Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Gynecological Cancers (other than ovarian and uterine)

I must start taking Megace!
Please someone help me! I must start taking Megace for my recurring low grade uterine stromal sarcoma! I have heard horrific stories about side effects of this drug! Has anyone out there taken this?? Let me know how you did, OK? Thanks, Candy
Why am I struggling?
I am new to this website. I am a 3 1/2 year survivor of adenocarcinoma in situ stage 1b and had a hysterectomy during my prime child-bearing years. I am still grieving. It is not that I don't feel lucky to be alive - I certainly wouldn't trade that for anything. Does anyone else feel that because you had cervical, you…
Pre-menopausal uterine cancer survivor
I am looking for women like nyself who have survived uterine cancer. I am 40 years old and had surgery in June '02 to remove a rare uterine sarcoma. While I've been very lucky so far, I live with it every day. I've read alot of stories about not listening to your doctor and going with your instict and I'm a strong…
relations after vaginal radiation
I've just had a total hysterectomy 3 weeks ago for clear cell endometrial cancer (luckily stage 1a) and my doctors are recommending radiation therapy. One of the side effects is stenosis (scarring and tightening, shortening) of the vagina which will make intercourse painful. I am about 15 years younger than the average age…
16 Year Old w/Bartholin Cancer
My 16 year old cousin was diagnosed today with Bartholin cancer. She had a biopsy on Friday and was told today it was this type of cancer. I am trying ti find a website that describes the cancer, treatment, outlook, etc. in layman's terms. I know nothing about this type of cancer and am trying to find info for her mother.…
looking for some advice
My mom is having a radical vulvectomy the first week in february. I am looking for information on what to expect afterwards. I can't really find anything on the web about pain, etc. after surgery. I am a full-time student and mother, but I will be her caretaker after surgery. I will be staying with her and commuting 3…
The bills after
I feel like I have beat the cancer. I had a complete hysterectomy November 1, 2004. But now I'm afraid to check the mail or answer the phone. My Insurance will not pay the hospital bills. I have work for this company for 12 years same insurance and they say they will not paid. I was off work 2 months I'm behind in my rent.…
Age 41, Just had my hysterectomy...
on Oct. 21st. It was a full hysterectomy and it included the removal of my appendix. The endocarcinoma was graded 1. I am still waiting on the lymph node lab reports. Since the operation I have been feeling a burning sensation on my right pelvic area, it is not constant. Has anyone had their appendix removed during the…
After Effects, I'm not alone!!!
I cannot put into words how much it means to me too finally read about the concerns of other women regarding their emotional and sexual problems since their internal and external radiation treatments. For about a year now I have been reading on this site to hopefully one day find someone out there that is experiencing some…
Need info on Saline given along with Chemo
I am to start getting my chemo treatments Sept.17th. Was told by my chemo Dr.`s nurse that I would be getting 2 hours saline,then 1 hour chemo,then 2 hours saline. I am to have this once a week for 8 weeks. I am wondering if anyone has had this same kind of treatment. His nurse told me they go by how much you weigh an your…
peripheral neuropathy
Hello, I was wondering if anyone has nerve damage in their legs/feet from the cancer treatment. I received radiation, chemotherapy and brachy therapy for cervical cancer. I have been diagnosed with having peripheral neuropathy. I started having difficulties walking and balancing about 3 months after my treatment was…
cervical survivor anyone feel like me
i found out that i had cervical cancer one year ago in june i was supposed to go in and have a radical hysterectomy when they opened me up they said that the cancer had spread so thay had to remove two nods on one side and one nod on the other , but they did not remove my plumming instead they closed me up gave me a month…
strange pains following hysterectomy need advice from others on what to expect
I was diagnosed with endometrial cancer in September 2004 and had a hysterectomy a month later. Although it has been two months since surgery, I have sharp, stabbing pains around my abdomen and incision. When I have mentioned this to my doctor, he tells me to expect pain for about a year. I would like to hear from others…
Thank you all!
I have been reading some of the messages over the past few months & have been on an emotional roller coaster myself. Thanks for the encouragement from some of your messages. I have been in remission a year and a half. I have been struggling with everything that has happened still. I didn't know if that was normal. It…
vulva excision laser surgery
