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Head and Neck Cancer

Archives for June 2018

6 month post treatment check up
I had my 6 month post treatment check up yesterday. ENT scoped me and all was clear. NED! They want to do another PET or CT scan w/contrast (whichever insurance will allow) in Sep when I return. Every day is a blessing. I live in Panama City Beach, FL but decided to have my treatment at Levine Cancer Institute in…
Scar tissue
Hi I've recently had my 2 year mri following a tiny low to intermediate grade mucoepidermoid carcinoma on the tongue tip removed. My consultant said its a clear scan with the scar tissue having shrunk in size since my scan a year ago. However I read stupidly radiologist report which said area in tip lit up and can't rule…
Infusio dendritic cell based vaccines
Hello everyone I'm new to this group I was diagnosed with glotis cancer HPV in March of 2016. I had surgery chemo and radiation. I thought cancer was in my past but this December they found three spots on my lung had it removed with surgery and my latest scan shows two lymph nodes in my chest beneath my hilum. I m trying…
New to group/surgery question
Good afternoon, My husband was recently diagnosed with lingual tonsil SCC, still waiting on HPV status, hoping for positive result because prognosis seems much better (from what I have read). In 1 1/2 weeks he will undergo a TRANSORAL ROBOTIC BILATORAL LINGUAL TONSILLECTOMY and neck dissection to remove lymph nodes in neck…
7 weeks post radiation still mucus
I thought and doctors said the norm is 3-4 weeks. I am on my seventh week post rad and the mucus is still there. I want to start eating but the mucus makes it difficult. I have been getting some taste back and I want to get off this feeding tube and eat. Damn food commercials on TV are killing me. Its difficult to sleep…
Spell Check
Does anyone know if there is spell check as when you are composing new or leaving a comment. I have made some bad spelling mistakes and when I reread they really stick out but have seen no indication of a spell checker. I have been looking to try and turn it on but cant find it maybe there is none-anyone know-thanks
365 days out of treatment today
Thats the first year done no side effects remaining in any way I was mostly back to normal after 4 months.
Back from KU Med
Choices to be made ct scan showed a very large tumor back/base of tongue stage 4 one node, went through my nose looked around said epiglottis was not affected. Upcoming biopsy to determine exact pathology. He said surgery was would need to remove entire tongue but that would be my choice. The board will discuss it after…
Does my throat look normal?
I've been depressed for years and just started smoking few weeks ago. Sometimes i am having fever and feeling lump in my throat. Thank you guys...
7 months post - what test do you do now?
I am 7-months post treat for stage 3, HPV+, BOT, SCC. -- I am 100% back to normal. Weight has returned, no fatigue, no lymphedema, and only slight saliva loss. At 3-months I had a PET scan and the oncologist told me my cancer had metastasized to my heart and lung area. A followup CT scan showed that to be wrong and that…
Into the void I go.. KU Med
Into the void I go.. 61 year old male heavy smoker,, and drinker at times... stopped drinking almost 3 years ago. Ear and throat pain Jan 18.. no primary doc. Went to clinic got antibiotics.. went back 3 weeks later got another round... went to dentist pulled 2 teeth... still had pain then it stopped. Went back to dentist…
First scan post radiation for tongue cancer met
I'd like to let folks know that my husband's first scan post radiation was all good, no evidence of disease. Thank you to everyone who took an interest in his case, especially kak0402, katlou, and Gavin. His cancer began with leukoplakia on tongue, which was monitored for several years unitl the dysplasia became stage I…
Biopsy....potential recurrence
Hello, Its been 2.5 years since last treatment for HPV tonsil cancer. Had a small painful sore on top of my tongue that won't heal. Looked like a canker sore. Biopsy Friday. Waiting game. ENT said it would be "very rare" for it to come back in the middle of my tongue when it was previously in tonsil/throat region. Well I…
Biopsy....potential recurrence
Hello, Its been 2.5 years since last treatment for HPV tonsil cancer. Had a small painful sore on top of my tongue that won't heal. Looked like a canker sore. Biopsy Friday. Waiting game. ENT said it would be "very rare" for it to come back in the middle of my tongue when it was previously in tonsil/throat region. Well I…
I'm Back and so is cancer
Hi all Been a while since I visited the site for various reasons but mainly because I hated reading bad news. I could never understand how I could feel the pain of others added to the gut wrenching sadness I felt for people I never met. I have come to realize and have known for quite some time it’s because we all share a…
Partial Glossectomy Yesterday 6/21/18
