…
Tumor growth/Avastin--can he go to college, work?
David and I are in Maryland at the National Institutes of Health. We received the all the test results earlier today at NIH. They were not what we wanted to hear. The tumor increased in size--approximately 25% increase while on the experimental chemo, Sutent. The increase was enough that David will no longer do this…
Anaplastic, Grade III oligodendroglioma
Hi - I'm new as of tonight. Pardon me if I start crying. My 76 yo FIL was diagnosed with an anaplastic Grade III oligodendroglioma. Officially, the report came out today; final genetic studies remain pending. Dad underwent a craniotomy almost two weeks ago at Rush in Chicago. His neurosurgeon called me today with the…
Anaplastic Astrocytoma - Reaching out - Pre surgery questions
Hi, I was hoping someone who has gone through a similar situation, someone diagnosed with the same type of cancer or family and friends, might be able to answer some questions. My boyfriend of 5 years, age 29 was diagnosed three days ago with anaplastic astrocytoma. This all only began 3 weeks ago, starting with severe…
inoperable now they want to operate
7 months ago my sister was dx with GBM 4 they said it was inoperable it was deep with in the white matter, She did radiation temador and some avastin. The radiation was cut short one day. The temador was cut short one week during radiation and we only got 2 cycles of the 5 day temador, I think we got avastin 3 or 4 times.…
GBM diagnosed in May 2011 Having more symptoms after treatment
I was diagnosed with GBM IV on May 1, 2011. Had resection surgery on May 3, 2011. Once the incision was healed enough, I started radiation and chemotherapy after 3 weeks from the surgery. On the following Monday to start the first full week of radiation and chemotherapy, I developed spinal meningitis and a staph infection…
Skull based Institue
have any of you had experience with or heard of the skull based institue in Los Angeles? I believe the doctor's name is Shehanan.
Glioblastoma Stage IV
My mother (56) was diagnosed with stage IV Glioblastoma on 13 May 2011. Since then it has been a roller coaster of treatment and emotions, a literal nightmare. Due to the location of her tumor, she is not a candidate for surgery so her only treatment options at the moment are Radiation and Oral chemo with Avastin to…
hate this cancer
I hate this cancer and what it is doing to my family, It has taken my family and ripping us apart. We should be standing together and helping my sister. The cancer, decardron and morphine have changed everything. My heart is broken I cant even talk with my sister. Her children are fighting, Im getting pushed away. I dont…

Brain Cancer

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