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Head and Neck Cancer

Archives for June 2018

Interesting information for the new comers
I am a 3 1/2 year survior of HPV positive Tonsil cancer and finished 6 weeks of IMRT with no chemo 3 1/2 years ago. I got 70 GY on the left side of my neck and 35 GY on the right side. Other than some dry mouth which has imroved significantly since treatment, I am doing great. The following video talks about de-escaltion…
Hi All! I'm checking in
As some of you know, I've had a hard ride but I just finished (about 3-4weeks ago) my second course of radiation to the area where my cancer had spread. In March, I was in hospital, unable to see, walk, or dress myself. I was prepared for death but amazingly there were treatments that gave me quality and my life back, for…
Intamacy- Sex after Treatment
Those who have gone throught the HPV+ treatments and now submitting to the annual PET scans. THose who are clean after 1,2,3,4 plus years. Are you still having sex? Are you taking any precautions?
Radiation causing skin cancer
Well I went to my dermatologist because I have had a rash on my arms for the last 6 weeks. He let me know that it was due to the changes in my skin brought on by the Cisplatin. I have been out of treatment just shy of 1 year, but he said this could be a life long side effect. I was prescribed some creams which do help by…
Soreness under jaw
I'm coming up on my 6 month check up post treatment June 27th. Three month PET/CT results were NED. Thank the Lord! A few weeks ago the area under the right side of my jaw started feeling sore to the touch. No noticeable swelling and didn't feel any pearl shaped nodes. I was diagnosed with BOT Stage IV Aug 2017 (now…
Peg Tube removal
After 10 long months, I have just received the word that I can have my PEG tube removed! Happy Day! The doctors office was pretty vague about the procedure. Does anyone have any words of wisdom or hints or tips that I should be aware of before hand? Thanks Deb
Chemo radiation to lymph nodes vs neck dissection
Hello, it’s been a while since I last posted . The first time was for treatment advice for my husband back in December 2017 and many members offered very useful information at that time. My husbands 13 week post treatment PET scan is approaching and the scanxiety I see discussed on the boards here is setting in. His…
saliva glands can they be transplanted
I had radiation to the head and neck and it fried 1 part of my saliva gland. All I have is the sticky part and it makes eveything hang in my throat. Although I have a feeding tube I cough alot because of that saliva. I found a doctor that can help me swallow food again by reconstructing my throat and removing my voice box…
constipation
Alcohol after treatment
My bf of 22 years never told me how bad his swallowing was getting. When his voice changed dramatically and I was able to drag him to the hospital we learned he had Stage IV HPV scc tonsil cancer. His tumor was between 5 to 10 cms. He had emergency tracheostomy and feeding tube. We've ended 40 rads and 3 Cisplatin. PET…
End of week five no pain but thick mucus....HELP!!
Hello everyone.... Today marked the ending of week five and I’m fairing pretty well my doctors tell me. Aside from being tired all the time and now build up of mucus is gagging me and making me throw up!! And secrets or suggestions to help with this??? I have two weeks left and I am anxious and waiting for the ball to drop…
P.E.T. Scan Results
I got a call from the ENT's office this morning about the pet scan I took yesterday and it shows NED no cancer in the rest of my body. Praise the Lord I had and have many people praying for me. This takes a bit of a load off my mind and my being at least now I only have the tongue to be concerned with. I am thankful we are…

Head and Neck Cancer

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