I just found out that I have to have this surgery for vulva carcinoma and I am so scared. I do not know what to expect after surgery. I don't know if I will be real sore afterwards for quiet sometime or if there is alot of pain,because I do not handle pain very well.My doctor told me I would probably have to sit on a…
new diagnosis
Help! I am only 26 years old and I have no children. I only had a D+C because of abnormal bleeding. Previously diagnosed with endometriosis and PCOD. The doctor wants to do a hysterectomy next week. Any suggestions? Is any one else getting this disease 20 years too early?
can anyone help me
My mom was just diagnosed with vulvar cancer. I am trying to see what the normal course of action is, what questions to ask the dr, and how i can help her the most? Is there something in particalar i can help her to prepare for? What is the normal course of treatment and life expectancy? I would really appreicate it if i…
Uterus cancer(what chemo is used to treat clear and serous cell type)?
In august 2003 I was fainting from loss of blood (long periods) . Had surgery to remove Uterus cancer stage 2 or 3(invaded cervix) by full hysterectomy.I had 3 lots of chemo carboplatin/epirubisin, then 6 weeks radiation treatment followed by 3 more lots of carboplatin/epirubisin . CA 125 was 50 after surgery decreased to…
STILL HAVING DISCHARGE ONE YEAR AND A HALF LATER
I WAS JUST WONDERING IF ANYONE STILL IS HAVING A PROBLEM WITH DISCHARGE IT IS DRIVING ME CRAZY I WANT IT TO STOP
hip/pelvic fractures
I was dx'd with cervical cancer in feb '02 @ age 37. Went thru 6 weeks of external radiation w/chemo, followed by a week of internal radiation. After a sudden onset of lower back pain, I found out today that I have an "insufficiency fracture" of my pelvis. Apparently the radiation caused enough damage to the bones to…
Could Use some input!
Hello... my name is Lyndsay Davis and I am a writer for the Big Green, an online magazine at Michigan State University. I am currently writing a story on how important it is for young women to be aware of cervical cancer and its causes. I could really use some input or possibly a short phone or email interview with a…
After-Care
What are some of the symptoms you are experiencing and how could those needs be addressed?
prescribing provera for thick uterine lining
i had ultrasound,and she(nurse practioner)said my uterine lining was thick,and could cause cancer. she prescribed provera to use for 10 days,and then said i would have heavy period,adn then they would do another ultrasound. shouldn't they do a biopsy or something now? i am 47,and they did test in march to see if i was…
Adenocarcinoma: Which Surgery?
I have been diagnosed with adenocarcinoma and am trying to decide between a radical hysterectomy and radical trachelectomy. My onco/gyn is not as hip to the trachelectomy becuase of the nature of glandular cell cervical cancer, and there's no guarantee that the place he chooses to cut the cervix would leave no cancer…
Post-hysterectomy bleeding from incision
A friend of mine had a radical hysterectomy a month ago (for uterine & cervical cancer), and her incision is still bleeding. Have other people had the same experience? If so, how long did it last? What made it better or worse? I had a rad. hyst. over a year ago & didn't have this problem, but I had two drains with bulbs on…
cervical,spine, and lung cancer
Hi, my name is Kristi. i am 33 and i was diagnosed with cervical cancer in 2000 and it came back in 2002 on my spine and back again this year on my lung. I am considered terminal. i was just wondering if anyone has had cervical cancer and it spread to the lungs? I developed a bad cough last year and the doctors found out…
Pre-cancerous? and Scared
Hi, Im a 39 year old overweight female with a past history of acromegaly, a growth hormone secreting pituitary tumor, which causes excessive growth and hormone havoc. I was just diagnosed with complex hyperplasia with atypia, I believe with atypia because they said abnormal cells. A transvaginal ultrasound also revealed a…
Roll Call
Hi I wanted to start a thread where we could all just answer a few basic questions about our diagnosis and status... When were you diagnosed? What stage were you diagnosed ? What was your treatment ? What is your status today ?
Yearly Check Up Time
Next Monday I go to Mayo Clinic for my yearly post op exam. I see my local Dr. at 6 months for a pap and Mayo at 6 months for CT Scan, blood work and chest x-ray. It seems when September 1st roles around I begin the panic phase. I ended up going to my local clinic last week due to kidney pain. I kind of freaked out because…
Post-hysterectomy bleeding from incision
A friend of mine had a radical hysterectomy a month ago (for uterine & cervical cancer), and her incision is still bleeding. Have other people had the same experience? If so, how long did it last? What made it better or worse? I had a rad. hyst. over a year ago & didn't have this problem, but I had two drains with bulbs on…

Gynecological Cancers (other than ovarian and uterine)

Discussion List

Discussion Boards