Good Morning First I would like to give God the Praise Glory for a successful operation that went well. And thank him for the all the many who were praying so fervently for me. And for the great medical team I had that made everything go so smoothly and successfully. That applies over the whole gamut of my care at the…
6 months down the road; is this normal?
Ladies and Gents, I finished 35 rad and 7 Cisplatin treatments mid January; I was doing ok until about 6 weeks ago when the Limphedema started getting real sore in my upper and lower Jaws; I'm getting worked on once or twice a week by PT and others trying to open up the drainage, plus I'm wearing a head wrap, but it's sure…
Longer Time
Hi Everyone, I have not posted a NED thread before mostly because my kind of cancer was different from the norm. Most here suffered through SCC and have a 5 year clear goal line. Mine was Mucoepidermoid Carcinoma and not as bad if caught early. The main difference was not getting chemo because they said my C wouldn't…
New to board
So I am new to the board and group. While I have not had an actual diagnosis of cancer of my tongue, I was diagnosed with high grade dysplasia. I know my diagnosis could be worse, but I can’t get the worse case scenario out of my mind. Anybody with experience with this and advice? I’m am so scared that maybe I have cancer…
lump in neck
Hi im a year and a half post treatmant for HPV ,PRIMARY TUMOR WAS IN TONSIL.Has any one had a lump come back in neck that wasnt cancer
skipping radiation/chemo after surgery for neck cancer
I have surgery scheduled for July 3 to remove my left tonsil and some lymph nodes that most likely is caused by HPV (I'm in my early 40's, male, never smoked). last Thursday I got the chance to sit down with my "team" of doctors to discuss my treatment. My doctors want to follow up surgery right away with 14 days of…
5 years officially "Cancer Free"
It has been a long time since I was here, but wanted to let all new folks here that there is a light at the end of a miserably long tunnel. ENT says she only needs to see him once year. Long list of long term side effects but he is glad to be here today. 2 years ago today he was able to walk his daughter down the aisle.…
Finished my 7 weeks of treatments
Hello all I just finished my 7 weeks of treatment this past Friday and I faired pretty well compared to others. No pain other the skin pain and that is because the last week my skin finally broke down and I have a few sores in my mouth that week as well. My questions are when does the skin heal because the pain is awful…
Will immunotherapy help repeat base of tongue cancer
After throughout 2 years. 2 surgery(1 base of tongue,1 lymps), 35 radiology and 12 chemos , base of tongue cancer growing. Now my father should get immunotherapy and 6 light radiology. I am completely hopeless. Is this the end ? Will immunotherapy help at all ?
Question For the Experts
Hey folks, just want to run this by you. I’m a 39 year old maLe, smoked marijuana and drank pretty heavily in my 20’s, haven’t smoked anything in over 10 years have a glass or two of wine every day. Two weeks ago today I got a sore throat which hasn’t responded to any otc medicine. It gets better for a day than goes back…
BASE OF TONGUE CANCER
Hi eeveryone. My father has base of tongue cancer since mid-end 2015. It was found only october 2016 as a base of tongue cancer or carcinoma.He got succesful surgery january 2017 removing the mass which was huge. after that he got 2 chemos and 35 radiology ending novemebr 2017 which shrank the the tumor andsome in lymph…
Lymphedema and ear pain?
Hey all - does anyone have any experience with ear pain that may be caused by lymphedema, or by the lympedema massages? I've had pretty significant lymphedema on the right side/tumor side of my neck ever since the surgery to remove BOT cancer and neck dissection in December, just started getting the massages/therapy about…
23 Months Post NED
Hello all. Been some time since I posted to the site. I hope all are doing well and those in current treatment are receiving the advice they desparately need. I know this site helped me during my time in treatment. I had a 23 month post treatment ENT appointment today for Stage IVA Tonsil cancer (T2N2aM0). Cancer had…
ENT Visit Preop-
I had my ENT visit on Tuesday June 12, 2018. This was for preop consultation and any questions I had relating to the cancer under the left side of my tongue. I have been calling this a recurrence of cancer from my previous episode of throat cancer but the ENT says it is not a recurrence but another cancer a new episode of…
Five Years and Still Going Strong
Friends It is has been a long long while since I have been here but turned the corner and it was my 5th year anniversary of ending treatment and being declared cancer free. In two weeks I return to the wonderful place of hope and healing at MD Anderson Houston for my fifth year checkup (you know what that means -- sniff…

Head and Neck Cancer

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